The 20 Best Collagen VI-Related Myopathy Doctors Near Me in Rochester, NY

Find the Top Collagen VI-Related Myopathy Experts and Specialists

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    Last Updated: 01/09/2026

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    MediFind found 4 doctor with experience in Collagen VI-Related Myopathy near Rochester, NY. Of these, 2 are Advanced and 2 are Experienced.

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    4 providers found
      Experienced in Collagen VI-Related Myopathy

      Dr. David Herrmann

      Neurology
      Experienced in Collagen VI-Related Myopathy

      Dr. David Herrmann

      Neurology

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      585-275-2559
      Languages Spoken:
      English
      See accepted insurances

      David Herrmann is a Neurologist in Rochester, New York. Dr. Herrmann is rated as an Experienced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Charcot-Marie-Tooth Disease, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, and Spinal Muscular Atrophy with Arthrogryposis.

      Advanced in Collagen VI-Related Myopathy

      Dr. Alrabi N. Tawil

      Neurology
      Advanced in Collagen VI-Related Myopathy

      Dr. Alrabi N. Tawil

      Neurology
      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      585-275-6372
      Languages Spoken:
      English

      Alrabi Tawil is a Neurologist in Rochester, New York. Dr. Tawil is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Spinal Muscular Atrophy (SMA), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Limb-Girdle Muscular Dystrophy Type 1B.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Collagen VI-Related Myopathy

      Dr. Chad R. Heatwole

      Neurology
      Experienced in Collagen VI-Related Myopathy

      Dr. Chad R. Heatwole

      Neurology

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      585-275-2100
      Languages Spoken:
      English
      See accepted insurances

      Chad Heatwole is a Neurologist in Rochester, New York. Dr. Heatwole is rated as an Experienced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Facioscapulohumeral Muscular Dystrophy (FSHD).

      Learn about our expert tiers
      Advanced in Collagen VI-Related Myopathy

      Dr. Anne M. Moss

      Neurology
      Advanced in Collagen VI-Related Myopathy

      Dr. Anne M. Moss

      Neurology
      20 Hagen Dr., Suite 300, 
      Rochester, NY 
       (5.2 miles away)
      585-586-7550
      Languages Spoken:
      English

      Anne Moss is a Neurologist in Rochester, New York. Dr. Moss is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. Her top areas of expertise are Collagen VI-Related Myopathy, Congenital Muscular Dystrophy Type 1A, Tubular Aggregate Myopathy, and Central Core Disease.

      Showing 1-4 of 4

      Last Updated: 01/09/2026

      What is the definition of Collagen VI-Related Myopathy?

      Collagen VI-related dystrophy is a group of disorders that affect skeletal muscles (which are the muscles used for movement) and connective tissue (which provides strength and flexibility to the skin, joints, and other structures throughout the body). Most affected individuals have muscle weakness and joint deformities called contractures that restrict movement of the affected joints and worsen over time. Researchers have described several forms of collagen VI-related dystrophy, which range in severity: Bethlem muscular dystrophy is the mildest, an intermediate form is moderate in severity, and Ullrich congenital muscular dystrophy is the most severe.

      When should I see a Collagen VI-Related Myopathy doctor near Rochester, NY?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Collagen VI-Related Myopathy doctor near Rochester, NY?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Collagen VI-Related Myopathy doctor near Rochester, NY?

      You can find a Collagen VI-Related Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Collagen VI-Related Myopathy doctors near Rochester, NY?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Collagen VI-Related Myopathy doctors near Rochester, NY?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Collagen VI-Related Myopathy doctor near Rochester, NY?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Collagen VI-Related Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Collagen VI-Related Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Collagen VI-Related Myopathy doctor near Rochester, NY?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Collagen VI-Related Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Collagen VI-Related Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Collagen VI-Related Myopathy doctors near Rochester, NY?

      Look for the filter feature on the left side of the Collagen VI-Related Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Collagen VI-Related Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Collagen VI-Related Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy. 

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