The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in aloha, OR

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 37 doctor with experience in Ehlers-Danlos Syndrome (EDS) near aloha, OR. Of these, 35 are Experienced and 2 are Elite.

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37 providers found
    Elite in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery
    Elite in Ehlers-Danlos Syndrome (EDS)
    Vascular Surgery
    Referral may be required

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (8.8 miles away)
    Languages Spoken:
    English, Arabic
    Accepting New Patients
    Offers Telehealth

    Sherene Shalhub is a Vascular Surgeon practicing medicine in Portland, Oregon. Dr. Shalhub is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Vascular Ehlers-Danlos Syndrome (VEDS), Thoracic Aortic Aneurysm, Aortic Dissection, Ehlers-Danlos Syndrome (EDS), and Angioplasty. Dr. Shalhub is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery
    Referral may be required

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (8.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Howard Song is a General Surgeon practicing medicine in Portland, Oregon. Dr. Song is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Aortic Dissection, Thoracic Aortic Aneurysm, Cystic Medial Necrosis of Aorta, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement. Dr. Song is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Referral may be required
    18345 Southwest Alexander Street, Suite A, 
    Aloha, OR 
     (0.1 miles away)
    Languages Spoken:
    English, Cantonese, Mandarin
    Accepting New Patients

    Jacqueline Ng is an Ophthalmologist practicing medicine in Aloha, Oregon. Dr. Ng is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Dry Eye Syndrome, Meibomianitis, Cataract, and Glaucoma. Dr. Ng is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Cardiology | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Cardiology | Pediatrics
    Referral may be required
    9427 Southwest Barnes Road, Suite 598, 
    Portland, OR 
     (4.7 miles away)
    Languages Spoken:
    English, French, Spanish
    Accepting New Patients
    Offers Telehealth

    Marc Legras is a Cardiologist and a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Legras is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Wolff-Parkinson-White Syndrome, Ventricular Septal Defects, Orthostatic Hypotension, and Patent Foramen Ovale Repair. Dr. Legras is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    6640 Southwest Redwood Lane, 
    Portland, OR 
     (7.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ann Paulsen is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Paulsen is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Osteopenia, Melorheostosis with Osteopoikilosis, Melorheostosis, and Osteoporosis. Dr. Paulsen is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Arete NW LLC

    6640 SW Redwood Ln, 
    Portland, OR 
     (8.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Baier Rakowski is a primary care provider, practicing in Family Medicine in Portland, Oregon. Dr. Rakowski is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Sitosterolemia, High Cholesterol, Attention Deficit Hyperactivity Disorder (ADHD), and Type 2 Diabetes (T2D). Dr. Rakowski is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Cynthia Gulick PC

    11900 SW Greenburg Rd, 
    Portland, OR 
     (6.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Anne Valente is a primary care provider, practicing in Family Medicine in Portland, Oregon. Dr. Valente is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Generalized Anxiety Disorder (GAD), Seasonal Affective Disorder (SAD), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Migraine.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Legacy Medical Group-Good Samaritan

    1200 NW 23rd Ave, 
    Portland, OR 
     (8.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Anne Weinsoft is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Weinsoft is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Sciatica, Hyperhidrosis, Scoliosis, and Type 2 Diabetes (T2D). Dr. Weinsoft is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Legacy Medical Group-Good Samaritan

    1200 NW 23rd Ave, 
    Portland, OR 
     (8.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Melinda Muller is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Muller is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Myelitis, and AIDS Dementia Complex. Dr. Muller is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required
    3303 S Bond Ave Fl 11, 
    Portland, OR 
     (8.6 miles away)
    Languages Spoken:
    English

    Momoko Ponsetto is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Ponsetto is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Scalded Skin Syndrome, Stevens-Johnson Syndrome, and Erythema Multiforme.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Office

    3303 S Bond Ave Bldg 1, 
    Portland, OR 
     (8.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Seema Gupta is a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Ocular Hypertension (OHT), Bietti Crystalline Dystrophy (BCD), Eyelid Bump, and Type 1 Diabetes (T1D). Dr. Gupta is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Legacy Medical Group-Northwest

    1130 NW 22nd Ave Ste 220, 
    Portland, OR 
     (8.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ben Ly is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Ly is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Sitosterolemia, High Cholesterol, Hypothyroidism, and Cirrhosis. Dr. Ly is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (8.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Reem Hasan is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Hasan is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Brittle Cornea Syndrome, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Vascular Ehlers-Danlos Syndrome (VEDS), and Ehlers-Danlos Syndrome (EDS). Dr. Hasan is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (8.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Helena Franco is a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Franco is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Increased Head Circumference, Asthma in Children, Autism Spectrum Disorder, and Ehlers-Danlos Syndrome (EDS). Dr. Franco is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Pediatrics
    Referral may be required

    University Professional Services

    3181 Sw Sam Jackson Park Rd, 
    Portland, OR 
     (8.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Wojciech Wiszniewski is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Wiszniewski is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Microcephaly, Achalasia Microcephaly Syndrome, Focal or Multifocal Malformations in Neuronal Migration, and Cortical Dysplasia. Dr. Wiszniewski is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (8.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jane Zhu is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Zhu is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Severe Acute Respiratory Syndrome (SARS) and Ehlers-Danlos Syndrome (EDS). Dr. Zhu is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (8.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Shawn Blanchard is a primary care provider, practicing in Family Medicine in Portland, Oregon. Dr. Blanchard is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Post Polio Syndrome, Ankylosing Vertebral Hyperostosis with Tylosis, Diffuse Idiopathic Skeletal Hyperostosis, and Rheumatic Fever. Dr. Blanchard is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Referral may be required

    Eye Health Northwest PC

    1955 Nw Northrup St, 
    Portland, OR 
     (8.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Jocelyn Lam is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Lam is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Amblyopia, Cataract, and Presbyopia. Dr. Lam is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Referral may be required

    Eye Health Northwest PC

    1955 NW Northrup St, 
    Portland, OR 
     (8.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Sarah Glass is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Glass is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Cataract, Presbyopia, Choroid Plexus Carcinoma, and Glaucoma. Dr. Glass is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Referral may be required

    Eye Health Northwest PC

    1955 NW Northrup St, 
    Portland, OR 
     (8.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Michael Page is an Ophthalmologist practicing medicine in Portland, Oregon. Dr. Page is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Cataract, Pterygium, Presbyopia, and Corneal Dystrophy and Perceptive Deafness. Dr. Page is currently accepting new patients.

    Showing 1-20 of 37

    Last Updated: 09/26/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor near aloha, OR?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near aloha, OR?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near aloha, OR?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near aloha, OR?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near aloha, OR?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near aloha, OR?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near aloha, OR?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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