Degos Disease Overview

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Learn About Degos Disease

What is the definition of Degos Disease?
Degos disease is a rare blood vessel disorder. This slows or stops the flow of blood through the affected vessels. Severity of symptoms depends on the extent and location of the affected blood vessels. Some individuals with Degos disease have isolated skin involvement and develop porcelain-white macules on their skin. Other individuals have more wide spread disease. The cause of this condition is currently unknown.
What are the alternative names for Degos Disease?
  • Malignant Atrophic Papulosis
  • Atrophic papulosis, malignant
  • Degos disease
  • Degos's malignant atrophic papulosis
  • Kohlmeier-Degos disease
  • Köhlmeier-Degos disease
  • Köhlmeier-Degos-Delort-Tricort syndrome
  • Papulosis atrophican maligna
Who are the top Degos Disease Local Doctors?
Elite in Degos Disease
Christos C. Zouboulis
Elite in Degos Disease
Christos C. Zouboulis
Dessau, ST, DE 

Christos Zouboulis practices in Dessau, Germany. Zouboulis and is rated as an Elite expert by MediFind in the treatment of Degos Disease. His top areas of expertise are Hidradenitis Suppurativa, Degos Disease, Acne, Hormone Replacement Therapy (HRT), and Lymphadenectomy.

Elite in Degos Disease
David O. Croitoru
Elite in Degos Disease
David O. Croitoru
Toronto, ON, CA 

David Croitoru practices in Toronto, Canada. Croitoru and is rated as an Elite expert by MediFind in the treatment of Degos Disease. His top areas of expertise are Pyoderma Gangrenosum, Degos Disease, Hidradenitis Suppurativa, and Prurigo Nodularis.

 
 
 
 
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Elite in Degos Disease
Dr. Douglas R. Rosing
Cardiology
Elite in Degos Disease
Dr. Douglas R. Rosing
Cardiology
Bethesda, MD 
301-451-8018
Languages Spoken:
English

Douglas Rosing is a Cardiologist in Bethesda, Maryland. Dr. Rosing and is rated as an Elite provider by MediFind in the treatment of Degos Disease. His top areas of expertise are Degos Disease, Heart Tumor, Carney Complex, and Cardiomyopathy.

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What are the latest Degos Disease Clinical Trials?
A Phase IIa Trial of Baricitinib in the Treatment of Kohlmeier-Degos Disease Patients With Neurological Involvement
A Phase IIa Trial of Baricitinib in the Treatment of Kohlmeier-Degos Disease Patients With Neurological Involvement
Enrollment Status: Recruiting
Publish Date: April 17, 2025
Intervention Type: Drug
Study Phase: Phase 2

Background: Kohlmeier-Degos (KD) is a rare disease that causes inflammation and blood clots, leading to blockages in small blood vessels. These blockages can result in K-D lesions throughout the body, affecting the skin, lungs, heart, spinal cord, and brain. KD can be fatal. No treatment exists for this disease.

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Who are the sources who wrote this article ?

Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center