Degos Disease
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Degos Disease Overview

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Learn About Degos Disease

What is the definition of Degos Disease?
Degos disease is a rare blood vessel disorder. This slows or stops the flow of blood through the affected vessels. Severity of symptoms depends on the extent and location of the affected blood vessels. Some individuals with Degos disease have isolated skin involvement and develop porcelain-white macules on their skin. Other individuals have more wide spread disease. The cause of this condition is currently unknown.
What are the alternative names for Degos Disease?
  • Malignant Atrophic Papulosis
  • Atrophic papulosis, malignant
  • Degos disease
  • Degos's malignant atrophic papulosis
  • Kohlmeier-Degos disease
  • Köhlmeier-Degos disease
  • Köhlmeier-Degos-Delort-Tricort syndrome
  • Papulosis atrophican maligna
Who are the top Degos Disease Local Doctors?
Elite in Degos Disease
Dr. Lee S. Shapiro
Internal Medicine
Elite in Degos Disease
Dr. Lee S. Shapiro
Internal Medicine
Before you request

Malta Specialty Care Center-Neurology

6 Medical Park Dr Ste 203, 
Ballston Spa, NY 
518-264-1200
Languages Spoken:
English
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Lee Shapiro is a primary care provider, practicing in Internal Medicine in Ballston Spa, New York. Dr. Shapiro is rated as an Elite provider by MediFind in the treatment of Degos Disease. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Degos Disease, Scleroderma, Systemic Sclerosis (SSc), and Scleroma.

Distinguished in Degos Disease
Dr. Mark G. Davies
Vascular Surgery
Distinguished in Degos Disease
Dr. Mark G. Davies
Vascular Surgery
Referral required

Ascension Medical Group Providence Vascular Surgery

405 Londonderry Dr, Ste 306, 
Waco, TX 
254-537-6591
Languages Spoken:
English
See accepted insurances
Accepting New Patients
Offers Telehealth

Mark Davies is a Vascular Surgeon practicing medicine in Waco, Texas. Dr. Davies is rated as a Distinguished provider by MediFind in the treatment of Degos Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Degos Disease, Peripheral Artery Disease, Arterial Insufficiency, and Meige Disease. Dr. Davies is board certified in American Board Of Wound Healing - Wound Care, The American Board Of Surgery - Surgery, The American Board Of Surgery - Vascular Surgery, and The American Board Of Preventive Medicine - Clinical Informatics. Dr. Davies is currently accepting new patients.

 
 
 
 
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Elite in Degos Disease
Elite in Degos Disease
Referral may be required
Neuruppin, BB, DE 

Christos Zouboulis practices practicing medicine in Neuruppin, Germany. Mr. Zouboulis is rated as an Elite expert by MediFind in the treatment of Degos Disease. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Hidradenitis Suppurativa, Degos Disease, Acne, Hormone Replacement Therapy (HRT), and Lymphadenectomy.

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What are the latest Degos Disease Clinical Trials?
A Phase IIa Trial of Baricitinib in the Treatment of Kohlmeier-Degos Disease Patients With Neurological Involvement
A Phase IIa Trial of Baricitinib in the Treatment of Kohlmeier-Degos Disease Patients With Neurological Involvement
Enrollment Status: Recruiting
Publish Date: June 22, 2026
Intervention Type: Drug
Study Phase: Phase 2

Background: Kohlmeier-Degos (KD) is a rare disease that causes inflammation and blood clots, leading to blockages in small blood vessels. These blockages can result in K-D lesions throughout the body, affecting the skin, lungs, heart, spinal cord, and brain. KD can be fatal. No treatment exists for this disease.

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Who are the sources who wrote this article ?

Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center