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    Last Updated: 01/09/2026

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    MediFind found 31 doctor with experience in GM1 Gangliosidosis near The United Kingdom. Of these, 25 are Experienced and 6 are Advanced.

    Location
    LocationClose
    31 providers found
      Advanced in GM1 Gangliosidosis
      Advanced in GM1 Gangliosidosis
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Rauan Kaiyrzhanov practices in London, United Kingdom. Kaiyrzhanov is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. Their top areas of expertise are Movement Disorders, Drug Induced Dyskinesia, Parkinson's Disease, and Acute Cerebellar Ataxia.

      Advanced in GM1 Gangliosidosis
      Advanced in GM1 Gangliosidosis
      Mansfield Road, 
      Oxford, ENG, GB 

      Frances Platt practices in Oxford, United Kingdom. Ms. Platt is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Niemann-Pick Disease, Sandhoff Disease, Non-Langerhans-Cell Histiocytosis, and Histiocytosis.

      Advanced in GM1 Gangliosidosis
      Advanced in GM1 Gangliosidosis
      Great Ormond Street Hospital Biomedical Research Centre, 
      London, ENG, GB 

      Julien Baruteau practices in London, United Kingdom. Mr. Baruteau is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), Orotic Aciduria Type 1, Ornithine Transcarbamylase Deficiency, and Liver Transplant.

      Learn about our expert tiers
      Advanced in GM1 Gangliosidosis
      Advanced in GM1 Gangliosidosis

      Great Ormond Street Hospital For Children

      London, ENG, GB 

      Sniya Sudhakar practices in London, United Kingdom. Ms. Sudhakar is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Dandy-Walker Syndrome, Canavan Disease, Increased Head Circumference, and Beta-Propeller Protein-Associated Neurodegeneration.

      Advanced in GM1 Gangliosidosis
      Advanced in GM1 Gangliosidosis
      Oxford, ENG, GB 

      Matteo Ferla practices in Oxford, United Kingdom. Mr. Ferla is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are GM1 Gangliosidosis, Gangliosidosis, Rhizomelic Syndrome, and Atresia of Small Intestine.

      Advanced in GM1 Gangliosidosis
      Advanced in GM1 Gangliosidosis

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Henry Houlden practices in London, United Kingdom. Mr. Houlden is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Movement Disorders, Gastrostomy, and Deep Brain Stimulation.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      Glasgow, SCT, GB 

      Susan Halstead practices in Glasgow, United Kingdom. Ms. Halstead is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Guillain-Barre Syndrome, Multifocal Motor Neuropathy, Miller-Fisher Syndrome, and ADULT Syndrome.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      Glasgow, SCT, GB 

      Hugh Willison practices in Glasgow, United Kingdom. Mr. Willison is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Guillain-Barre Syndrome, Miller-Fisher Syndrome, Zika Virus Disease, and ADULT Syndrome.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      Glasgow, SCT, GB 

      Amy Davidson practices in Glasgow, United Kingdom. Ms. Davidson is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Miller-Fisher Syndrome, Guillain-Barre Syndrome, ADULT Syndrome, and GM1 Gangliosidosis.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      The Gateway, 
      Leicester, ENG, GB 

      Benita Percival practices in Leicester, United Kingdom. Ms. Percival is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Gangliosidosis, Niemann-Pick Disease, and Non-Langerhans-Cell Histiocytosis.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      Sydney Street, 
      London, ENG, GB 

      Francesco Bruno practices in London, United Kingdom. Mr. Bruno is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Acute Coronary Syndrome, Heart Attack, Aortic Valve Stenosis, Transcatheter Aortic Valve Replacement (TAVR), and Percutaneous Coronary Intervention (PCI).

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis

      Great Ormond Street Hospital

      London, ENG, GB 

      Manju Kurian practices in London, United Kingdom. Ms. Kurian is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Drug Induced Dyskinesia, Beta-Propeller Protein-Associated Neurodegeneration, Hallervorden-Spatz Disease, Movement Disorders, and Deep Brain Stimulation.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      Oxford, ENG, GB 

      Mylene Huebecker practices in Oxford, United Kingdom. Ms. Huebecker is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Sandhoff Disease, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Gangliosidosis.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      The Gateway, 
      Leicester, ENG, GB 

      Martin Grootveld practices in Leicester, United Kingdom. Mr. Grootveld is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, Reticulohistiocytoma, and Histiocytosis.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      Queen Square, 
      London, ENG, GB 

      Kshitij Mankad practices in London, United Kingdom. Mankad is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. Their top areas of expertise are Dandy-Walker Syndrome, Cortical Dysplasia, Posterior Fossa Tumor, Selective Mutism, and Rhizotomy.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      York, ENG, GB 

      Lianne Willems practices in York, United Kingdom. Ms. Willems is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Krabbe Disease, GM1 Gangliosidosis, Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), and Gangliosidosis.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      Stott Lane, 
      Salford, ENG, GB 

      Karolina Stepien practices in Salford, United Kingdom. Ms. Stepien is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Classic Galactosemia, Ornithine Transcarbamylase Deficiency, Mucopolysaccharidoses (MPS), Liver Transplant, and Gastrostomy.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      York, ENG, GB 

      Gideon Davies practices in York, United Kingdom. Mr. Davies is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Fucosidosis, Simpson-Golabi-Behmel Syndrome, Pompe Disease, and GM1 Gangliosidosis.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Francesca Magrinelli practices in London, United Kingdom. Ms. Magrinelli is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Chorea, Familial Paroxysmal Nonkinesigenic Dyskinesia, Drug Induced Dyskinesia, Movement Disorders, and Deep Brain Stimulation.

      Experienced in GM1 Gangliosidosis
      Experienced in GM1 Gangliosidosis
      Great Ormond Street Hospital For Children, 
      London, ENG, GB 

      Ulrike Lobel practices in London, United Kingdom. Ms. Lobel is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Batten Disease, CLN3 Disease, CLN4 Disease, and CLN5 Disease.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 31

      Last Updated: 01/09/2026

      What is the definition of GM1 Gangliosidosis?

      GM1 gangliosidosis is an inherited disorder that destroys nerve cells (neurons) in the brain and spinal cord. This condition can be classified as one of three major types based on the age at which signs and symptoms first appear. However, the signs and symptoms of these three types can overlap, leading some researchers to believe that GM1 gangliosidosis occurs on a spectrum instead of as three distinct types.

      When should I see a GM1 Gangliosidosis doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a GM1 Gangliosidosis doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank GM1 Gangliosidosis doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by GM1 Gangliosidosis doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a GM1 Gangliosidosis doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. 

      Why is it important to get a second opinion from a different GM1 Gangliosidosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a GM1 Gangliosidosis doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my GM1 Gangliosidosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my GM1 Gangliosidosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female GM1 Gangliosidosis doctors in The United Kingdom?

      Look for the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a GM1 Gangliosidosis doctor that offers video calls?

      Look for the filter feature on the left-side of the GM1 Gangliosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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