The 20 Best Congenital Generalized Lipodystrophy Doctors in Netherlands

Find the Top Congenital Generalized Lipodystrophy Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 24 doctor with experience in Congenital Generalized Lipodystrophy near Netherlands. Of these, 23 are Experienced and 1 are Advanced.

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24 providers found
    Advanced in Congenital Generalized Lipodystrophy
    Advanced in Congenital Generalized Lipodystrophy
    Referral may be required
    Utrecht, UT, NL 

    Rachel Van Der Pol practices practicing medicine in Utrecht, Netherlands. Ms. Van Der Pol is rated as an Advanced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Gastroesophageal Reflux in Infants, Gastroesophageal Reflux Disease (GERD), Congenital Generalized Lipodystrophy, Esophagitis, and Endoscopy.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required

    Lumc

    Leiden, ZH, NL 

    Ingrid Jazet practices practicing medicine in Leiden, Netherlands. Ms. Jazet is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Congenital Generalized Lipodystrophy, and Obesity.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Amsterdam, NH, NL 

    Tim De Meij practices practicing medicine in Amsterdam, Netherlands. Mr. De Meij is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Viral Gastroenteritis, Neonatal Sepsis, Crohn's Disease, Colonoscopy, and Pancreaticoduodenectomy.

    Learn about our expert tiers
    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Amsterdam, NH, NL 

    Marjo Van Der Knaap practices practicing medicine in Amsterdam, Netherlands. Ms. Van Der Knaap is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Leukodystrophy, CACH Syndrome, Metachromatic Leukodystrophy, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Bone Marrow Transplant.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Amsterdam, NH, NL 

    Joost Rotteveel practices practicing medicine in Amsterdam, Netherlands. Rotteveel is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Temple Syndrome, Premature Infant, Adrenal Insufficiency Pediatric, and Addison's Disease.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Amsterdam, NH, NL 

    Marc Benninga practices practicing medicine in Amsterdam, Netherlands. Mr. Benninga is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Chronic Idiopathic Constipation (CIC), Gastroesophageal Reflux in Infants, Gastroesophageal Reflux Disease (GERD), Sacral Nerve Stimulation, and Endoscopy.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Amsterdam, NH, NL 

    Marjoleine Broekema practices practicing medicine in Amsterdam, Netherlands. Broekema is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Familial Partial Lipodystrophy, Carney Complex, Tieche-Jadassohn Nevus, and Congenital Generalized Lipodystrophy.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Utrecht, UT, NL 

    Jeroen De Ridder practices practicing medicine in Utrecht, Netherlands. Mr. De Ridder is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. His clinical expertise encompasses Peutz-Jeghers Syndrome, Congenital Generalized Lipodystrophy, Melasma, and Familial Colorectal Cancer.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Utrecht, UT, NL 

    Hans Amstel-Van practices practicing medicine in Utrecht, Netherlands. Mr. Amstel-Van is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. His clinical expertise encompasses Congenital Generalized Lipodystrophy and Gigantism.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Rotterdam, ZH, NL 

    Danielle Van Der Kaay practices practicing medicine in Rotterdam, Netherlands. Van Der Kaay is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. They are also highly rated in 9 other conditions, according to our data. Their clinical expertise encompasses Macrodactyly of the Foot, Pediatric Growth Hormone Deficiency, Growth Hormone Deficiency (GHD), and Hypopituitarism.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Amsterdam, NH, NL 

    Raoul Hennekam practices practicing medicine in Amsterdam, Netherlands. Mr. Hennekam is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Nicolaides-Baraitser Syndrome, Marshall-Smith Syndrome, Micrognathia, and Trichorhinophalangeal Syndrome Type 2.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Amsterdam, NH, NL 

    Jan Cobben practices practicing medicine in Amsterdam, Netherlands. Cobben is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Micrognathia, Yunis-Varon Syndrome, Glucose Transporter Deficiency, and Short Philtrum.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Utrecht, UT, NL 

    Edwin Stigter practices practicing medicine in Utrecht, Netherlands. Mr. Stigter is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. His clinical expertise encompasses Congenital Generalized Lipodystrophy and Familial Hypertriglyceridemia.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Utrecht, UT, NL 

    Boudewijn Burgering practices practicing medicine in Utrecht, Netherlands. Burgering is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. Their clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Cerebral Hypoxia, and Pyridoxine Deficiency.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Leiden, ZH, NL 

    Patrick Rensen practices practicing medicine in Leiden, Netherlands. Mr. Rensen is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses High Cholesterol, Atherosclerosis, Obesity, Bone Marrow Transplant, and Orchiectomy.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Amsterdam, NH, NL 

    Joep De Ligt practices practicing medicine in Amsterdam, Netherlands. De Ligt is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. Their clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Severe Acute Respiratory Syndrome (SARS), Salmonella Enterocolitis, and Congenital Generalized Lipodystrophy.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Utrecht, UT, NL 

    Eric Kalkhoven practices practicing medicine in Utrecht, Netherlands. Mr. Kalkhoven is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Familial Partial Lipodystrophy, Obesity, Congenital Generalized Lipodystrophy, and Abdominal Obesity Metabolic Syndrome.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Groningen, GR, NL 

    Conny Arts-Van Ravenswaaij practices practicing medicine in Groningen, Netherlands. Arts-Van Ravenswaaij is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses CHARGE Syndrome, Coloboma, Ulnar-Mammary Syndrome, and Choanal Atresia.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Utrecht, UT, NL 

    Gijs Van Haaften practices practicing medicine in Utrecht, Netherlands. Van Haaften is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. They are also highly rated in 16 other conditions, according to our data. Their clinical expertise encompasses Hirsutism in Women, Cantu Syndrome, Chondrodystrophy, and Schwartz-Jampel Syndrome.

    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy
    Referral may be required
    Leiden, ZH, NL 

    Daniela Schaapveld-Barge practices practicing medicine in Leiden, Netherlands. Ms. Schaapveld-Barge is rated as an Experienced expert by MediFind in the treatment of Congenital Generalized Lipodystrophy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Familial Dilated Cardiomyopathy, Dilated Cardiomyopathy (DCM), Cardiomyopathy, and Mitral Valve Prolapse.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 24

    Last Updated: 11/08/2026

    What is the definition of Congenital Generalized Lipodystrophy?

    Congenital generalized lipodystrophy (also called Berardinelli-Seip congenital lipodystrophy) is a rare condition characterized by an almost total lack of fatty (adipose) tissue in the body and a very muscular appearance. Adipose tissue is found in many parts of the body, including beneath the skin and surrounding the internal organs. It stores fat for energy and also provides cushioning. Congenital generalized lipodystrophy is part of a group of related disorders known as lipodystrophies, which are all characterized by a loss of adipose tissue. A shortage of adipose tissue leads to the storage of fat elsewhere in the body, such as in the liver and muscles, which causes serious health problems.

    When should I see a Congenital Generalized Lipodystrophy doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Congenital Generalized Lipodystrophy doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Congenital Generalized Lipodystrophy doctor in Netherlands?

    You can find a Congenital Generalized Lipodystrophy doctor in any of the 10 largest U.S. cities by clicking below:

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    Congenital Generalized Lipodystrophy doctor near San Jose, CA

    How does MediFind rank Congenital Generalized Lipodystrophy doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Congenital Generalized Lipodystrophy doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Congenital Generalized Lipodystrophy doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Congenital Generalized Lipodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Congenital Generalized Lipodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Congenital Generalized Lipodystrophy doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Congenital Generalized Lipodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Congenital Generalized Lipodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Congenital Generalized Lipodystrophy doctors in Netherlands?

    Look for the filter feature on the left side of the Congenital Generalized Lipodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Congenital Generalized Lipodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Congenital Generalized Lipodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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