Quality of Life, Psychosocial Burden, and Structural-functional Status in Adults With Spinal Deformity.
This study examines which factors influence quality of life in adults with a spinal deformity. It looks at imaging findings together with pain, daily functioning, psychosocial factors, and frailty to support more person-centred care. A total of 320 adults will participate in three groups: conservative treatment, first corrective surgery, or reoperation. All care follows standard practice; no experimental treatments are added. Participants complete questionnaires, and routine FASD tests and existing EOS/X-ray images may be used. Follow-up lasts up to 2 years, with scheduled assessments depending on whether treatment is surgical or conservative.
• Voluntary written informed consent of the participant or their legally authorized representative has been obtained prior to any screening procedures
• Age at inclusion 18 years or older.
• Diagnosed with Adult spinal deformity
• Planned routine management through one of the following pathways:
‣ Conservative/non-operative management;
⁃ Primary ASD surgery;
⁃ Revision ASD surgery.
• Ability to complete the Dutch-language questionnaire package.