The 20 Best Fabry Disease Doctors Near Me in Kansas, US

Find the Top Fabry Disease Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 16 doctor with experience in Fabry Disease near Kansas, US. Of these, 14 are Experienced, 1 are Advanced and 1 are Distinguished.

Location
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16 providers found
    Distinguished in Fabry Disease
    Distinguished in Fabry Disease
    Referral may be required

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
    Languages Spoken:
    English, Arabic, French
    Accepting New Patients
    Offers Telehealth

    Ahmad Tuffaha is a Nephrologist practicing medicine in Kansas City, Kansas. Dr. Tuffaha is rated as a Distinguished provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Fabry Disease, End-Stage Renal Disease (ESRD), Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Kidney Transplant. Dr. Tuffaha is board certified in American Board Of Internal Medicine, Internal Medicine - 2010 and American Board Of Internal Medicine, Nephrology - 2012 . Dr. Tuffaha is currently accepting new patients.

    Experienced in Fabry Disease
    Family Medicine
    Experienced in Fabry Disease
    Family Medicine

    Sabetha Family Practice

    1115 Main St, 
    Sabetha, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Christian Tramp is a primary care provider, practicing in Family Medicine in Sabetha, Kansas. Dr. Tramp is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Squamous Cell Lung Carcinoma, EGFR Positive Lung Cancer, and Non-Small Cell Lung Cancer (NSCLC). Dr. Tramp is currently accepting new patients.

    Advanced in Fabry Disease
    Advanced in Fabry Disease
    Referral may be required

    Hospital District No 1 Crawford County

    302 N Hospital Dr, 
    Girard, KS 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Vernon Cooper is a Neurologist practicing medicine in Girard, Kansas. Dr. Cooper is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Migraine, Essential Tremor, Parkinson's Disease, and Movement Disorders. Dr. Cooper is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Fabry Disease
    Family Medicine
    Experienced in Fabry Disease
    Family Medicine

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Jennafer Ball is a primary care provider, practicing in Family Medicine in Kansas City, Kansas. Dr. Ball is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her clinical expertise encompasses Fabry Disease, Multiple Sulfatase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts. Dr. Ball is board certified in American Board Of Family Medicine, Family Medicine - 2023. Dr. Ball is currently accepting new patients.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Referral may be required

    The University Of Kansas Hospital

    4000 Cambridge Street, 
    Kansas City, KS 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Timothy Beaver is a Cardiologist practicing medicine in Kansas City, Kansas. Dr. Beaver is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Atrial Fibrillation, Arrhythmias, Heart Attack, Aortic Valve Stenosis, and Pacemaker Implantation. Dr. Beaver is board certified in American Board Of Internal Medicine, Cardiovascular Disease - 2003. Dr. Beaver is currently accepting new patients.

    Experienced in Fabry Disease
    Family Medicine
    Experienced in Fabry Disease
    Family Medicine

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Kelsie Kelly is a primary care provider, practicing in Family Medicine in Kansas City, Kansas. Dr. Kelly is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her clinical expertise encompasses Glomerulonephritis, Mosaicism, Type 2 Diabetes (T2D), and Fabry Disease. Dr. Kelly is board certified in American Board Of Family Medicine, Family Medicine - 2013. Dr. Kelly is currently accepting new patients.

    Experienced in Fabry Disease
    Gastroenterology
    Experienced in Fabry Disease
    Gastroenterology
    Referral may be required

    College Square Medical Pavilion

    12000 West 110th Street, 
    Overland Park, KS 
    Languages Spoken:
    English, Farsi
    Accepting New Patients
    Offers Telehealth

    Tuba Esfandyari is a Gastroenterologist practicing medicine in Overland Park, Kansas. Dr. Esfandyari is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Gastroparesis, Encopresis, Bowel Incontinence, Gastrectomy, and Endoscopy. Dr. Esfandyari is board certified in American Board Of Internal Medicine, Gastroenterology - 2006. Dr. Esfandyari is currently accepting new patients.

    Experienced in Fabry Disease
    Cardiac Electrophysiology | Cardiology
    Experienced in Fabry Disease
    Cardiac Electrophysiology | Cardiology
    Referral may be required

    Cardiovascular Medicine

    7420 Switzer Road, 
    Shawnee, KS 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Seth Sheldon is a Cardiac Electrophysiologist and a Cardiologist practicing medicine in Shawnee, Kansas. Dr. Sheldon is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Arrhythmias, Ventricular Tachycardia, Cardiomyopathy, Pacemaker Implantation, and Cardiac Ablation. Dr. Sheldon is board certified in American Board Of Internal Medicine, Cardiovascular Disease - 2014 and American Board Of Internal Medicine, Clinical Cardiac Electrophysiology - 2016 . Dr. Sheldon is currently accepting new patients.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Referral required

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Languages Spoken:
    English, Hindi, Telugu
    Accepting New Patients
    Offers Telehealth

    Mamatha Pasnoor is a Neurologist practicing medicine in Fairway, Kansas. Dr. Pasnoor is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Thymectomy, and Tissue Biopsy. Dr. Pasnoor is board certified in American Board Of Psychiatry And Neurology, Neurology - 2006, American Board Of Psychiatry And Neurology, Clinical Neurophysiology - 2009 , and American Board Of Psychiatry And Neurology, Neuromuscular Medicine - 2008 . Dr. Pasnoor is currently accepting new patients.

    Experienced in Fabry Disease
    Internal Medicine
    Experienced in Fabry Disease
    Internal Medicine

    AdventHealth Medical Group Primary Care At State Avenue

    5701 State Ave Ste 100, 
    Kansas City, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Michael Harwood is a primary care provider, practicing in Internal Medicine in Kansas City, Kansas. Dr. Harwood is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Renovascular Hypertension, Necrotizing Myopathy (NM), Fabry Disease, Gastrostomy, and Endoscopy. Dr. Harwood is currently accepting new patients.

    Experienced in Fabry Disease
    Experienced in Fabry Disease

    Fort Scott Family Medicine

    202 State St Ste A, 
    Fort Scott, KS 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ricky Kellenberger is a primary care provider, practicing in Family Medicine in Fort Scott, Kansas. Dr. Kellenberger is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Chronic Pain, Chronic Obstructive Pulmonary Disease (COPD), Maturity Onset Diabetes of the Young, and Tracheitis. Dr. Kellenberger is currently accepting new patients.

    Experienced in Fabry Disease
    Family Medicine
    Experienced in Fabry Disease
    Family Medicine

    Allways Community Health Center

    1412 N 2nd St, 
    Atchison, KS 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Kerstin Glynn is a primary care provider, practicing in Family Medicine in Atchison, Kansas. Dr. Glynn is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her clinical expertise encompasses Type 2 Diabetes (T2D), Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension. Dr. Glynn is currently accepting new patients.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Referral may be required

    Wesley Pediatric Specialists

    3243 E Murdock St Ste 500 And 510, 
    Overland Park, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Beltran-Carranza is a Pediatrics provider practicing medicine in Overland Park, Kansas. Dr. Beltran-Carranza is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Pompe Disease, Congenital Athymia, and Activated PI3K Delta Syndrome (APDS). Dr. Beltran-Carranza is currently accepting new patients.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Referral may be required

    Cotton O'Neil Heart Center

    929 SW Mulvane St, 
    Topeka, KS 
    Experience:
    17+ years
    Languages Spoken:
    English, Arabic
    Accepting New Patients
    Offers Telehealth

    Bashar Amr is a Cardiologist practicing medicine in Topeka, Kansas. He has been practicing medicine for over 17 years. Dr. Amr is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Atrial Fibrillation, Vasculitis, Aortic Regurgitation, and Adenosine Deaminase 2 Deficiency. Dr. Amr is currently accepting new patients.

    Experienced in Fabry Disease
    Experienced in Fabry Disease
    Referral may be required

    Kansas Nephrology Physicians

    1035 N Emporia Ave, Ste 105, 
    Wichita, KS 
    Languages Spoken:
    English, French
    Accepting New Patients

    Lisa Weber is a Nephrologist practicing medicine in Wichita, Kansas. Dr. Weber is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Acute Kidney Failure, and Nephrosclerosis. Dr. Weber is board certified in The American Board Of Internal Medicine - Nephrology and The American Board Of Internal Medicine - Internal Medicine. Dr. Weber is currently accepting new patients.

    Experienced in Fabry Disease
    Family Medicine
    Experienced in Fabry Disease
    Family Medicine

    Clay Center Family Physicians

    609 Liberty St, 
    Clay Center, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Koerner is a primary care provider, practicing in Family Medicine in Clay Center, Kansas. Dr. Koerner is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Multiple Sulfatase Deficiency. Dr. Koerner is currently accepting new patients.

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    Last Updated: 09/26/2026

    What is the definition of Fabry Disease?

    Fabry disease is an inherited disorder that results from the buildup of a type of fat, called globotriaosylceramide, in the body's cells. Beginning in childhood, this buildup causes signs and symptoms that affect many parts of the body. Characteristic features of Fabry disease include episodes of pain, particularly in the hands and feet (acroparesthesias); clusters of small, dark red spots on the skin called angiokeratomas; a decreased ability to sweat (hypohidrosis); cloudiness or streaks in the front part of the eye (corneal opacity or corneal verticillata); problems with the gastrointestinal system; ringing in the ears (tinnitus); and hearing loss. Additional signs and symptoms are possible, which can vary among affected individuals.

    When should I see a Fabry Disease doctor in Kansas, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fabry Disease doctor in Kansas, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fabry Disease doctors in Kansas, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fabry Disease doctors in Kansas, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fabry Disease doctor in Kansas, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fabry Disease doctor search results page. 

    Why is it important to get a second opinion from a different Fabry Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fabry Disease doctor in Kansas, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fabry Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fabry Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fabry Disease doctors in Kansas, US?

    Look for the filter feature on the left side of the Fabry Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fabry Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Fabry Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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