The 20 Best GM1 Gangliosidosis Doctors Near Me in Massachusetts, US

Find the Top GM1 Gangliosidosis Experts and Specialists

The 20 Best GM1 Gangliosidosis Doctors in Massachusetts, US

Last Updated: 02/22/2026

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MediFind found 11 doctor with experience in GM1 Gangliosidosis near Massachusetts, US. Of these, 6 are Advanced, 4 are Experienced and 1 are Distinguished.

Location
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11 providers found
    Distinguished in GM1 Gangliosidosis
    Internal Medicine
    Distinguished in GM1 Gangliosidosis
    Internal Medicine

    Office

    2014 Washington St # 6, 
    Newton, MA 
    Languages Spoken:
    English

    Christopher Zoppo is a primary care provider, practicing in Internal Medicine in Newton, Massachusetts. Dr. Zoppo is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. His top area of expertise is GM1 Gangliosidosis.

    Advanced in GM1 Gangliosidosis
    Neuroradiology
    Advanced in GM1 Gangliosidosis
    Neuroradiology

    UMass Memorial Children's Medical Center

    55 Lake Ave N, 
    Worcester, MA 
    Languages Spoken:
    English

    Behroze Vachha is a Neuroradiologist in Worcester, Massachusetts. Dr. Vachha is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Pediatric Low-Grade Glioma (pLGG), Cavernous Sinus Thrombosis, and ALK-Positive Non-Small Cell Lung Cancer.

    Advanced in GM1 Gangliosidosis
    Advanced in GM1 Gangliosidosis

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Catherine Ross is a Pediatrics provider in Boston, Massachusetts. Dr. Ross is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, and Jacobsen Syndrome.

    Learn about our expert tiers
    Experienced in GM1 Gangliosidosis
    Pediatrics
    Experienced in GM1 Gangliosidosis
    Pediatrics

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Mark Dexter is a Pediatrics provider in Boston, Massachusetts. Dr. Dexter is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Early Infantile Epileptic Encephalopathy, Koolen De Vries Syndrome, Wildervanck Syndrome, and Microcephaly Deafness Syndrome.

    Advanced in GM1 Gangliosidosis
    Internal Medicine
    Advanced in GM1 Gangliosidosis
    Internal Medicine

    Office

    400 Technology Sq Ste 201, 
    Cambridge, MA 
    Languages Spoken:
    English

    Daniel Ory is an Internal Medicine provider in Cambridge, Massachusetts. Dr. Ory is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Niemann-Pick Disease, GM1 Gangliosidosis, Lysosomal Acid Lipase Deficiency, and Sandhoff Disease.

    Advanced in GM1 Gangliosidosis
    Pediatric Orthopedics
    Advanced in GM1 Gangliosidosis
    Pediatric Orthopedics

    Orthopedic Center

    300 Longwood Ave, 
    Boston, MA 
    Experience:
    17+ years
    Languages Spoken:
    English

    David Fogelman is a Pediatric Orthopedics provider in Boston, Massachusetts. Dr. Fogelman has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Spastic Diplegia Infantile Type, Cerebral Palsy, Spasticity, and Moebius Syndrome.

    Advanced in GM1 Gangliosidosis
    Child and Adolescent Psychiatry | Psychiatry
    Advanced in GM1 Gangliosidosis
    Child and Adolescent Psychiatry | Psychiatry
    32 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    David Adams is a Child and Adolescent Psychiatrist and a Psychiatrist in Boston, Massachusetts. Dr. Adams is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Autism Spectrum Disorder, GM1 Gangliosidosis, Aphantasia, and Chediak-Higashi Syndrome.

    Advanced in GM1 Gangliosidosis
    Hematology | Oncology
    Advanced in GM1 Gangliosidosis
    Hematology | Oncology

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Alessandra Biffi is a Hematologist and an Oncologist in Boston, Massachusetts. Dr. Biffi is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Hemoglobinopathy, Bone Marrow Transplant, and Bone Graft.

    Experienced in GM1 Gangliosidosis
    Orthopedics
    Experienced in GM1 Gangliosidosis
    Orthopedics

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Rebecca Siegel is an Orthopedics provider in Boston, Massachusetts. Dr. Siegel is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are X-Linked Infantile Spinal Muscular Atrophy, Spinal Muscular Atrophy with Arthrogryposis, Spinal Muscular Atrophy Type 2, and Spasticity.

    Experienced in GM1 Gangliosidosis
    Experienced in GM1 Gangliosidosis

    Umass Memorial Medical Center-University Campus

    55 Lake Ave N, 
    Worcester, MA 
    Languages Spoken:
    English

    Terence Flotte is a Pediatrics provider in Worcester, Massachusetts. Dr. Flotte is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Emphysema, Subcutaneous Emphysema, Alpha-1 Antitrypsin Deficiency (AATD), and Sandhoff Disease.

    Experienced in GM1 Gangliosidosis
    Internal Medicine
    Experienced in GM1 Gangliosidosis
    Internal Medicine

    Joslin Clinic Inc.

    1 Joslin Pl, 
    Boston, MA 
    Languages Spoken:
    English

    Jean Schaffer is an Internal Medicine provider in Boston, Massachusetts. Dr. Schaffer is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Niemann-Pick Disease, Lysosomal Acid Lipase Deficiency, GM1 Gangliosidosis, and Abdominal Obesity Metabolic Syndrome.

    Showing 1-11 of 11

    Last Updated: 02/22/2026

    What is the definition of GM1 Gangliosidosis?

    GM1 gangliosidosis is an inherited disorder that destroys nerve cells (neurons) in the brain and spinal cord. This condition can be classified as one of three major types based on the age at which signs and symptoms first appear. However, the signs and symptoms of these three types can overlap, leading some researchers to believe that GM1 gangliosidosis occurs on a spectrum instead of as three distinct types.

    When should I see a GM1 Gangliosidosis doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a GM1 Gangliosidosis doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank GM1 Gangliosidosis doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by GM1 Gangliosidosis doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a GM1 Gangliosidosis doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. 

    Why is it important to get a second opinion from a different GM1 Gangliosidosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a GM1 Gangliosidosis doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my GM1 Gangliosidosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my GM1 Gangliosidosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female GM1 Gangliosidosis doctors in Massachusetts, US?

    Look for the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a GM1 Gangliosidosis doctor that offers video calls?

    Look for the filter feature on the left-side of the GM1 Gangliosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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