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    Last Updated: 01/09/2026

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    MediFind found 12 doctor with experience in Facioscapulohumeral Muscular Dystrophy (FSHD) near Maryland, US. Of these, 10 are Experienced, 1 are Advanced and 1 are Elite.

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    12 providers found
      Doris G. Leung
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)

      Kennedy Krieger Institute

      1741 Ashland Avenue, Room 847, Room 847, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Leung obtained her undergraduate degree in biochemical sciences from Harvard University. While attending medical school at Duke University, she completed a year-long research fellowship studying genetic markers of late-onset Alzheimer’s disease at the National Institute on Aging as part of the NIH Clinical Research Training Program. She completed her neurology residency and clinical neurophysiology fellowship at Stanford University Medical Center, and is currently a Ph.D. candidate in the graduate training program in clinical investigation at the Johns Hopkins Bloomberg School of Public Health. Dr. Leung joined the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute as a translational research fellow in 2010 and was appointed to the faculty in 2014. Her clinic specializes in electromyography and the diagnosis and treatment of hereditary muscle diseases. Dr. Leung’s research focuses on the development of imaging biomarkers and outcome measures for muscle diseases. She is the principal investigator for a longitudinal cohort study of whole-body MRI in facioscapulohumeral muscular dystrophy. Dr. Leung is also a site principal investigator for the Ionis-DMPKRx trial, a phase Ib/IIa clinical trial of a novel RNA-based therapy for myotonic muscular dystrophy. Dr. Leung is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Dysferlinopathy, Limb-Girdle Muscular Dystrophy Type 2I, and Limb-Girdle Muscular Dystrophy.

      Charlotte J. Sumner
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neuromusculoskeletal Medicine
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neuromusculoskeletal Medicine

      Johns Hopkins Outpatient Center

      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Charlotte Sumner is a Professor of Neurology and Neuroscience at Johns Hopkins University School of Medicine. Dr. Sumner cares for patients with genetically-mediated neuromuscular diseases. Her practice is notable for a focus on individuals with inherited neuromuscular disorders of peripheral nerves and motor neurons, including spinal muscular atrophy (SMA) and Charcot-Marie-Tooth (CMT) disease. She co-directs the Johns Hopkins Muscular Dystrophy Association Care Center, the Spinal Muscular Atrophy (SMA), and the Charcot-Marie-Tooth (CMT) clinics, which deliver multidisciplinary clinical care, engage in international natural history studies, and provide cutting edge therapeutics. Dr. Sumner’s research focuses on developing treatments for degenerative disorders of motor neurons and peripheral nerves. Her laboratory uses human tissues and induced pluripotent cell lines, mouse models and cultured cells to characterize disease mechanisms and develop treatments. Dr. Charlotte Sumner received her medical degree from the University of Pennsylvania School of Medicine following undergraduate studies at Princeton University. She completed internal medicine internship and neurology residency at the University of California San Francisco, after which she returned to the east coast for a neuromuscular fellowship at Johns Hopkins and a neurogenetics fellowship in the Neurogenetics Branch at the National Institute of Neurological Disorders and Stroke. She joined the neurology faculty at Johns Hopkins in 2006. Dr. Sumner is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her top areas of expertise are Spinal Muscular Atrophy (SMA), Charcot-Marie-Tooth Disease, Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, and Gastrostomy.

      Payam Mohassel
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neuromusculoskeletal Medicine
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neuromusculoskeletal Medicine

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
      Experience:
      17+ years
      Languages Spoken:
      English, Farsi

      Neurologist Payam Mohassel specializes in myopathies, muscular dystrophies, and other hereditary neuromuscular disorders and is the co-director of the Johns Hopkins Myositis Center. Dr. Mohassel obtained his medical degree from the Johns Hopkins University School of Medicine, where he remained for a medical internship, residency training in neurology, and clinical fellowship training in neuromuscular medicine. He then joined the National Institute of Neurological Disorders and Stroke Neurogenetics branch as a clinical research fellow. Dr. Mohassel’s research focuses on translational studies on neuromuscular disorders, and it spans gene discovery efforts, mechanistic studies to identify therapeutic targets, and early phase interventional clinical trials. Dr. Mohassel is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Hereditary Sensory Neuropathy Type 1 (HSN1), and Hereditary Sensory and Autonomic Neuropathy Type 2.

      Learn about our expert tiers
      Ricardo Roda
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neuromusculoskeletal Medicine
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neuromusculoskeletal Medicine

      Johns Hopkins Outpatient Center

      Baltimore, MD 
      Languages Spoken:
      English, French, Spanish
      Offers Telehealth

      Dr. Ricardo Roda earned a combined MD/PhD degree from University of Rochester and completed an adult neurology residency, followed by a clinical neuromuscular fellowship at Johns Hopkins University School of Medicine. During residency, Dr. Roda developed a special interest in both auto-immune disorders and genetic disorders. Following residency, he spent three years in neurogenetics branch of National Institute of Neurological Disorders and Stroke (NINDS) working with Dr. Craig Blackstone, focusing on the use of the newer DNA sequencing techniques in genetic diagnosis, and in establishing genotype/phenotype correlations neuromuscular disorders. His current clinical interests include developing testing strategies for undiagnosed genetic disorders and myasthenia gravis. Dr. Roda is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Spastic Paraplegia Type 7, Hereditary Spastic Paraparesis, Myasthenia Gravis, and Spastic Paraplegia Type 2.

      Mohammad A. Khoshnoodi
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English, Farsi
      Offers Telehealth

      Mohammad Khoshnoodi is a Neurologist in Baltimore, Maryland. Dr. Khoshnoodi is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Peripheral Neuropathy, Chronic Polyradiculoneuritis, Guillain-Barre Syndrome, and Miller-Fisher Syndrome.

      Andrew L. Mammen
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neuromusculoskeletal Medicine | Neurology
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neuromusculoskeletal Medicine | Neurology

      Johns Hopkins Bayview Medical Center

      4940 Eastern Avenue, Bayview Medical Offices, Level 01 (G), Clinic 5, Bayview Medical Offices, Level 01 (G), Clinic 5, 
      Baltimore, MD 
      Languages Spoken:
      English

      Andrew Mammen is a Neuromusculoskeletal Medicine specialist and a Neurologist in Baltimore, Maryland. Dr. Mammen is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Myositis, Polymyositis, Dermatomyositis, and Necrotizing Myopathy (NM).

      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neurology
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neurology

      National Institutes Of Health

      10 Center Dr Bldg 10CRC, 
      Bethesda, MD 
      Languages Spoken:
      English

      Tanya Lehky is a Neurologist in Bethesda, Maryland. Dr. Lehky is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her top areas of expertise are Giant Axonal Neuropathy, Peripheral Neuropathy, Chediak-Higashi Syndrome, and Sandhoff Disease.

      Advanced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Advanced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      600 N Wolfe St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Kathryn Wagner is a Neurologist in Baltimore, Maryland. Dr. Wagner is rated as an Advanced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her top areas of expertise are Limb-Girdle Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 1B, Limb-Girdle Muscular Dystrophy Type 1A, and Limb-Girdle Muscular Dystrophy Type 2I.

      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)

      Suburban/nrh Medical Rehabilitation Inc

      6410 Rockledge Dr, Suite 600, 
      Bethesda, MD 
      Languages Spoken:
      English

      Joseph Feinberg is a Physiatrist in Bethesda, Maryland. Dr. Feinberg is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Thoracic Outlet Syndrome, Brachial Plexopathy, Hereditary Neuralgic Amyotrophy, and Common Peroneal Nerve Dysfunction.

      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Family Medicine
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Family Medicine

      Dr. Benjamin F. Papoi, P.C.

      9815 Main St, Suite 208, 
      Damascus, MD 
      Languages Spoken:
      English
      Accepting New Patients

      Benjamin Papoi is a primary care provider, practicing in Family Medicine in Damascus, Maryland. Dr. Papoi is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Tracheitis. Dr. Papoi is currently accepting new patients.

      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Internal Medicine
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Internal Medicine
      601 N Caroline St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Bridgette Billioux is a primary care provider, practicing in Internal Medicine in Baltimore, Maryland. Dr. Billioux is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her top areas of expertise are Ebola Virus Disease, Encephalitis, HTLV-1 Associated Myelopathy, and Myelitis.

      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Endocrinology
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Endocrinology

      Ernest D. Hanowell MD PC

      10215 Fernwood Rd Ste 102, 
      Bethesda, MD 
      Languages Spoken:
      English

      Jay Shapiro is a primary care provider, practicing in Endocrinologist in Bethesda, Maryland. Dr. Shapiro is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Osteogenesis Imperfecta, Adrenal Gland Adenoma, Rett Syndrome, and Hypophosphatasia (HPP).

      Showing 1-12 of 12

      Last Updated: 01/09/2026

      What is the definition of Facioscapulohumeral Muscular Dystrophy (FSHD)?

      Facioscapulohumeral muscular dystrophy is a condition that causes muscle weakness and loss of muscle tissue that gets worse over time.

      When should I see a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor in Maryland, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor in Maryland, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Facioscapulohumeral Muscular Dystrophy (FSHD) doctors in Maryland, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Facioscapulohumeral Muscular Dystrophy (FSHD) doctors in Maryland, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor in Maryland, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. 

      Why is it important to get a second opinion from a different Facioscapulohumeral Muscular Dystrophy (FSHD) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor in Maryland, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Facioscapulohumeral Muscular Dystrophy (FSHD) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Facioscapulohumeral Muscular Dystrophy (FSHD) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Facioscapulohumeral Muscular Dystrophy (FSHD) doctors in Maryland, US?

      Look for the filter feature on the left side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor that offers video calls?

      Look for the filter feature on the left-side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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