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    Last Updated: 10/30/2025

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    MediFind found 40 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Missouri, US. Of these, 38 are Experienced and 1 are Advanced.

    Location
    LocationClose
    40 providers found
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Neurology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Neurology | Pediatrics
      2401 Gillham Rd, 
      Kansas City, MO 
      Languages Spoken:
      English

      Brian Aalbers is a Pediatric Neurologist and a Pediatrics provider in Kansas City, Missouri. Dr. Aalbers is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Cortical Dysplasia, Focal or Multifocal Malformations in Neuronal Migration, Periventricular Heterotopia, and Seizures.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Cardiology | Pediatrics
      1020 Hitt St, 
      Columbia, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Boris is a Pediatric Cardiologist and a Cardiologist in Columbia, Missouri. Dr. Boris is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Postural Orthostatic Tachycardia Syndrome (POTS), Familial Dysautonomia, Arrhythmias, and Heart Murmurs. Dr. Boris is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Pediatrics
      1020 Hitt St, 
      Columbia, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Lindsey Malloy-Walton is a Pediatric Cardiologist and a Pediatrics provider in Columbia, Missouri. Dr. Malloy-Walton is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Congenital Heart Block, Ventricular Fibrillation, Arrhythmias, Congenital Coronary Artery Malformation, and Heart Transplant. Dr. Malloy-Walton is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      1870 Bagnell Dam Blvd, 
      Lake Ozark, MO 
      Languages Spoken:
      English

      Jeffrey Piontek is a primary care provider, practicing in Family Medicine in Lake Ozark, Missouri. Dr. Piontek is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Allergy and Immunology | Pediatrics | Allergy and Immunology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Allergy and Immunology | Pediatrics | Allergy and Immunology

      Davis, Wright, Berdy, And Suffian, PC

      456 N New Ballas Rd, Suite 129, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Gary Goodman is a Pediatric Allergy and Immunologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Goodman is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Grass Allergy, Allergic Rhinitis, Sinusitis, and Common Variable Immune Deficiency. Dr. Goodman is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Clay Platte Family Medicine Clinic

      3601 Ne Ralph Powell Rd, Suite C, 
      Lees Summit, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Matthew John is a primary care provider, practicing in Family Medicine in Lees Summit, Missouri. Dr. John is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Obesity in Children, High Cholesterol, Generalized Anxiety Disorder (GAD), and Obesity. Dr. John is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Primary Care Of Cedar Hill LLC

      6420 The Cedars Ct, Suite 1, 
      Cedar Hill, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Kyle Toti is a primary care provider, practicing in Family Medicine in Cedar Hill, Missouri. Dr. Toti is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Cirrhosis, Familial Combined Hyperlipidemia, Xanthoma, and Chronic Obstructive Pulmonary Disease (COPD). Dr. Toti is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      The Curators Of The University Of Missouri

      305 N Keene St, Suite 203, 
      Columbia, MO 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Margaret Day is a primary care provider, practicing in Family Medicine in Columbia, Missouri. Dr. Day is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Crohn's Disease, Pulmonary Embolism, Pulmonary Hypertension, and Pulmonary Veno-Occlusive Disease. Dr. Day is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Clay Platte Family Medicine Clinic

      3601 Ne Ralph Powell Rd, Suite C, 
      Lees Summit, MO 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Kathleen Eubanks-Meng is a primary care provider, practicing in Family Medicine in Lees Summit, Missouri. Dr. Eubanks-Meng is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Hypothyroidism, Obesity in Children, Generalized Anxiety Disorder (GAD), and High Cholesterol. Dr. Eubanks-Meng is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      4049 S Campbell Ave, 
      Springfield, MO 
      Languages Spoken:
      English

      William Baird is a primary care provider, practicing in Internal Medicine in Springfield, Missouri. Dr. Baird is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Wilson Disease, Menkes Disease, Familial Benign Copper Deficiency, and Brittle Cornea Syndrome.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery
      5000 Holmes St, 
      Kansas City, MO 
      Languages Spoken:
      English

      Yitong Xiao is a General Surgeon in Kansas City, Missouri. Dr. Xiao is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Gangrene, Omphalocele, Umbilical Hernia, Cholecystitis, and Gallbladder Removal.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      1 Barnes Jew Hosp Plz, 
      Saint Louis, MO 
      Languages Spoken:
      English

      Antara Dattagupta is a primary care provider, practicing in Internal Medicine in Saint Louis, Missouri. Dr. Dattagupta is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Hypophosphatasia (HPP), Ehlers-Danlos Syndrome (EDS), and Osteogenesis Imperfecta.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      1630 Market Ctr Blvd, Suite 201, 
      O Fallon, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Thomas Wright is a Vascular Surgeon in O Fallon, Missouri. Dr. Wright is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Milroy Disease, Lymphedema, Aagenaes Syndrome, and Lymphedema-Distichiasis Syndrome. Dr. Wright is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Catherine Gooch is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Gooch has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Sandhaus Ben-Ami Syndrome, Rommen Mueller Sybert Syndrome, and Acheiropody. Dr. Gooch is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Sara Procknow is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Procknow has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Williams Syndrome, Ehlers-Danlos Syndrome (EDS), and Hypotonia. Dr. Procknow is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Practice
      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Practice

      Healing Arts Center L.L.C.

      225 Violyn Dr, 
      Branson, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Janiece Bridges is a primary care provider, practicing in General Practice in Branson, Missouri. Dr. Bridges is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Type 2 Diabetes (T2D). Dr. Bridges is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      The Curators Of The University Of Missouri

      308 S Church St, 
      Fayette, MO 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kevin Frazer is a primary care provider, practicing in Family Medicine in Fayette, Missouri. Dr. Frazer is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Chronic Cough, Idiopathic Edema, and Endoscopy. Dr. Frazer is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Ssm Medical Group Inc

      1120 Shackelford Rd, 
      Florissant, MO 
      Languages Spoken:
      English, Cantonese, Mandarin
      Accepting New Patients
      Offers Telehealth

      Shuang Song is a Rheumatologist in Florissant, Missouri. Dr. Song is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Rheumatoid Arthritis (RA), Sjogren Syndrome, Psoriatic Arthritis, and Eosinophilic Fasciitis. Dr. Song is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics

      The Curators Of The University Of Missouri

      404 N Keene St, Suite 101, 
      Columbia, MO 
      Languages Spoken:
      English, Hebrew, Spanish
      Accepting New Patients
      Offers Telehealth

      Richard Sidlow is a Medical Genetics specialist and a Pediatrics provider in Columbia, Missouri. Dr. Sidlow is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Allan-Herndon-Dudley Syndrome, Hypotonia, Fetal Akinesia Sequence, and Char Syndrome. Dr. Sidlow is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Kirksville Specialty Clinic LLC

      1108 E Patterson St, Suite 10, 
      Kirksville, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Jackson is a Rheumatologist in Kirksville, Missouri. Dr. Jackson is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Rheumatoid Arthritis (RA), Rheumatoid Pneumoconiosis, Rheumatoid Lung Disease, and Ankylosing Spondylitis. Dr. Jackson is currently accepting new patients.

      Showing 1-20 of 40

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Missouri, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Missouri, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Missouri, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Missouri, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Missouri, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Missouri, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Missouri, US?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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