The 20 Best Fabry Disease Doctors Near Me in North Rhine-Westphalia, DE

Find the Top Fabry Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 38 doctor with experience in Fabry Disease near North Rhine-Westphalia, DE. Of these, 28 are Experienced, 5 are Advanced, 3 are Distinguished and 2 are Elite.

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38 providers found
    Elite in Fabry Disease
    Elite in Fabry Disease
    Dorstener Str. 151, 
    Recklinghausen, NW, DE 

    Frank Weidemann practices practicing medicine in Recklinghausen, Germany. Mr. Weidemann is rated as an Elite expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Fabry Disease, Cardiomyopathy, Cardiac Amyloidosis, Hypertensive Heart Disease, and Aortic Valve Replacement.

    Elite in Fabry Disease
    Elite in Fabry Disease
    Muenster, NW, DE 

    Malte Lenders practices practicing medicine in Muenster, Germany. Lenders is rated as an Elite expert by MediFind in the treatment of Fabry Disease. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Fabry Disease, N-Acetyl-Alpha-D-Galactosaminidase Deficiency Type 3, Transient Ischemic Attack (TIA), and Erythromelalgia.

    Distinguished in Fabry Disease
    Distinguished in Fabry Disease
    Muenster, NW, DE 

    Eva Brand practices practicing medicine in Muenster, Germany. Ms. Brand is rated as a Distinguished expert by MediFind in the treatment of Fabry Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Fabry Disease, N-Acetyl-Alpha-D-Galactosaminidase Deficiency Type 3, Transient Ischemic Attack (TIA), and Erythromelalgia.

    Learn about our expert tiers
    Distinguished in Fabry Disease
    Distinguished in Fabry Disease
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Christine Kurschat practices practicing medicine in Koeln, Germany. Ms. Kurschat is rated as a Distinguished expert by MediFind in the treatment of Fabry Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Fabry Disease, Cystinosis, Chronic Kidney Disease, Kidney Transplant, and Nephrectomy.

    Distinguished in Fabry Disease
    Distinguished in Fabry Disease
    Muenster, NW, DE 

    Stefan-martin Brand practices practicing medicine in Muenster, Germany. Brand is rated as a Distinguished expert by MediFind in the treatment of Fabry Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Fabry Disease, Erythromelalgia, Transient Ischemic Attack (TIA), and Hypertension.

    Advanced in Fabry Disease
    Advanced in Fabry Disease
    Siegen, NW, DE 

    Christian Tanislav practices practicing medicine in Siegen, Germany. Mr. Tanislav is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Transient Ischemic Attack (TIA), Fabry Disease, Stroke, Thrombectomy, and Prostatectomy.

    Advanced in Fabry Disease
    Advanced in Fabry Disease
    Klinik Königsfeld Der DRV, 
    Ennepetal, NW, DE 

    Boris Schmitz practices practicing medicine in Ennepetal, Germany. Mr. Schmitz is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Fabry Disease, Long Haul COVID, Actinic Keratosis, and Coronary Heart Disease.

    Advanced in Fabry Disease
    Advanced in Fabry Disease
    Muenster, NW, DE 

    Jorg Stypmann practices practicing medicine in Muenster, Germany. Stypmann is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Fabry Disease, Heart Failure, Central Sleep Apnea, Heart Transplant, and Lung Transplant.

    Advanced in Fabry Disease
    Advanced in Fabry Disease
    St. Josef Hospital, 
    Bochum, NW, DE 

    Irfan Vardarli practices practicing medicine in Bochum, Germany. Mr. Vardarli is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Hypothyroidism, Fabry Disease, Thyroid Nodule, Medullary Thyroid Carcinoma, and Thyroidectomy.

    Advanced in Fabry Disease
    Advanced in Fabry Disease
    Muenster, NW, DE 

    Christian Pogoda practices practicing medicine in Muenster, Germany. Mr. Pogoda is rated as an Advanced expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Fabry Disease and Heart Transplant.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Thomas Benzing practices practicing medicine in Koeln, Germany. Mr. Benzing is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Focal Segmental Glomerulosclerosis, Polycystic Kidney Disease, Nephrotic Syndrome, Glomerulonephritis, and Kidney Transplant.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Bernhard Schermer practices practicing medicine in Koeln, Germany. Mr. Schermer is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Focal Segmental Glomerulosclerosis, Glomerulonephritis, Nephrotic Syndrome, Polycystic Kidney Disease, and Kidney Transplant.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Muenster, NW, DE 

    Stefanie Reiermann practices practicing medicine in Muenster, Germany. Ms. Reiermann is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. Her clinical expertise encompasses Fabry Disease, Chronic Kidney Disease, End-Stage Renal Disease (ESRD), and Kidney Transplant.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Alfried Krupp Str. 21, 
    Essen, NW, DE 

    Markus Kraemer practices practicing medicine in Essen, Germany. Mr. Kraemer is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Moyamoya Disease, Adenosine Deaminase 2 Deficiency, Susac Syndrome, Extracranial-Intracranial Bypass Surgery, and Tissue Biopsy.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Max Liebau practices practicing medicine in Koeln, Germany. Mr. Liebau is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, Polycystic Kidney Disease, Autosomal Dominant Polycystic Kidney Disease, Kidney Transplant, and Nephrectomy.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Otto Hahn Str. 6, 
    Dortmund, NW, DE 

    Andreas Hermann practices practicing medicine in Dortmund, Germany. Mr. Hermann is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Chorea-Acanthocytosis, Mcleod Neuroacanthocytosis Syndrome, and Gastrostomy.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Bunsen Kirchhoff Str. 11, 
    Dortmund, NW, DE 

    Kristina Lorenz practices practicing medicine in Dortmund, Germany. Ms. Lorenz is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. Her clinical expertise encompasses Adrenal Gland Adenoma, Heart Failure, Factor 12 Deficiency, and Cerebral Hypoxia.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Joseph Stelzmann Str. 26, 
    Koeln, NW, DE 

    Roman-ulrich Muller practices practicing medicine in Koeln, Germany. Muller is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Autosomal Dominant Polycystic Kidney Disease, Polycystic Kidney Disease, Autosomal Recessive Polycystic Kidney Disease, Kidney Transplant, and Hysterectomy.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Muenster, NW, DE 

    Ulrich Jehn practices practicing medicine in Muenster, Germany. Mr. Jehn is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cytomegalovirus Infection, Cytomegalic Inclusion Disease, Farber Lipogranulomatosis, Kidney Transplant, and Parathyroidectomy.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Heinrich Mussmann Str. 1, 
    Juelich, NW, DE 

    Konstantin Kotliar practices practicing medicine in Juelich, Germany. Mr. Kotliar is rated as an Experienced expert by MediFind in the treatment of Fabry Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Pigment-Dispersion Syndrome, Glaucoma, Ocular Hypertension (OHT), Alzheimer's Disease, and Trabeculectomy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 38

    Last Updated: 04/28/2026

    What is the definition of Fabry Disease?

    Fabry disease is an inherited disorder that results from the buildup of a type of fat, called globotriaosylceramide, in the body's cells. Beginning in childhood, this buildup causes signs and symptoms that affect many parts of the body. Characteristic features of Fabry disease include episodes of pain, particularly in the hands and feet (acroparesthesias); clusters of small, dark red spots on the skin called angiokeratomas; a decreased ability to sweat (hypohidrosis); cloudiness or streaks in the front part of the eye (corneal opacity or corneal verticillata); problems with the gastrointestinal system; ringing in the ears (tinnitus); and hearing loss. Additional signs and symptoms are possible, which can vary among affected individuals.

    When should I see a Fabry Disease doctor in North Rhine-Westphalia, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fabry Disease doctor in North Rhine-Westphalia, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fabry Disease doctors in North Rhine-Westphalia, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fabry Disease doctors in North Rhine-Westphalia, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fabry Disease doctor in North Rhine-Westphalia, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fabry Disease doctor search results page. 

    Why is it important to get a second opinion from a different Fabry Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fabry Disease doctor in North Rhine-Westphalia, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fabry Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fabry Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fabry Disease doctors in North Rhine-Westphalia, DE?

    Look for the filter feature on the left side of the Fabry Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fabry Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Fabry Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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