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    Last Updated: 01/09/2026

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    MediFind found 52 doctor with experience in Giant Axonal Neuropathy near Maryland, US. Of these, 41 are Experienced, 9 are Advanced, 1 are Distinguished and 1 are Elite.

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    52 providers found
      Elite in Giant Axonal Neuropathy
      Neurology
      Elite in Giant Axonal Neuropathy
      Neurology

      National Institutes Of Health

      10 Center Dr Bldg 10CRC, 
      Bethesda, MD 
      Languages Spoken:
      English

      Tanya Lehky is a Neurologist in Bethesda, Maryland. Dr. Lehky is rated as an Elite provider by MediFind in the treatment of Giant Axonal Neuropathy. Her top areas of expertise are Giant Axonal Neuropathy, Peripheral Neuropathy, Chediak-Higashi Syndrome, and Sandhoff Disease.

      Distinguished in Giant Axonal Neuropathy
      Obstetrics and Gynecology
      Distinguished in Giant Axonal Neuropathy
      Obstetrics and Gynecology

      Privia Medical Group, LLC

      133 Defense Hwy, 
      Annapolis, MD 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Richard Marvel is an Obstetrics and Gynecologist in Annapolis, Maryland. Dr. Marvel is rated as a Distinguished provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Pudendal Neuralgia, Giant Axonal Neuropathy, Wallerian Degeneration, and Femoral Nerve Dysfunction. Dr. Marvel is currently accepting new patients.

      Advanced in Giant Axonal Neuropathy
      Neurology
      Advanced in Giant Axonal Neuropathy
      Neurology

      Nuvasive Clinical Services Monitoring, Inc./Assoc. PLLC

      10275 Little Patuxent Pkwy Ste 300, 
      Columbia, MD 
      Languages Spoken:
      English

      Soe Aung is a Neurologist in Columbia, Maryland. Dr. Aung is rated as an Advanced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Cervical Myelopathy, Spinal Tumor, Tarlov Cysts, Subependymoma, and Angioplasty.

      Learn about our expert tiers
      Advanced in Giant Axonal Neuropathy
      Advanced in Giant Axonal Neuropathy

      Nuvasive Clinical Services

      10275 Little Patuxent Parkway, Suite 300, 
      Columbia, MD 
      Languages Spoken:
      English

      Jonathan Johnson is a Neurologist in Columbia, Maryland. Dr. Johnson is rated as an Advanced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Cervical Myelopathy, Hemangioblastoma, Spinal Tumor, and Subependymoma.

      Advanced in Giant Axonal Neuropathy
      Advanced in Giant Axonal Neuropathy

      NuVasive Clinical Services Monitoring, Inc.

      10275 Little Patuxent Pkwy, Suite 300, 
      Columbia, MD 
      Languages Spoken:
      English

      Bassel Shneker is a Neurologist in Columbia, Maryland. Dr. Shneker is rated as an Advanced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Cervical Myelopathy, Hemangioblastoma, Dysembryoplastic Neuroepithelial Tumors (DNET), and Brain Stem Cancer.

      Advanced in Giant Axonal Neuropathy
      Advanced in Giant Axonal Neuropathy

      Pacific Neuromonitoring Associates Inc

      10275 Little Patuxent Pkwy Ste 300, 
      Columbia, MD 
      Languages Spoken:
      English

      Vitor Pacheco is a Neurologist in Columbia, Maryland. Dr. Pacheco is rated as an Advanced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Tarlov Cysts, Dysarthria, Cervical Myelopathy, and Spinal Tumor.

      Advanced in Giant Axonal Neuropathy
      Neurology
      Advanced in Giant Axonal Neuropathy
      Neurology

      Pacific Neuromonitoring Associates Inc

      10275 Little Patuxent Pkwy Ste 300, 
      Columbia, MD 
      Languages Spoken:
      English

      Reza Kanani is a Neurologist in Columbia, Maryland. Dr. Kanani is rated as an Advanced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Cervical Myelopathy, Spinal Tumor, Brain Stem Cancer, and Dysembryoplastic Neuroepithelial Tumors (DNET).

      Payam Mohassel
      Experienced in Giant Axonal Neuropathy
      Neuromusculoskeletal Medicine
      Experienced in Giant Axonal Neuropathy
      Neuromusculoskeletal Medicine

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
      Experience:
      17+ years
      Languages Spoken:
      English, Farsi

      Neurologist Payam Mohassel specializes in myopathies, muscular dystrophies, and other hereditary neuromuscular disorders and is the co-director of the Johns Hopkins Myositis Center. Dr. Mohassel obtained his medical degree from the Johns Hopkins University School of Medicine, where he remained for a medical internship, residency training in neurology, and clinical fellowship training in neuromuscular medicine. He then joined the National Institute of Neurological Disorders and Stroke Neurogenetics branch as a clinical research fellow. Dr. Mohassel’s research focuses on translational studies on neuromuscular disorders, and it spans gene discovery efforts, mechanistic studies to identify therapeutic targets, and early phase interventional clinical trials. Dr. Mohassel is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Hereditary Sensory Neuropathy Type 1 (HSN1), and Hereditary Sensory and Autonomic Neuropathy Type 2.

      Ahmet Hoke
      Experienced in Giant Axonal Neuropathy
      Neurology
      Experienced in Giant Axonal Neuropathy
      Neurology

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
      Languages Spoken:
      English, Turkish

      Dr. Ahmet Hoke is Professor of Neurology and Neuroscience, W. W. Smith Charitable Trust Professor of Neuroimmunology at Johns Hopkins School of Medicine, Director of the Daniel B. Drachman Division of Neuromuscular Diseases and Director of the Merkin Peripheral Neuropathy and Nerve Regeneration Center at Johns Hopkins University School of Medicine. He completed his medical training at Hacettepe University School of Medicine in Ankara, Turkey followed by his PhD studies in developmental neuroscience at Case Western Reserve University in Cleveland, Ohio, and neurology residency at Johns Hopkins Hospital. After completing his neuromuscular training at University of Calgary, Canada, he returned to Johns Hopkins University as faculty and rose through the ranks. He is the recipient of several awards including Derek Denny Brown Young Neurological Scholar Award (2005) and Wolfe Neuropathy Research prize (2018) given by the American Neurological Association, Myung Memorial Lecture Award (2017) by the Korean Neurological Association, Nejat Eczacibasi Medical Scientist Award (2019) by the Eczacibasi Foundation, Turkey, and Alan J. Gebhart Prize in Excellence in Neuropathy Research (2022) by the Peripheral Nerve Society. He is an Ex-Officio member of the Board of Directors of the American Neurological Association, and Vice-President of the Toxic Neuropathy Consortium. He serves on several editorial boards and is the Editor-in-Chief of Annals of Clinical and Translational Neurology. Dr. Hoke is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Wallerian Degeneration, Peripheral Neuropathy, Tomaculous Neuropathy, Spinal Muscular Atrophy with Arthrogryposis, and Prostatectomy.

      Charlotte J. Sumner
      Experienced in Giant Axonal Neuropathy
      Neuromusculoskeletal Medicine
      Experienced in Giant Axonal Neuropathy
      Neuromusculoskeletal Medicine

      Johns Hopkins Outpatient Center

      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Charlotte Sumner is a Professor of Neurology and Neuroscience at Johns Hopkins University School of Medicine. Dr. Sumner cares for patients with genetically-mediated neuromuscular diseases. Her practice is notable for a focus on individuals with inherited neuromuscular disorders of peripheral nerves and motor neurons, including spinal muscular atrophy (SMA) and Charcot-Marie-Tooth (CMT) disease. She co-directs the Johns Hopkins Muscular Dystrophy Association Care Center, the Spinal Muscular Atrophy (SMA), and the Charcot-Marie-Tooth (CMT) clinics, which deliver multidisciplinary clinical care, engage in international natural history studies, and provide cutting edge therapeutics. Dr. Sumner’s research focuses on developing treatments for degenerative disorders of motor neurons and peripheral nerves. Her laboratory uses human tissues and induced pluripotent cell lines, mouse models and cultured cells to characterize disease mechanisms and develop treatments. Dr. Charlotte Sumner received her medical degree from the University of Pennsylvania School of Medicine following undergraduate studies at Princeton University. She completed internal medicine internship and neurology residency at the University of California San Francisco, after which she returned to the east coast for a neuromuscular fellowship at Johns Hopkins and a neurogenetics fellowship in the Neurogenetics Branch at the National Institute of Neurological Disorders and Stroke. She joined the neurology faculty at Johns Hopkins in 2006. Dr. Sumner is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Charcot-Marie-Tooth Disease, Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, and Gastrostomy.

      Thomas O. Crawford
      Experienced in Giant Axonal Neuropathy
      Neurology | Pediatric Neurology
      Experienced in Giant Axonal Neuropathy
      Neurology | Pediatric Neurology

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Tom Crawford has been a member of the Department of Neurology since 1987. He is co-director of the MDA clinic for Neuromuscular Disorders and Neurologist for the Ataxia Telangiectasia Clinical Center at Johns Hopkins. His practice involves general child neurology with a principal interest in caring for children with neuromuscular, neuromotor, and ataxic disorders. Primary research interests involve the basic science and clinical characterization of two important neurologic disorders that affect children: Spinal Muscular Atrophy and Ataxia Telangiectasia. He is also actively involved in the Biology of neurofilaments by characterization of transgenic animal models. He is on the Medical and Scientific Advisory Boards of Families of Spinal Muscular Atrophy, and the Medical Advisory Committee for the Muscular Dystrophy Association. He is the Neurologist for the Ataxia Telangiectasia Clinical Center at Johns Hopkins, which has evaluated almost half of the known patients with this disorder in the United States. Additional specific clinical interests include evaluation and treatment of children with brachial plexus palsies. Dr. Crawford received his medical degree from the University of Southern California. He completed a pediatric internship and residency at the Pediatric Pavilion of the Los Angeles County / University of Southern California Medical Center, followed by a pediatric chief residency. He completed his training in Neurology with Special Qualification in Child Neurology at the Los Angeles Childrens Hospital. He then traveled east to the laboratory of Dr John Griffin at Johns Hopkins for a fellowship in Neuromuscular Disorders. Prior to medical training and Neurology residency, he majored in Psychology and Religion at Yale College. Dr. Crawford has published extensively and presented nationally and internationally. He has an active role in teaching medical students and residents in neurology. In addition, Dr. Crawford has special interest and experience in EMG studies of children and adults. Dr. Crawford is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Ataxia-Telangiectasia, and Spinal Muscular Atrophy Type 2.

      Mark T. Matsunaga
      Experienced in Giant Axonal Neuropathy
      Pain Medicine | Cardiology | Anesthesiology
      Experienced in Giant Axonal Neuropathy
      Pain Medicine | Cardiology | Anesthesiology

      Comprehensive Pain Center

      8894 Stanford Boulevard, Suite 104, Suite 104, 
      Columbia, MD 
      Languages Spoken:
      English

      Mark Matsunaga is a Cardiologist and a Pain Medicine provider in Columbia, Maryland. Dr. Matsunaga is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Fibromyalgia, Chronic Pain, Opioid Induced Constipation, and Neuralgia.

      Akhil Chhatre
      Experienced in Giant Axonal Neuropathy
      Physiatry | Orthopedics
      Experienced in Giant Axonal Neuropathy
      Physiatry | Orthopedics

      JH Green Spring Pavilion III

      10803 Falls Road, Pavilion III Suite 3100, Pavilion III Suite 3100, 
      Lutherville, MD 
      Languages Spoken:
      English

      Dr. Akhil Chhatre is an assistant professor of physical medicine and rehabilitation and neurological surgery at the Johns Hopkins University School of Medicine. He is director of spine rehabilitation at Johns Hopkins. Dr. Chhatre sees and treats adults with a wide range of spinal diseases and disorders, including neck and low back pain, lumbar and cervical degenerative disease, scoliosis, spinal stenosis, facet joint disease, whiplash syndrome, sacroiliac and appendicular skeletal joint disease, and peripheral neuropathy. He has a special interest in helping patients regain function and reduce pain using non-surgical techniques and performing pain-reducing medicinal procedures, including steroid injections, nerve blocks and radiofrequency denervation. He received his medical degree from the University of Missouri School of Medicine and completed his residency in physical medicine and rehabilitation at the University of Kansas Medical Center School of Allied Health. He performed his fellowship in interventional spine and sports medicine at the University of Pennsylvania. Previously, Dr. Chhatre worked as an interventional spine and sports fellow at the Hospitals of the University of Pennsylvania after completing a residency in physical medicine & rehabilitation at the University of Kansas Medical Center. Dr. Chhatre is a member of the American Academy of Physical Medicine & Rehabilitation, the International Spine Intervention Society, and the North American Spine Society. For information on conditions he treats and for scheduling information, please review this document. Dr. Chhatre is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Sciatica, Scoliosis, Sacroiliac Joint Disease, Cervical Spondylosis, and Vertebroplasty.

      Paul Christo
      Experienced in Giant Axonal Neuropathy
      Pain Medicine | Anesthesiology
      Experienced in Giant Axonal Neuropathy
      Pain Medicine | Anesthesiology

      Johns Hopkins Pain Treatment Center

      10803 Falls Road, Pavilion III STE 2100, Pavilion III STE 2100, 
      Lutherville, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Paul Christo is a Pain Medicine specialist and an Anesthesiologist in Lutherville, Maryland. Dr. Christo is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Chronic Pain, Neuralgia, Central Pain Syndrome, Complex Regional Pain Syndrome, and Osteotomy.

      Eellan Sivanesan
      Experienced in Giant Axonal Neuropathy
      Pain Medicine | Anesthesiology
      Experienced in Giant Axonal Neuropathy
      Pain Medicine | Anesthesiology

      Johns Hopkins Outpatient Center

      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Eellan Sivanesan is a Pain Medicine specialist and an Anesthesiologist in Baltimore, Maryland. Dr. Sivanesan is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Neuralgia, Chronic Pain, Complex Regional Pain Syndrome, and Shingles.

      Avindra J. Nath
      Advanced in Giant Axonal Neuropathy
      Advanced in Giant Axonal Neuropathy
      600 N Wolfe St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Avindra Nath is a Neurologist in Baltimore, Maryland. Dr. Nath is rated as an Advanced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Progressive Multifocal Leukoencephalopathy, Encephalitis, CACH Syndrome, and Stroke.

      Experienced in Giant Axonal Neuropathy
      Experienced in Giant Axonal Neuropathy

      Children's National Hagerstown

      1165 Imperial Dr Ste 103, 
      Hagerstown, MD 
      Languages Spoken:
      English

      Christopher Clark is a Physiatrist in Hagerstown, Maryland. Dr. Clark is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Chronic Pain, Sciatica, Sacroiliac Joint Disease, and Scoliosis.

      Experienced in Giant Axonal Neuropathy
      Pain Medicine
      Experienced in Giant Axonal Neuropathy
      Pain Medicine

      UPMC Western Maryland Rehab

      12500 Willowbrook Road, 
      Cumberland, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Edward Soriano, DO, specializes in pain medicine and physical medicine and rehabilitation and is board-certified by the American Board of Physical Medicine and Rehabilitation. Dr. Soriano received his medical degree from Rowan-Virtua School of Osteopathic Medicine (University of Medicine and Dentistry of New Jersey) and completed his residency at Temple University Lewis Katz School of Medicine. Dr. Soriano is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Sciatica, Chronic Pain, Spinal Stenosis, and Cervical Spondylosis.

      Experienced in Giant Axonal Neuropathy
      Experienced in Giant Axonal Neuropathy

      Johns Hopkins Plastic Surg Ass

      601 N Caroline St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Vinay Chaudhry is a Neurologist in Baltimore, Maryland. Dr. Chaudhry is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Advanced Bronchoscopy.

      Experienced in Giant Axonal Neuropathy
      Pain Medicine | Anesthesiology
      Experienced in Giant Axonal Neuropathy
      Pain Medicine | Anesthesiology

      Clearway Pain Solutions

      6410 Rockledge Dr, 
      Bethesda, MD 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anna Irwin is a Pain Medicine specialist and an Anesthesiologist in Bethesda, Maryland. Dr. Irwin is rated as an Experienced provider by MediFind in the treatment of Giant Axonal Neuropathy. Her top areas of expertise are Chronic Pain, Neuralgia, Cervical Spondylosis, and Sciatica. Dr. Irwin is currently accepting new patients.

      Showing 1-20 of 52

      Last Updated: 01/09/2026

      What is the definition of Giant Axonal Neuropathy?

      Giant axonal neuropathy is an inherited condition characterized by abnormally large and dysfunctional axons called giant axons. Axons are specialized extensions of nerve cells (neurons) that transmit nerve impulses. Symptoms of the disorder first become apparent in the peripheral nervous system, in which long axons connect the brain and spinal cord (central nervous system) to muscles and to sensory cells that detect sensations such as touch, pain, heat, and sound. However, axons in the central nervous system are affected as well.

      When should I see a Giant Axonal Neuropathy doctor in Maryland, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Giant Axonal Neuropathy doctor in Maryland, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Giant Axonal Neuropathy doctors in Maryland, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Giant Axonal Neuropathy doctors in Maryland, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Giant Axonal Neuropathy doctor in Maryland, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Giant Axonal Neuropathy doctor search results page. 

      Why is it important to get a second opinion from a different Giant Axonal Neuropathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Giant Axonal Neuropathy doctor in Maryland, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Giant Axonal Neuropathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Giant Axonal Neuropathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Giant Axonal Neuropathy doctors in Maryland, US?

      Look for the filter feature on the left side of the Giant Axonal Neuropathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Giant Axonal Neuropathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Giant Axonal Neuropathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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