The 20 Best GM1 Gangliosidosis Doctors in The United Kingdom

Find the Top GM1 Gangliosidosis Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 31 doctor with experience in GM1 Gangliosidosis near The United Kingdom. Of these, 25 are Experienced and 6 are Advanced.

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31 providers found
    Advanced in GM1 Gangliosidosis

    Rauan Kaiyrzhanov
    Advanced in GM1 Gangliosidosis

    Rauan Kaiyrzhanov
    Referral may be required
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Rauan Kaiyrzhanov practices practicing medicine in London, United Kingdom. Kaiyrzhanov is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. They are also highly rated in 16 other conditions, according to our data. Their clinical expertise encompasses Movement Disorders, Drug Induced Dyskinesia, Early Infantile Epileptic Encephalopathy, and Achalasia Microcephaly Syndrome.

    Advanced in GM1 Gangliosidosis

    Frances M. Platt
    Advanced in GM1 Gangliosidosis

    Frances M. Platt
    Referral may be required
    Mansfield Road, 
    Oxford, ENG, GB 

    Frances Platt practices practicing medicine in Oxford, United Kingdom. Ms. Platt is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Niemann-Pick Disease, Sandhoff Disease, Non-Langerhans-Cell Histiocytosis, and Reticulohistiocytoma.

    Advanced in GM1 Gangliosidosis

    Julien Baruteau
    Advanced in GM1 Gangliosidosis

    Julien Baruteau
    Referral may be required
    Great Ormond Street Hospital Biomedical Research Centre, 
    London, ENG, GB 

    Julien Baruteau practices practicing medicine in London, United Kingdom. Mr. Baruteau is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), Orotic Aciduria Type 1, Ornithine Transcarbamylase Deficiency, and Liver Transplant.

    Learn about our expert tiers
    Advanced in GM1 Gangliosidosis

    Matteo P. Ferla
    Advanced in GM1 Gangliosidosis

    Matteo P. Ferla
    Referral may be required
    Oxford, ENG, GB 

    Matteo Ferla practices practicing medicine in Oxford, United Kingdom. Mr. Ferla is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses GM1 Gangliosidosis, Rhizomelic Syndrome, Gangliosidosis, and Atresia of Small Intestine.

    Advanced in GM1 Gangliosidosis

    Sniya V. Sudhakar
    Advanced in GM1 Gangliosidosis

    Sniya V. Sudhakar
    Referral may be required
    Great Ormond Street Hospital For Children, 
    London, ENG, GB 

    Sniya Sudhakar practices practicing medicine in London, United Kingdom. Ms. Sudhakar is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Dandy-Walker Syndrome, Canavan Disease, Increased Head Circumference, and CACH Syndrome.

    Advanced in GM1 Gangliosidosis

    Henry H. Houlden
    Advanced in GM1 Gangliosidosis

    Henry H. Houlden
    Referral may be required

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Henry Houlden practices practicing medicine in London, United Kingdom. Mr. Houlden is rated as an Advanced expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 131 other conditions, according to our data. His clinical expertise encompasses Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Movement Disorders, Gastrostomy, and Deep Brain Stimulation.

    Experienced in GM1 Gangliosidosis

    Susan K. Halstead
    Experienced in GM1 Gangliosidosis

    Susan K. Halstead
    Referral may be required
    Glasgow, SCT, GB 

    Susan Halstead practices practicing medicine in Glasgow, United Kingdom. Ms. Halstead is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Guillain-Barre Syndrome, Multifocal Motor Neuropathy, ADULT Syndrome, and GM1 Gangliosidosis.

    Experienced in GM1 Gangliosidosis

    Hugh J. Willison
    Experienced in GM1 Gangliosidosis

    Hugh J. Willison
    Referral may be required
    Glasgow, SCT, GB 

    Hugh Willison practices practicing medicine in Glasgow, United Kingdom. Mr. Willison is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Guillain-Barre Syndrome, Miller-Fisher Syndrome, Zika Virus Disease, and ADULT Syndrome.

    Experienced in GM1 Gangliosidosis

    Amy I. Davidson
    Experienced in GM1 Gangliosidosis

    Amy I. Davidson
    Referral may be required
    Glasgow, SCT, GB 

    Amy Davidson practices practicing medicine in Glasgow, United Kingdom. Ms. Davidson is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Miller-Fisher Syndrome, Guillain-Barre Syndrome, ADULT Syndrome, and GM1 Gangliosidosis.

    Experienced in GM1 Gangliosidosis

    Benita C. Percival
    Experienced in GM1 Gangliosidosis

    Benita C. Percival
    Referral may be required
    The Gateway, 
    Leicester, ENG, GB 

    Benita Percival practices practicing medicine in Leicester, United Kingdom. Ms. Percival is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. Her clinical expertise encompasses GM1 Gangliosidosis, Gangliosidosis, Niemann-Pick Disease, and Non-Langerhans-Cell Histiocytosis.

    Experienced in GM1 Gangliosidosis

    Francesco A. Bruno
    Experienced in GM1 Gangliosidosis

    Francesco A. Bruno
    Referral may be required
    Sydney Street, 
    London, ENG, GB 

    Francesco Bruno practices practicing medicine in London, United Kingdom. Mr. Bruno is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Acute Coronary Syndrome, Aortic Valve Stenosis, Coronary Heart Disease, Transcatheter Aortic Valve Replacement (TAVR), and Percutaneous Coronary Intervention (PCI).

    Experienced in GM1 Gangliosidosis

    Manju A. Kurian
    Experienced in GM1 Gangliosidosis

    Manju A. Kurian
    Referral may be required
    London, ENG, GB 

    Manju Kurian practices practicing medicine in London, United Kingdom. Ms. Kurian is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Drug Induced Dyskinesia, Beta-Propeller Protein-Associated Neurodegeneration, Hallervorden-Spatz Disease, Movement Disorders, and Deep Brain Stimulation.

    Experienced in GM1 Gangliosidosis

    Mylene Huebecker
    Experienced in GM1 Gangliosidosis

    Mylene Huebecker
    Referral may be required
    Oxford, ENG, GB 

    Mylene Huebecker practices practicing medicine in Oxford, United Kingdom. Ms. Huebecker is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Sandhoff Disease, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Gangliosidosis.

    Experienced in GM1 Gangliosidosis

    Gideon J. Davies
    Experienced in GM1 Gangliosidosis

    Gideon J. Davies
    Referral may be required
    York, ENG, GB 

    Gideon Davies practices practicing medicine in York, United Kingdom. Mr. Davies is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Fucosidosis, GM1 Gangliosidosis, Pompe Disease, and Krabbe Disease.

    Experienced in GM1 Gangliosidosis

    Kshitij Mankad
    Experienced in GM1 Gangliosidosis

    Kshitij Mankad
    Referral may be required
    Queen Square, 
    London, ENG, GB 

    Kshitij Mankad practices practicing medicine in London, United Kingdom. Mankad is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. They are also highly rated in 38 other conditions, according to our data. Their clinical expertise encompasses Dandy-Walker Syndrome, Cortical Dysplasia, Posterior Fossa Tumor, Selective Mutism, and Rhizotomy.

    Experienced in GM1 Gangliosidosis

    Martin Grootveld
    Experienced in GM1 Gangliosidosis

    Martin Grootveld
    Referral may be required
    The Gateway, 
    Leicester, ENG, GB 

    Martin Grootveld practices practicing medicine in Leicester, United Kingdom. Mr. Grootveld is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, Histiocytosis, and Reticulohistiocytoma.

    Experienced in GM1 Gangliosidosis

    Karolina M. Stepien
    Experienced in GM1 Gangliosidosis

    Karolina M. Stepien
    Referral may be required
    Stott Lane, 
    Salford, ENG, GB 

    Karolina Stepien practices practicing medicine in Salford, United Kingdom. Ms. Stepien is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Classic Galactosemia, Mucopolysaccharidoses (MPS), Ornithine Transcarbamylase Deficiency, Gastrostomy, and Liver Transplant.

    Experienced in GM1 Gangliosidosis

    Francesca Magrinelli
    Experienced in GM1 Gangliosidosis

    Francesca Magrinelli
    Referral may be required
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Francesca Magrinelli practices practicing medicine in London, United Kingdom. Ms. Magrinelli is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Chorea, Familial Paroxysmal Nonkinesigenic Dyskinesia, Drug Induced Dyskinesia, Camptocormism, and Deep Brain Stimulation.

    Experienced in GM1 Gangliosidosis

    Alex M. Mcconnachie
    Experienced in GM1 Gangliosidosis

    Alex M. Mcconnachie
    Referral may be required
    University Avenue, 
    Glasgow, SCT, GB 

    Alex Mcconnachie practices practicing medicine in Glasgow, United Kingdom. Mr. Mcconnachie is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Long Haul COVID, Angina, COVID-19, Percutaneous Coronary Intervention (PCI), and Thrombectomy.

    Experienced in GM1 Gangliosidosis

    Ulrike Lobel
    Experienced in GM1 Gangliosidosis

    Ulrike Lobel
    Referral may be required
    London, ENG, GB 

    Ulrike Lobel practices practicing medicine in London, United Kingdom. Ms. Lobel is rated as an Experienced expert by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses CLN1 Disease, CLN4 Disease, CLN5 Disease, and CLN3 Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 06/30/2026

    What is the definition of GM1 Gangliosidosis?

    GM1 gangliosidosis is an inherited disorder that destroys nerve cells (neurons) in the brain and spinal cord. This condition can be classified as one of three major types based on the age at which signs and symptoms first appear. However, the signs and symptoms of these three types can overlap, leading some researchers to believe that GM1 gangliosidosis occurs on a spectrum instead of as three distinct types.

    When should I see a GM1 Gangliosidosis doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a GM1 Gangliosidosis doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best GM1 Gangliosidosis doctor in The United Kingdom?

    You can find a GM1 Gangliosidosis doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank GM1 Gangliosidosis doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by GM1 Gangliosidosis doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a GM1 Gangliosidosis doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. 

    Why is it important to get a second opinion from a different GM1 Gangliosidosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a GM1 Gangliosidosis doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my GM1 Gangliosidosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my GM1 Gangliosidosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female GM1 Gangliosidosis doctors in The United Kingdom?

    Look for the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a GM1 Gangliosidosis doctor that offers video calls?

    Look for the filter feature on the left-side of the GM1 Gangliosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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