The 20 Best Facioscapulohumeral Muscular Dystrophy (FSHD) Doctors in The United States

Find the Top Facioscapulohumeral Muscular Dystrophy (FSHD) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 697 doctor with experience in Facioscapulohumeral Muscular Dystrophy (FSHD) near The United States. Of these, 582 are Experienced, 87 are Advanced, 19 are Distinguished and 8 are Elite.

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697 providers found
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Kennedy Krieger Institute

    1741 Ashland Avenue, Room 847, Room 847, 
    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Leung obtained her undergraduate degree in biochemical sciences from Harvard University. While attending medical school at Duke University, she completed a year-long research fellowship studying genetic markers of late-onset Alzheimer’s disease at the National Institute on Aging as part of the NIH Clinical Research Training Program. She completed her neurology residency and clinical neurophysiology fellowship at Stanford University Medical Center, and is currently a Ph.D. candidate in the graduate training program in clinical investigation at the Johns Hopkins Bloomberg School of Public Health. Dr. Leung joined the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute as a translational research fellow in 2010 and was appointed to the faculty in 2014. Her clinic specializes in electromyography and the diagnosis and treatment of hereditary muscle diseases. Dr. Leung’s research focuses on the development of imaging biomarkers and outcome measures for muscle diseases. She is the principal investigator for a longitudinal cohort study of whole-body MRI in facioscapulohumeral muscular dystrophy. Dr. Leung is also a site principal investigator for the Ionis-DMPKRx trial, a phase Ib/IIa clinical trial of a novel RNA-based therapy for myotonic muscular dystrophy. Dr. Leung is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, and Dysferlinopathy. Dr. Leung is board certified in American Board Of Psychiatry And Neurology.

    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Kaiser Permanente Lone Tree Medical Offices

    10240 Park Meadows Dr, 
    Lone Tree, CO 
    Languages Spoken:
    English
    Accepting New Patients

    Samantha Lorusso is a Neurologist practicing medicine in Lone Tree, Colorado. Dr. Lorusso is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Paramyotonia Congenita, Myotonia Congenita, Amyotonia Congenita, and Tissue Biopsy. Dr. Lorusso is currently accepting new patients.

    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Statland is a Neurologist practicing medicine in Fairway, Kansas. He has been practicing medicine for over 21 years. Dr. Statland is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Paramyotonia Congenita, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Gastrostomy. Dr. Statland is board certified in American Board Of Psychiatry And Neurology, Neurology - 2011. Dr. Statland is currently accepting new patients.

    Learn about our expert tiers
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Fred Hutchinson Cancer Center

    1100 Fairview Ave N, 
    Seattle, WA 
    Languages Spoken:
    English

    Stephen Tapscott is a Neurologist practicing medicine in Seattle, Washington. Dr. Tapscott is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Bosma Arhinia Microphthalmia Syndrome, Medulloblastoma, and Duchenne Muscular Dystrophy.

    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Neurology
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Neurology

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Leo Wang is a Neurologist practicing medicine in Seattle, Washington. Dr. Wang is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Inclusion Body Myositis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Primary Lateral Sclerosis.

    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Neurology
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Neurology

    Office

    601 Elmwood Ave # 673, 
    Rochester, NY 
    Languages Spoken:
    English

    Rabi Tawil is a Neurologist practicing medicine in Rochester, New York. Dr. Tawil is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Spinal Muscular Atrophy (SMA), Limb-Girdle Muscular Dystrophy Type 2C, and Limb-Girdle Muscular Dystrophy Type 2I.

    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Neurology
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Neurology

    Office

    300 Medical Plz Ste B-200, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Perry Shieh is a Neurologist practicing medicine in Los Angeles, California. Dr. Shieh is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Spinal Muscular Atrophy (SMA), Becker Muscular Dystrophy, and Congenital Fiber-Type Disproportion. Dr. Shieh is board certified in Neuromuscular Medicine, American Board Of Psychiatry And Neurology, 2008, Clinical Neurophysiology, American Board Of Psychiatry And Neurology, 2007, and Neurology, American Board Of Psychiatry And Neurology, 2006.

    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Languages Spoken:
    English

    Chad Heatwole is a Neurologist practicing medicine in Rochester, New York. Dr. Heatwole is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Facioscapulohumeral Muscular Dystrophy (FSHD).

    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Reading Hospital

    420 South 5th Avenue, 
    West Reading, PA 
    Languages Spoken:
    English

    . Dr. Khoshnoodi is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Miller-Fisher Syndrome, Guillain-Barre Syndrome, and Chronic Polyradiculoneuritis. Dr. Khoshnoodi is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Neuromusculoskeletal Medicine | Neurology
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Neuromusculoskeletal Medicine | Neurology

    Intermountain Neurosciences Institute - Outpatient

    5171 South Cottonwood Street, Suite 810, 
    Murray, UT 
    Experience:
    14+ years
    Languages Spoken:
    English
    Offers Telehealth

    Cory Kogelschatz is a Neuromusculoskeletal Medicine specialist and a Neurologist practicing medicine in Murray, Utah. He has been practicing medicine for over 14 years. Dr. Kogelschatz is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Myasthenia Gravis, and Miller-Fisher Syndrome. Dr. Kogelschatz is board certified in American Board Of Psychiatry And Neurology and American Board Of Psychiatry And Neurology.

    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Neuromuscular - Integrated Medical Services

    630 S 400 E Ste 101, 
    Saint George, UT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Russell Butterfield is a Neurologist practicing medicine in Saint George, Utah. Dr. Butterfield is rated as a Distinguished provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Facioscapulohumeral Muscular Dystrophy (FSHD), and Spinal Muscular Atrophy (SMA). Dr. Butterfield is board certified in American Board Of Psychiatry And Neurology. Dr. Butterfield is currently accepting new patients.

    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Sleep Medicine | Neuromusculoskeletal Medicine
    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Sleep Medicine | Neuromusculoskeletal Medicine

    Atrium Health Neurology Specialty Care, A Facility Of Carolinas Medical Center

    1010 Edgehill Road N., 
    Charlotte, NC 
    Languages Spoken:
    English, Gujarati , Hindi
    Accepting New Patients
    Offers Telehealth

    Urvi Desai is a Neuromusculoskeletal Medicine specialist and a Sleep Medicine provider practicing medicine in Charlotte, North Carolina. Dr. Desai is rated as a Distinguished provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses Chronic Inflammatory Demyelinating Polyneuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Dysferlinopathy, and Facioscapulohumeral Muscular Dystrophy (FSHD). Dr. Desai is currently accepting new patients.

    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Guillain-Barre Syndrome, and Gamma Knife Radiosurgery. Dr. Lee is board certified in American Board Of Psychiatry & Neurology.

    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Penn Neuroscience Center - Neurology

    330 South 9th Street, 3rd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Lauren Elman is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Elman is rated as a Distinguished provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). She is also highly rated in 48 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myotonic Dystrophy Type 2, and Myotonic Dystrophy. Dr. Elman is currently accepting new patients.

    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Intensive Care Medicine
    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Intensive Care Medicine

    University Of Texas Southwestern Medical Center

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Bethany Lussier is an Intensive Care Medicine provider practicing medicine in Dallas, Texas. She has been practicing medicine for over 17 years. Dr. Lussier is rated as a Distinguished provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, and Facioscapulohumeral Muscular Dystrophy (FSHD).

    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Office

    2 Dudley St Ste 555, 
    Providence, RI 
    Languages Spoken:
    English

    Michelle Mellion is a Neurologist practicing medicine in Providence, Rhode Island. Dr. Mellion is rated as a Distinguished provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Alcoholic Neuropathy, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita.

    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)

    Sound Cardiology PC

    170 Route 25A, 
    Rocky Point, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Scott Mcwilliams is a Neurologist practicing medicine in Rocky Point, New York. Dr. Mcwilliams is rated as a Distinguished provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Limb-Girdle Muscular Dystrophy Type 2C.

    Advanced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Internal Medicine
    Advanced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Internal Medicine
    1608 S J St Fl, Suite 3, 
    Tacoma, WA 
    Languages Spoken:
    English, Japanese, Mandarin, Polish, Spanish
    Accepting New Patients
    Offers Telehealth

    John Smoots is a primary care provider, practicing in Internal Medicine in Tacoma, Washington. Dr. Smoots is rated as an Advanced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 36 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Urinary Tract Infection in Children, Urinary Tract Infection (UTI), and Osteoporosis. Dr. Smoots is currently accepting new patients.

    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Family Medicine
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Family Medicine

    Aurora Family Medicine

    313 S Main St, 
    Cedar Grove, WI 
    Languages Spoken:
    English

    Brian Demaster is a primary care provider, practicing in Family Medicine in Cedar Grove, Wisconsin. Dr. Demaster is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His clinical expertise encompasses Limb-Girdle Muscular Dystrophy Type 2A, Limb-Girdle Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 2B, and Limb-Girdle Muscular Dystrophy Type 1B. Dr. Demaster is board certified in American Board Of Family Medicine.

    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Family Medicine
    Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
    Family Medicine

    Texas Health Family Care

    1320 Hemphill Street, Suite 300, 
    Fort Worth, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Daniel Mcgilvray is a primary care provider, practicing in Family Medicine in Fort Worth, Texas. Dr. Mcgilvray is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses High Cholesterol, Type 2 Diabetes (T2D), Glucocorticoid-Remediable Aldosteronism, and Hypertension.

    Showing 1-20 of 697

    Last Updated: 04/28/2026

    What is the definition of Facioscapulohumeral Muscular Dystrophy (FSHD)?

    Facioscapulohumeral muscular dystrophy is a condition that causes muscle weakness and loss of muscle tissue that gets worse over time.

    When should I see a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Facioscapulohumeral Muscular Dystrophy (FSHD) doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Facioscapulohumeral Muscular Dystrophy (FSHD) doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. 

    Why is it important to get a second opinion from a different Facioscapulohumeral Muscular Dystrophy (FSHD) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Facioscapulohumeral Muscular Dystrophy (FSHD) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Facioscapulohumeral Muscular Dystrophy (FSHD) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Facioscapulohumeral Muscular Dystrophy (FSHD) doctors in The United States?

    Look for the filter feature on the left side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor that offers video calls?

    Look for the filter feature on the left-side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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