The 20 Best Craniofrontonasal Dysplasia Doctors Near Me in Washington, US

Find the Top Craniofrontonasal Dysplasia Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 11 doctor with experience in Craniofrontonasal Dysplasia near Washington, US. Of these, 7 are Experienced, 2 are Advanced and 1 are Distinguished.

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11 providers found
    Distinguished in Craniofrontonasal Dysplasia
    Medical Genetics | Neurology
    Distinguished in Craniofrontonasal Dysplasia
    Medical Genetics | Neurology
    Referral may be required

    The Association Of University Physicians

    1701 Columbia Rd, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Fuki Hisama is a Medical Genetics specialist and a Neurologist practicing medicine in Seattle, Washington. Dr. Hisama is rated as a Distinguished provider by MediFind in the treatment of Craniofrontonasal Dysplasia. She is also highly rated in 38 other conditions, according to our data. Her clinical expertise encompasses Werner Syndrome, Cockayne Syndrome, Coffin-Siris Syndrome, and Cornelia De Lange Syndrome.

    Advanced in Craniofrontonasal Dysplasia
    Endocrinology
    Advanced in Craniofrontonasal Dysplasia
    Endocrinology
    Referral may be required

    Uw Medicine/Harborview Medical Center

    325 9th Ave, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Joshua Thaler is an Endocrinologist practicing medicine in Seattle, Washington. Dr. Thaler is rated as an Advanced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Obesity, Rommen Mueller Sybert Syndrome, Cornelia De Lange Syndrome, Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1), and Orchiectomy.

    Experienced in Craniofrontonasal Dysplasia
    Internal Medicine
    Experienced in Craniofrontonasal Dysplasia
    Internal Medicine

    Office

    933 Red Apple Rd Ste B, 
    Wenatchee, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Brian Derrick is a primary care provider, practicing in Internal Medicine in Wenatchee, Washington. Dr. Derrick is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Type 2 Diabetes (T2D), Osteomyelitis in Children, Hypertension, and Familial Hypertension.

    Learn about our expert tiers
    Experienced in Craniofrontonasal Dysplasia
    Endocrinology
    Experienced in Craniofrontonasal Dysplasia
    Endocrinology
    Referral may be required

    Central WA Hosp Family Physicians

    1215 S Miller St, 
    Wenatchee, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Lisa Stone is an Endocrinologist practicing medicine in Wenatchee, Washington. Dr. Stone is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. She is also highly rated in 48 other conditions, according to our data. Her clinical expertise encompasses Melasma, Adrenal Insufficiency Pediatric, Obesity in Children, and Hyperparathyroidism.

    Advanced in Craniofrontonasal Dysplasia
    Family Medicine
    Advanced in Craniofrontonasal Dysplasia
    Family Medicine

    Confluence Health Moses Lake ASC

    840 E Hill Ave, 
    Moses Lake, WA 
    Experience:
    18+ years
    Languages Spoken:
    English
    Offers Telehealth

    Luther Thompson is a primary care provider, practicing in Family Medicine in Moses Lake, Washington. He has been practicing medicine for over 18 years. Dr. Thompson is rated as an Advanced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Non-Muscle Invasive Bladder Cancer, Muscle Invasive Bladder Cancer, Kenny-Caffey Syndrome Type 2, and Aarskog Syndrome.

    Plastic Surgery
    Plastic Surgery
    Referral may be required

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Srinivas Susarla is a Plastic Surgeon practicing medicine in Seattle, Washington. Dr. Susarla is rated as undefined provider by MediFind in the treatment of Craniofrontonasal Dysplasia. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Micrognathia, Metopic Ridge, Craniosynostosis, Osteotomy, and Bone Graft. Dr. Susarla is board certified in Plastic Surgery and Oral And Maxillofacial Surgery.

    Experienced in Craniofrontonasal Dysplasia
    Internal Medicine
    Experienced in Craniofrontonasal Dysplasia
    Internal Medicine

    Uw Medicine/Harborview Medical Center

    325 9th Ave, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    John Choe is a primary care provider, practicing in Internal Medicine in Seattle, Washington. Dr. Choe is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. His clinical expertise encompasses SHORT Syndrome, Cornelia De Lange Syndrome, Camptodactyly Syndrome Guadalajara Type 2, and Cockayne Syndrome.

    Experienced in Craniofrontonasal Dysplasia
    Family Medicine
    Experienced in Craniofrontonasal Dysplasia
    Family Medicine

    Lakeshore Clinic PLLC

    10025 NE 186th St, 
    Bothell, WA 
    Languages Spoken:
    English

    Sally Esser is a primary care provider, practicing in Family Medicine in Bothell, Washington. Dr. Esser is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her clinical expertise encompasses Camptodactyly Syndrome Guadalajara Type 1, Langer Mesomelic Dysplasia, Boomerang Dysplasia, and Pena-Shokeir Syndrome Type 2.

    Experienced in Craniofrontonasal Dysplasia
    Family Medicine
    Experienced in Craniofrontonasal Dysplasia
    Family Medicine
    520 Lilly Road Northeast, Suite 3, 
    Olympia, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Charlotte Clark is a primary care provider, practicing in Family Medicine in Olympia, Washington. Dr. Clark is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. Her clinical expertise encompasses Hypoparathyroidism-Intellectual Disability-Dysmorphism Syndrome, Robinow Syndrome, Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), and Wiedemann-Steiner Syndrome.

    Experienced in Craniofrontonasal Dysplasia
    Family Medicine
    Experienced in Craniofrontonasal Dysplasia
    Family Medicine

    Jamestown Family Health Clinic

    808 N 5th Ave, 
    Sequim, WA 
    Languages Spoken:
    English

    Allen Berry is a primary care provider, practicing in Family Medicine in Sequim, Washington. Dr. Berry is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, Maturity Onset Diabetes of the Young, and Tissue Biopsy.

    Experienced in Craniofrontonasal Dysplasia
    Neuromusculoskeletal Medicine
    Experienced in Craniofrontonasal Dysplasia
    Neuromusculoskeletal Medicine
    Referral may be required

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Michael Weiss is a Neuromusculoskeletal Medicine provider practicing medicine in Seattle, Washington. Dr. Weiss is rated as an Experienced provider by MediFind in the treatment of Craniofrontonasal Dysplasia. He is also highly rated in 63 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal and Bulbar Muscular Atrophy, Gallbladder Removal, and Endoscopy.

    Showing 1-11 of 11

    Last Updated: 06/30/2026

    What is the definition of Craniofrontonasal Dysplasia?

    Craniofrontonasal dysplasia is a rare genetic condition with several skeletal defects. Main features of this condition include widely spaced eyes (hypertelorism), bifid tip of the nose, broad head (brachycephaly), prominent forehead (frontal bossing), asymmetry of facial features, abnoral form of the eyebrow, and/or crossed eyes (strabismus). Other described features include narrow sloping shoulders, malformed bone of the center of the chest (sternum), malformation of the collarbone (clavicle); backward curvature of the spine (lordosis); and/or abnormal lateral curvature of the spine (scoliosis). Several problems leading to asymmetry of the sides of the body have being described, such as asymmetric lengths of the legs or arms, asymmetric breasts, one shoulder that is higher than the other (Sprengel defomity) and absence of the chest wall muscles or bones in one side of the body with abnormally short, webbed fingers on the hand on the same side (Poland syndrome). Females affected with this condition generally have more symptoms than affected males.

    When should I see a Craniofrontonasal Dysplasia doctor in Washington, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Craniofrontonasal Dysplasia doctor in Washington, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Craniofrontonasal Dysplasia doctors in Washington, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Craniofrontonasal Dysplasia doctors in Washington, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Craniofrontonasal Dysplasia doctor in Washington, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Craniofrontonasal Dysplasia doctor search results page. 

    Why is it important to get a second opinion from a different Craniofrontonasal Dysplasia doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Craniofrontonasal Dysplasia doctor in Washington, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Craniofrontonasal Dysplasia doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Craniofrontonasal Dysplasia doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Craniofrontonasal Dysplasia doctors in Washington, US?

    Look for the filter feature on the left side of the Craniofrontonasal Dysplasia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Craniofrontonasal Dysplasia doctor that offers video calls?

    Look for the filter feature on the left-side of the Craniofrontonasal Dysplasia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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