The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors in Germany

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 187 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Germany. Of these, 180 are Experienced, 6 are Advanced and 1 are Distinguished.

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187 providers found
    Distinguished in Ehlers-Danlos Syndrome (EDS)

    Yskert Von Kodolitsch
    Distinguished in Ehlers-Danlos Syndrome (EDS)

    Yskert Von Kodolitsch
    Referral may be required
    Bad Oeynhausen, NW, DE 

    Yskert Von Kodolitsch practices practicing medicine in Bad Oeynhausen, Germany. Von Kodolitsch is rated as a Distinguished expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). They are also highly rated in 13 other conditions, according to our data. Their clinical expertise encompasses Marfan Syndrome, Aortic Dissection, Thoracic Aortic Aneurysm, Ehlers-Danlos Syndrome (EDS), and Heart Valve Repair.

    Advanced in Ehlers-Danlos Syndrome (EDS)

    Ingrid Hausser
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Ingrid Hausser
    Referral may be required
    Heidelberg, BW, DE 

    Ingrid Hausser practices practicing medicine in Heidelberg, Germany. Ms. Hausser is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Lamellar Ichthyosis, Nonbullous Congenital Ichthyosiform Erythroderma, Cutis Laxa, Dystrophic Epidermolysis Bullosa, and Thrombectomy.

    Advanced in Ehlers-Danlos Syndrome (EDS)

    Ole Oelerich
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Ole Oelerich
    Referral may be required
    Muenster, NW, DE 

    Ole Oelerich practices practicing medicine in Muenster, Germany. Mr. Oelerich is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Marfan Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Hypermobile Joints.

    Learn about our expert tiers
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Marcel R. Hanisch
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Marcel R. Hanisch
    Referral may be required
    Alfred Herrhausen Str. 45, 
    Witten, NW, DE 

    Marcel Hanisch practices practicing medicine in Witten, Germany. Mr. Hanisch is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Osteotomy.

    Advanced in Ehlers-Danlos Syndrome (EDS)

    Sebastian W. Schmidt
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Sebastian W. Schmidt
    Referral may be required
    Garching Bei Munchen, BY, DE 

    Sebastian Schmidt practices practicing medicine in Garching Bei Munchen, Germany. Mr. Schmidt is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Hypermobile Joints, Osteoarthritis, Osteotomy, and Endoscopy.

    Advanced in Ehlers-Danlos Syndrome (EDS)

    Manuel C. Koch
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Manuel C. Koch
    Referral may be required
    Joseph Stelzmann Str. 52, 
    Koeln, NW, DE 

    Manuel Koch practices practicing medicine in Koeln, Germany. Mr. Koch is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Collagen VI-Related Myopathy, Ehlers-Danlos Syndrome (EDS), Severe Acute Respiratory Syndrome (SARS), Frey's Syndrome, and Corneal Transplant.

    Advanced in Ehlers-Danlos Syndrome (EDS)

    Albert Busch
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Albert Busch
    Referral may be required
    Ismaninger Str 22, 
    Munich, BY, DE 

    Albert Busch practices practicing medicine in Munich, Germany. Mr. Busch is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Abdominal Aortic Aneurysm (AAA), Thoracic Aortic Aneurysm, Carotid Artery Disease, Thrombectomy, and Aneurysm Repair.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Carsten Bokemeyer
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Carsten Bokemeyer
    Referral may be required
    25 Martinistrasse Str, 
    Hamburg, HH, DE 

    Carsten Bokemeyer practices practicing medicine in Hamburg, Germany. Mr. Bokemeyer is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Febrile Neutropenia, Testicular Cancer, Colorectal Cancer, Bone Marrow Transplant, and Orchiectomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Thomas M. Krieg
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Thomas M. Krieg
    Referral may be required
    DECHEMA Forschungsinstitut, Theodor Heuss Allee 25, 
    Frankfurt Am Main, HE, DE 

    Thomas Krieg practices practicing medicine in Frankfurt Am Main, Germany. Mr. Krieg is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Scleroderma, Systemic Sclerosis (SSc), Scleredema, Localized Scleroderma, and Thrombectomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Christiane Herden
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Christiane Herden
    Referral may be required
    Frankfurter Str. 114, 
    Giessen, HE, DE 

    Christiane Herden practices practicing medicine in Giessen, Germany. Ms. Herden is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Rat-Bite Fever, Encephalitis, Cerebral Hypoxia, and Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Felix Schoenrath
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Felix Schoenrath
    Referral may be required
    Berlin, BE, DE 

    Felix Schoenrath practices practicing medicine in Berlin, Germany. Mr. Schoenrath is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Cardiogenic Shock, Aortic Regurgitation, Heart Transplant, and Lung Transplant.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Paulus F. Kirchhof
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Paulus F. Kirchhof
    Referral may be required
    Hamburg, HH, DE 

    Paulus Kirchhof practices practicing medicine in Hamburg, Germany. Mr. Kirchhof is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Atrial Fibrillation, Stroke, Transient Ischemic Attack (TIA), Cardiac Ablation, and Heart Transplant.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Malte Ottenhausen
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Malte Ottenhausen
    Referral may be required
    Heidelberg, BW, DE 

    Malte Ottenhausen practices practicing medicine in Heidelberg, Germany. Ottenhausen is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Hydrocephalus, Brain Tumor, Hypothalamic Tumor, Craniectomy, and Thrombectomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Katharina Vill
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Katharina Vill
    Referral may be required
    Dr. Von Haunersches Kinderspital, 
    Munich, BY, DE 

    Katharina Vill practices practicing medicine in Munich, Germany. Ms. Vill is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 3, and Thrombectomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Monika Morak
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Monika Morak
    Referral may be required
    Munich, BY, DE 

    Monika Morak practices practicing medicine in Munich, Germany. Ms. Morak is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Lynch Syndrome, Familial Colorectal Cancer, Ehlers-Danlos Syndrome (EDS), Salpingo-Oophorectomy, and Colonoscopy.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Nicole Reisch
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Nicole Reisch
    Referral may be required
    Munich, BY, DE 

    Nicole Reisch practices practicing medicine in Munich, Germany. Ms. Reisch is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Congenital Adrenal Hyperplasia (CAH), Intersex, Familial Glucocorticoid Deficiency, Ovarian Overproduction of Androgens, and Hormone Replacement Therapy (HRT).

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Martin Bidlingmaier
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Martin Bidlingmaier
    Referral may be required
    Munich, BY, DE 

    Martin Bidlingmaier practices practicing medicine in Munich, Germany. Mr. Bidlingmaier is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Hypertrichosis-Acromegaloid Facial Appearance Syndrome, Acromegaloid Facial Appearance Syndrome, Acromegaly, Hyperaldosteronism, and Hormone Replacement Therapy (HRT).

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Christian Lottspeich
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Christian Lottspeich
    Referral may be required
    Munich, BY, DE 

    Christian Lottspeich practices practicing medicine in Munich, Germany. Mr. Lottspeich is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Congenital Adrenal Hyperplasia (CAH), Intersex, Ovarian Overproduction of Androgens, and Retinal Artery Occlusion.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Wahab Moustafa
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Wahab Moustafa
    Referral may be required

    SRH Waldklinikum Gera

    Gera, TH, DE 

    Wahab Moustafa practices practicing medicine in Gera, Germany. Mr. Moustafa is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Hemangiopericytoma, Spinal Tumor, Vascular Ehlers-Danlos Syndrome (VEDS), and Laminectomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Eike S. Debus
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Eike S. Debus
    Referral may be required
    Hamburg, HH, DE 

    Eike Debus practices practicing medicine in Hamburg, Germany. Debus is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). They are also highly rated in 9 other conditions, according to our data. Their clinical expertise encompasses Peripheral Artery Disease, Atherosclerosis, Thoracic Aortic Aneurysm, Angioplasty, and Carotid Artery Surgery.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 187

    Last Updated: 06/30/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Ehlers-Danlos Syndrome (EDS) doctor in Germany?

    You can find an Ehlers-Danlos Syndrome (EDS) doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Germany?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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