The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in District of Columbia, US

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 32 doctor with experience in Ehlers-Danlos Syndrome (EDS) near District of Columbia, US. Of these, 30 are Experienced, 1 are Advanced and 1 are Distinguished.

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32 providers found
    Distinguished in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Pediatrics
    Distinguished in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Pediatrics

    Children's Hospital

    111 Michigan Ave Nw, 
    Washington, DC 
    Languages Spoken:
    English

    Natasha Shur is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Shur is rated as a Distinguished provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Pyruvate Carboxylase Deficiency, Phenylketonuria (PKU), Ehlers-Danlos Syndrome (EDS), and Increased Head Circumference.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatrics

    Sullivan Center For Breast Health - Sibley Memorial Hosp

    Washington, DC 
    Languages Spoken:
    English, Arabic
    Offers Telehealth

    Dr. Reem Saadeh-Haddad is a clinical geneticist at Sibley Memorial Hospital and an assistant professor in the division of pediatric genetics and metabolic disorders at Georgetown University. She works to provide clear, clarified communication to patients about the practice of cancer genetics counseling. Dr. Saadeh-Haddad is affiliated with Sibley Memorial Hospital and Georgetown University Hospital. Dr. Saadeh-Haddad has an expertise in cancer genetics. Her clinical interests focus on cancer genetics and dysmorphology. Dr. Saadeh-Haddad earned her medical degree from Georgetown University School of Medicine. She completed a general internship and a residency in pediatrics at New York University Medical Center, followed by a fellowship in clinical genetics at Johns Hopkins University. Dr. Saadeh is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Arthrogryposis Multiplex Congenita, Congenital Contractures, Distal Arthrogryposis, and Distal Arthrogryposis Type 6. Dr. Saadeh is board certified in American Board Of Medical Genetics And Genomics.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Radiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Radiology

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Languages Spoken:
    English

    Eglal Shalaby is a Pediatric Radiologist practicing medicine in Washington, Washington, D.c.. Dr. Shalaby is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Hirschsprung Disease, Scoliosis, Knock Knees, and Biliary Atresia.

    Learn about our expert tiers
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Languages Spoken:
    English
    Offers Telehealth

    Jared Hershenson is a Pediatric Cardiologist practicing medicine in Washington, Washington, D.c.. Dr. Hershenson is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Coronary Artery Fistula, Coronary Artery Aneurysm, Anomalous Left Coronary Artery from the Pulmonary Artery, and Congenital Coronary Artery Malformation.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington,, DC 
    Languages Spoken:
    English

    Charles Berul is a Pediatric Cardiologist practicing medicine in Washington,, Washington, D.c.. Dr. Berul is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Sick Sinus Syndrome, Ventricular Fibrillation, Cardiac Ablation, and Heart Transplant.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Dermatology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Dermatology

    Hu Faculty Practice Plan-Dermatology

    2041 Georgia Ave NW Ste 4300, 
    Washington, DC 
    Languages Spoken:
    English

    Candrice Heath is a Dermatologist practicing medicine in Washington, Washington, D.c.. Dr. Heath is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Kerion Celsi, Autosomal Recessive Hypotrichosis, Acne, and Atopic Dermatitis.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Cardiology

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Languages Spoken:
    English

    Lowell Frank is a Pediatric Cardiologist practicing medicine in Washington, Washington, D.c.. Dr. Frank is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Tetralogy of Fallot, Heart Murmurs, Myocarditis, and Ventricular Septal Defects.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Dupont Circle

    1350 Connecticut Ave NW Ste 1250, 
    Washington, DC 
    Languages Spoken:
    English
    Offers Telehealth

    Nandini Ganesh is a primary care provider, practicing in Family Medicine in Washington, Washington, D.c.. Dr. Ganesh is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Attention Deficit Hyperactivity Disorder (ADHD), Insomnia, Alopecia Areata, Autosomal Recessive Hypotrichosis, and Intrauterine Device Insertion.

    Advanced in Ehlers-Danlos Syndrome (EDS)
    Advanced in Ehlers-Danlos Syndrome (EDS)

    MedStar Washington Hospital Center

    110 Irving St NW, 
    Washington,, DC 
    Languages Spoken:
    English

    Federico Asch is a primary care provider, practicing in Cardiologist in Washington,, Washington, D.c.. Dr. Asch is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Bicuspid Aortic Valve, Heart Failure, Tricuspid Regurgitation, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Rheumatology

    ARA DC Dispensary

    2021 K St NW Ste 300, 
    Washington, DC 
    Languages Spoken:
    English
    Offers Telehealth

    Shari Diamond is a Rheumatologist practicing medicine in Washington, Washington, D.c.. Dr. Diamond is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Postmenopausal Osteoporosis, Osteoporosis, Reactive Arthritis, and Psoriasis.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Languages Spoken:
    English

    Jeffrey Rabin is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Rabin is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Hypermobile Joints, Cerebral Palsy, Alternating Hemiplegia of Childhood, and Kyphosis.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Pediatrics
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Medical Genetics | Pediatrics
    111 Michigan Ave Nw, Children's National Medical Center, 
    Washington, DC 
    Languages Spoken:
    English

    Kimberly Chapman is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Chapman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Brittle Cornea Syndrome, Methylmalonic Acidemia, and Mitochondrial Trifunctional Protein Deficiency.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    MedStar Health: General Internal Medicine And Medicine-Pediatrics At MedStar Georgetown University Hospital

    2233 Wisconsin Ave NW Ste 300, 
    Washington, DC 
    Languages Spoken:
    English
    Offers Telehealth

    Mariam Ayub is a primary care provider, practicing in Internal Medicine in Washington, Washington, D.c.. Dr. Ayub is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Pulmonary Embolism, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Maturity Onset Diabetes of the Young, and Ehlers-Danlos Syndrome (EDS).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Office

    2639 Connecticut Ave NW Ste C100, 
    Washington, DC 
    Languages Spoken:
    English
    Offers Telehealth

    Eugene Miknowski is a Rheumatologist practicing medicine in Washington, Washington, D.c.. Dr. Miknowski is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Fibromyalgia, Vitamin B12 Deficiency, Polymyalgia Rheumatica, and Rhizomelic Pseudopolyarthritis.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Office

    3 Washington Cir NW Ste 207, 
    Washington, DC 
    Languages Spoken:
    English

    Shahreyar Hashemi is a Hand Surgeon practicing medicine in Washington, Washington, D.c.. Dr. Hashemi is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Compartment Syndrome, Ehlers-Danlos Syndrome (EDS), Carpal Tunnel Syndrome, Lymphangitis, and Fasciotomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Whitman Walker Health

    1701 14th St NW, 
    Washington, DC 
    Languages Spoken:
    English

    Barry Clark is a primary care provider, practicing in Family Medicine in Washington, Washington, D.c.. Dr. Clark is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Malignant Hypertension, Myelitis, and AIDS Dysmorphic Syndrome.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    General Surgery

    MedStar Georgetown Transplant Institute At MedStar Georgetown University Hospital

    3800 Reservoir Rd NW Fl 2, 
    Washington, DC 
    Languages Spoken:
    English
    Offers Telehealth

    Sukanya Subramanian is a General Surgeon practicing medicine in Washington, Washington, D.c.. Dr. Subramanian is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Short Bowel Syndrome, Small Bowel Bacterial Overgrowth, Malnutrition, Intestinal Pseudo-Obstruction, and Ileostomy.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Obstetrics and Gynecology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Obstetrics and Gynecology

    Kaiser Foundation Health Plan Of The Mid Atlantic States Inc

    106 Irving St NW Ste 108, 
    Washington, DC 
    Languages Spoken:
    English

    Melissa Fries is an Obstetrics and Gynecologist practicing medicine in Washington, Washington, D.c.. Dr. Fries is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Methimazole Antenatal Exposure, Premature Infant, Tubal Disease, and Gestational Diabetes.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Dupont Circle

    1350 Connecticut Ave NW Ste 1250, 
    Washington, DC 
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Katherine Komis is a primary care provider, practicing in Family Medicine in Washington, Washington, D.c.. She has been practicing medicine for over 17 years. Dr. Komis is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Attention Deficit Hyperactivity Disorder (ADHD), Generalized Anxiety Disorder (GAD), Male Genital Sores, Gonorrhea, and Intrauterine Device Insertion.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Signaturemd

    1920 L St NW Ste 350, 
    Washington, DC 
    Languages Spoken:
    English
    Offers Telehealth

    Darcy Hansen is a primary care provider, practicing in Internal Medicine in Washington, Washington, D.c.. Dr. Hansen is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Obesity in Children, Obesity, Food Allergy, and Vitamin D Deficiency.

    Showing 1-20 of 32

    Last Updated: 04/28/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor in District of Columbia, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in District of Columbia, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in District of Columbia, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in District of Columbia, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in District of Columbia, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in District of Columbia, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in District of Columbia, US?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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