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    Last Updated: 01/09/2026

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    MediFind found 157 doctor with experience in Familial Porencephaly near Massachusetts, US. Of these, 133 are Experienced, 23 are Advanced and 1 are Distinguished.

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    157 providers found
      Experienced in Familial Porencephaly
      Neurosurgery
      Experienced in Familial Porencephaly
      Neurosurgery

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
      Experience:
      18+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jason Rahal is a Neurosurgery provider in Boston, Massachusetts. Dr. Rahal has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Spinal Stenosis, Subdural Hematoma, Spondylolisthesis, Microdiscectomy, and Herniated Disc Surgery. Dr. Rahal is currently accepting new patients.

      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Baystate Medical Practices Inc

      2 Medical Ctr Dr, Suite 512, 
      Springfield, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Leslie Lyness is a Neurosurgery provider in Springfield, Massachusetts. Dr. Lyness is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Subdural Hematoma, Chronic Subdural Hematoma, Stroke, Awake Craniotomy, and Laminectomy. Dr. Lyness is currently accepting new patients.

      Distinguished in Familial Porencephaly
      Distinguished in Familial Porencephaly

      Advanced Berkshire Medical Imaging PC

      725 N St, 
      Pittsfield, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Winger is a Radiologist in Pittsfield, Massachusetts. Dr. Winger is rated as a Distinguished provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are CAPOS Syndrome, Aseptic and Alopecic Nodules of Scalp (AANS), Herniated Disk, Endoscopy, and Colonoscopy. Dr. Winger is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Familial Porencephaly
      Advanced in Familial Porencephaly

      Beth Israel Deaconess Medical Center

      330 Brookline Avenue, Shapiro 4, 
      Boston, MA 
      Languages Spoken:
      English, Korean

      Jonathan Kim is a Radiologist in Boston, Massachusetts. Dr. Kim is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Diverticular Disease, Pulmonary Fibrosis, Bronchogenic Cyst, Colonic Malakoplakia, and Stent Placement.

      Syeda Anum
      Experienced in Familial Porencephaly
      Radiology | Neuroradiology
      Experienced in Familial Porencephaly
      Radiology | Neuroradiology

      Pratt Radiology Associates Inc

      800 Washigton St, 
      Boston, MA 
      Languages Spoken:
      English

      Philosophy of care | I combine competence and compassion to provide quality care to all patients. | Why I entered medicine | I wanted to use my intellectual ability to help heal the sick. | Community involvement | I support charitable organizations that provide care during medical disasters. | Personal interests | I enjoy working out and comedy. Dr. Anum is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Herniated Disk, Cerebral Arteriovenous Malformation, Subarachnoid Hemorrhage, and Neural Crest Tumor.

      David R. Betteridge
      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      BIDH - Plymouth Radiology

      275 Sandwich Street, 
      Plymouth, MA 
      Languages Spoken:
      English

      David Betteridge is a Radiologist in Plymouth, Massachusetts. Dr. Betteridge is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Chronic Cough, Vertigo, Headache, and Breast Lump.

      David E. Searls
      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      BIDMC Department Of Neurology

      330 Brookline Avenue, 
      Boston, MA 
      Languages Spoken:
      English, French
      Offers Telehealth

      David Searls is a Neurologist in Boston, Massachusetts. Dr. Searls is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Stroke, Vertigo, Transient Ischemic Attack (TIA), Gastrostomy, and Carotid Artery Surgery.

      Martina Stippler
      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Beth Israel Deaconess Medical Center

      110 Francis Street, Lowry Suite 3B, 
      Boston, MA 
      Languages Spoken:
      English, German
      Offers Telehealth

      Martina Stippler is a Neurosurgery provider in Boston, Massachusetts. Dr. Stippler is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Subdural Hematoma, Chronic Subdural Hematoma, Pituitary Tumor, Balloon Sinuplasty, and Laminectomy.

      Rafael A. Vega
      Experienced in Familial Porencephaly
      Neurosurgery
      Experienced in Familial Porencephaly
      Neurosurgery

      Beth Israel Deaconess Medical Center - Neurosurgery

      110 Francis Street, Suite 3B, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Rafael Vega is a Neurosurgery provider in Boston, Massachusetts. Dr. Vega is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Brain Tumor, Subdural Hematoma, Posterior Fossa Tumor, Awake Craniotomy, and Craniectomy.

      Joshua P. Aronson
      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Beth Israel Deaconess Medical Center - Neurosurgery

      110 Francis Street, Suite 3B, 
      Boston, MA 
      Experience:
      17+ years
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Joshua Aronson is a Neurosurgery provider in Boston, Massachusetts. Dr. Aronson has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Subdural Hematoma, Seizures, Parkinson's Disease, Deep Brain Stimulation, and Awake Craniotomy.

      Ka-wai G. Ho
      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Beth Israel Deaconess Medical Center

      330 Brookline Avenue, Shapiro 8, Brain Tumor Center, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Ka-wai Ho is a Neurologist in Boston, Massachusetts. Dr. Ho is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Astrocytoma, and Glioblastoma.

      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Cape Cod Healthcare Neurologists

      46 North St Ste 7, 
      Hyannis, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Ahmad Abokhamis is a Neurologist in Hyannis, Massachusetts. Dr. Abokhamis is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Tension Headache, Cerebellar Degeneration, Landau-Kleffner Syndrome, and Memory Loss.

      Experienced in Familial Porencephaly
      Neurology
      Experienced in Familial Porencephaly
      Neurology

      Peter A. Hartmann MD PC

      21 Highland Ave Ste 12, 
      Newburyport, MA 
      Languages Spoken:
      English

      Lanny Xue is a Neurologist in Newburyport, Massachusetts. Dr. Xue is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Landau-Kleffner Syndrome, Memory Loss, Seizures, and Headache.

      Experienced in Familial Porencephaly
      Neurology
      Experienced in Familial Porencephaly
      Neurology

      Essex Neurological Associates PC

      6 Essex Center Dr Ste 307, 
      Peabody, MA 
      Languages Spoken:
      English

      Amy Amick is a Neurologist in Peabody, Massachusetts. Dr. Amick is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Migraine, Progressive Myoclonic Epilepsy, Lafora Disease, and Unverricht-Lundborg Syndrome.

      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Boston Children's Hospital

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Jeffrey Bolton is a Neurologist in Boston, Massachusetts. Dr. Bolton is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Seizures, Epilepsy in Children, Epilepsy, and Generalized Tonic-Clonic Seizure.

      Advanced in Familial Porencephaly
      Advanced in Familial Porencephaly

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Jonathan Rosand is a Neurologist in Boston, Massachusetts. Dr. Rosand is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Cerebral Amyloid Angiopathy, Stroke, Siderosis, Primary Amyloidosis, and Gastrostomy. Dr. Rosand is currently accepting new patients.

      Advanced in Familial Porencephaly
      Neurosurgery
      Advanced in Familial Porencephaly
      Neurosurgery

      Boston Pediatric Neurosurgical Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Lissa Baird is a Neurosurgery provider in Boston, Massachusetts. Dr. Baird is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Hydrocephalus, Craniopharyngioma, Chiari Malformation Type 1, Posterior Fossa Decompression, and Craniectomy.

      Advanced in Familial Porencephaly
      Radiology
      Advanced in Familial Porencephaly
      Radiology

      Children's Hospital Radiology Foundation, Inc.

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Edward Yang is a Radiologist in Boston, Massachusetts. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Cortical Dysplasia, Polymicrogyria, Agyria Pachygyria Polymicrogyria, and Focal or Multifocal Malformations in Neuronal Migration.

      Advanced in Familial Porencephaly
      Radiology
      Advanced in Familial Porencephaly
      Radiology

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
      Languages Spoken:
      English

      Liangge Hsu is a Radiologist in Boston, Massachusetts. Dr. Hsu is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Meningioma, Normal Pressure Hydrocephalus, Relapsing Multiple Sclerosis (RMS), and Pediatric Low-Grade Glioma (pLGG).

      Advanced in Familial Porencephaly
      Neurosurgery
      Advanced in Familial Porencephaly
      Neurosurgery

      Boston Pediatric Neurosurgical Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Katie Fehnel is a Neurosurgery provider in Boston, Massachusetts. Dr. Fehnel is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Choroid Plexus Papilloma, Hydrocephalus, Stroke, Cordotomy, and Awake Craniotomy.

      Showing 1-20 of 157

      Last Updated: 01/09/2026

      What is the definition of Familial Porencephaly?

      Familial porencephaly is part of a group of conditions called the COL4A1-related disorders. The conditions in this group have a range of signs and symptoms that involve fragile blood vessels. In familial porencephaly, fluid-filled cysts develop in the brain (porencephaly) during fetal development or soon after birth. These cysts typically occur in only one side of the brain and vary in size. The cysts are thought to be the result of bleeding within the brain (hemorrhagic stroke). People with this condition also have leukoencephalopathy, which is a change in a type of brain tissue called white matter that can be seen with magnetic resonance imaging (MRI).

      When should I see a Familial Porencephaly doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Familial Porencephaly doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Familial Porencephaly doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Familial Porencephaly doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Familial Porencephaly doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Familial Porencephaly doctor search results page. 

      Why is it important to get a second opinion from a different Familial Porencephaly doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Familial Porencephaly doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Familial Porencephaly doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Familial Porencephaly doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Familial Porencephaly doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Familial Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Familial Porencephaly doctor that offers video calls?

      Look for the filter feature on the left-side of the Familial Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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