The 20 Best Collagen VI-Related Myopathy Doctors in The United States

Find the Top Collagen VI-Related Myopathy Experts and Specialists

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    Last Updated: 10/30/2025

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    MediFind found 283 doctor with experience in Collagen VI-Related Myopathy near The United States. Of these, 193 are Experienced, 86 are Advanced and 4 are Distinguished.

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    283 providers found
      David P. Randall
      Experienced in Collagen VI-Related Myopathy

      Dr. David P. Randall

      Neurology
      Experienced in Collagen VI-Related Myopathy

      Dr. David P. Randall

      Neurology

      Advocate Medical Group Neurology

      1875 Dempster St, Ste 625/660, 
      Park Ridge, IL 
      847-723-4088
      Languages Spoken:
      English
      See accepted insurances

      David Randall is a Neurologist in Park Ridge, Illinois. Dr. Randall is rated as an Experienced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Lambert-Eaton Syndrome, Peripheral Neuropathy, Chronic Inflammatory Demyelinating Polyneuropathy, and Myasthenia Gravis.

      Experienced in Collagen VI-Related Myopathy

      Dr. Shelly K. Mills

      Family Medicine
      Experienced in Collagen VI-Related Myopathy

      Dr. Shelly K. Mills

      Family Medicine
      25568 Elliott Rd, 
      Defiance, OH 
      419-782-2147
      Languages Spoken:
      English
      See accepted insurances

      Shelly Mills is a primary care provider, practicing in Family Medicine in Defiance, Ohio. Dr. Mills is rated as an Experienced provider by MediFind in the treatment of Collagen VI-Related Myopathy. Her top areas of expertise are Congenital Muscular Dystrophy Type 1A, Central Core Disease, Benign Autosomal Dominant Myopathy, and Rigid Spine Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Collagen VI-Related Myopathy

      Dr. Anant M. Shenoy

      Neurology
      Experienced in Collagen VI-Related Myopathy

      Dr. Anant M. Shenoy

      Neurology

      Baystate Medical Practices Inc

      280 Chestnut St, Suite 2, 
      Springfield, MA 
      Languages Spoken:
      English, Amharic, Arabic, Bengali
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Anant Shenoy is a Neurologist in Springfield, Massachusetts. Dr. Shenoy is rated as an Experienced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Generalized Tonic-Clonic Seizure, and Limb-Girdle Muscular Dystrophy Type 1B. Dr. Shenoy is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Collagen VI-Related Myopathy

      Dr. John G. Quinlan

      Neurology
      Experienced in Collagen VI-Related Myopathy

      Dr. John G. Quinlan

      Neurology
      222 Piedmont Ave, Suite 3200, 
      Cincinnati, OH 
      513-475-8730
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      John Quinlan is a Neurologist in Cincinnati, Ohio. Dr. Quinlan is rated as an Experienced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Myasthenia Gravis, Inclusion Body Myositis, Distal Myopathy 2, and X-Linked Dominant Scapuloperoneal Myopathy. Dr. Quinlan is currently accepting new patients.

      Distinguished in Collagen VI-Related Myopathy

      Dr. Jahannaz Dastgir

      Pediatric Neurology | Neurology
      Distinguished in Collagen VI-Related Myopathy

      Dr. Jahannaz Dastgir

      Pediatric Neurology | Neurology
      710 W 168th St, 
      New York, NY 
      646-426-3876
      Languages Spoken:
      English
      See accepted insurances

      Jahannaz Dastgir is a Pediatric Neurologist and a Neurologist in New York, New York. Dr. Dastgir is rated as a Distinguished provider by MediFind in the treatment of Collagen VI-Related Myopathy. Her top areas of expertise are Collagen VI-Related Myopathy, Limb-Girdle Muscular Dystrophy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Distinguished in Collagen VI-Related Myopathy

      Dr. Russell J. Butterfield

      Pediatric Neurology
      Distinguished in Collagen VI-Related Myopathy

      Dr. Russell J. Butterfield

      Pediatric Neurology

      Primary Children's Neurology Clinic - Salt Lake City

      81 North Mario Capecchi Drive, 
      Salt Lake City, UT 
      801-213-3599
      Experience:
      21+ years
      Languages Spoken:
      English, Greek
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Russell Butterfield, MD, PhD received his PhD in mammalian genetics, and medical degree from the University of Illinois. He completed his residency training in pediatric neurology at the University of Utah in June 2009. He is currently an Associate Professor in the Departments of Neurology and Pediatrics, after completing a fellowship in neuromuscular disorders sponsored by the Muscular Dystrophy Association. Dr. Butterfield is board certified in Neurology with special qualification in child neurology. Dr. Butterfield�s clinical interests include all types of neurogenetic and neuromuscular disorders with an emphasis on muscular dystrophies of childhood onset. His research interests are in understanding genetic aspects of these disorders. His current efforts are in characterization of genotype/phenotype relationships and molecular pathogenesis in collagen VI myopathies such as Bethlem myopathy and Ullrich congenital muscular dystrophy. Dr. Butterfield is rated as a Distinguished provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Facioscapulohumeral Muscular Dystrophy (FSHD), and Spinal Muscular Atrophy (SMA).

      Distinguished in Collagen VI-Related Myopathy

      Dr. Michael I. Lieberman

      Internal Medicine
      Distinguished in Collagen VI-Related Myopathy

      Dr. Michael I. Lieberman

      Internal Medicine

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      503-494-8311
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Michael Lieberman is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Lieberman is rated as a Distinguished provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Congenital Fiber-Type Disproportion, Rigid Spine Syndrome, X-Linked Myotubular Myopathy, and Nemaline Myopathy. Dr. Lieberman is currently accepting new patients.

      Distinguished in Collagen VI-Related Myopathy

      Dr. James J. Collins

      Pediatric Neurology | Neurology
      Distinguished in Collagen VI-Related Myopathy

      Dr. James J. Collins

      Pediatric Neurology | Neurology

      Alegent Creighton Clinic

      6901 N 72nd St, Suite 2400, 
      Omaha, NE 
      402-717-0070
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      James Collins is a Pediatric Neurologist and a Neurologist in Omaha, Nebraska. Dr. Collins is rated as a Distinguished provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Collagen VI-Related Myopathy, Horizontal Gaze Palsy with Progressive Scoliosis, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Endoscopy. Dr. Collins is currently accepting new patients.

      Advanced in Collagen VI-Related Myopathy

      Dr. Carmen R. Rexrode

      Family Medicine
      Advanced in Collagen VI-Related Myopathy

      Dr. Carmen R. Rexrode

      Family Medicine

      Pendleton Community Care, Inc.

      82 Pine Street, 
      Franklin, WV 
      304-358-2355
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients

      Carmen Rexrode is a primary care provider, practicing in Family Medicine in Franklin, West Virginia. Dr. Rexrode is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. Her top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Rexrode is currently accepting new patients.

      Vern C. Juel
      Advanced in Collagen VI-Related Myopathy

      Dr. Vern C. Juel

      Neurology
      Advanced in Collagen VI-Related Myopathy

      Dr. Vern C. Juel

      Neurology

      Duke Electromyography Laboratory - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
      919-684-5422
      Experience:
      36+ years
      Languages Spoken:
      English
      See accepted insurances
      Offers Telehealth

      Vern Juel is a Neurologist in Durham, North Carolina. Dr. Juel has been practicing medicine for over 36 years and is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Myasthenia Gravis, Lambert-Eaton Syndrome, Inclusion Body Myositis, Meige Syndrome, and Thymectomy.

      Anthony A. Amato
      Advanced in Collagen VI-Related Myopathy

      Dr. Anthony A. Amato

      Neurology
      Advanced in Collagen VI-Related Myopathy

      Dr. Anthony A. Amato

      Neurology

      Brigham And Women's Hospital, Neurosciences Center

      60 Fenwood Road, Hale Building For Transformative Medicine, 1st Floor, 
      Boston, MA 
      617-732-8046
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is currently accepting new patients.

      Annette Fornos
      Advanced in Collagen VI-Related Myopathy

      Dr. Annette Fornos

      Internal Medicine
      Advanced in Collagen VI-Related Myopathy

      Dr. Annette Fornos

      Internal Medicine
      8746 Sw 24 St, 
      Miami, FL 
      305-823-3312
      Languages Spoken:
      English, Spanish
      See accepted insurances
      Accepting New Patients

      Annette Fornos is a primary care provider, practicing in Internal Medicine in Miami, Florida. Dr. Fornos is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. Her top areas of expertise are Central Core Disease, Rigid Spine Syndrome, Collagen VI-Related Myopathy, and Tubular Aggregate Myopathy. Dr. Fornos is currently accepting new patients.

      Advanced in Collagen VI-Related Myopathy

      Dr. Nizar S. Chahin

      Neurology
      Advanced in Collagen VI-Related Myopathy

      Dr. Nizar S. Chahin

      Neurology

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      503-494-8311
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Nizar Chahin is a Neurologist in Portland, Oregon. Dr. Chahin is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Nemaline Myopathy, and Lambert-Eaton Syndrome. Dr. Chahin is currently accepting new patients.

      Advanced in Collagen VI-Related Myopathy

      Dr. Sankar Bandyopadhyay

      Neurology | Neuroradiology
      Advanced in Collagen VI-Related Myopathy

      Dr. Sankar Bandyopadhyay

      Neurology | Neuroradiology

      Osf Multi-Specialty Group

      8600 State Route 91, Suite 130, 
      Peoria, IL 
      309-683-5050
      Languages Spoken:
      English
      See accepted insurances

      Sankar Bandyopadhyay is a Neurologist and a Neuroradiologist in Peoria, Illinois. Dr. Bandyopadhyay is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Myasthenia Gravis, Nemaline Myopathy, Congenital Fiber-Type Disproportion, and Rigid Spine Syndrome.

      Advanced in Collagen VI-Related Myopathy

      Dr. Douglas M. Wallace

      Neurology | Sleep Medicine
      Advanced in Collagen VI-Related Myopathy

      Dr. Douglas M. Wallace

      Neurology | Sleep Medicine

      University Of Miami

      1611 Nw 12 Ave, 
      Miami, FL 
      Languages Spoken:
      English, Spanish
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Douglas Wallace is a Neurologist and a Sleep Medicine provider in Miami, Florida. Dr. Wallace is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Insomnia, Obstructive Sleep Apnea, Benign Autosomal Dominant Myopathy, and Collagen VI-Related Myopathy. Dr. Wallace is currently accepting new patients.

      Advanced in Collagen VI-Related Myopathy

      Dr. David B. Wilkinson

      Neurology
      Advanced in Collagen VI-Related Myopathy

      Dr. David B. Wilkinson

      Neurology

      Providence Health And Services Oregon

      9135 Sw Barnes Rd, Suite 461, 
      Portland, OR 
      503-216-1150
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      David Wilkinson is a Neurologist in Portland, Oregon. Dr. Wilkinson is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Central Core Disease, Centronuclear Myopathy, Congenital Fiber-Type Disproportion, and Benign Autosomal Dominant Myopathy. Dr. Wilkinson is currently accepting new patients.

      Advanced in Collagen VI-Related Myopathy

      Dr. Jill S. Gettings

      Physiatry
      Advanced in Collagen VI-Related Myopathy

      Dr. Jill S. Gettings

      Physiatry

      Gillette Childrens Specialty Healthcare

      435 Phalen Blvd, 
      Saint Paul, MN 
      651-636-9443
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Jill Gettings is a Physiatrist in Saint Paul, Minnesota. Dr. Gettings is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. Her top areas of expertise are Cerebral Palsy, Delta-Sarcoglycanopathy, Walker-Warburg Syndrome, and Oculopharyngeal Muscular Dystrophy. Dr. Gettings is currently accepting new patients.

      Advanced in Collagen VI-Related Myopathy

      Dr. Amanda L. Witt

      Physiatry
      Advanced in Collagen VI-Related Myopathy

      Dr. Amanda L. Witt

      Physiatry

      State Of Mississippi - University Of Mississippi Medical Center

      2550 Flowood Dr, Suite 200, 
      Flowood, MS 
      601-815-2005
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Amanda Witt is a Physiatrist in Flowood, Mississippi. Dr. Witt is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. Her top areas of expertise are Opisthotonos, Muscle Spasms, Congenital Fiber-Type Disproportion, and Central Core Disease. Dr. Witt is currently accepting new patients.

      Advanced in Collagen VI-Related Myopathy

      Dr. Kevin J. Felice

      Neurology
      Advanced in Collagen VI-Related Myopathy

      Dr. Kevin J. Felice

      Neurology

      Hospital For Special Care

      2150 Corbin Ave, 
      New Britain, CT 
      860-827-4994
      Languages Spoken:
      English
      See accepted insurances

      Kevin Felice is a Neurologist in New Britain, Connecticut. Dr. Felice is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, Limb-Girdle Muscular Dystrophy Type 1A, and Spinal Muscular Atrophy (SMA).

      Advanced in Collagen VI-Related Myopathy

      Dr. Nanette C. Joyce

      Physiatry
      Advanced in Collagen VI-Related Myopathy

      Dr. Nanette C. Joyce

      Physiatry

      Regents Of The Univ Of Ca

      4860 Y St, 
      Sacramento, CA 
      Languages Spoken:
      English
      See accepted insurances
      Offers Telehealth

      Nanette Joyce is a Physiatrist in Sacramento, California. Dr. Joyce is rated as an Advanced provider by MediFind in the treatment of Collagen VI-Related Myopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Myotonic Dystrophy Type 2, and Myotonic Dystrophy.

      Showing 1-20 of 283

      Last Updated: 10/30/2025

      What is the definition of Collagen VI-Related Myopathy?

      Collagen VI-related dystrophy is a group of disorders that affect skeletal muscles (which are the muscles used for movement) and connective tissue (which provides strength and flexibility to the skin, joints, and other structures throughout the body). Most affected individuals have muscle weakness and joint deformities called contractures that restrict movement of the affected joints and worsen over time. Researchers have described several forms of collagen VI-related dystrophy, which range in severity: Bethlem muscular dystrophy is the mildest, an intermediate form is moderate in severity, and Ullrich congenital muscular dystrophy is the most severe.

      When should I see a Collagen VI-Related Myopathy doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Collagen VI-Related Myopathy doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Collagen VI-Related Myopathy doctor in The United States?

      You can find a Collagen VI-Related Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

      Collagen VI-Related Myopathy doctor near New York, NY
      Collagen VI-Related Myopathy doctor near Los Angeles, CA
      Collagen VI-Related Myopathy doctor near Chicago, IL
      Collagen VI-Related Myopathy doctor near Houston, TX
      Collagen VI-Related Myopathy doctor near Phoenix, AZ
      Collagen VI-Related Myopathy doctor near Philadelphia, PA
      Collagen VI-Related Myopathy doctor near Atlanta, GA
      Collagen VI-Related Myopathy doctor near Boston, MA
      Collagen VI-Related Myopathy doctor near Dallas, TX
      Collagen VI-Related Myopathy doctor near San Jose, CA

      How does MediFind rank Collagen VI-Related Myopathy doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Collagen VI-Related Myopathy doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Collagen VI-Related Myopathy doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Collagen VI-Related Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Collagen VI-Related Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Collagen VI-Related Myopathy doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Collagen VI-Related Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Collagen VI-Related Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Collagen VI-Related Myopathy doctors in The United States?

      Look for the filter feature on the left side of the Collagen VI-Related Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Collagen VI-Related Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Collagen VI-Related Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy. 

      More Collagen VI-Related Myopathy Doctors by state

      Illinois
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