The 20 Best Congenital Generalized Lipodystrophy Doctors Near Me in Missouri, US

Find the Top Congenital Generalized Lipodystrophy Experts and Specialists

Last Updated: 02/22/2026

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MediFind found 7 doctor with experience in Congenital Generalized Lipodystrophy near Missouri, US. Of these, 4 are Experienced and 3 are Advanced.

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7 providers found
    Advanced in Congenital Generalized Lipodystrophy
    Endocrinology
    Advanced in Congenital Generalized Lipodystrophy
    Endocrinology

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Charles Harris is an Endocrinologist in Saint Louis, Missouri. Dr. Harris is rated as an Advanced provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Congenital Generalized Lipodystrophy, Obesity, Cushing's syndrome, and Abdominal Obesity Metabolic Syndrome.

    Gillian Heinecke
    Experienced in Congenital Generalized Lipodystrophy
    Experienced in Congenital Generalized Lipodystrophy

    SLUCare Physician Group

    1225 S. Grand Blvd., Third Level, 
    St. Louis, MO 
    Languages Spoken:
    English

    Dr. Gillian Heinecke treats patients who have skin cancer, psoriasis, eczema, complex medical skin conditions, acne, and warts. Her areas of expertise include psoriasis and dermatopathology. She applies the latest dermatologic advancements in her treatment plans, such as immunosuppressive and biologic therapies. Her research interests include dermatopathology and medical education. Dr. Heinecke is an assistant professor in the Department of Dermatology at Saint Louis University School of Medicine. She is the associate director of the department's residency program. Professional memberships include the American Academy of Dermatology and the American Society of Dermatopathology. Dr. Heinecke is rated as an Experienced provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. Her top areas of expertise are Epidermolysis Bullosa Simplex, Bowen's Disease, Basal Cell Skin Cancer, and Actinic Keratosis.

    Advanced in Congenital Generalized Lipodystrophy
    Plastic Surgery
    Advanced in Congenital Generalized Lipodystrophy
    Plastic Surgery

    Plastic Surgery And Weight Loss Center

    11000 Historic Highway 165 Ste D, 
    Hollister, MO 
    Languages Spoken:
    English

    Marian Stewart is a Plastic Surgeon in Hollister, Missouri. Dr. Stewart is rated as an Advanced provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. Her top areas of expertise are Familial Partial Lipodystrophy, Congenital Generalized Lipodystrophy, Alpha-gal Syndrome (AGS), and Plaque Psoriasis.

    Learn about our expert tiers
    Advanced in Congenital Generalized Lipodystrophy
    Pain Medicine
    Advanced in Congenital Generalized Lipodystrophy
    Pain Medicine

    Neuropax Clinic

    12855 N 40 Dr, 
    Saint Louis, MO 
    Languages Spoken:
    English

    David Brown is a Pain Medicine provider in Saint Louis, Missouri. Dr. Brown is rated as an Advanced provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Breast Enlargement In Males, Familial Partial Lipodystrophy, Congenital Generalized Lipodystrophy, Pudendal Neuralgia, and Lymphadenectomy.

    Experienced in Congenital Generalized Lipodystrophy
    Plastic Surgery
    Experienced in Congenital Generalized Lipodystrophy
    Plastic Surgery

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Offers Telehealth

    Justin Sacks is a Plastic Surgeon in Saint Louis, Missouri. Dr. Sacks is rated as an Experienced provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Hidradenitis Suppurativa, Congenital Generalized Lipodystrophy, Familial Partial Lipodystrophy, Osteotomy, and Lymphadenectomy.

    Experienced in Congenital Generalized Lipodystrophy
    Plastic Surgery
    Experienced in Congenital Generalized Lipodystrophy
    Plastic Surgery

    Mercy Clinic Plastic Surgery

    701 S New Ballas Rd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    David Yonick is a Plastic Surgeon in Saint Louis, Missouri. Dr. Yonick is rated as an Experienced provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, Acrogeria, Gottron Type, and Bazex Syndrome.

    Experienced in Congenital Generalized Lipodystrophy
    Internal Medicine
    Experienced in Congenital Generalized Lipodystrophy
    Internal Medicine

    Wornall Office

    373 W 101st Ter, 
    Kansas City, MO 
    Languages Spoken:
    English

    Shadrach Smith is a primary care provider, practicing in Internal Medicine in Kansas City, Missouri. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Congenital Generalized Lipodystrophy. His top areas of expertise are Obesity in Children, Type B Insulin Resistance Syndrome, Abdominal Obesity Metabolic Syndrome, and Cytochrome C Oxidase Deficiency.

    Showing 1-7 of 7

    Last Updated: 02/22/2026

    What is the definition of Congenital Generalized Lipodystrophy?

    Congenital generalized lipodystrophy (also called Berardinelli-Seip congenital lipodystrophy) is a rare condition characterized by an almost total lack of fatty (adipose) tissue in the body and a very muscular appearance. Adipose tissue is found in many parts of the body, including beneath the skin and surrounding the internal organs. It stores fat for energy and also provides cushioning. Congenital generalized lipodystrophy is part of a group of related disorders known as lipodystrophies, which are all characterized by a loss of adipose tissue. A shortage of adipose tissue leads to the storage of fat elsewhere in the body, such as in the liver and muscles, which causes serious health problems.

    When should I see a Congenital Generalized Lipodystrophy doctor in Missouri, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Congenital Generalized Lipodystrophy doctor in Missouri, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Congenital Generalized Lipodystrophy doctors in Missouri, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Congenital Generalized Lipodystrophy doctors in Missouri, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Congenital Generalized Lipodystrophy doctor in Missouri, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Congenital Generalized Lipodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Congenital Generalized Lipodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Congenital Generalized Lipodystrophy doctor in Missouri, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Congenital Generalized Lipodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Congenital Generalized Lipodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Congenital Generalized Lipodystrophy doctors in Missouri, US?

    Look for the filter feature on the left side of the Congenital Generalized Lipodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Congenital Generalized Lipodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Congenital Generalized Lipodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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