Kendra Kay is a primary care provider, practicing in Internal Medicine in Columbia, Maryland. Dr. Kay is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vitamin D Deficiency, Obesity, Obesity in Children, and Sitosterolemia. Dr. Kay is currently accepting new patients.

William Rollow is a primary care provider, practicing in Family Medicine in Ellicott City, Maryland. Dr. Rollow is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Lyme Disease, Hashimoto Thyroiditis, Silent Thyroiditis, and Traumatic Brain Injury. Dr. Rollow is currently accepting new patients.

Iuliana Selaru is a primary care provider, practicing in Internal Medicine in Columbia, Maryland. Dr. Selaru is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are High Cholesterol, Insomnia, Sitosterolemia, and Asthma in Children. Dr. Selaru is currently accepting new patients.

Warren Ross is a primary care provider, practicing in Internal Medicine in Ellicott City, Maryland. Dr. Ross is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Cerebellar Degeneration, Inborn Amino Acid Metabolism Disorder, Anemia, and High Cholesterol. Dr. Ross is currently accepting new patients.

Alan Kimmel is a primary care provider, practicing in Internal Medicine in Columbia, Maryland. Dr. Kimmel is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Lymphedema, Lymphangiectasis, Primary Intestinal Lymphangiectasia, and Meige Disease.

Ikechukwu Mbonu is a Rheumatologist and a Hospital Medicine provider in Columbia, Maryland. Dr. Mbonu is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Fibromyalgia, Raynaud Phenomenon, Cutaneous Lupus Erythematosus (CLE), and Rheumatoid Arthritis (RA). Dr. Mbonu is currently accepting new patients.

Donna Raval is a Neonatologist in Fulton, Maryland. Dr. Raval is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Premature Infant, Placental Insufficiency, Polyhydramnios, and Methimazole Antenatal Exposure.

Rupal Desai is a primary care provider, practicing in Neurologist in Ellicott City, Maryland. Dr. Desai is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Inborn Amino Acid Metabolism Disorder, Wiskott-Aldrich Syndrome, Anemia, and High Cholesterol.

Dr. Peter Rowe is a Professor of Pediatrics at the Johns Hopkins University School of Medicine. He is the inaugural Sunshine Natural Wellbeing Foundation Professor of Chronic Fatigue and Related Disorders and serves as the Director of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Related Disorders Program at Johns Hopkins Children’s Center. His areas of clinical expertise include chronic fatigue syndrome and other disorders characterized by fatigue and orthostatic intolerance. Dr. Rowe and his colleagues were the first to describe the relationship between myalgic ecephalomyelitis/chronic fatigue syndrome (ME/CFS) and treatable orthostatic intolerance syndromes, as well as the association between Ehlers-Danlos syndrome and ME/CFS. After receiving his undergraduate degree from the University of Toronto, Dr. Rowe earned his medical degree at McMaster University Medical School in Ontario. He completed his residency in pediatrics at Johns Hopkins and completed his fellowship in General Pediatric Academic Development. He was on the staff at the Children's Hospital of Eastern Ontario from 1987-1991 before returning to Johns Hopkins in 1991. Dr. Rowe’s research focuses on the physiologic factors (circulatory dysregulation, allergic disorders, joint laxity, biomechanical strain, and neuroanatomic problems) that contribute to chronic fatigue as asymptom, and to ME/CFS and long COVID as conditions. In 2014, Dr. Rowe received the research award from the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) for his clinical and scientific work on chronic fatigue syndrome and related disorders. He is a member of the research advisory council for Solve ME/CFS. He is also a member of the American Pediatric Society, the Society for Pediatric Research, the Canadian Pediatric Society, and the American Academy of Pediatrics. Dr. Rowe is rated as a Distinguished provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Pelvic Congestion Syndrome, and Vascular Ehlers-Danlos Syndrome (VEDS).

Jefferson Doyle, M.D., Ph.D., M.H.S. specializes in pediatric ophthalmology and genetic eye diseases and is the recipient of the 2023 Andreas C. Dracopoulos & Daniel Finkelstein, M.D. Rising Professorship in Ophthalmology. His main focus is pediatric and juvenile forms of cataracts, glaucoma, anterior segment dysgenesis, and ectopia lentis. His genetics interests include Marfan syndrome and related connective tissue disorders, complex inherited forms of strabismus in both children and adults (e.g. CFEOM, Duane syndrome), and pediatric retinal dystrophies. Dr. Doyle has published extensively on a number of genetic disorders over the past decade, holds several patents for novel therapeutic approaches to treat them, and has given many national and international talks about them. Dr. Doyle's main research focus is understanding the genetic causes and molecular mechanisms driving genetic diseases, and utilizing that knowledge to develop new therapeutic strategies for them. Over the past decade, he has played a significant role in advancing our understanding of Marfan syndrome and related connective tissue disorders. His work and that of collaborators has led to the discovery of the genetic causes of Shprintzen-Goldberg syndrome and Loeys-Dietz like syndrome. His work has also led to a much better understanding of the molecular mechanisms driving Marfan syndrome, and he holds two patents for novel therapeutic strategies to treat it. Part of his current work focuses on the identification of genes that protect people from developing a number of genetic disorders, and leveraging that knowledge to develop new therapies for those diseases. He also has an interest in pediatric myopia, and has ongoing pre-clinical studies seeking to understand the mechanisms that may drive it and the development of novel therapeutic strategies to treat it. Recent News Articles and Media Coverage A Center for Genetic Eye Disease, Wilmer Insider (Oct. 2021). Dr. Doyle is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Duane-Radial Ray Syndrome, Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), and Strabismus.

Divya Srikumaran, M.D., is the Walter J. Stark Chair of Ophthalmology at the Wilmer Eye Institute, and practices at Wilmer's East Baltimore and Odenton, Maryland locations. She specializes in diagnosing and treating diseases of the cornea, performing corneal transplants, cataract surgeries, and refractive surgeries (LASIK). She is an investigator for several clinical trials at Wilmer offering her patients the latest treatment options. She has published numerous articles in peer-reviewed journals and lectures at national cornea and cataract conferences. Dr. Srikumaran, an associate professor of ophthalmology in the Division of Cornea and External Disease at the Johns Hopkins Wilmer Eye Institute received her M.D. degree from Northwestern University Feinberg School of Medicine, after which she completed her ophthalmology residency and cornea fellowship training at the Wilmer Eye Institute. Dr. Srikumaran’s research interest includes the assessment of corneal transplant outcomes and risk factors for receiving keratoplasty through big data sources including administrative claims data. She received the Hoskins Center IRIS Registry Research Fund Award through the American Academy of Ophthalmology as well as the EBAA Pilot Research grant to study real-world endothelial keratoplasty outcomes. She is a busy clinician who is actively involved in multi-central clinical trials in cornea. In addition, she serves on the scientific program committee of the EBAA and is participating in their Physician Leadership Program. She is also a member of the editorial board for Cornea and will serve as an associate editor for the society’s new journal Cornea Open. She is also a renowned educator and currently serves as Vice Chair of Education and was previously residency program director. As vice chair of education, she has an interest in medical education and studying best practices to support doctors in training and has been awarded several teaching awards. Blending her passion for both education and expertise in corneal surgery, Dr. Srikumaran has also studied barriers to adoption of advanced keratoplasty procedures in the US and abroad. Dr. Srikumaran is also an examiner and member of the cornea and cataract exam content development committees for the American Board of Ophthalmology and was selected to participate in their Visiting Scholar Program. Dr. Srikumaran is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Cataract, Fuchs Dystrophy, Endophthalmitis, Corneal Transplant, and Cataract Removal.

Eric Singman is an Ophthalmologist in Baltimore, Maryland. Dr. Singman is rated as a Distinguished provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Papilledema, Ehlers-Danlos Syndrome (EDS), Strabismus, and Optic Neuritis. Dr. Singman is currently accepting new patients.

James Black is a Vascular Surgeon in Baltimore, Maryland. Dr. Black is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Aortic Dissection, Carotid Artery Surgery, and Hernia Surgery.

Dr. Lum is a clinically busy vascular surgeon specializing in the open and endovascular treatment of peripheral arterial disease, cartoid artery disease, dialysis access, mesenteric occlusive disease, arterial aneurysms and venous disease. In addition, he has a strong clinical & research interest in thoracic outlet syndrome. Dr Lum also has a Masters in Public Health from the Johns Hopkins School of Public Health. Dr. Lum is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thoracic Outlet Syndrome, Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Carotid Artery Surgery, and Osteotomy.

Dr. Harry “Hal” Dietz is a professor of pediatrics, an associate professor of medicine and an assistant professor of neurological surgery at the Johns Hopkins University School of Medicine. He is the Victor A. McKusick Professor of Genetics and also serves as the director of the William S. Smilow Center for Marfan Syndrome Research. Recognized as the world’s leading authority on Marfan syndrome, Dr. Dietz conducted genomic mapping and research on therapeutic agents for deficiencies in the genetic protein fibrillin, which is linked to Marfan syndrome. His research contributions have made diagnosis of the condition patient-specific and accurate. He has received more than 50 national and international awards and honors, including the Antoine Marfan Award from the National Marfan Foundation and the Art of Listening Award from the American Heart Association. Dr. Dietz is an ad hoc reviewer for 19 different organizations, including the American Journal of Cardiology, the Archives of Pediatric and Adolescent Medicine, and the Journal of Clinical Investigation. Over more than two decades, Dr. Dietz has mentored 75 predoctoral and postdoctoral researchers. He has authored 282 original publications in peer-reviewed journals, 25 textbook chapters, and 239 abstracts, and has also delivered more than 440 lectures on Marfan syndrome and related genetic disorders. Dr. Dietz completed his B.S. at Duke University and received his M.D. from the SUNY Upstate School of Medicine. He completed a pediatric residency and a cardiology fellowship at Johns Hopkins University before joining the faculty in 1992. Dr. Dietz is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Caudal Duplication, Neu Laxova Syndrome, Early Infantile Epileptic Encephalopathy, and Cardiomyopathy Hypogonadism Metabolic Anomalies.

Dr. Hicks specializes in congenital aortic pathologies including aberrant subclavian arteries and aortic coarctation, thoracic and abdominal aortic aneurysms, complex lower extremity revascularization including lower extremity bypasses and stenting, and carotid endarterectomy. She is skilled in both open and endovascular surgery for the treatment of aortic and peripheral disease. She is also accomplished in clinical research with over 130 peer-reviewed publications and numerous textbook chapters; her research interests include clinical outcomes in aneurysm repair and lower extremity revascularization, as well as high-value care in vascular surgery. A distinguished fellow of the American Board of Surgery, Dr. Hicks is the recipient of the Department of Surgery Rothman Early Career Development Award for Surgical Research and was selected as a Visiting Scholar to the American Board of Medical Specialties for 2018-2019. She is also an appointed member of a CMS Clinical Expert Subcommittee tasked with refining peripheral vascular disease cost measures for implementation in the Quality Payment Program. LinkedIn https://www.linkedin.com/in/caitlin-hicks-b211b617/. Dr. Hicks is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Carotid Artery Disease, Peripheral Artery Disease, Thoracic Aortic Aneurysm, Carotid Artery Surgery, and Aneurysm Repair.

Reema Jalali is a primary care provider, practicing in Family Medicine in Laurel, Maryland. Dr. Jalali is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Obesity in Children, Food Allergy, Sitosterolemia, and Multisystem Inflammatory Syndrome in Children (MIS-C). Dr. Jalali is currently accepting new patients.

Nicholas Pietris is a Pediatric Cardiologist in Baltimore,, Maryland. Dr. Pietris is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Patent Ductus Arteriosus, Atrial Septal Defect (ASD), Patent Foramen Ovale, and Ventricular Septal Defects.

Rachel Moore is a Pediatric Cardiologist in Baltimore,, Maryland. Dr. Moore is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Patent Foramen Ovale, and Atrial Septal Defect (ASD).

Alicia Chaves is a Pediatric Cardiologist in Baltimore,, Maryland. Dr. Chaves is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Patent Ductus Arteriosus, Ventricular Septal Defects, Sinus of Valsalva Aneurysm, Pulmonary Atresia, and Gastrostomy.