The 20 Best Duchenne Muscular Dystrophy Doctors Near Me

Find Doctors who have experience with Eteplirsen

Last Updated: 02/25/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 45 doctor with experience in Duchenne Muscular Dystrophy.

Location
LocationClose
45 providers found
    Elite in Duchenne Muscular Dystrophy
    Elite in Duchenne Muscular Dystrophy
    Great Ormond Street Hospital Biomedical Research Centre, 
    London, ENG, GB 

    Francesco Muntoni practices in London, United Kingdom. Mr. Muntoni is rated as an Elite expert by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Gastrostomy.

    Elite in Duchenne Muscular Dystrophy
    Elite in Duchenne Muscular Dystrophy
    Liege, WAL, BE 

    Laurent Servais practices in Liege, Belgium. Mr. Servais is rated as an Elite expert by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

    Elite in Duchenne Muscular Dystrophy
    Neurology
    Elite in Duchenne Muscular Dystrophy
    Neurology

    Outpatient Neurologic Rehabilitation Program

    213 Quarry Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    John Day is a Neurologist in Palo Alto, California. Dr. Day is rated as an Elite provider by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Paramyotonia Congenita.

    Learn about our expert tiers
    Elite in Duchenne Muscular Dystrophy
    Elite in Duchenne Muscular Dystrophy

    Nationwide Children's Hospital

    700 Childrens Dr, 
    Columbus, OH 
    Languages Spoken:
    English

    Dr. Jerry Mendell, MD is a Neurology Specialist in Columbus, OH and has over 56 years of experience in the medical field. He graduated from University of Texas Southwestern Medical School in 1966. Dr. Mendell is rated as an Elite provider by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Limb-Girdle Muscular Dystrophy, and Spinal Muscular Atrophy (SMA).

    Elite in Duchenne Muscular Dystrophy
    Pediatric Neurology
    Elite in Duchenne Muscular Dystrophy
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Basil Darras is a Pediatric Neurologist in Boston, Massachusetts. Dr. Darras is rated as an Elite provider by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 1, and Gastrostomy.

    Elite in Duchenne Muscular Dystrophy
    Elite in Duchenne Muscular Dystrophy
    Rome, IT 

    Eugenio Mercuri practices in Rome, Italy. Mr. Mercuri is rated as an Elite expert by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Primary Lateral Sclerosis, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Spinal Muscular Atrophy (SMA).

    Elite in Duchenne Muscular Dystrophy
    Elite in Duchenne Muscular Dystrophy

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English
    Offers Telehealth

    Katherine Mathews is a Pediatrics provider in Iowa City, Iowa. Dr. Mathews is rated as an Elite provider by MediFind in the treatment of Duchenne Muscular Dystrophy. Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, Dystrophinopathy, and Friedreich Ataxia.

    Elite in Duchenne Muscular Dystrophy
    Neurology
    Elite in Duchenne Muscular Dystrophy
    Neurology

    Office

    300 Medical Plz Ste B-200, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Perry Shieh, MD is a Neurology Specialist in Los Angeles, CA and has over 22 years of experience in the medical field. He graduated from Johns Hopkins University School Of Medicine in 2000. He is affiliated with medical facilities Ronald Reagan UCLA Medical Center and Casa Colina Hospital. Dr. Shieh is rated as an Elite provider by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Tubular Aggregate Myopathy.

    Elite in Duchenne Muscular Dystrophy
    Pediatrics
    Elite in Duchenne Muscular Dystrophy
    Pediatrics

    UF Health Center For Pediatric Neuromuscular And Rare Diseases

    1549 Gale Lemerand Dr Fl Second, 
    Gainesville, FL 
    Languages Spoken:
    English

    Barry Byrne is a Pediatrics provider in Gainesville, Florida. Dr. Byrne is rated as an Elite provider by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Pompe Disease, Barth Syndrome, Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, and Bone Marrow Aspiration.

    Elite in Duchenne Muscular Dystrophy
    Elite in Duchenne Muscular Dystrophy

    Craig M. McDonald, MD Private Practice

    2425 Stockton Blvd, 
    Sacramento, CA 
    Languages Spoken:
    English

    Craig Mcdonald is a Physiatrist in Sacramento, California. Dr. Mcdonald is rated as an Elite provider by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Limb-Girdle Muscular Dystrophy Type 2C, and Dystrophinopathy.

    Elite in Duchenne Muscular Dystrophy
    Elite in Duchenne Muscular Dystrophy
    Campus Du Solbosch CP 191, Avenue F.D. Roosevelt 50, CP 151, 
    Brussels, BRU, BE 

    Nicolas Deconinck practices in Brussels, Belgium. Mr. Deconinck is rated as an Elite expert by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 1, Primary Lateral Sclerosis, and Polymicrogyria.

    Elite in Duchenne Muscular Dystrophy
    Elite in Duchenne Muscular Dystrophy
    Department Of Rehabilitation Sciences, 
    Leuven, VLG, BE 

    Nathalie Goemans practices in Leuven, Belgium. Ms. Goemans is rated as an Elite expert by MediFind in the treatment of Duchenne Muscular Dystrophy. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Spinal Muscular Atrophy (SMA), and Primary Lateral Sclerosis.

    Elite in Duchenne Muscular Dystrophy
    Pediatric Neurology
    Elite in Duchenne Muscular Dystrophy
    Pediatric Neurology

    Nationwide Children's Hospital

    700 Childrens Dr, 
    Columbus, OH 
    Languages Spoken:
    English

    Kevin Flanigan is a Pediatric Neurologist in Columbus, Ohio. Dr. Flanigan is rated as an Elite provider by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Dystrophinopathy, and Vici Syndrome.

    Elite in Duchenne Muscular Dystrophy
    Elite in Duchenne Muscular Dystrophy
    8613-114 St, 
    Edmonton, AB, CA 

    Toshifumi Yokota practices in Edmonton, Canada. Yokota is rated as an Elite expert by MediFind in the treatment of Duchenne Muscular Dystrophy. Their top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Dysferlinopathy, and Miyoshi Myopathy.

    Elite in Duchenne Muscular Dystrophy
    Elite in Duchenne Muscular Dystrophy

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Languages Spoken:
    English

    Emma Ciafaloni is a Neurologist in Rochester, New York. Dr. Ciafaloni is rated as an Elite provider by MediFind in the treatment of Duchenne Muscular Dystrophy. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Thymectomy.

    Kumaraswamy Sivakumar
    Distinguished in Duchenne Muscular Dystrophy
    Distinguished in Duchenne Muscular Dystrophy

    Neuromuscular Research Center

    4545 E Shea Blvd, Ste 175, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kumaraswamy Sivakumar is a Neurologist in Phoenix, Arizona. Dr. Sivakumar is rated as a Distinguished provider by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, and Pompe Disease. Dr. Sivakumar is currently accepting new patients.

    Distinguished in Duchenne Muscular Dystrophy
    Distinguished in Duchenne Muscular Dystrophy

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Craig Zaidman is a Neurologist in Saint Louis, Missouri. Dr. Zaidman is rated as a Distinguished provider by MediFind in the treatment of Duchenne Muscular Dystrophy. His top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Spinal Muscular Atrophy (SMA), and Primary Lateral Sclerosis.

    Zarife Sahenk
    Distinguished in Duchenne Muscular Dystrophy
    Distinguished in Duchenne Muscular Dystrophy

    Nationwide Children's Hospital

    700 Childrens Dr, 
    Columbus, OH 
    Languages Spoken:
    English

    Zarife Sahenk is a Neurologist in Columbus, Ohio. Dr. Sahenk is rated as a Distinguished provider by MediFind in the treatment of Duchenne Muscular Dystrophy. Her top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Charcot-Marie-Tooth Disease, and Limb-Girdle Muscular Dystrophy.

    Distinguished in Duchenne Muscular Dystrophy
    Distinguished in Duchenne Muscular Dystrophy
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Annemieke Rus-Aartsma practices in Newcastle Upon Tyne, United Kingdom. Rus-Aartsma is rated as a Distinguished expert by MediFind in the treatment of Duchenne Muscular Dystrophy. Their top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, and Spinal Muscular Atrophy (SMA).

    Distinguished in Duchenne Muscular Dystrophy
    Pediatric Neurology
    Distinguished in Duchenne Muscular Dystrophy
    Pediatric Neurology

    Nationwide Children's Hospital

    700 Childrens Dr, 
    Columbus, OH 
    Languages Spoken:
    English

    Anne Connolly is a Pediatric Neurologist in Columbus, Ohio. Dr. Connolly is rated as a Distinguished provider by MediFind in the treatment of Duchenne Muscular Dystrophy. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Spinal Muscular Atrophy (SMA), and Primary Lateral Sclerosis.

    Showing 1-20 of 45

    Last Updated: 02/25/2026

    What is the definition of Duchenne Muscular Dystrophy?

    Duchenne muscular dystrophy (DMD) affects the muscles, leading to muscle wasting that gets worse over time. DMD occurs primarily in males, though in rare cases may affect females. The symptoms of DMD include progressive weakness and loss (atrophy) of both skeletal and heart muscle. Early signs may include delayed ability to sit, stand, or walk and difficulties learning to speak. Muscle weakness is usually noticeable in early childhood. DMD is caused by genetic changes (DNA variants) in the DMD gene. DMD is inherited in an X-linked recessive pattern and may occur in people who do not have a family history of DMD. Diagnosis of DMD is based on the symptoms, clinical exam, and the result of a biopsy to remove a small piece of muscle for examination under a microscope. The result of genetic testing may also help confirm the diagnosis. Becker muscular dystrophy (BMD), a milder form of muscular dystrophy, is also caused by genetic changes in the DMD gene.

    When should I see a Duchenne Muscular Dystrophy doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Duchenne Muscular Dystrophy doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Duchenne Muscular Dystrophy doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Duchenne Muscular Dystrophy doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Duchenne Muscular Dystrophy doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Duchenne Muscular Dystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Duchenne Muscular Dystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Duchenne Muscular Dystrophy doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Duchenne Muscular Dystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Duchenne Muscular Dystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Duchenne Muscular Dystrophy doctors near me?

    Look for the filter feature on the left side of the Duchenne Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Duchenne Muscular Dystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Duchenne Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy