The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in North Rhine-Westphalia, DE

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 53 doctor with experience in Ehlers-Danlos Syndrome (EDS) near North Rhine-Westphalia, DE. Of these, 50 are Experienced and 3 are Advanced.

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53 providers found
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Marcel R. Hanisch
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Marcel R. Hanisch
    Alfred Herrhausen Str. 45, 
    Witten, NW, DE 

    Marcel Hanisch practices practicing medicine in Witten, Germany. Mr. Hanisch is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Osteotomy.

    Advanced in Ehlers-Danlos Syndrome (EDS)

    Ole Oelerich
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Ole Oelerich
    Muenster, NW, DE 

    Ole Oelerich practices practicing medicine in Muenster, Germany. Mr. Oelerich is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Marfan Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Hypermobile Joints.

    Advanced in Ehlers-Danlos Syndrome (EDS)

    Manuel C. Koch
    Advanced in Ehlers-Danlos Syndrome (EDS)

    Manuel C. Koch
    Joseph Stelzmann Str. 52, 
    Koeln, NW, DE 

    Manuel Koch practices practicing medicine in Koeln, Germany. Mr. Koch is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Collagen VI-Related Myopathy, Ehlers-Danlos Syndrome (EDS), Severe Acute Respiratory Syndrome (SARS), Frey's Syndrome, and Corneal Transplant.

    Learn about our expert tiers
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Iliana Poor-Tantcheva
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Iliana Poor-Tantcheva
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Iliana Poor-Tantcheva practices practicing medicine in Koeln, Germany. Ms. Poor-Tantcheva is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Wrinkly Skin Syndrome, Xanthoma, Nonbullous Congenital Ichthyosiform Erythroderma, and Bullae.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Jeanette Koppe
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Jeanette Koppe
    Muenster, NW, DE 

    Jeanette Koppe practices practicing medicine in Muenster, Germany. Ms. Koppe is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Peripheral Artery Disease, Ehlers-Danlos Syndrome (EDS), Atherosclerosis, Thrombectomy, and Percutaneous Coronary Intervention (PCI).

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Thomas Streichert
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Thomas Streichert
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Thomas Streichert practices practicing medicine in Koeln, Germany. Mr. Streichert is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Marfan Syndrome, Hemolysis, Aortic Dissection, and Bone Marrow Transplant.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Karin T. Mayer
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Karin T. Mayer
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Karin Mayer practices practicing medicine in Bonn, Germany. Ms. Mayer is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Acute Myeloid Leukemia (AML), Myelodysplastic Syndrome (MDS), Febrile Neutropenia, Thrombectomy, and Bone Marrow Transplant.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Nikolaus Kernich
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Nikolaus Kernich
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Nikolaus Kernich practices practicing medicine in Koeln, Germany. Mr. Kernich is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Diskitis, Osteomyelitis, Lordosis, Trapeziectomy, and Spinal Fusion.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Uwe P. Hansen
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Uwe P. Hansen
    Muenster, NW, DE 

    Uwe Hansen practices practicing medicine in Muenster, Germany. Mr. Hansen is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Vascular Ehlers-Danlos Syndrome (VEDS), Keratoconus, Ehlers-Danlos Syndrome (EDS), and Rheumatoid Arthritis (RA).

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Sabine Hoffjan
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Sabine Hoffjan
    St Josef Hospital, 
    Bochum, NW, DE 

    Sabine Hoffjan practices practicing medicine in Bochum, Germany. Ms. Hoffjan is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Beta-Propeller Protein-Associated Neurodegeneration, Primary Lateral Sclerosis, Hallervorden-Spatz Disease, and Spastic Paraplegia Type 2.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Jorg B. Schulz
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Jorg B. Schulz
    Aachen, NW, DE 

    Jorg Schulz practices practicing medicine in Aachen, Germany. Schulz is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). They are also highly rated in 16 other conditions, according to our data. Their clinical expertise encompasses Friedreich Ataxia, Spinocerebellar Ataxia, Drug Induced Dyskinesia, Thrombectomy, and Deep Brain Stimulation.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Lauren L. Bohner
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Lauren L. Bohner
    Muenster, NW, DE 

    Lauren Bohner practices practicing medicine in Muenster, Germany. Bohner is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Adams-Oliver Syndrome, Clouston Syndrome, Ectodermal Dysplasias, Osteotomy, and Bone Graft.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Rupert Conrad
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Rupert Conrad
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Rupert Conrad practices practicing medicine in Bonn, Germany. Mr. Conrad is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Acute Pain, Uterine Fibroids, Major Depression, and Mast Cell Activation Syndrome (MCAS).

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Martin Mucke
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Martin Mucke
    Sigmund Freud Str. 25, 53127, 
    Bonn, NW, DE 

    Martin Mucke practices practicing medicine in Bonn, Germany. Mr. Mucke is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Acute Pain, Mast Cell Activation Syndrome (MCAS), Chronic Pain, and Systemic Mastocytosis.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Jochen Jackowski
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Jochen Jackowski
    Alfred Herrhausen Str. 45, 
    Witten, NW, DE 

    Jochen Jackowski practices practicing medicine in Witten, Germany. Mr. Jackowski is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Scleroderma, Systemic Sclerosis (SSc), Ehlers-Danlos Syndrome (EDS), and Pompe Disease.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Julia Sellin
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Julia Sellin
    Aachen, NW, DE 

    Julia Sellin practices practicing medicine in Aachen, Germany. Ms. Sellin is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), Facioscapulohumeral Muscular Dystrophy (FSHD), and Systemic Mastocytosis.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Annegret Quade
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Annegret Quade
    Aachen, NW, DE 

    Annegret Quade practices practicing medicine in Aachen, Germany. Quade is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Herpes Simplex Encephalitis, Encephalitis, Hypotonia, and Hashimoto Thyroiditis.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Friedrich Stock
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Friedrich Stock
    Essen, NW, DE 

    Friedrich Stock practices practicing medicine in Essen, Germany. Mr. Stock is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Hyperelastic Skin, Spastic Paraplegia-Epilepsy-Intellectual Disability Syndrome, Cortical Dysplasia, and Tuberous Sclerosis.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Katharina F. Muller
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Katharina F. Muller
    St. Josef Hospital, 
    Bochum, NW, DE 

    Katharina Muller practices practicing medicine in Bochum, Germany. Ms. Muller is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Familial Dysautonomia, Postural Orthostatic Tachycardia Syndrome (POTS), Premature Infant, and Parkinson's Disease.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Alinda M. Reimer
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Alinda M. Reimer
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Alinda Reimer practices practicing medicine in Koeln, Germany. Ms. Reimer is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Epidermolysis Bullosa, Epidermolysis Bullosa with Pyloric Atresia, Dystrophic Epidermolysis Bullosa, Junctional Epidermolysis Bullosa, and Bone Marrow Transplant.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 53

    Last Updated: 04/28/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor in North Rhine-Westphalia, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in North Rhine-Westphalia, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Ehlers-Danlos Syndrome (EDS) doctor in North Rhine-Westphalia, DE?

    You can find an Ehlers-Danlos Syndrome (EDS) doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in North Rhine-Westphalia, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in North Rhine-Westphalia, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in North Rhine-Westphalia, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in North Rhine-Westphalia, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in North Rhine-Westphalia, DE?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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