The 20 Best Cornelia De Lange Syndrome Doctors in Germany

Find the Top Cornelia De Lange Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 86 doctor with experience in Cornelia De Lange Syndrome near Germany. Of these, 75 are Experienced, 7 are Advanced, 2 are Distinguished and 2 are Elite.

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86 providers found
    Elite in Cornelia De Lange Syndrome

    Gabriele Kaesbach-Gillessen
    Elite in Cornelia De Lange Syndrome

    Gabriele Kaesbach-Gillessen
    Referral may be required
    1Department Of Dermatology, Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Gabriele Kaesbach-Gillessen practices practicing medicine in Luebeck, Germany. Ms. Kaesbach-Gillessen is rated as an Elite expert by MediFind in the treatment of Cornelia De Lange Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Cornelia De Lange Syndrome, Distal Arthrogryposis, Distal Arthrogryposis Type 6, and Coffin-Siris Syndrome.

    Elite in Cornelia De Lange Syndrome

    Ilaria Parenti
    Elite in Cornelia De Lange Syndrome

    Ilaria Parenti
    Referral may be required
    Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Ilaria Parenti practices practicing medicine in Luebeck, Germany. Ms. Parenti is rated as an Elite expert by MediFind in the treatment of Cornelia De Lange Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Cornelia De Lange Syndrome, KBG Syndrome, Mosaicism, and Coffin-Siris Syndrome.

    Distinguished in Cornelia De Lange Syndrome

    Diana Braunholz
    Distinguished in Cornelia De Lange Syndrome

    Diana Braunholz
    Referral may be required
    Berlin, BE, DE 

    Diana Braunholz practices practicing medicine in Berlin, Germany. Ms. Braunholz is rated as a Distinguished expert by MediFind in the treatment of Cornelia De Lange Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cornelia De Lange Syndrome, Coffin-Siris Syndrome, Mosaicism, and Head and Neck Squamous Cell Carcinoma (HNSCC).

    Learn about our expert tiers
    Distinguished in Cornelia De Lange Syndrome

    Tim M. Strom
    Distinguished in Cornelia De Lange Syndrome

    Tim M. Strom
    Referral may be required
    Munich, BY, DE 

    Tim Strom practices practicing medicine in Munich, Germany. Mr. Strom is rated as a Distinguished expert by MediFind in the treatment of Cornelia De Lange Syndrome. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Lethal Congenital Contracture Syndrome, Microcephaly, Achalasia Microcephaly Syndrome, Lactic Acidosis, and Kidney Transplant.

    Advanced in Cornelia De Lange Syndrome

    Jelena Pozojevic
    Advanced in Cornelia De Lange Syndrome

    Jelena Pozojevic
    Referral may be required
    Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Jelena Pozojevic practices practicing medicine in Luebeck, Germany. Ms. Pozojevic is rated as an Advanced expert by MediFind in the treatment of Cornelia De Lange Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Cornelia De Lange Syndrome, Focal Dystonia, Mosaicism, and Micrognathia.

    Advanced in Cornelia De Lange Syndrome

    Juliane Eckhold
    Advanced in Cornelia De Lange Syndrome

    Juliane Eckhold
    Referral may be required
    Essen, NW, DE 

    Juliane Eckhold practices practicing medicine in Essen, Germany. Ms. Eckhold is rated as an Advanced expert by MediFind in the treatment of Cornelia De Lange Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cornelia De Lange Syndrome.

    Advanced in Cornelia De Lange Syndrome

    Jasmin Beygo
    Advanced in Cornelia De Lange Syndrome

    Jasmin Beygo
    Referral may be required
    Essen, NW, DE 

    Jasmin Beygo practices practicing medicine in Essen, Germany. Ms. Beygo is rated as an Advanced expert by MediFind in the treatment of Cornelia De Lange Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Macroglossia, Gigantism, Beckwith-Wiedemann Syndrome, and Angelman Syndrome.

    Advanced in Cornelia De Lange Syndrome

    Alma Kuechler
    Advanced in Cornelia De Lange Syndrome

    Alma Kuechler
    Referral may be required
    Essen, NW, DE 

    Alma Kuechler practices practicing medicine in Essen, Germany. Kuechler is rated as an Advanced expert by MediFind in the treatment of Cornelia De Lange Syndrome. They are also highly rated in 19 other conditions, according to our data. Their clinical expertise encompasses RASopathies, Achalasia Microcephaly Syndrome, Microcephaly, and Early Infantile Epileptic Encephalopathy.

    Advanced in Cornelia De Lange Syndrome

    Deniz Kanber
    Advanced in Cornelia De Lange Syndrome

    Deniz Kanber
    Referral may be required
    Essen, NW, DE 

    Deniz Kanber practices practicing medicine in Essen, Germany. Kanber is rated as an Advanced expert by MediFind in the treatment of Cornelia De Lange Syndrome. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Retinoblastoma, Chromosome 6 Uniparental Disomy, Angelman Syndrome, and Chromosome 13q Deletion.

    Advanced in Cornelia De Lange Syndrome

    Elsa Leitao
    Advanced in Cornelia De Lange Syndrome

    Elsa Leitao
    Referral may be required
    Essen, NW, DE 

    Elsa Leitao practices practicing medicine in Essen, Germany. Ms. Leitao is rated as an Advanced expert by MediFind in the treatment of Cornelia De Lange Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1), Myoclonic Epilepsy, and Spinocerebellar Ataxia Type 10.

    Advanced in Cornelia De Lange Syndrome

    Peter M. Krawitz
    Advanced in Cornelia De Lange Syndrome

    Peter M. Krawitz
    Referral may be required
    Bonn, NW, DE 

    Peter Krawitz practices practicing medicine in Bonn, Germany. Mr. Krawitz is rated as an Advanced expert by MediFind in the treatment of Cornelia De Lange Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Glucose Phosphate Isomerase Deficiency, Fryns Syndrome, Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1), and Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2).

    Experienced in Cornelia De Lange Syndrome

    Dagmar Wieczorek
    Experienced in Cornelia De Lange Syndrome

    Dagmar Wieczorek
    Referral may be required
    Duesseldorf, NW, DE 

    Dagmar Wieczorek practices practicing medicine in Duesseldorf, Germany. Ms. Wieczorek is rated as an Experienced expert by MediFind in the treatment of Cornelia De Lange Syndrome. She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses Micrognathia, Coffin-Siris Syndrome, Microcephaly, Achalasia Microcephaly Syndrome, and Gastrostomy.

    Experienced in Cornelia De Lange Syndrome

    Tzung-chien Hsieh
    Experienced in Cornelia De Lange Syndrome

    Tzung-chien Hsieh
    Referral may be required
    Bonn, NW, DE 

    Tzung-chien Hsieh practices practicing medicine in Bonn, Germany. Hsieh is rated as an Experienced expert by MediFind in the treatment of Cornelia De Lange Syndrome. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses KBG Syndrome, Coffin-Siris Syndrome, Micrognathia, and Miller Syndrome.

    Experienced in Cornelia De Lange Syndrome

    Frank Tuttelmann
    Experienced in Cornelia De Lange Syndrome

    Frank Tuttelmann
    Referral may be required
    Muenster, NW, DE 

    Frank Tuttelmann practices practicing medicine in Muenster, Germany. Mr. Tuttelmann is rated as an Experienced expert by MediFind in the treatment of Cornelia De Lange Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Infertility, Klinefelter Syndrome, Hypogonadism, and Intersex.

    Experienced in Cornelia De Lange Syndrome

    Tobias B. Haack
    Experienced in Cornelia De Lange Syndrome

    Tobias B. Haack
    Referral may be required
    Hoppe Seyler Str. 3, 
    Tuebingen, BW, DE 

    Tobias Haack practices practicing medicine in Tuebingen, Germany. Mr. Haack is rated as an Experienced expert by MediFind in the treatment of Cornelia De Lange Syndrome. He is also highly rated in 69 other conditions, according to our data. His clinical expertise encompasses Lactic Acidosis, Spasticity, Hypotonia, Drug Induced Dyskinesia, and Gastrostomy.

    Experienced in Cornelia De Lange Syndrome

    Kathrin Rothfelder
    Experienced in Cornelia De Lange Syndrome

    Kathrin Rothfelder
    Referral may be required
    Otfried Mueller Str. 10, 
    Tuebingen, BW, DE 

    Kathrin Rothfelder practices practicing medicine in Tuebingen, Germany. Ms. Rothfelder is rated as an Experienced expert by MediFind in the treatment of Cornelia De Lange Syndrome. Her clinical expertise encompasses Cornelia De Lange Syndrome, Leukemia, Acute Myeloid Leukemia (AML), and Acute Lymphoblastic Leukemia (ALL).

    Experienced in Cornelia De Lange Syndrome

    Saskia Biskup
    Experienced in Cornelia De Lange Syndrome

    Saskia Biskup
    Referral may be required
    Paul Ehrlich Str. 23, 
    Tuebingen, BW, DE 

    Saskia Biskup practices practicing medicine in Tuebingen, Germany. Ms. Biskup is rated as an Experienced expert by MediFind in the treatment of Cornelia De Lange Syndrome. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Camptodactyly Fibrous Tissue Hyperplasia Skeletal Dysplasia, Camptodactyly Syndrome Guadalajara Type 2, Camptodactyly Syndrome Guadalajara Type 1, Camptodactyly Taurinuria, and Gastrostomy.

    Experienced in Cornelia De Lange Syndrome

    Lara G. Stuhn
    Experienced in Cornelia De Lange Syndrome

    Lara G. Stuhn
    Referral may be required
    Tuebingen, BW, DE 

    Lara Stuhn practices practicing medicine in Tuebingen, Germany. Ms. Stuhn is rated as an Experienced expert by MediFind in the treatment of Cornelia De Lange Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Cornelia De Lange Syndrome, Mosaicism, and Hereditary Ataxia.

    Experienced in Cornelia De Lange Syndrome

    Ralf Werner
    Experienced in Cornelia De Lange Syndrome

    Ralf Werner
    Referral may be required
    Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Ralf Werner practices practicing medicine in Luebeck, Germany. Mr. Werner is rated as an Experienced expert by MediFind in the treatment of Cornelia De Lange Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Intersex, Partial Androgen Insensitivity Syndrome (PAIS), Turner Syndrome, Swyer Syndrome, and Hormone Replacement Therapy (HRT).

    Experienced in Cornelia De Lange Syndrome

    Sabine Kliesch
    Experienced in Cornelia De Lange Syndrome

    Sabine Kliesch
    Referral may be required
    Muenster, NW, DE 

    Sabine Kliesch practices practicing medicine in Muenster, Germany. Ms. Kliesch is rated as an Experienced expert by MediFind in the treatment of Cornelia De Lange Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Hypogonadism, Klinefelter Syndrome, Infertility, Vasectomy, and Orchiectomy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 86

    Last Updated: 06/30/2026

    What is the definition of Cornelia De Lange Syndrome?

    Cornelia de Lange syndrome is a developmental disorder that affects many parts of the body. The features of this disorder vary widely among affected individuals and range from relatively mild to severe.

    When should I see a Cornelia De Lange Syndrome doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Cornelia De Lange Syndrome doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Cornelia De Lange Syndrome doctor in Germany?

    You can find a Cornelia De Lange Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Cornelia De Lange Syndrome doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Cornelia De Lange Syndrome doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Cornelia De Lange Syndrome doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cornelia De Lange Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Cornelia De Lange Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Cornelia De Lange Syndrome doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Cornelia De Lange Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Cornelia De Lange Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Cornelia De Lange Syndrome doctors in Germany?

    Look for the filter feature on the left side of the Cornelia De Lange Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Cornelia De Lange Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Cornelia De Lange Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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