Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 10/30/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 17 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Utrecht, NL. Of these, 16 are Experienced and 1 are Advanced.

    Location
    LocationClose
    17 providers found
      Advanced in Ehlers-Danlos Syndrome (EDS)

      Annette F. Baas
      Advanced in Ehlers-Danlos Syndrome (EDS)

      Annette F. Baas
      Utrecht, UT, NL 

      Annette Baas practices in Utrecht, Netherlands. Ms. Baas is rated as an Advanced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Dilated Cardiomyopathy (DCM), Cardiomyopathy, and Ehlers-Danlos Syndrome (EDS).

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Peter J. Van Tintelen
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Peter J. Van Tintelen
      Utrecht, UT, NL 

      Peter Van Tintelen practices in Utrecht, Netherlands. Mr. Van Tintelen is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Cardiomyopathy, Arrhythmogenic Right Ventricular Cardiomyopathy, Familial Ventricular Tachycardia, and Hypertrophic Cardiomyopathy (HCM).

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Mattijs W. Alsem
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Mattijs W. Alsem
      Utrecht, UT, NL 

      Mattijs Alsem practices in Utrecht, Netherlands. Alsem is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Marfan Syndrome, Symphalangism Distal, Multiple Synostoses Syndrome 1, and Syndactyly Type 2.

      Learn about our expert tiers
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Frans L. Moll
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Frans L. Moll
      Utrecht, UT, NL 

      Frans Moll practices in Utrecht, Netherlands. Mr. Moll is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Carotid Artery Disease, Carotid Artery Surgery, and Aneurysm Repair.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Nine V. Knoers
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Nine V. Knoers
      Utrecht, UT, NL 

      Nine Knoers practices in Utrecht, Netherlands. Knoers is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Magnesium Deficiency, Renal Hypomagnesemia Type 2, Gitelman Syndrome, and Increased Head Circumference.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dennis Dooijes
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dennis Dooijes
      Utrecht, UT, NL 

      Dennis Dooijes practices in Utrecht, Netherlands. Mr. Dooijes is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Cardiomyopathy, Dilated Cardiomyopathy (DCM), Arrhythmogenic Right Ventricular Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), and Heart Transplant.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Joyce E. Lodeweges
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Joyce E. Lodeweges
      Utrecht, UT, NL 

      Joyce Lodeweges practices in Utrecht, Netherlands. Ms. Lodeweges is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Double Aortic Arch, Vascular Ring, Lung Metastases, Ehlers-Danlos Syndrome (EDS), and Laryngectomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Jasper J. Van Der Smagt-Van Der Lugt
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Jasper J. Van Der Smagt-Van Der Lugt
      Utrecht, UT, NL 

      Jasper Van Der Smagt-Van Der Lugt practices in Utrecht, Netherlands. Mr. Van Der Smagt-Van Der Lugt is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Glioma, Gliomatosis Cerebri, Ventricular Fibrillation, Cardiomyopathy, and Thrombectomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dirk-jan A. Van Beek
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Dirk-jan A. Van Beek
      Utrecht, UT, NL 

      Dirk-jan Van Beek practices in Utrecht, Netherlands. Van Beek is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Multiple Endocrine Neoplasia Type 1, Multiple Endocrine Neoplasia, Pancreatic Islet Cell Tumor, Hepato-Pancreato-Biliary Surgery, and Pancreaticoduodenectomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Joost A. Van Herwaarden
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Joost A. Van Herwaarden
      Utrecht, UT, NL 

      Joost Van Herwaarden practices in Utrecht, Netherlands. Van Herwaarden is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Aortic Dissection, Aneurysm Repair, and Angioplasty.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Marleen H. Simon
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Marleen H. Simon
      Utrecht, UT, NL 

      Marleen Simon practices in Utrecht, Netherlands. Ms. Simon is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Spondylocarpotarsal Synostosis Syndrome, Chondrodystrophy, Acrodysostosis, and Schwartz-Jampel Syndrome.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Hester Y. Kroes
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Hester Y. Kroes
      Utrecht, UT, NL 

      Hester Kroes practices in Utrecht, Netherlands. Ms. Kroes is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Joubert Syndrome, Leber Congenital Amaurosis, Blue Cone Monochromatism, and Early Infantile Epileptic Encephalopathy.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Evert-jan A. Vonken
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Evert-jan A. Vonken
      Utrecht, UT, NL 

      Evert-jan Vonken practices in Utrecht, Netherlands. Vonken is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Congenital Bronchobiliary Fistula, Thoracic Outlet Syndrome, Splenic Infarction, Angioplasty, and Gastrostomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Steven V. Koenen
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Steven V. Koenen
      Utrecht, UT, NL 

      Steven Koenen practices in Utrecht, Netherlands. Mr. Koenen is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Preeclampsia, HELLP Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Eclampsia.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Luisa Marsili
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Luisa Marsili
      Utrecht, UT, NL 

      Luisa Marsili practices in Utrecht, Netherlands. Ms. Marsili is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Renal Tubular Dysgenesis, Achard Syndrome, Arachnodactyly, and Mcleod Neuroacanthocytosis Syndrome.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Peter J. Nikkels
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Peter J. Nikkels
      Utrecht, UT, NL 

      Peter Nikkels practices in Utrecht, Netherlands. Mr. Nikkels is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Twin-To-Twin Transfusion Syndrome, Kozlowski Warren Fisher Syndrome, Osteogenesis Imperfecta, and Asphyxia Neonatorum.

      Experienced in Ehlers-Danlos Syndrome (EDS)

      Wilko Spiering
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Wilko Spiering
      Utrecht, UT, NL 

      Wilko Spiering practices in Utrecht, Netherlands. Spiering is rated as an Experienced expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Pseudoxanthoma Elasticum, Hypertension, Hyperaldosteronism, Calcinosis, and Angioplasty.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-17 of 17

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Utrecht, NL?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Utrecht, NL?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Ehlers-Danlos Syndrome (EDS) doctor in Utrecht, NL?

      You can find an Ehlers-Danlos Syndrome (EDS) doctor in any of the 10 largest U.S. cities by clicking below:

      Ehlers-Danlos Syndrome (EDS) doctor near New York, NY
      Ehlers-Danlos Syndrome (EDS) doctor near Los Angeles, CA
      Ehlers-Danlos Syndrome (EDS) doctor near Chicago, IL
      Ehlers-Danlos Syndrome (EDS) doctor near Houston, TX
      Ehlers-Danlos Syndrome (EDS) doctor near Phoenix, AZ
      Ehlers-Danlos Syndrome (EDS) doctor near Philadelphia, PA
      Ehlers-Danlos Syndrome (EDS) doctor near Atlanta, GA
      Ehlers-Danlos Syndrome (EDS) doctor near Boston, MA
      Ehlers-Danlos Syndrome (EDS) doctor near Dallas, TX
      Ehlers-Danlos Syndrome (EDS) doctor near San Jose, CA

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Utrecht, NL?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Utrecht, NL?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Utrecht, NL?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Utrecht, NL?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Utrecht, NL?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy.