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    Last Updated: 10/30/2025

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    MediFind found 14 doctor with experience in Fabry Disease near Oregon, US. Of these, 12 are Experienced and 2 are Advanced.

    Location
    LocationClose
    14 providers found
      Experienced in Fabry Disease
      Cardiology
      Experienced in Fabry Disease
      Cardiology
      9427 Southwest Barnes Road, Suite 495, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sriram Ravi is a Cardiologist in Portland, Oregon. Dr. Ravi is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Familial Hypertrophic Cardiomyopathy, Sengers Syndrome, Hypertrophic Cardiomyopathy (HCM), and Subvalvular Aortic Stenosis. Dr. Ravi is currently accepting new patients.

      Advanced in Fabry Disease
      Medical Genetics | Pediatrics
      Advanced in Fabry Disease
      Medical Genetics | Pediatrics

      University Professional Services

      901 E 18th Ave, 
      Eugene, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amy Yang is a Medical Genetics specialist and a Pediatrics provider in Eugene, Oregon. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Gaucher Disease Type 1, Fabry Disease, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Multiple Sulfatase Deficiency. Dr. Yang is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Fabry Disease
      Family Medicine | Internal Medicine
      Advanced in Fabry Disease
      Family Medicine | Internal Medicine

      Cascade Internal Medicine Specialists LLC

      2239 Ne Doctors Dr, Suite 200, 
      Bend, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mark Backus is a primary care provider, practicing in Family Medicine and Internal Medicine in Bend, Oregon. Dr. Backus is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Peripheral Neuropathy, Eunuchoidism Familial Hypogonadotropic, Protein S Deficiency, and Hereditary Resistance to Anti-Vitamin K. Dr. Backus is currently accepting new patients.

      Learn about our expert tiers
      Leslie M. Steed
      Experienced in Fabry Disease
      Experienced in Fabry Disease
      1130 Nw 22nd Ave Ste 640, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Leslie Steed is a Nephrologist in Portland, Oregon. Dr. Steed is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Nephrosclerosis, and Renovascular Hypertension. Dr. Steed is currently accepting new patients.

      Experienced in Fabry Disease
      Medical Genetics | Pediatrics
      Experienced in Fabry Disease
      Medical Genetics | Pediatrics

      University Professional Services

      707 Sw Gaines St, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Cary Harding is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Harding is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Phenylketonuria (PKU), Urea Cycle Disorders (UCD), Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency, Mitochondrial Trifunctional Protein Deficiency, and Hepatectomy. Dr. Harding is currently accepting new patients.

      Experienced in Fabry Disease
      Nephrology
      Experienced in Fabry Disease
      Nephrology

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Pavan Chopra is a Nephrologist in Portland, Oregon. Dr. Chopra is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Renovascular Hypertension, and Nephrosclerosis. Dr. Chopra is currently accepting new patients.

      Experienced in Fabry Disease
      Family Medicine
      Experienced in Fabry Disease
      Family Medicine

      Peacehealth Networks On Demand LLC

      3060 Se Hawthorne Blvd, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Tim Burner is a primary care provider, practicing in Family Medicine in Portland, Oregon. Dr. Burner is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Fabry Disease, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Sitosterolemia. Dr. Burner is currently accepting new patients.

      Experienced in Fabry Disease
      Experienced in Fabry Disease
      1130 NW 22nd Ave Ste 640, 
      Portland, OR 
      Languages Spoken:
      English

      Michael Walczyk is a Nephrologist in Portland, Oregon. Dr. Walczyk is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Fabry Disease, Kidney Transplant, and Simultaneous Pancreas Kidney Transplant.

      Experienced in Fabry Disease
      Internal Medicine
      Experienced in Fabry Disease
      Internal Medicine
      3001 St Anthony Way, 
      Pendleton, OR 
      Languages Spoken:
      English, Farsi
      Accepting New Patients

      Arian Kargar is a primary care provider, practicing in Internal Medicine in Pendleton, Oregon. Dr. Kargar is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Hypertensive Heart Disease, Enlarged Liver, Pediatric Myocarditis, and Hypothyroidism. Dr. Kargar is currently accepting new patients.

      Experienced in Fabry Disease
      Pediatrics | Medical Genetics
      Experienced in Fabry Disease
      Pediatrics | Medical Genetics

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English, German

      Markus Grompe is a Pediatrics specialist and a Medical Genetics provider in Portland, Oregon. Dr. Grompe is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Congenital Aplastic Anemia, Tyrosinemia Type 1, Phenylketonuria (PKU), Islet Cell Transplantation, and Hepatectomy.

      Experienced in Fabry Disease
      Family Medicine
      Experienced in Fabry Disease
      Family Medicine

      St Anthony Hospital

      3001 St Anthony Way, 
      Pendleton, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Gwen Libby is a primary care provider, practicing in Family Medicine in Pendleton, Oregon. Dr. Libby is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Type 2 Diabetes (T2D). Dr. Libby is currently accepting new patients.

      Experienced in Fabry Disease
      Medical Genetics | Pediatrics
      Experienced in Fabry Disease
      Medical Genetics | Pediatrics
      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients

      David Koeller is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Koeller is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Glutaric Acidemia Type 1, Argininosuccinic Aciduria, 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency, and Glycogen Storage Disease Type 0. Dr. Koeller is currently accepting new patients.

      Experienced in Fabry Disease
      Cardiology | Interventional Cardiology
      Experienced in Fabry Disease
      Cardiology | Interventional Cardiology

      St Charles Health System Inc

      630 N Arrowleaf Trl, Family Care, 
      Sisters, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Hugh Adair is a Cardiologist and an Interventional Cardiologist in Sisters, Oregon. Dr. Adair is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Coronary Heart Disease, Arrhythmias, Atherosclerosis, Pacemaker Implantation, and Cardiac Ablation. Dr. Adair is currently accepting new patients.

      Experienced in Fabry Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Fabry Disease
      Cardiac Electrophysiology | Cardiology

      St Charles Health System Inc

      2500 Ne Neff Rd, Pulmonary Clin, 
      Bend, OR 
      Languages Spoken:
      English
      Accepting New Patients

      James Laughlin is a Cardiac Electrophysiologist and a Cardiologist in Bend, Oregon. Dr. Laughlin is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Arrhythmogenic Right Ventricular Cardiomyopathy, Cardiomyopathy, Arrhythmias, Pacemaker Implantation, and Cardiac Ablation. Dr. Laughlin is currently accepting new patients.

      Showing 1-14 of 14

      Last Updated: 10/30/2025

      What is the definition of Fabry Disease?

      Fabry disease is an inherited disorder that results from the buildup of a type of fat, called globotriaosylceramide, in the body's cells. Beginning in childhood, this buildup causes signs and symptoms that affect many parts of the body. Characteristic features of Fabry disease include episodes of pain, particularly in the hands and feet (acroparesthesias); clusters of small, dark red spots on the skin called angiokeratomas; a decreased ability to sweat (hypohidrosis); cloudiness or streaks in the front part of the eye (corneal opacity or corneal verticillata); problems with the gastrointestinal system; ringing in the ears (tinnitus); and hearing loss. Additional signs and symptoms are possible, which can vary among affected individuals.

      When should I see a Fabry Disease doctor in Oregon, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Fabry Disease doctor in Oregon, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Fabry Disease doctors in Oregon, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Fabry Disease doctors in Oregon, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Fabry Disease doctor in Oregon, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fabry Disease doctor search results page. 

      Why is it important to get a second opinion from a different Fabry Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Fabry Disease doctor in Oregon, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Fabry Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Fabry Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Fabry Disease doctors in Oregon, US?

      Look for the filter feature on the left side of the Fabry Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Fabry Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Fabry Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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