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    Last Updated: 10/30/2025

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    MediFind found 77 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Iowa, US. Of these, 73 are Experienced and 4 are Advanced.

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    77 providers found
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Rheumatology | Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Rheumatology | Rheumatology
      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Scott Lieberman is a Pediatric Rheumatologist and a Rheumatologist in Iowa City, Iowa. Dr. Lieberman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Sjogren Syndrome, Rheumatoid Arthritis (RA), Arthritis, and Ehlers-Danlos Syndrome (EDS). Dr. Lieberman is currently accepting new patients.

      Samir Chandra
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Advanced in Ehlers-Danlos Syndrome (EDS)

      MercyOne Waterloo Pediatrics Care

      2710 St. Francis Drive, Suite 510, 
      Waterloo, IA 
      Languages Spoken:
      English

      Samir Chandra is a Pediatrics provider in Waterloo, Iowa. Dr. Chandra is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Delayed Growth, and Kawasaki Disease.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      State University Of Iowa

      105 E 9th St, University Of Iowa Health, 
      Coralville, IA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Petar Lenert is a Rheumatologist in Coralville, Iowa. Dr. Lenert is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Juvenile Temporal Arteritis, Giant Cell Arteritis (GCA), Temporal Arteritis, and Necrotizing Vasculitis. Dr. Lenert is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Advanced in Ehlers-Danlos Syndrome (EDS)

      MercyOne Des Moines Medical Center

      1111 6th Avenue, 
      Des Moines, IA 
      Languages Spoken:
      English

      Stephen Mooradian is a Pediatrics provider in Des Moines, Iowa. Dr. Mooradian is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), DiGeorge Syndrome, and Kawasaki Disease.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Pediatrics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Pediatrics
      1776 W Lakes Pkwy, Suite 400, 
      West Des Moines, IA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Jill Shivapour is a Pediatric Cardiologist and a Pediatrics provider in West Des Moines, Iowa. Dr. Shivapour is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Bicuspid Aortic Valve, and Congenital Mitral Malformation. Dr. Shivapour is currently accepting new patients.

      Lydia Mustafic
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      MercyOne Waterloo Family Medicine

      2710 St. Francis Drive, Suite 210, 
      Waterloo, IA 
      Experience:
      16+ years
      Languages Spoken:
      English

      Lydia Mustafic is a primary care provider, practicing in Family Medicine in Waterloo, Iowa. Dr. Mustafic has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Chronic Obstructive Pulmonary Disease (COPD), Lung Metastases, Urinary Incontinence, and Peripheral Artery Disease.

      Brian Sims
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics

      MercyOne Waterloo Pediatrics Care

      2710 St. Francis Drive, Suite 510, 
      Waterloo, IA 
      Languages Spoken:
      English

      Brian Sims is a Pediatrics provider in Waterloo, Iowa. Dr. Sims is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Viral Gastroenteritis, Croup, Obesity in Children, and Herpangina.

      Michael Agey
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      MercyOne Norwalk Family Medicine

      9421 MarketPlace Dr., 
      Norwalk, IA 
      Languages Spoken:
      English

      Michael Agey is a primary care provider, practicing in Family Medicine in Norwalk, Iowa. Dr. Agey is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Chronic Obstructive Pulmonary Disease (COPD), Familial Hypertension, Hypertension, and Glucocorticoid-Remediable Aldosteronism.

      Laura Abels
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      MercyOne Ankeny Family Medicine

      800 East 1st Street, Suite 1700, 
      Ankeny, IA 
      Languages Spoken:
      English

      Laura Abels is a primary care provider, practicing in Family Medicine in Ankeny, Iowa. Dr. Abels is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Spasticity, Type 2 Diabetes (T2D), Chronic Pain, and Glucocorticoid-Remediable Aldosteronism.

      Christopher Morse
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      MercyOne North Iowa Family Medicine Residency

      1010 4th Street Southwest, Suite 340, 
      Mason City, IA 
      Languages Spoken:
      English

      Christopher Morse is a primary care provider, practicing in Family Medicine in Mason City, Iowa. Dr. Morse is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Low Sodium Level, Asthma in Children, Asthma, Endoscopy, and Pacemaker Implantation.

      Brianne Day
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine | Counselor
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine | Counselor

      MercyOne Waukee Family Medicine

      25 West Hickman Road, 
      Waukee, IA 
      Languages Spoken:
      English

      Brianne Day is a primary care provider, practicing in Counselor and Family Medicine in Waukee, Iowa. Dr. Day is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are High Cholesterol, Generalized Anxiety Disorder (GAD), Hypothyroidism, and Obesity in Children.

      Andrew Kikuta
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      MercyOne Bluebell Road Family Medicine

      226 Bluebell Road, 0, 
      Cedar Falls, IA 
      Languages Spoken:
      English

      Andrew Kikuta is a primary care provider, practicing in Family Medicine in Cedar Falls, Iowa. Dr. Kikuta is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Enlarged Prostate (BPH), Movement Disorders, Parkinson's Disease, and Sciatica.

      Erin Fish
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      MercyOne Urbandale Internal Medicine

      4005 NW Urbandale Drive, 
      Urbandale, IA 
      Languages Spoken:
      English

      Erin Fish is a primary care provider, practicing in Internal Medicine in Urbandale, Iowa. Dr. Fish is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are High Cholesterol, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension.

      Yadunath Pokharel
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      MercyOne Cedar Falls Internal Medicine

      516 South Division Street, Suite 110, 
      Cedar Falls, IA 
      Languages Spoken:
      English

      Yadunath Pokharel is a primary care provider, practicing in Internal Medicine in Cedar Falls, Iowa. Dr. Pokharel is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Familial Combined Hyperlipidemia.

      Stephanie Sinclair
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Nurse Practitioner | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Nurse Practitioner | Pediatrics

      MercyOne Ankeny Pediatrics Care

      800 East 1st Street, Suite 2200, 
      Ankeny, IA 
      Languages Spoken:
      English

      Stephanie Sinclair is a Pediatrics specialist and a Nurse Practitioner in Ankeny, Iowa. Ms. Sinclair is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Croup, Developmental Dysphasia Familial, Herpangina, and Autism Spectrum Disorder.

      Tami Wiegmann
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      MercyOne Mason City Pediatrics And Adolescent Care

      910 North Eisenhower Avenue, 
      Mason City, IA 
      Languages Spoken:
      English

      Tami Wiegmann is a Pediatrics provider in Mason City, Iowa. Dr. Wiegmann is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Multiple Pterygium Syndrome, Popliteal Pterygium Syndrome, Amniotic Band Syndrome, and Multiple Pterygium Syndrome X Linked.

      Brian Burnett
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      MercyOne Bluebell Road Family Medicine

      226 Bluebell Road, 
      Cedar Falls, IA 
      Languages Spoken:
      English

      Brian Burnett is a primary care provider, practicing in Family Medicine in Cedar Falls, Iowa. Dr. Burnett is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ringworm, Enlarged Prostate (BPH), Coronary Heart Disease, and Peripheral Artery Disease.

      Michelle Craig
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      MercyOne Waterloo Family Medicine

      2710 St. Francis Drive, Suite 210, 
      Waterloo, IA 
      Languages Spoken:
      English
      Offers Telehealth

      Michelle Craig is a primary care provider, practicing in Family Medicine in Waterloo, Iowa. Dr. Craig is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Urinary Incontinence, Alzheimer's Disease, Chronic Kidney Disease, and End-Stage Renal Disease (ESRD).

      Erin W. Rasmussen
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Allergy and Immunology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Allergy and Immunology | Pediatrics

      Allergy Partners Of Iowa City - Coralville

      1100 6th Street #203, 
      Coralville, IA 
      Languages Spoken:
      English

      Erin Rasmussen is a Pediatrics specialist and an Allergy and Immunologist in Coralville, Iowa. Dr. Rasmussen is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Sinusitis, Hives, Allergic Rhinitis, and Grass Allergy.

      Steven Strang
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      MercyOne Pleasant Hill Family Medicine

      5900 East University Avenue, Suite 100, 
      Pleasant Hill, IA 
      Languages Spoken:
      English

      Steven Strang is a primary care provider, practicing in Family Medicine in Pleasant Hill, Iowa. Dr. Strang is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Tracheitis, Familial Hypertension, Hypertension, and Glucocorticoid-Remediable Aldosteronism.

      Showing 1-20 of 77

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Iowa, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Iowa, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Iowa, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Iowa, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Iowa, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Iowa, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Iowa, US?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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