Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life

Status: Recruiting
Location: See location...
Intervention Type: Behavioral
Study Type: Observational
SUMMARY

The purpose of this study is to find out about the quality of life and health in a group of adults who had retinoblastoma when they were children. By quality of life, we mean how you are feeling about being satisfied with things in your life, including your physical health, your emotional health, and your ability to carry out daily activities. We hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:

• Patient diagnosed with retinoblastoma at any age

• At least five years from completion of all retinoblastoma-directed therapy

• Able to provide informed consent and/or assent, if indicated

Locations
United States
New York
Memorial Sloan Kettering Cancer Center
RECRUITING
New York
Contact Information
Primary
Danielle Novetsky Friedman, MD
212-639-7376
Backup
David Abramson, MD
212-639-7232
Time Frame
Start Date: 2008-03-11
Estimated Completion Date: 2026-03
Participants
Target number of participants: 1000
Treatments
1
Long term survivors of retinoblastoma
Authors
Related Therapeutic Areas
Sponsors
Leads: Memorial Sloan Kettering Cancer Center
Collaborators: St. Jude Children's Research Hospital, National Cancer Institute (NCI)

This content was sourced from clinicaltrials.gov

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