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Learn About Ebstein's Anomaly

What is the definition of Ebstein's Anomaly?
Ebstein's anomaly is a rare heart defect in which parts of the tricuspid valve (which separates the right ventricle from the right atrium) are abnormal. The abnormality causes the tricuspid valve to leak blood backwards into the right atrium. The backup of blood flow can lead to heart swelling and fluid buildup in the lungs or liver. Sometimes, not enough blood gets out of the heart into the lungs and the person may appear blue. Symptoms range from mild to very severe.
What are the alternative names for Ebstein's Anomaly?
  • Ebstein's anomaly
  • Ebstein anomaly
  • Ebstein's malformation
Who are the top Ebstein's Anomaly Local Doctors?
Elite in Ebstein's Anomaly
Elite in Ebstein's Anomaly

MN - Heart Congenital

200 1st St SW, 
Rochester, MN 
Languages Spoken:
English

Heidi Connolly is a Cardiologist in Rochester, Minnesota. Dr. Connolly is rated as an Elite provider by MediFind in the treatment of Ebstein's Anomaly. Her top areas of expertise are Ebstein's Anomaly, Coarctation of the Aorta, Congenital Heart Disease (CHD), Heart Transplant, and Cardiac Ablation.

Elite in Ebstein's Anomaly
Elite in Ebstein's Anomaly

Boston Childrens Heart Foundation Inc

300 Longwood Ave, 
Boston, MA 
Languages Spoken:
English

Wayne Tworetzky is a Pediatrics provider in Boston, Massachusetts. Dr. Tworetzky is rated as an Elite provider by MediFind in the treatment of Ebstein's Anomaly. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Ebstein's Anomaly, Pulmonary Atresia, and Congenital Heart Disease (CHD).

 
 
 
 
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Elite in Ebstein's Anomaly
Pediatric Cardiology
Elite in Ebstein's Anomaly
Pediatric Cardiology

MN - Heart Pediatric

200 1st St SW, 
Rochester, MN 
Languages Spoken:
English

Jonathan Johnson is a Pediatric Cardiologist in Rochester, Minnesota. Dr. Johnson is rated as an Elite provider by MediFind in the treatment of Ebstein's Anomaly. His top areas of expertise are Ebstein's Anomaly, Long QT Syndrome, Bicuspid Aortic Valve, Heart Transplant, and Stent Placement.

What are the latest Ebstein's Anomaly Clinical Trials?
Fetal Ebstein Anomaly and Tricuspid Valve Dysplasia Registry

Summary: Ebstein anomaly and tricuspid valve dysplasia (EA/TVD) are rare congenital tricuspid valve malformations that carry among the highest mortality of all congenital heart disease diagnosed in utero. Despite the high mortality associated with severe EA/TVD in the fetus, it has only been studied retrospectively. By prospectively enrolling a cohort across multiple centers, many questions may be answered...

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center