The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in providence, RI

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 12 doctor with experience in Ehlers-Danlos Syndrome (EDS) near providence, RI. Of these, 12 are Experienced.

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12 providers found
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Daniel D. Luca
    Child and Adolescent Psychiatry
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Daniel D. Luca
    Child and Adolescent Psychiatry
    Referral may be required

    Emma Pendleton Bradley Hospital

    1011 Veterans Memorial Pkwy, 
    Riverside, RI 
     (4.7 miles away)
    401-432-1000
    Languages Spoken:
    English
    See accepted insurances

    Daniel Luca is a Child and Adolescent Psychiatrist practicing medicine in Riverside, Rhode Island. Dr. Luca is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Autism Spectrum Disorder, Chromosome 20 Trisomy, Primary Ciliary Dyskinesia (PCD), and Polydactyly.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Rhode Island Hospital

    593 Eddy St, 
    Providence, RI 
     (0.9 miles away)
    401-444-4000
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Joel Hudgins is a Pediatrics provider practicing medicine in Providence, Rhode Island. Dr. Hudgins is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Respiratory Syncytial Virus (RSV) Infection, Asthma in Children, Autism Spectrum Disorder, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Hudgins is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Beatrice E. Lechner
    Pediatrics | Neonatology
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Beatrice E. Lechner
    Pediatrics | Neonatology
    Referral may be required

    Women & Infants Hospital Of Rhode Island

    101 Dudley St, 
    Providence, RI 
     (0.9 miles away)
    401-274-1100
    Languages Spoken:
    English

    Beatrice Lechner is a Pediatrics specialist and a Neonatologist practicing medicine in Providence, Rhode Island. Dr. Lechner is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Bilirubin Encephalopathy, Premature Infant, and Hemolytic Disease of the Newborn.

    Learn about our expert tiers
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Patricia A. Rompf M.D. Inc.

    235 Plain St Ste 301, 
    Providence, RI 
     (1.1 miles away)
    401-421-4186
    Languages Spoken:
    English
    See accepted insurances

    Patricia Rompf is a Pediatrics provider practicing medicine in Providence, Rhode Island. Dr. Rompf is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Kawasaki Disease, Inappropriate Sinus Tachycardia (IST), Ehlers-Danlos Syndrome (EDS), and Mitochondrial Trifunctional Protein Deficiency.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    The Miriam Hospital

    146 W River St, 
    Providence, RI 
     (1.3 miles away)
    401-793-7410
    Experience:
    18+ years
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Rebecca Soinski is a Rheumatologist practicing medicine in Providence, Rhode Island. She has been practicing medicine for over 18 years. Dr. Soinski is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Polymyalgia Rheumatica, Rhizomelic Pseudopolyarthritis, Orbital Pseudotumor, and Rheumatoid Arthritis (RA). Dr. Soinski is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Christina Bortz
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Christina Bortz
    Internal Medicine

    The Miriam Hospital

    146 W River St, 
    Providence, RI 
     (1.3 miles away)
    401-793-5700
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Christina Bortz is a primary care provider, practicing in Internal Medicine in Providence, Rhode Island. Dr. Bortz is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Multiple Myeloma.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. William M. Stone
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. William M. Stone
    Internal Medicine

    Office

    100 Highland Ave Ste 309, 
    Providence, RI 
     (1.6 miles away)
    401-351-3312
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    William Stone is a primary care provider, practicing in Internal Medicine in Providence, Rhode Island. Dr. Stone is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Aberrant Subclavian Artery, Glossopharyngeal Neuralgia, Malaria, Aneurysm Repair, and Thrombectomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Isha R. Shah
    Rheumatology
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Isha R. Shah
    Rheumatology
    Referral required

    Kent Hospital

    455 Toll Gate Rd, 
    Warwick, RI 
     (8.9 miles away)
    401-681-2858
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Isha Shah is a Rheumatologist practicing medicine in Warwick, Rhode Island. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Fibromyalgia, Sjogren Syndrome, Psoriasis, and Raynaud Phenomenon. Dr. Shah is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Elizabeth A. Gilliam
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Elizabeth A. Gilliam
    Internal Medicine
    455 Toll Gate Rd, 
    Warwick, RI 
     (8.9 miles away)
    401-737-7010
    Languages Spoken:
    English

    Elizabeth Gilliam is a primary care provider, practicing in Internal Medicine in Warwick, Rhode Island. Dr. Gilliam is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Chronic Obstructive Pulmonary Disease (COPD), Necrotizing Enterocolitis, and Hypermobile Joints.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Referral may be required

    Kent Hospital

    455 Toll Gate Rd, 
    Warwick, RI 
     (8.9 miles away)
    401-681-2858
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Jan Karczewski is a Rheumatologist practicing medicine in Warwick, Rhode Island. Dr. Karczewski is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Polymyalgia Rheumatica, Rhizomelic Pseudopolyarthritis, Fibromyalgia, and Calcium Pyrophosphate Arthritis. Dr. Karczewski is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Mary E. Joyal
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Mary E. Joyal
    Family Medicine

    South County Health Primary Care - Warwick

    120 Centerville Rd, 
    Warwick, RI 
     (9.2 miles away)
    401-788-8780
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Mary Joyal is a primary care provider, practicing in Family Medicine in Warwick, Rhode Island. Dr. Joyal is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Sitosterolemia, Infant Hyperglycemia, Glossitis, and High Cholesterol.

    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Susanna R. Magee
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Dr. Susanna R. Magee
    Family Medicine

    Smgri PC

    206 Cass Ave, 
    Woonsocket, RI 
     (13.2 miles away)
    401-767-1576
    Languages Spoken:
    English
    See accepted insurances

    Susanna Magee is a primary care provider, practicing in Family Medicine in Woonsocket, Rhode Island. Dr. Magee is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Congenital Sucrase-Isomaltase Deficiency, Glucose-Galactose Malabsorption Deficiency, Glucose Phosphate Isomerase Deficiency, Amenorrhea, and Intrauterine Device Insertion.

    Showing 1-12 of 12

    Last Updated: 09/26/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor near providence, RI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near providence, RI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Ehlers-Danlos Syndrome (EDS) doctor near providence, RI?

    You can find an Ehlers-Danlos Syndrome (EDS) doctor in any of the 10 largest U.S. cities by clicking below:

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    Ehlers-Danlos Syndrome (EDS) doctor near Philadelphia, PA
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    Ehlers-Danlos Syndrome (EDS) doctor near San Jose, CA

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near providence, RI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near providence, RI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near providence, RI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near providence, RI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near providence, RI?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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