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    Last Updated: 01/09/2026

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    MediFind found 52 doctor with experience in Ehlers-Danlos Syndrome (EDS) near North Rhine-Westphalia, DE. Of these, 49 are Experienced and 3 are Advanced.

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    52 providers found
      Advanced in Ehlers-Danlos Syndrome (EDS)

      Marcel R. Hanisch
      Advanced in Ehlers-Danlos Syndrome (EDS)

      Marcel R. Hanisch
      Alfred Herrhausen Str. 45, 
      Witten, NW, DE 

      Marcel Hanisch practices in Witten, Germany. Mr. Hanisch is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Osteotomy.

      Advanced in Ehlers-Danlos Syndrome (EDS)

      Ole Oelerich
      Advanced in Ehlers-Danlos Syndrome (EDS)

      Ole Oelerich
      Muenster, NW, DE 

      Ole Oelerich practices in Muenster, Germany. Mr. Oelerich is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Marfan Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Hypermobile Joints.

      Advanced in Ehlers-Danlos Syndrome (EDS)

      Manuel C. Koch
      Advanced in Ehlers-Danlos Syndrome (EDS)

      Manuel C. Koch
      Joseph Stelzmann Str. 52, 
      Koeln, NW, DE 

      Manuel Koch practices in Koeln, Germany. Mr. Koch is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Collagen VI-Related Myopathy, Ehlers-Danlos Syndrome (EDS), Severe Acute Respiratory Syndrome (SARS), Helicobacter Pylori Infection, and Corneal Transplant.

      Learn about our expert tiers
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Sebastian M. Schmidt
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Sebastian M. Schmidt
      Alfred Nobel Str. 50, 
      Monheim Am Rhein, NW, DE 

      Sebastian Schmidt practices in Monheim Am Rhein, Germany. Mr. Schmidt is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Delirium, Ehlers-Danlos Syndrome (EDS), Hypermobile Joints, Osteotomy, and Endoscopy.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Jeanette Koppe
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Jeanette Koppe
      Muenster, NW, DE 

      Jeanette Koppe practices in Muenster, Germany. Ms. Koppe is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Peripheral Artery Disease, Ehlers-Danlos Syndrome (EDS), Atherosclerosis, Thrombectomy, and Percutaneous Coronary Intervention (PCI).

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Thomas Streichert
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Thomas Streichert
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Thomas Streichert practices in Koeln, Germany. Mr. Streichert is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Marfan Syndrome, Aortic Dissection, Hemolysis, and Bone Marrow Transplant.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Karin T. Mayer
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Karin T. Mayer
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Karin Mayer practices in Bonn, Germany. Ms. Mayer is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Acute Myeloid Leukemia (AML), Myelodysplastic Syndrome (MDS), Febrile Neutropenia, Thrombectomy, and Bone Marrow Transplant.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Uwe P. Hansen
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Uwe P. Hansen
      Muenster, NW, DE 

      Uwe Hansen practices in Muenster, Germany. Mr. Hansen is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Keratoconus, Ehlers-Danlos Syndrome (EDS), and Rheumatoid Arthritis (RA).

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Sabine Hoffjan
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Sabine Hoffjan
      St. Josef Hospital, 
      Bochum, NW, DE 

      Sabine Hoffjan practices in Bochum, Germany. Ms. Hoffjan is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Beta-Propeller Protein-Associated Neurodegeneration, Hallervorden-Spatz Disease, Primary Lateral Sclerosis, and Lipoid Proteinosis.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Iliana Poor-Tantcheva
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Iliana Poor-Tantcheva
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Iliana Poor-Tantcheva practices in Koeln, Germany. Ms. Poor-Tantcheva is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Xanthoma, Mongolian Blue Spots, Clouston Syndrome, and Ectodermal Dysplasias.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Julia Sellin
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Julia Sellin
      Aachen, NW, DE 

      Julia Sellin practices in Aachen, Germany. Ms. Sellin is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), Facioscapulohumeral Muscular Dystrophy (FSHD), and Systemic Mastocytosis.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Martin Mucke
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Martin Mucke
      Sigmund Freud Str. 25, 53127, 
      Bonn, NW, DE 

      Martin Mucke practices in Bonn, Germany. Mr. Mucke is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Acute Pain, Mast Cell Activation Syndrome (MCAS), Chronic Pain, and Systemic Mastocytosis.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Rupert Conrad
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Rupert Conrad
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Rupert Conrad practices in Bonn, Germany. Mr. Conrad is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Acute Pain, Uterine Fibroids, Major Depression, Mast Cell Activation Syndrome (MCAS), and Liver Transplant.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Lauren L. Bohner
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Lauren L. Bohner
      Muenster, NW, DE 

      Lauren Bohner practices in Muenster, Germany. Bohner is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Adams-Oliver Syndrome, Clouston Syndrome, Ectodermal Dysplasias, Osteotomy, and Bone Graft.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Jochen Jackowski
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Jochen Jackowski
      Alfred Herrhausen Str. 45, 
      Witten, NW, DE 

      Jochen Jackowski practices in Witten, Germany. Mr. Jackowski is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Systemic Sclerosis (SSc), Scleroderma, Ehlers-Danlos Syndrome (EDS), and Pompe Disease.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Wilhelm Sandmann
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Wilhelm Sandmann
      Duesseldorf, NW, DE 

      Wilhelm Sandmann practices in Duesseldorf, Germany. Mr. Sandmann is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Pelvic Congestion Syndrome, Renovascular Hypertension, Ehlers-Danlos Syndrome (EDS), and Fibromuscular Dysplasia (FMD).

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Nikolaus Kernich
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Nikolaus Kernich
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Nikolaus Kernich practices in Koeln, Germany. Mr. Kernich is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Diskitis, Osteomyelitis, Lordosis, Osteotomy, and Spinal Fusion.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Annegret Quade
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Annegret Quade
      Aachen, NW, DE 

      Annegret Quade practices in Aachen, Germany. Quade is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Herpes Simplex Encephalitis, Encephalitis, Neuralgia, and Hypotonia.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Friedrich Stock
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Friedrich Stock
      Essen, NW, DE 

      Friedrich Stock practices in Essen, Germany. Mr. Stock is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hyperelastic Skin, Spastic Paraplegia-Epilepsy-Intellectual Disability Syndrome, Autoimmune Polyglandular Syndrome Type 2, and Autoimmune Polyendocrinopathy-Candidiasis-Ectodermal Dystrophy (APECED).

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Alinda M. Reimer
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Alinda M. Reimer
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Alinda Reimer practices in Koeln, Germany. Ms. Reimer is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Epidermolysis Bullosa, Epidermolysis Bullosa with Pyloric Atresia, Dystrophic Epidermolysis Bullosa, Junctional Epidermolysis Bullosa, and Bone Marrow Transplant.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 52

      Last Updated: 01/09/2026

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Ehlers-Danlos Syndrome (EDS) doctor in North Rhine-Westphalia, DE?

      You can find an Ehlers-Danlos Syndrome (EDS) doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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