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    Last Updated: 01/09/2026

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    MediFind found 99 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Indiana, US. Of these, 96 are Experienced, 2 are Advanced and 1 are Elite.

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    99 providers found
      Elite in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Elite in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      University Family Physicians, Inc.

      575 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Clair Francomano is a Medical Genetics provider in Indianapolis, Indiana. Dr. Francomano is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Brittle Cornea Syndrome, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Spinal Fusion. Dr. Francomano is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Indiana University Health Care Associates Inc

      1520 N Senate Ave, Iu Health Physicians, 
      Indianapolis, IN 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Carol Dellinger is a primary care provider, practicing in Family Medicine in Indianapolis, Indiana. Dr. Dellinger is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Chronic Pain, Fibromyalgia, Opioid Use Disorder, and Maturity Onset Diabetes of the Young. Dr. Dellinger is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Indiana University Health Fort Wayne Physicians, LLC

      10215 Auburn Park Dr, 
      Fort Wayne, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Jan De Guzman is a primary care provider, practicing in Family Medicine in Fort Wayne, Indiana. Dr. De Guzman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Multiple Carboxylase Deficiency, Folate Deficiency, Vitamin B12 Deficiency Anemia, and Attention Deficit Hyperactivity Disorder (ADHD). Dr. De Guzman is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Jakoda Snider is a primary care provider, practicing in Family Medicine in Indianapolis, Indiana. Dr. Snider is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Gonorrhea, Syphilis, Attention Deficit Hyperactivity Disorder (ADHD), and Generalized Anxiety Disorder (GAD). Dr. Snider is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Indiana University Health Fort Wayne Physicians, LLC

      7230 Engle Rd, Suite 100, 
      Fort Wayne, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Kevin Witt is a primary care provider, practicing in Family Medicine in Fort Wayne, Indiana. Dr. Witt is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Premature Ovarian Failure. Dr. Witt is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Arnett Clinic, LLC

      2600 Greenbush St, 
      Lafayette, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Jason Hendrick is a primary care provider, practicing in Family Medicine in Lafayette, Indiana. Dr. Hendrick is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Folate Deficiency, Multiple Carboxylase Deficiency, Vitamin B12 Deficiency Anemia, and Subacute Combined Degeneration. Dr. Hendrick is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Sports Medicine | Pediatric Sports Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Sports Medicine | Pediatric Sports Medicine

      University Family Physicians, Inc.

      720 Eskenazi Ave, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Aaron Watters is a Pediatrics specialist and a Sports Medicine provider in Indianapolis, Indiana. Dr. Watters is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Concussion, Freiberg's Disease, Tendinitis, and Bursitis. Dr. Watters is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Indiana University Health Care Associates Inc

      14645 Hazel Dell Xing, Suite 100, 
      Noblesville, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Diana De Jesus is a primary care provider, practicing in Internal Medicine in Noblesville, Indiana. Dr. De Jesus is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vitamin B12 Deficiency Anemia, Folate Deficiency, Multiple Carboxylase Deficiency, and Hypothyroidism. Dr. De Jesus is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Internal Medicine

      Indiana University Health Care Associates Inc

      13100 E 136th St, Iu Health Saxony Hospital, 
      Fishers, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Brittany Mohrman is a primary care provider, practicing in Pediatrics and Internal Medicine in Fishers, Indiana. Dr. Mohrman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Migraine with Brainstem Aura, Migraine, Melorheostosis with Osteopoikilosis, and Melorheostosis. Dr. Mohrman is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Office

      575 Riley Hospital Dr Fl 2, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Larry Markham is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Markham is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Marfan Syndrome, and Cardiomyopathy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Riley Hospital For Children At Indiana University Health

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English

      John Parent is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Parent is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Cardiomyopathy, Pulmonary Valve Stenosis, RASopathies, Noonan Syndrome, and Heart Transplant.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Office

      621 Memorial Dr Ste 612, 
      South Bend, IN 
      Languages Spoken:
      English

      Gabriel Paris is a Pediatric Cardiologist in South Bend, Indiana. Dr. Paris is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ventricular Septal Defects, Bicuspid Aortic Valve, Heart Murmurs, and Patent Ductus Arteriosus.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Riley Hospital For Children At Indiana University Health

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Robert Darragh is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Darragh is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Tricuspid Atresia, Tetralogy of Fallot, Double Inlet Left Ventricle, Heart Transplant, and Thymectomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Riley Hospital For Children At Indiana University Health

      705 Riley Hospital Dr, 
      Indianapolis,, IN 
      Languages Spoken:
      English

      Eric Ebenroth is a Pediatric Cardiologist in Indianapolis,, Indiana. Dr. Ebenroth is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Transposition of the Great Arteries, Coarctation of the Aorta, Hypoplastic Left Heart Syndrome (HLHS), Vascular Ring, and Tissue Biopsy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Riley Hospital For Children At Indiana University Health

      705 Riley Hospital Dr, 
      Indianapolis,, IN 
      Languages Spoken:
      English

      Anne Farrell is a Pediatric Cardiologist in Indianapolis,, Indiana. Dr. Farrell is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Congenital Heart Disease (CHD), Ventricular Septal Defects, Coarctation of the Aorta, and Gastrostomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Riley Hospital For Children At Indiana University Health

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Experience:
      10+ years
      Languages Spoken:
      English

      Sabena Hussain is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Hussain has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Sinus of Valsalva Aneurysm, Interrupted Aortic Arch, Hypoplastic Left Heart Syndrome (HLHS), and Becker Muscular Dystrophy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Riley Hospital For Children At Indiana University Health

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Jyoti Patel is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Isthmian Coarctation, Coarctation of the Aorta, Transposition of the Great Arteries, and Double Inlet Left Ventricle.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Riley Hospital For Children At Indiana University Health

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Tiffanie Johnson is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Isthmian Coarctation, Coarctation of the Aorta, Pulmonary Valve Stenosis, and Pulmonary Supravalvular Stenosis.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Riley Hospital For Children At Indiana University Health

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Timothy Cordes is a Pediatric Cardiologist in Indianapolis, Indiana. Dr. Cordes is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Transposition of the Great Arteries, Isthmian Coarctation, Coarctation of the Aorta, and Hypoplastic Left Heart Syndrome (HLHS).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Office

      11590 N Meridian St Ste 300, 
      Carmel,, IN 
      Languages Spoken:
      English

      Marcus Schamberger is a Pediatric Cardiologist in Carmel,, Indiana. Dr. Schamberger is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Pulmonary Valves Agenesis, Pulmonary Atresia, Transposition of the Great Arteries, and Double Inlet Left Ventricle.

      Showing 1-20 of 99

      Last Updated: 01/09/2026

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Indiana, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Indiana, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Indiana, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Indiana, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Indiana, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Indiana, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Indiana, US?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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