Ectodermal Dysplasia Neurosensory Deafness Overview
Learn About Ectodermal Dysplasia Neurosensory Deafness
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However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.
Maja Sukalo practices in Magdeburg, Germany. Ms. Sukalo is rated as an Elite expert by MediFind in the treatment of Ectodermal Dysplasia Neurosensory Deafness. Her top areas of expertise are Johanson-Blizzard Syndrome, Ectodermal Dysplasia Neurosensory Deafness, Aplasia Cutis Congenita, and Ectodermal Dysplasias.
Martin Zenker practices in Magdeburg, Germany. Mr. Zenker is rated as a Distinguished expert by MediFind in the treatment of Ectodermal Dysplasia Neurosensory Deafness. His top areas of expertise are Noonan Syndrome, RASopathies, Syndactyly, and Acromicric Dysplasia.
Yi Liu practices in Jinan, China. Liu is rated as a Distinguished expert by MediFind in the treatment of Ectodermal Dysplasia Neurosensory Deafness. Their top areas of expertise are Ectodermal Dysplasia Neurosensory Deafness, Johanson-Blizzard Syndrome, Carbamoyl Phosphate Synthetase 1 Deficiency, and Nicolaides-Baraitser Syndrome.
Summary: CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, in...