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    Last Updated: 10/30/2025

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    MediFind found 94 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Illinois, US. Of these, 84 are Experienced, 9 are Advanced and 1 are Elite.

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    LocationClose
    94 providers found
      Elite in Ehlers-Danlos Syndrome (EDS)
      Elite in Ehlers-Danlos Syndrome (EDS)

      Carle Health Care Incorporated

      1818 E Windsor Rd, 
      Urbana, IL 
      Languages Spoken:
      English, French
      Offers Telehealth

      Christina Laukaitis is a Medical Genetics provider in Urbana, Illinois. Dr. Laukaitis is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

      Matthew J. Mandell
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      1333 W Belmont Ave Ste 200, 
      Chicago, IL 
      Experience:
      8+ years
      Languages Spoken:
      English
      Offers Telehealth

      Matthew Mandell is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Mandell has been practicing medicine for over 8 years and is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Thyroid Storm, Dermatomyositis, Hypercalcemia, and Milk-Alkali Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Endeavor Health Medical Group

      2650 Ridge Ave, 
      Evanston, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Leslie Temple is a primary care provider, practicing in Family Medicine in Evanston, Illinois. Dr. Temple is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Fibromyalgia, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Non-Hodgkin Lymphoma, and Ehlers-Danlos Syndrome (EDS).

      Learn about our expert tiers
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      Endeavor Health Medical Group

      2650 Ridge Ave, 
      Evanston, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Peter Hulick is a Medical Genetics provider in Evanston, Illinois. Dr. Hulick is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Ring Chromosome 12, Retinopathy Pigmentary Mental Retardation, and BRCA Positive Breast Cancer. Dr. Hulick is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      1460 N Halsted St Ste 202, Primary Care Medical Associates Ltd, 
      Chicago, IL 
      Languages Spoken:
      English

      Sheila Bhagavan is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Bhagavan is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Familial Colorectal Cancer, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), and Brittle Cornea Syndrome.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Endeavor Health Medical Group

      1000 Central St, 
      Evanston, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amanda Myers is a Rheumatologist in Evanston, Illinois. Dr. Myers is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Osteoporosis, Postmenopausal Osteoporosis, Melorheostosis, and Rheumatoid Vasculitis. Dr. Myers is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery | General Surgery
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery | General Surgery

      Endeavor Health Medical Group

      777 Park W Ave, 
      Highland Park, IL 
      Languages Spoken:
      English, Korean
      Accepting New Patients
      Offers Telehealth

      Cheong Lee is a Vascular Surgeon and a General Surgeon in Highland Park, Illinois. Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Peripheral Artery Disease, Deep Vein Thrombosis, Arterial Insufficiency, Hepato-Pancreato-Biliary Surgery, and Stent Placement. Dr. Lee is currently accepting new patients.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pain Medicine | Anesthesiology | General Surgery
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pain Medicine | Anesthesiology | General Surgery

      University Pain Physicians LLC

      1725 W Harrison St, Suite 550, 
      Chicago, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Timothy Lubenow is a Pain Medicine specialist and an Anesthesiologist in Chicago, Illinois. Dr. Lubenow is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Complex Regional Pain Syndrome, Chronic Pain, Neuralgia, Sacroiliac Joint Disease, and Sacral Nerve Stimulation.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Hshs Medical Group Inc

      1512 N Green Mount Rd, Suite 108, 
      Ofallon, IL 
      Languages Spoken:
      English

      Janet Alvarado is a primary care provider, practicing in Internal Medicine in Ofallon, Illinois. Dr. Alvarado is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Necrosis, Cellulitis, Movement Disorders, and Parkinson's Disease.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Bloomington Primary Care, Ltd.

      9 Heartland Dr, Suite C, 
      Bloomington, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jordan Forney is a primary care provider, practicing in Family Medicine in Bloomington, Illinois. Dr. Forney is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Vitamin D Deficiency, Insomnia, Obesity in Children, and Herpetic Stomatitis. Dr. Forney is currently accepting new patients.

      Frances C. Baxley
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      100 Saunders Rd, Suite 150, 
      Lake Forest, IL 
      Languages Spoken:
      English, German, Spanish
      Accepting New Patients
      Offers Telehealth

      Frances Baxley is a primary care provider, practicing in Family Medicine in Lake Forest, Illinois. Dr. Baxley is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Giardia Infection, Irritable Bowel Syndrome (IBS), Bacterial Gastroenteritis, and Familial Dysautonomia. Dr. Baxley is currently accepting new patients.

      Farah N. Khan
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Millennium Park Medical Associates SC

      30 S Michigan Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Hindi, Spanish
      Offers Telehealth

      Farah Khan is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Familial Hypopituitarism, Oral Herpes, Attention Deficit Hyperactivity Disorder (ADHD), Obesity, and Intrauterine Device Insertion.

      John J. Park
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Colorectal Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Colorectal Surgery

      L M Prasad, MD, SC

      1550 N Northwest Hwy, 
      Park Ridge, IL 
      Languages Spoken:
      English, Korean
      Offers Telehealth

      John Park is a Colorectal Surgeon in Park Ridge, Illinois. Dr. Park is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Encopresis, Bowel Incontinence, Familial Colorectal Cancer, Colostomy, and Hernia Surgery.

      Frederick M. Tiesenga
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Suburban Surgery Center

      3825 Highland Ave, 
      Downers Grove, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Frederick Tiesenga is a General Surgeon in Downers Grove, Illinois. Dr. Tiesenga is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Obesity, Cellulitis, Cholecystitis, Gallbladder Removal, and Sleeve Gastrectomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Endeavor Health Medical Group

      2650 Ridge Ave, 
      Evanston, IL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Anjali Casey is a Rheumatologist in Evanston, Illinois. Dr. Casey is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Postmenopausal Osteoporosis, Osteoporosis, Calcium Pyrophosphate Arthritis, and Gout. Dr. Casey is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Cardiology | Pediatrics

      The University Of Chicago Medical Center

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Earing is a Pediatric Cardiologist and a Cardiologist in Chicago, Illinois. Dr. Earing is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Congenital Heart Disease (CHD), Arachnodactyly, Marfan Syndrome, Tetralogy of Fallot, and Heart Transplant. Dr. Earing is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics
      840 S Wood St, 
      Chicago, IL 
      Languages Spoken:
      English

      Punita Gupta is a Pediatrics provider in Chicago, Illinois. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Gaucher Disease, and Gaucher Disease Type 1.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Springfield Clinic, Llp

      1025 S 6th St, 
      Springfield, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Paul Phillips is a primary care provider, practicing in Family Medicine in Springfield, Illinois. Dr. Phillips is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Brittle Cornea Syndrome, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Ehlers-Danlos Syndrome (EDS). Dr. Phillips is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Orthomidwest, PLLC

      5875 E Riverside Blvd, 
      Rockford, IL 
      Languages Spoken:
      English, Hindi, Urdu
      Accepting New Patients
      Offers Telehealth

      Saad Tariq is a Rheumatologist in Rockford, Illinois. Dr. Tariq is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Rheumatoid Arthritis (RA), Fibromyalgia, Postmenopausal Osteoporosis, and Osteoporosis. Dr. Tariq is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Endeavor Health Medical Group

      2650 Ridge Ave, 
      Evanston, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Tyler Saunders is a primary care provider, practicing in Internal Medicine in Evanston, Illinois. Dr. Saunders is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Familial Dilated Cardiomyopathy, Alopecia Areata, Autosomal Recessive Hypotrichosis, and Pancreaticoduodenectomy. Dr. Saunders is currently accepting new patients.

      Showing 1-20 of 94

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Illinois, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Illinois, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Illinois, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Illinois, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Illinois, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Illinois, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Illinois, US?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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