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    Last Updated: 10/30/2025

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    MediFind found 13 doctor with experience in Fabry Disease near Kansas, US. Of these, 12 are Experienced and 1 are Distinguished.

    Location
    LocationClose
    13 providers found
      Distinguished in Fabry Disease
      Distinguished in Fabry Disease

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English, Arabic, French
      Accepting New Patients
      Offers Telehealth

      Ahmad Tuffaha is a Nephrologist in Kansas City, Kansas. Dr. Tuffaha is rated as a Distinguished provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Fabry Disease, End-Stage Renal Disease (ESRD), Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Kidney Transplant. Dr. Tuffaha is currently accepting new patients.

      Experienced in Fabry Disease
      Internal Medicine
      Experienced in Fabry Disease
      Internal Medicine

      United Medical Group LLC

      5701 State Ave, Suite 100, 
      Kansas City, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Harwood is a primary care provider, practicing in Internal Medicine in Kansas City, Kansas. Dr. Harwood is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Renovascular Hypertension, Necrotizing Myopathy (NM), Fabry Disease, Gastrostomy, and Endoscopy. Dr. Harwood is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Fabry Disease
      Family Medicine
      Experienced in Fabry Disease
      Family Medicine

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jennafer Ball is a primary care provider, practicing in Family Medicine in Kansas City, Kansas. Dr. Ball is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Fabry Disease, Multiple Sulfatase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts. Dr. Ball is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Fabry Disease
      Family Medicine
      Experienced in Fabry Disease
      Family Medicine

      Atchison Community Health Clinic Inc

      818 N 7th St, Achc Leavenworth, 
      Leavenworth, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Kerstin Glynn is a primary care provider, practicing in Family Medicine in Leavenworth, Kansas. Dr. Glynn is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Type 2 Diabetes (T2D), Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension. Dr. Glynn is currently accepting new patients.

      Experienced in Fabry Disease
      Medical Genetics | Pediatrics
      Experienced in Fabry Disease
      Medical Genetics | Pediatrics

      Wesley Physicians Medical Specialties LLC

      3243 E Murdock St, 
      Wichita, KS 
      Languages Spoken:
      English

      Elizabeth Beltran is a Medical Genetics specialist and a Pediatrics provider in Wichita, Kansas. Dr. Beltran is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Phenylketonuria (PKU), Biotinidase Deficiency, Chromosome 13q Deletion, and MELAS Syndrome.

      Experienced in Fabry Disease
      Experienced in Fabry Disease

      Cotton-O'neil Clinic Revocable Trust

      929 Sw Mulvane St, 
      Topeka, KS 
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Bashar Amr is a Cardiologist in Topeka, Kansas. Dr. Amr is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Atrial Fibrillation, Vasculitis, Aortic Regurgitation, and Adenosine Deaminase 2 Deficiency. Dr. Amr is currently accepting new patients.

      Experienced in Fabry Disease
      Experienced in Fabry Disease

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Diane Cibrik is a Nephrologist in Kansas City, Kansas. Dr. Cibrik is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Cytomegalovirus Infection, Cytomegalic Inclusion Disease, Acute Tubular Necrosis, Chronic Kidney Disease, and Kidney Transplant. Dr. Cibrik is currently accepting new patients.

      Experienced in Fabry Disease
      Family Medicine
      Experienced in Fabry Disease
      Family Medicine

      Clay County Medical Center

      617 Liberty St, 
      Clay Center, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Elizabeth Koerner is a primary care provider, practicing in Family Medicine in Clay Center, Kansas. Dr. Koerner is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Multiple Sulfatase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts. Dr. Koerner is currently accepting new patients.

      Experienced in Fabry Disease
      Family Medicine
      Experienced in Fabry Disease
      Family Medicine

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Kelsie Kelly is a primary care provider, practicing in Family Medicine in Kansas City, Kansas. Dr. Kelly is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Glomerulonephritis, Mosaicism, Type 2 Diabetes (T2D), and Fabry Disease. Dr. Kelly is currently accepting new patients.

      Experienced in Fabry Disease
      Family Medicine
      Experienced in Fabry Disease
      Family Medicine

      Great Plains Of Sabetha Inc

      14 Th And Oregon Streets, 
      Sabetha, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Christian Tramp is a primary care provider, practicing in Family Medicine in Sabetha, Kansas. Dr. Tramp is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Cardiomyopathy, Small Cell Lung Cancer (SCLC), ALK-Positive Non-Small Cell Lung Cancer, and Lung Adenocarcinoma. Dr. Tramp is currently accepting new patients.

      Experienced in Fabry Disease
      Gastroenterology
      Experienced in Fabry Disease
      Gastroenterology

      Kansas University Physicians Inc

      4000 Cambridge St, Suite G600, 
      Kansas City, KS 
      Languages Spoken:
      English
      Offers Telehealth

      Tuba Esfandyari is a Gastroenterologist in Kansas City, Kansas. Dr. Esfandyari is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Gastroparesis, Encopresis, Bowel Incontinence, Gastrectomy, and Endoscopy.

      Experienced in Fabry Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Fabry Disease
      Cardiac Electrophysiology | Cardiology

      Mid-America Cardiology Associates Inc

      4000 Cambridge St, Suite G600, 
      Kansas City, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Seth Sheldon is a Cardiac Electrophysiologist and a Cardiologist in Kansas City, Kansas. Dr. Sheldon is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Arrhythmias, Ventricular Tachycardia, Cardiomyopathy, Pacemaker Implantation, and Cardiac Ablation. Dr. Sheldon is currently accepting new patients.

      Experienced in Fabry Disease
      Experienced in Fabry Disease

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English, Hindi, Telugu
      Accepting New Patients
      Offers Telehealth

      Mamatha Pasnoor is a Neurologist in Kansas City, Kansas. Dr. Pasnoor is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Inclusion Body Myositis, and Thymectomy. Dr. Pasnoor is currently accepting new patients.

      Showing 1-13 of 13

      Last Updated: 10/30/2025

      What is the definition of Fabry Disease?

      Fabry disease is an inherited disorder that results from the buildup of a type of fat, called globotriaosylceramide, in the body's cells. Beginning in childhood, this buildup causes signs and symptoms that affect many parts of the body. Characteristic features of Fabry disease include episodes of pain, particularly in the hands and feet (acroparesthesias); clusters of small, dark red spots on the skin called angiokeratomas; a decreased ability to sweat (hypohidrosis); cloudiness or streaks in the front part of the eye (corneal opacity or corneal verticillata); problems with the gastrointestinal system; ringing in the ears (tinnitus); and hearing loss. Additional signs and symptoms are possible, which can vary among affected individuals.

      When should I see a Fabry Disease doctor in Kansas, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Fabry Disease doctor in Kansas, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Fabry Disease doctors in Kansas, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Fabry Disease doctors in Kansas, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Fabry Disease doctor in Kansas, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fabry Disease doctor search results page. 

      Why is it important to get a second opinion from a different Fabry Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Fabry Disease doctor in Kansas, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Fabry Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Fabry Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Fabry Disease doctors in Kansas, US?

      Look for the filter feature on the left side of the Fabry Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Fabry Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Fabry Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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