Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 10/30/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 162 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Germany. Of these, 157 are Experienced, 4 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    162 providers found
      Distinguished in Ehlers-Danlos Syndrome (EDS)
      Distinguished in Ehlers-Danlos Syndrome (EDS)
      Hamburg, HH, DE 

      Yskert Von Kodolitsch practices in Hamburg, Germany. Von Kodolitsch is rated as a Distinguished expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Marfan Syndrome, Aortic Dissection, Thoracic Aortic Aneurysm, Bicuspid Aortic Valve, and Heart Valve Repair.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Heidelberg, BW, DE 

      Ingrid Hausser practices in Heidelberg, Germany. Ms. Hausser is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Lamellar Ichthyosis, Nonbullous Congenital Ichthyosiform Erythroderma, Cutis Laxa, Dystrophic Epidermolysis Bullosa, and Thrombectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Alfred Herrhausen Str. 45, 
      Witten, NW, DE 

      Marcel Hanisch practices in Witten, Germany. Mr. Hanisch is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Aplasia Cutis Congenita, Ectodermal Dysplasias, Clouston Syndrome, and Osteotomy.

      Learn about our expert tiers
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Muenster, NW, DE 

      Ole Oelerich practices in Muenster, Germany. Mr. Oelerich is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Marfan Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Hypermobile Joints.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Joseph Stelzmann Str. 52, 
      Koeln, NW, DE 

      Manuel Koch practices in Koeln, Germany. Mr. Koch is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Collagen VI-Related Myopathy, Ehlers-Danlos Syndrome (EDS), Severe Acute Respiratory Syndrome (SARS), Helicobacter Pylori Infection, and Corneal Transplant.

      Sebastian M. Schmidt
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Alfred Nobel Str. 50, 
      Monheim Am Rhein, NW, DE 

      Sebastian Schmidt practices in Monheim Am Rhein, Germany. Mr. Schmidt is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Hypermobile Joints, and Anaphylaxis.

      Carsten Bokemeyer
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      25 Martinistrasse Str, 
      Hamburg, HH, DE 

      Carsten Bokemeyer practices in Hamburg, Germany. Mr. Bokemeyer is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Febrile Neutropenia, Testicular Cancer, Colorectal Cancer, Bone Marrow Transplant, and Orchiectomy.

      Ralf D. Baron
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Arnold Heller Str. 3, 
      Kiel, SH, DE 

      Ralf Baron practices in Kiel, Germany. Mr. Baron is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Neuralgia, Chronic Pain, Complex Regional Pain Syndrome, Pancreaticoduodenectomy, and Pancreatectomy.

      Thomas M. Krieg
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      DECHEMA Forschungsinstitut, Theodor Heuss Allee 25, 
      Frankfurt Am Main, HE, DE 

      Thomas Krieg practices in Frankfurt Am Main, Germany. Mr. Krieg is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Scleroderma, Systemic Sclerosis (SSc), Scleredema, Localized Scleroderma, and Thrombectomy.

      Christiane Herden
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Frankfurter Str. 96, 
      Giessen, HE, DE 

      Christiane Herden practices in Giessen, Germany. Ms. Herden is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Rat-Bite Fever, Encephalitis, Cerebral Hypoxia, and Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius.

      Felix Schoenrath
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Deutsches Herzzentrum Der Charité

      Berlin, BE, DE 

      Felix Schoenrath practices in Berlin, Germany. Mr. Schoenrath is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Heart Failure, Cardiogenic Shock, Aortic Regurgitation, Heart Transplant, and Lung Transplant.

      Malte Ottenhausen
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Mainz, RP, DE 

      Malte Ottenhausen practices in Mainz, Germany. Ottenhausen is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Hydrocephalus, Brain Tumor, Hypothalamic Tumor, Craniectomy, and Thrombectomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Gera, TH, DE 

      Wahab Moustafa practices in Gera, Germany. Mr. Moustafa is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Hemangiopericytoma, Spinal Tumor, Leukocytosis, and Laminectomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Muenster, NW, DE 

      Jeanette Koppe practices in Muenster, Germany. Ms. Koppe is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Peripheral Artery Disease, Ehlers-Danlos Syndrome (EDS), Atherosclerosis, Thrombectomy, and Percutaneous Coronary Intervention (PCI).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Karin Mayer practices in Bonn, Germany. Ms. Mayer is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Febrile Neutropenia, Acute Myeloid Leukemia (AML), Myelodysplastic Syndrome (MDS), Thrombectomy, and Bone Marrow Transplant.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ismaninger Str 22, 
      Munich, BY, DE 

      Albert Busch practices in Munich, Germany. Mr. Busch is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Abdominal Aortic Aneurysm (AAA), Thoracic Aortic Aneurysm, Carotid Artery Disease, Thrombectomy, and Aneurysm Repair.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Thomas Streichert practices in Koeln, Germany. Mr. Streichert is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Marfan Syndrome, Hemolysis, Aortic Dissection, and Bone Marrow Transplant.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Munich, BY, DE 

      Martin Bidlingmaier practices in Munich, Germany. Mr. Bidlingmaier is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hypertrichosis-Acromegaloid Facial Appearance Syndrome, Acromegaloid Facial Appearance Syndrome, Acromegaly, Hyperaldosteronism, and Hormone Replacement Therapy (HRT).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Munich, BY, DE 

      Nicole Reisch practices in Munich, Germany. Ms. Reisch is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Congenital Adrenal Hyperplasia (CAH), Intersex, Familial Glucocorticoid Deficiency, Ovarian Overproduction of Androgens, and Hormone Replacement Therapy (HRT).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Hamburg, HH, DE 

      Walter Fiedler practices in Hamburg, Germany. Mr. Fiedler is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Acute Myeloid Leukemia (AML), Leukemia, Febrile Neutropenia, Acute Promyelocytic Leukemia, and Bone Marrow Transplant.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 162

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Germany?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy