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    Last Updated: 10/30/2025

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    MediFind found 25 doctor with experience in Craniofrontonasal Dysplasia near The United Kingdom. Of these, 17 are Advanced, 6 are Distinguished and 2 are Experienced.

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    25 providers found
      Distinguished in Craniofrontonasal Dysplasia

      Graeme E. Glass
      Distinguished in Craniofrontonasal Dysplasia

      Graeme E. Glass
      Great Ormond Street Hospital For Children NHS Foundation Trust, 
      London, ENG, GB 

      Graeme Glass practices in London, United Kingdom. Mr. Glass is rated as a Distinguished expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Craniofrontonasal Dysplasia, Saethre-Chotzen Syndrome, Syndactyly, Acromicric Dysplasia, and Osteotomy.

      Distinguished in Craniofrontonasal Dysplasia

      David J. Dunaway
      Distinguished in Craniofrontonasal Dysplasia

      David J. Dunaway
      Great Ormond Street, 
      London, ENG, GB 

      David Dunaway practices in London, United Kingdom. Mr. Dunaway is rated as a Distinguished expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Crouzon Syndrome, Craniosynostosis, Treacher Collins Syndrome, Osteotomy, and Craniectomy.

      Distinguished in Craniofrontonasal Dysplasia

      Jonathan A. Britto
      Distinguished in Craniofrontonasal Dysplasia

      Jonathan A. Britto
      Great Ormond Street, 
      London, ENG, GB 

      Jonathan Britto practices in London, United Kingdom. Mr. Britto is rated as a Distinguished expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Crouzon Syndrome, Craniofrontonasal Dysplasia, Saethre-Chotzen Syndrome, Acrocephalopolydactyly, and Osteotomy.

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      Distinguished in Craniofrontonasal Dysplasia

      Andrew M. Wilkie
      Distinguished in Craniofrontonasal Dysplasia

      Andrew M. Wilkie
      Oxford, ENG, GB 

      Andrew Wilkie practices in Oxford, United Kingdom. Mr. Wilkie is rated as a Distinguished expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Craniosynostosis, Carpenter Syndrome, Syndactyly, Acromicric Dysplasia, and Gastrostomy.

      Distinguished in Craniofrontonasal Dysplasia

      Richard W. Bowman
      Distinguished in Craniofrontonasal Dysplasia

      Richard W. Bowman
      London, ENG, GB 

      Richard Bowman practices in London, United Kingdom. Mr. Bowman is rated as a Distinguished expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Craniofrontonasal Dysplasia, Retinoblastoma, Anton Syndrome, Trabeculectomy, and Osteotomy.

      Distinguished in Craniofrontonasal Dysplasia

      Steven A. Wall
      Distinguished in Craniofrontonasal Dysplasia

      Steven A. Wall
      Oxford, ENG, GB 

      Steven Wall practices in Oxford, United Kingdom. Mr. Wall is rated as a Distinguished expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Craniosynostosis, Metopic Ridge, Plagiocephaly, Osteotomy, and Bone Graft.

      Advanced in Craniofrontonasal Dysplasia

      Sophie M. Dupre
      Advanced in Craniofrontonasal Dysplasia

      Sophie M. Dupre
      Newcastle Upon Tyne, ENG, GB 

      Sophie Dupre practices in Newcastle Upon Tyne, United Kingdom. Ms. Dupre is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Craniofrontonasal Dysplasia and Carpal Tunnel Syndrome.

      Advanced in Craniofrontonasal Dysplasia

      Justine L. O'hara
      Advanced in Craniofrontonasal Dysplasia

      Justine L. O'hara

      Great Ormond Street Hospital For Children NHS Trust

      London, ENG, GB 

      Justine O'hara practices in London, United Kingdom. Ms. O'hara is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Saethre-Chotzen Syndrome, Craniosynostosis, Apert Syndrome, Acrocephalopolydactyly, and Osteotomy.

      Advanced in Craniofrontonasal Dysplasia

      Owase U. Jeelani
      Advanced in Craniofrontonasal Dysplasia

      Owase U. Jeelani
      Great Ormond Street, 
      London, ENG, GB 

      Owase Jeelani practices in London, United Kingdom. Jeelani is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. Their top areas of expertise are Craniosynostosis, Plagiocephaly, Metopic Ridge, Osteotomy, and Craniectomy.

      Advanced in Craniofrontonasal Dysplasia

      Grant N. Wheeler
      Advanced in Craniofrontonasal Dysplasia

      Grant N. Wheeler
      Norwich Research Park, 
      Norwich, ENG, GB 

      Grant Wheeler practices in Norwich, United Kingdom. Mr. Wheeler is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Sandhaus Ben-Ami Syndrome and Craniofrontonasal Dysplasia.

      Advanced in Craniofrontonasal Dysplasia

      Robert D. Evans
      Advanced in Craniofrontonasal Dysplasia

      Robert D. Evans
      Great Ormond Street Hospital, 
      London, ENG, GB 

      Robert Evans practices in London, United Kingdom. Mr. Evans is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Apert Syndrome, Acrocephalopolydactyly, Saethre-Chotzen Syndrome, Pfeiffer Syndrome, and Osteotomy.

      Advanced in Craniofrontonasal Dysplasia

      Darrell M. Green
      Advanced in Craniofrontonasal Dysplasia

      Darrell M. Green
      Norwich Research Park, 
      Norwich, ENG, GB 

      Darrell Green practices in Norwich, United Kingdom. Mr. Green is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Osteosarcoma, Bone Tumor, Ewing Sarcoma, and Adult Soft Tissue Sarcoma.

      Advanced in Craniofrontonasal Dysplasia

      Janet S. Higgins
      Advanced in Craniofrontonasal Dysplasia

      Janet S. Higgins
      Norwich Research Park, 
      Norwich, ENG, GB 

      Janet Higgins practices in Norwich, United Kingdom. Ms. Higgins is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top area of expertise is Craniofrontonasal Dysplasia.

      Advanced in Craniofrontonasal Dysplasia

      Greg D. James
      Advanced in Craniofrontonasal Dysplasia

      Greg D. James
      Great Ormond Street Hospital, 
      London, ENG, GB 

      Greg James practices in London, United Kingdom. Mr. James is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Craniosynostosis, Metopic Ridge, Plagiocephaly, Craniectomy, and Mastoidectomy.

      Advanced in Craniofrontonasal Dysplasia

      Martin P. Samuels
      Advanced in Craniofrontonasal Dysplasia

      Martin P. Samuels
      Great Ormond Street Hospital For Children, 
      London, ENG, GB 

      Martin Samuels practices in London, United Kingdom. Mr. Samuels is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Congenital Central Hypoventilation Syndrome, Bartter Syndrome, Craniofrontonasal Dysplasia, Central Sleep Apnea, and Gastrostomy.

      Advanced in Craniofrontonasal Dysplasia

      Simon G. Moxon
      Advanced in Craniofrontonasal Dysplasia

      Simon G. Moxon
      Norwich Research Park, 
      Norwich, ENG, GB 

      Simon Moxon practices in Norwich, United Kingdom. Mr. Moxon is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top area of expertise is Craniofrontonasal Dysplasia.

      Advanced in Craniofrontonasal Dysplasia

      Louise C. Wilson
      Advanced in Craniofrontonasal Dysplasia

      Louise C. Wilson

      Great Ormond Street For Children NHS Foundation Trust

      London, ENG, GB 

      Louise Wilson practices in London, United Kingdom. Ms. Wilson is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Frontometaphyseal Dysplasia, Craniosynostosis, Hypotonia, and Plagiocephaly.

      Advanced in Craniofrontonasal Dysplasia

      Barry M. Jones
      Advanced in Craniofrontonasal Dysplasia

      Barry M. Jones
      Oncology R&D, AstraZeneca, 
      Cambridge, ENG, GB 

      Barry Jones practices in Cambridge, United Kingdom. Mr. Jones is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. His top areas of expertise are Bile Acid Malabsorption, Craniofrontonasal Dysplasia, Frontonasal Dysplasia, Saethre-Chotzen Syndrome, and Osteotomy.

      Advanced in Craniofrontonasal Dysplasia

      Andrea E. Munsterberg
      Advanced in Craniofrontonasal Dysplasia

      Andrea E. Munsterberg
      Norwich Research Park, 
      Norwich, ENG, GB 

      Andrea Munsterberg practices in Norwich, United Kingdom. Ms. Munsterberg is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Craniofrontonasal Dysplasia and Angiodysplasia of the Colon.

      Advanced in Craniofrontonasal Dysplasia

      Sarah Kilcoyne
      Advanced in Craniofrontonasal Dysplasia

      Sarah Kilcoyne
      Oxford, ENG, GB 

      Sarah Kilcoyne practices in Oxford, United Kingdom. Ms. Kilcoyne is rated as an Advanced expert by MediFind in the treatment of Craniofrontonasal Dysplasia. Her top areas of expertise are Saethre-Chotzen Syndrome, Acrocephalopolydactyly, Apert Syndrome, Pfeiffer Syndrome, and Gastrostomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 25

      Last Updated: 10/30/2025

      What is the definition of Craniofrontonasal Dysplasia?

      Craniofrontonasal dysplasia is a rare genetic condition with several skeletal defects. Main features of this condition include widely spaced eyes (hypertelorism), bifid tip of the nose, broad head (brachycephaly), prominent forehead (frontal bossing), asymmetry of facial features, abnoral form of the eyebrow, and/or crossed eyes (strabismus). Other described features include narrow sloping shoulders, malformed bone of the center of the chest (sternum), malformation of the collarbone (clavicle); backward curvature of the spine (lordosis); and/or abnormal lateral curvature of the spine (scoliosis). Several problems leading to asymmetry of the sides of the body have being described, such as asymmetric lengths of the legs or arms, asymmetric breasts, one shoulder that is higher than the other (Sprengel defomity) and absence of the chest wall muscles or bones in one side of the body with abnormally short, webbed fingers on the hand on the same side (Poland syndrome). Females affected with this condition generally have more symptoms than affected males.

      When should I see a Craniofrontonasal Dysplasia doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Craniofrontonasal Dysplasia doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Craniofrontonasal Dysplasia doctor in The United Kingdom?

      You can find a Craniofrontonasal Dysplasia doctor in any of the 10 largest U.S. cities by clicking below:

      Craniofrontonasal Dysplasia doctor near New York, NY
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      Craniofrontonasal Dysplasia doctor near Boston, MA
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      Craniofrontonasal Dysplasia doctor near San Jose, CA

      How does MediFind rank Craniofrontonasal Dysplasia doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Craniofrontonasal Dysplasia doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Craniofrontonasal Dysplasia doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Craniofrontonasal Dysplasia doctor search results page. 

      Why is it important to get a second opinion from a different Craniofrontonasal Dysplasia doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Craniofrontonasal Dysplasia doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Craniofrontonasal Dysplasia doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Craniofrontonasal Dysplasia doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Craniofrontonasal Dysplasia doctors in The United Kingdom?

      Look for the filter feature on the left side of the Craniofrontonasal Dysplasia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Craniofrontonasal Dysplasia doctor that offers video calls?

      Look for the filter feature on the left-side of the Craniofrontonasal Dysplasia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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