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    Last Updated: 01/09/2026

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    MediFind found 25 doctor with experience in Fabry Disease near Berlin, DE. Of these, 15 are Experienced, 8 are Advanced, 1 are Distinguished and 1 are Elite.

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    25 providers found
      Elite in Fabry Disease

      Arndt Rolfs
      Elite in Fabry Disease

      Arndt Rolfs
      Berlin, BE, DE 

      Arndt Rolfs practices in Berlin, Germany. Rolfs is rated as an Elite expert by MediFind in the treatment of Fabry Disease. Their top areas of expertise are Niemann-Pick Disease, Fabry Disease, Gaucher Disease, and Non-Langerhans-Cell Histiocytosis.

      Distinguished in Fabry Disease

      Sima Canaan-Kuhl
      Distinguished in Fabry Disease

      Sima Canaan-Kuhl
      Berlin, BE, DE 

      Sima Canaan-Kuhl practices in Berlin, Germany. Ms. Canaan-Kuhl is rated as a Distinguished expert by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Fabry Disease, Cardiac Amyloidosis, Cardiomyopathy, and Primary Amyloidosis.

      Advanced in Fabry Disease

      Isabel Mattig
      Advanced in Fabry Disease

      Isabel Mattig
      Berlin, BE, DE 

      Isabel Mattig practices in Berlin, Germany. Ms. Mattig is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Tricuspid Regurgitation, Fabry Disease, Cardiac Amyloidosis, Primary Amyloidosis, and Transcatheter Aortic Valve Replacement (TAVR).

      Learn about our expert tiers
      Advanced in Fabry Disease

      Fabian H. Knebel
      Advanced in Fabry Disease

      Fabian H. Knebel
      Berlin, BE, DE 

      Fabian Knebel practices in Berlin, Germany. Mr. Knebel is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. His top areas of expertise are Cardiac Amyloidosis, Primary Amyloidosis, Fabry Disease, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

      Advanced in Fabry Disease

      Gina Barzen
      Advanced in Fabry Disease

      Gina Barzen
      Berlin, BE, DE 

      Gina Barzen practices in Berlin, Germany. Ms. Barzen is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Cardiac Amyloidosis, Primary Amyloidosis, Fabry Disease, and Familial Ventricular Tachycardia.

      Advanced in Fabry Disease

      Karl Stangl
      Advanced in Fabry Disease

      Karl Stangl
      Potsdamer Str. 58, 
      Berlin, BE, DE 

      Karl Stangl practices in Berlin, Germany. Mr. Stangl is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. His top areas of expertise are Tricuspid Regurgitation, Cardiac Amyloidosis, Aortic Valve Stenosis, Transcatheter Aortic Valve Replacement (TAVR), and Pacemaker Implantation.

      Advanced in Fabry Disease

      Sebastian Spethmann
      Advanced in Fabry Disease

      Sebastian Spethmann
      Berlin, BE, DE 

      Sebastian Spethmann practices in Berlin, Germany. Mr. Spethmann is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. His top areas of expertise are Cardiac Amyloidosis, Primary Amyloidosis, Transthyretin Amyloidosis, Fabry Disease, and Transcatheter Aortic Valve Replacement (TAVR).

      Advanced in Fabry Disease

      Daniela Blaschke
      Advanced in Fabry Disease

      Daniela Blaschke
      Berlin, BE, DE 

      Daniela Blaschke practices in Berlin, Germany. Ms. Blaschke is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Fabry Disease, Ventricular Fibrillation, Atrioventricular Nodal Reentrant Tachycardia (AVNRT), and Arrhythmias.

      Advanced in Fabry Disease

      Ulrike Grittner
      Advanced in Fabry Disease

      Ulrike Grittner
      Anna Louisa Karsch Str. 2, 
      Berlin, BE, DE 

      Ulrike Grittner practices in Berlin, Germany. Ms. Grittner is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Stroke, Gaucher Disease Type 1, Transient Ischemic Attack (TIA), Fabry Disease, and Thrombectomy.

      Advanced in Fabry Disease

      Jens Gaedeke
      Advanced in Fabry Disease

      Jens Gaedeke
      Berlin, BE, DE 

      Jens Gaedeke practices in Berlin, Germany. Mr. Gaedeke is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. His top areas of expertise are Fabry Disease, Purpura, Thrombocytopenia, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), and Kidney Transplant.

      Ulf Landmesser
      Experienced in Fabry Disease

      Ulf Landmesser
      Experienced in Fabry Disease

      Ulf Landmesser
      Potsdamer Str. 58, 
      Berlin, BE, DE 

      Ulf Landmesser practices in Berlin, Germany. Mr. Landmesser is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. His top areas of expertise are Acute Coronary Syndrome, Coronary Heart Disease, Heart Attack, Percutaneous Coronary Intervention (PCI), and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Fabry Disease

      Matthias J. Schmitt
      Experienced in Fabry Disease

      Matthias J. Schmitt
      Berlin, BE, DE 

      Matthias Schmitt practices in Berlin, Germany. Mr. Schmitt is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. His top areas of expertise are Cardiomyopathy, Fabry Disease, Dilated Cardiomyopathy (DCM), and Hypertrophic Cardiomyopathy (HCM).

      Experienced in Fabry Disease

      David Frumkin
      Experienced in Fabry Disease

      David Frumkin
      Mitte, BE, DE 

      David Frumkin practices in Mitte, Germany. Mr. Frumkin is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. His top areas of expertise are Cardiac Amyloidosis, Fabry Disease, Primary Amyloidosis, Hypertensive Heart Disease, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Fabry Disease

      Anna Brand
      Experienced in Fabry Disease

      Anna Brand
      Berlin, BE, DE 

      Anna Brand practices in Berlin, Germany. Ms. Brand is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Cardiac Amyloidosis, Primary Amyloidosis, Transthyretin Amyloidosis, Fabry Disease, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Fabry Disease

      Katrin Hahn
      Experienced in Fabry Disease

      Katrin Hahn
      Berlin, BE, DE 

      Katrin Hahn practices in Berlin, Germany. Ms. Hahn is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Familial Transthyretin Amyloidosis, Transthyretin Amyloidosis, Cardiac Amyloidosis, and Primary Amyloidosis.

      Experienced in Fabry Disease

      Matthias J. Niemann
      Experienced in Fabry Disease

      Matthias J. Niemann
      Berlin, BE, DE 

      Matthias Niemann practices in Berlin, Germany. Mr. Niemann is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. His top areas of expertise are Fabry Disease, Graft Versus Host Disease (GvHD), Chronic Kidney Disease, Kidney Transplant, and Liver Transplant.

      Experienced in Fabry Disease

      Gerhard J. Jungehulsing
      Experienced in Fabry Disease

      Gerhard J. Jungehulsing
      Berlin, BE, DE 

      Gerhard Jungehulsing practices in Berlin, Germany. Mr. Jungehulsing is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. His top areas of expertise are Stroke, Transient Ischemic Attack (TIA), Fabry Disease, and Atrial Fibrillation.

      Experienced in Fabry Disease

      Michael E. Rothe
      Experienced in Fabry Disease

      Michael E. Rothe
      Robert Rössle Str. 10, B55, 
      Berlin, BE, DE 

      Michael Rothe practices in Berlin, Germany. Mr. Rothe is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. His top areas of expertise are X-Linked Severe Combined Immunodeficiency, Severe Combined Immunodeficiency (SCID), Leukocyte Adhesion Deficiency Type 1, Aase Syndrome, and Splenectomy.

      Experienced in Fabry Disease

      Elena Dorta-Romero
      Experienced in Fabry Disease

      Elena Dorta-Romero
      Berlin, BE, DE 

      Elena Dorta-Romero practices in Berlin, Germany. Ms. Dorta-Romero is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Tricuspid Regurgitation, Aortic Regurgitation, Cardiac Amyloidosis, and Fabry Disease.

      Experienced in Fabry Disease

      Christoph Arenz
      Experienced in Fabry Disease

      Christoph Arenz
      Brook Taylor Strasse 2, 
      Berlin, BE, DE 

      Christoph Arenz practices in Berlin, Germany. Mr. Arenz is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. His top areas of expertise are Hereditary Sensory Neuropathy Type 1 (HSN1), Pulmonary Edema, Hajdu-Cheney Syndrome, and Hereditary Sensory and Autonomic Neuropathy Type 2.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 25

      Last Updated: 01/09/2026

      What is the definition of Fabry Disease?

      Fabry disease is an inherited disorder that results from the buildup of a type of fat, called globotriaosylceramide, in the body's cells. Beginning in childhood, this buildup causes signs and symptoms that affect many parts of the body. Characteristic features of Fabry disease include episodes of pain, particularly in the hands and feet (acroparesthesias); clusters of small, dark red spots on the skin called angiokeratomas; a decreased ability to sweat (hypohidrosis); cloudiness or streaks in the front part of the eye (corneal opacity or corneal verticillata); problems with the gastrointestinal system; ringing in the ears (tinnitus); and hearing loss. Additional signs and symptoms are possible, which can vary among affected individuals.

      When should I see a Fabry Disease doctor in Berlin, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Fabry Disease doctor in Berlin, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Fabry Disease doctor in Berlin, DE?

      You can find a Fabry Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Fabry Disease doctors in Berlin, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Fabry Disease doctors in Berlin, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Fabry Disease doctor in Berlin, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fabry Disease doctor search results page. 

      Why is it important to get a second opinion from a different Fabry Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Fabry Disease doctor in Berlin, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Fabry Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Fabry Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Fabry Disease doctors in Berlin, DE?

      Look for the filter feature on the left side of the Fabry Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Fabry Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Fabry Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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