The 20 Best Congenital Generalized Lipodystrophy Doctors Near Me

Find Doctors who have experience with Metreleptin

Last Updated: 04/29/2026

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MediFind found 60 doctor with experience in Congenital Generalized Lipodystrophy.

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60 providers found
    Elif Oral
    Elite in Congenital Generalized Lipodystrophy
    Endocrinology | Internal Medicine
    Elite in Congenital Generalized Lipodystrophy
    Endocrinology | Internal Medicine

    Domino's Farms

    24 Frank Lloyd Wright Dr Ste 1300, Lobby C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Elif Oral is a professor in the Division of Metabolism, Endocrinology and Diabetes (MEND) at the University of Michigan. She completed her medical education in her home country of Turkey at the University of Istanbul. In 1996, she completed her residency in Internal Medicine at Sinai Hospital Detroit (Michigan). She then completed a fellowship in Endocrinology, Metabolism and Diabetes at the National Institute of Health, where she also chose to stay as a Senior Fellow under the mentorship of Drs SimeonTaylor and Phillip Gorden in in the Diabetes Branch of NIDDK.Since joining the University of Michigan in 2002 as an Assistant Professor of Medicine, along with her regular faculty responsibilities, Dr. Oral also completed a Masters of Science Degree in Clinical Research Design and Biostatistics at the School of Public Health. Her clinical interests are in insulin resistance, obesity, lipid disorders, and diabetes.Dr Oral's research focuses on the importance of adipocytes in human metabolism and adipocyte hormones such as leptin. She is best known for her work showing the remarkable efficacy of leptin in rare lipodystrophy syndromes. Metreleptin received approval by the FDA (2014) and EMA (2016) as a treatment for lipodystrophy owing to a large part to her original vision and work. These studies provided the basis for her current work with three big goals: identification of novel metabolic diseases, discovery of new disease mechanisms and finding treatments for patients afflicted with these disorders. In addition to her roles as physician, educator, and researcher, Dr Oral is also the director of two programs at MEND: Atypical Diabetes Program and Obesity and Metabolic Disorders Program. She directed the Post-Bariatric Surgery Care Program from 2012 to 2021 and continues to conduct research on the cohort of patients who had bariatric surgery performed in the Michigan Bariatric Surgery program. Dr. Oral is rated as an Elite provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. Her top areas of expertise are Familial Partial Lipodystrophy, Congenital Generalized Lipodystrophy, Familial Hypertriglyceridemia, Gastric Bypass, and Sleeve Gastrectomy.

    Elite in Congenital Generalized Lipodystrophy
    Endocrinology
    Elite in Congenital Generalized Lipodystrophy
    Endocrinology

    University Of Texas Southwestern Medical Center

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English

    Abhimanyu Garg is an Endocrinologist in Dallas, Texas. Dr. Garg is rated as an Elite provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Acrorenal Mandibular Syndrome, Familial Partial Lipodystrophy, Congenital Generalized Lipodystrophy, Familial Hypertriglyceridemia, and Gastric Bypass.

    Martin Wabitsch
    Elite in Congenital Generalized Lipodystrophy
    Elite in Congenital Generalized Lipodystrophy
    Albert Einstein Allee 23, 
    Ulm, BW, DE 

    Martin Wabitsch practices in Ulm, Germany. Mr. Wabitsch is rated as an Elite expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Obesity, Obesity in Children, Simpson-Golabi-Behmel Syndrome, Breast Enlargement In Males, and Hormone Replacement Therapy (HRT).

    Learn about our expert tiers
    Elite in Congenital Generalized Lipodystrophy
    Elite in Congenital Generalized Lipodystrophy
    Rome, IT 

    Marco Cappa practices in Rome, Italy. Mr. Cappa is rated as an Elite expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Addison's Disease, Adrenal Insufficiency Pediatric, Growth Hormone Deficiency (GHD), Hormone Replacement Therapy (HRT), and Kidney Transplant.

    Elite in Congenital Generalized Lipodystrophy
    Elite in Congenital Generalized Lipodystrophy
    Novara, IT 

    Flavia Prodam practices in Novara, Italy. Ms. Prodam is rated as an Elite expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. Her top areas of expertise are Obesity in Children, Congenital Hyperinsulinism, Short Stature (Growth Disorders), Hypopituitarism, and Hormone Replacement Therapy (HRT).

    Nazanene H. Esfandiari
    Distinguished in Congenital Generalized Lipodystrophy
    Endocrinology | Internal Medicine
    Distinguished in Congenital Generalized Lipodystrophy
    Endocrinology | Internal Medicine

    Domino's Farms

    24 Frank Lloyd Wright Dr Ste 1300, Lobby C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Nazanene H. Esfandiari, MD, is a Clinical Professor of Internal Medicine with an appointment in the Division of Metabolism, Endocrinology and Diabetes (MEND). Dr. Esfandiari received her medical degree from the University of Bordeaux in France, completed internal medicine residency in France and at UMASS Memorial Health Center in Massachusetts, and then completed fellowship in endocrinology at the University of Michigan. She joined the faculty at the University of Michigan in 2003. She was inducted into Clinical Excellence Society at the University of Michigan in 2014. She is the MEND Service Chief, Co-director of Hospital Intensive Insulin Program (HIIP) and Assistant Chief for the Inpatient Endocrine Consult.Dr. Esfandiari’s practice focuses on thyroid cancer, thyroid disorders, post bariatric care, and diabetes. She is also interested in medical education and is the Co-director of the Endocrine Sequence at the University of Michigan Medical School. In addition, Dr. Esfandiari has served in several national committees at the Endocrine Society and American Thyroid Association (ATA). Dr. Esfandiari is rated as a Distinguished provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. Her top areas of expertise are Thyroid Cancer, Follicular Thyroid Cancer, Anaplastic Thyroid Cancer, Gastric Bypass, and Thyroidectomy.

    Distinguished in Congenital Generalized Lipodystrophy
    Endocrinology
    Distinguished in Congenital Generalized Lipodystrophy
    Endocrinology

    Office

    751 N Rutledge St Ste 1700, 
    Springfield, IL 
    Languages Spoken:
    English

    Gabriel Uwaifo is an Endocrinologist in Springfield, Illinois. Dr. Uwaifo is rated as a Distinguished provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Exocrine Pancreatic Insufficiency, Type 2 Diabetes (T2D), Thyroid Nodule, Silent Thyroiditis, and Gastric Bypass.

    Distinguished in Congenital Generalized Lipodystrophy
    Endocrinology
    Distinguished in Congenital Generalized Lipodystrophy
    Endocrinology

    University Of Texas Southwestern Medical Center

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Iram Hussain is an Endocrinologist in Dallas, Texas. Dr. Hussain is rated as a Distinguished provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. Her top areas of expertise are Thyroid Nodule, Thyroid Cancer, Acrorenal Mandibular Syndrome, Thyroidectomy, and Parathyroidectomy.

    Distinguished in Congenital Generalized Lipodystrophy
    Endocrinology
    Distinguished in Congenital Generalized Lipodystrophy
    Endocrinology

    Office

    10 Center Dr, 
    Bethesda, MD 
    Languages Spoken:
    English

    Phillip Gorden is an Endocrinologist in Bethesda, Maryland. Dr. Gorden is rated as a Distinguished provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Type B Insulin Resistance Syndrome, Familial Hypertriglyceridemia, Congenital Generalized Lipodystrophy, Congenital Hyperinsulinism, and Hormone Replacement Therapy (HRT).

    Nevin N. Ajluni
    Advanced in Congenital Generalized Lipodystrophy
    Endocrinology | Internal Medicine
    Advanced in Congenital Generalized Lipodystrophy
    Endocrinology | Internal Medicine

    Domino's Farms

    24 Frank Lloyd Wright Dr Ste 1300, Lobby C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Nevin Ajluni, M.D., joined the team at the Division of Metabolism, Endocrinology & Diabetes (MEND) after serving a two-year endocrinology fellowship in the Division. She is a part of the care team in the MEND Weight Management Program, where she works with obese individuals by applying cutting-edge research findings and novel clinical strategies. She is an honors graduate of the Wayne State University School of Medicine and completed her internship and residency in internal medicine at the McGaw Medical Center of Northwestern University before coming to the University of Michigan. Dr. Ajluni is rated as an Advanced provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. Her top areas of expertise are Type 1 Diabetes (T1D), Familial Partial Lipodystrophy, Type 2 Diabetes (T2D), and Congenital Generalized Lipodystrophy.

    Distinguished in Congenital Generalized Lipodystrophy
    Distinguished in Congenital Generalized Lipodystrophy
    Chieti, IT 

    Francesco Chiarelli practices in Chieti, Italy. Chiarelli is rated as a Distinguished expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. Their top areas of expertise are Obesity in Children, Congenital Hyperinsulinism, Obesity, Short Stature (Growth Disorders), and Tissue Biopsy.

    Distinguished in Congenital Generalized Lipodystrophy
    Distinguished in Congenital Generalized Lipodystrophy
    Dokuz Eylul, TR 

    Baris Akinci practices in Dokuz Eylul, Turkey. Mr. Akinci is rated as a Distinguished expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Familial Partial Lipodystrophy, Congenital Generalized Lipodystrophy, Familial Hypertriglyceridemia, and Gigantism.

    Distinguished in Congenital Generalized Lipodystrophy
    Distinguished in Congenital Generalized Lipodystrophy
    Lille, FR 

    Marie-christine Vantyghem practices in Lille, France. Ms. Vantyghem is rated as a Distinguished expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. Her top areas of expertise are Carney Complex, Heart Tumor, Adiposis Dolorosa, Islet Cell Transplantation, and Pancreas Transplant.

    Distinguished in Congenital Generalized Lipodystrophy
    Distinguished in Congenital Generalized Lipodystrophy
    Bologna, IT 

    Alessandra Gambineri practices in Bologna, Italy. Ms. Gambineri is rated as a Distinguished expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. Her top areas of expertise are Polycystic Ovary Syndrome, Ovarian Cysts, Intersex, and Ovarian Overproduction of Androgens.

    Distinguished in Congenital Generalized Lipodystrophy
    Distinguished in Congenital Generalized Lipodystrophy

    AOU Maggiore Della Carità

    Novara, IT 

    Ivana Rabbone practices in Novara, Italy. Ms. Rabbone is rated as a Distinguished expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. Her top areas of expertise are Type 1 Diabetes (T1D), Diabetic Ketoacidosis, Low Blood Sugar, Short Stature (Growth Disorders), and Gastrostomy.

    Distinguished in Congenital Generalized Lipodystrophy
    Distinguished in Congenital Generalized Lipodystrophy
    Essen, NW, DE 

    Johannes Hebebrand practices in Essen, Germany. Mr. Hebebrand is rated as a Distinguished expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Anorexia, Obesity, Obesity in Children, and Attention Deficit Hyperactivity Disorder (ADHD).

    Distinguished in Congenital Generalized Lipodystrophy
    Distinguished in Congenital Generalized Lipodystrophy
    Freiburg, BW, DE 

    Clemens Kamrath practices in Freiburg, Germany. Mr. Kamrath is rated as a Distinguished expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Diabetic Ketoacidosis, Congenital Adrenal Hyperplasia (CAH), Intersex, Type 1 Diabetes (T1D), and Gastrostomy.

    Distinguished in Congenital Generalized Lipodystrophy
    Distinguished in Congenital Generalized Lipodystrophy
    Leipzig, SN, DE 

    Michael Stumvoll practices in Leipzig, Germany. Mr. Stumvoll is rated as a Distinguished expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Obesity, Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Metabolic Syndrome, and Gastric Bypass.

    Distinguished in Congenital Generalized Lipodystrophy
    Distinguished in Congenital Generalized Lipodystrophy
    Bornova, TR 

    Samim Ozen practices in Bornova, Turkey. Mr. Ozen is rated as a Distinguished expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Intersex, Aromatase Deficiency, Familial Partial Lipodystrophy, Precocious Puberty, and Thyroidectomy.

    Distinguished in Congenital Generalized Lipodystrophy
    Distinguished in Congenital Generalized Lipodystrophy
    Via Paradisa 2, 
    Pisa, IT 

    Ferruccio Santini practices in Pisa, Italy. Santini is rated as a Distinguished expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. Their top areas of expertise are Obesity, Congenital Generalized Lipodystrophy, Subacute Thyroiditis, Gastric Bypass, and Thyroidectomy.

    Showing 1-20 of 60

    Last Updated: 04/29/2026

    What is the definition of Congenital Generalized Lipodystrophy?

    Congenital generalized lipodystrophy (also called Berardinelli-Seip congenital lipodystrophy) is a rare condition characterized by an almost total lack of fatty (adipose) tissue in the body and a very muscular appearance. Adipose tissue is found in many parts of the body, including beneath the skin and surrounding the internal organs. It stores fat for energy and also provides cushioning. Congenital generalized lipodystrophy is part of a group of related disorders known as lipodystrophies, which are all characterized by a loss of adipose tissue. A shortage of adipose tissue leads to the storage of fat elsewhere in the body, such as in the liver and muscles, which causes serious health problems.

    When should I see a Congenital Generalized Lipodystrophy doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Congenital Generalized Lipodystrophy doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Congenital Generalized Lipodystrophy doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Congenital Generalized Lipodystrophy doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Congenital Generalized Lipodystrophy doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Congenital Generalized Lipodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Congenital Generalized Lipodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Congenital Generalized Lipodystrophy doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Congenital Generalized Lipodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Congenital Generalized Lipodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Congenital Generalized Lipodystrophy doctors near me?

    Look for the filter feature on the left side of the Congenital Generalized Lipodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Congenital Generalized Lipodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Congenital Generalized Lipodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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