Fibrodysplasia Ossificans Progressiva
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Fibrodysplasia Ossificans Progressiva Overview

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Condition 101 content is not available at this time, but we are continually updating the site. Please check back.

However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.

Who are the top Fibrodysplasia Ossificans Progressiva Local Doctors?
Distinguished in Fibrodysplasia Ossificans Progressiva
Orthopedics
Distinguished in Fibrodysplasia Ossificans Progressiva
Orthopedics
Referral may be required

Ballad Health Medical Associates Associated Orthopedics

430 West Ravine Road, 
Kingsport, TN 
Languages Spoken:
English
Offers Telehealth

Originally from Big Bear, a small ski resort town in Southern California, Todd Horton, MD, moved to the Appalachian Highlands after retiring from the U.S. Navy in Portsmouth, Virginia. He was drawn to the region for its scenic rural charm, convenient access to amenities and the warmth of its small-town feel. Dr. Horton specializes in upper extremity and hand surgery with a focus on restoring function through precise mechanical repair. He enjoys helping patients recover from injuries and regain the strength and confidence to return to their everyday lives. In his free time, Dr. Horton enjoys precision and tactical shooting, motorsports and taking part in local organizations including VictorySports MotoCross, the South East Trail Riders Association and regional rodeo and gun clubs. Dr. Horton is rated as a Distinguished provider by MediFind in the treatment of Fibrodysplasia Ossificans Progressiva. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Progressive Osseous Heteroplasia, Fibrodysplasia Ossificans Progressiva, Osteoarthritis, and Carpal Tunnel Syndrome. Dr. Horton is board certified in American Board Of Orthopaedic Surgery.

Elite in Fibrodysplasia Ossificans Progressiva
Elite in Fibrodysplasia Ossificans Progressiva
Referral may be required

Penn Orthopaedics University City - 8th Floor

3737 Market Street, 8th Floor, 
Philadelphia, PA 
Languages Spoken:
English

Frederick Kaplan is an Orthopedics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Kaplan is rated as an Elite provider by MediFind in the treatment of Fibrodysplasia Ossificans Progressiva. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Fibrodysplasia Ossificans Progressiva, Progressive Osseous Heteroplasia, Compartment Syndrome, Brachydactyly Mononen Type, and Fasciotomy.

 
 
 
 
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Elite in Fibrodysplasia Ossificans Progressiva
Elite in Fibrodysplasia Ossificans Progressiva
Referral may be required

Mayo Clinic-Rochester

5716 Cleveland St Ste 200, 
Virginia Beach, VA 
Languages Spoken:
English

Robert Pignolo is a primary care provider, practicing in Geriatrics in Virginia Beach, Virginia. Dr. Pignolo is rated as an Elite provider by MediFind in the treatment of Fibrodysplasia Ossificans Progressiva. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Fibrodysplasia Ossificans Progressiva, Progressive Osseous Heteroplasia, Albright's Hereditary Osteodystrophy, Pseudohypoparathyroidism, and Fasciotomy.

What are the latest Fibrodysplasia Ossificans Progressiva Clinical Trials?
FOP Registry: A Global Registry for the Fibrodysplasia Ossificans Progressiva Community

Summary: The Fibrodysplasia Ossificans Progressiva (FOP) Registry is a global, non-interventional, voluntary database that captures demographic and disease data directly from FOP patients and their caregivers via a secure, web-based patient portal. A physician portal (in development) will allow physicians to enter clinical data about their patients. The objectives are to organize the international FOP comm...

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An International Observational Registry Study to Further Describe Long-term Safety and Effectiveness of Palovarotene in Patients With Fibrodysplasia Ossificans Progressiva (FOP)

Summary: The participants in this registry study will have fibrodysplasia ossificans progressiva (FOP). FOP is an ultra-rare, severely disabling disease characterized by new bone formation in areas of the body where bone is not normally present (heterotopic ossification (HO)). HO is often preceded by painful, recurrent episodes of soft tissue swelling (flare-ups). This registry study will take place in cou...