Exstrophy of the Bladder
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Exstrophy of the Bladder Overview

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What is the definition of Exstrophy of the Bladder?
A congenital genitourinary malformation belonging to the spectrum of the exstrophy-epispadias complex (EEC) and is characterized by an evaginated bladder plate, epispadias and an anterior defect of the pelvis, pelvic floor and abdominal wall.
Who are the top Exstrophy of the Bladder Local Doctors?
Elite in Exstrophy of the Bladder
Elite in Exstrophy of the Bladder
Referral may be required

Nemours Children's Health, Jacksonville

807 Children's Way, 
Jacksonville, FL 
904-697-3600
Languages Spoken:
English
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Accepting New Patients

Andrew Stec is a Urologist practicing medicine in Jacksonville, Florida. Dr. Stec is rated as an Elite provider by MediFind in the treatment of Exstrophy of the Bladder. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Exstrophy of the Bladder, Undescended Testicle, Hydrocele, Osteotomy, and Lithotripsy. Dr. Stec is board certified in American Board Of Urology. Dr. Stec is currently accepting new patients.

Elite in Exstrophy of the Bladder
Elite in Exstrophy of the Bladder
Referral may be required

Johns Hopkins Children's Center

1800 Orleans St, 
Baltimore, MD 
410-955-4494
Experience:
10+ years
Languages Spoken:
English
See accepted insurances
Accepting New Patients
Offers Telehealth

Mahir Maruf is a Urologist practicing medicine in Baltimore, Maryland. He has been practicing medicine for over 10 years. Dr. Maruf is rated as an Elite provider by MediFind in the treatment of Exstrophy of the Bladder. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Exstrophy of the Bladder, Exstrophy-Epispadias Complex, Cloacal Exstrophy, Bladder Reconstruction, and Osteotomy. Dr. Maruf is currently accepting new patients.

 
 
 
 
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Elite in Exstrophy of the Bladder
Elite in Exstrophy of the Bladder
Referral may be required

Childrens Hospital Of Wisconsin

9000 W Wisconsin Ave, 
Milwaukee, WI 
414-805-3666
Languages Spoken:
English

Michael Mitchell is a Urologist practicing medicine in Milwaukee, Wisconsin. Dr. Mitchell is rated as an Elite provider by MediFind in the treatment of Exstrophy of the Bladder. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Exstrophy of the Bladder, UPJ Obstruction, Cloacal Exstrophy, Bladder Reconstruction, and Osteotomy.

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What are the latest Exstrophy of the Bladder Clinical Trials?
Concomitant Renal and Urinary Bladder Allograft Transplantation
Concomitant Renal and Urinary Bladder Allograft Transplantation
Who is this study for: Pediatric patients over age 1 year and adults with disorders of the urinary bladder
Enrollment Status: Recruiting
Publish Date: April 23, 2026
Intervention Type: Procedure
Study Phase: Early Phase 1

Summary: The purpose of this study is to establish if concomitant renal and vascularized urinary bladder allograft transplantation is feasible.

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PROSPECTIVE STUDY EVALUATING THE SAFETY AND EFFECTIVENESS OF ADJUSTABLE CONTINENCE THERAPY (ACT) BALLOONS FOR THE MANAGEMENT OF URINARY INCONTINENCE IN CHILDREN WITH BLADDER EXSTROPHY OR INCONTINENT EPISPADIAS
PROSPECTIVE STUDY EVALUATING THE SAFETY AND EFFECTIVENESS OF ADJUSTABLE CONTINENCE THERAPY (ACT) BALLOONS FOR THE MANAGEMENT OF URINARY INCONTINENCE IN CHILDREN WITH BLADDER EXSTROPHY OR INCONTINENT EPISPADIAS
Enrollment Status: Recruiting
Publish Date: June 23, 2021
Intervention Type: Device
Study Phase: Not Applicable

Summary: The purpose of this study is to evaluate the effectiveness and safety of a minimally invasive surgical procedure with ACT (Adjustable Continence Therapy) balloons implantation for the treatment of urinary incontinence in children with bladder exstrophy or isolated epispadias. The ACT therapy consists of two small adjustable silicone balloons connected with a tubing to a port, surgically placed aro...

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center