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    Last Updated: 01/09/2026

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    MediFind found 9 doctor with experience in Gracile Syndrome near The United Kingdom. Of these, 9 are Advanced.

    Location
    LocationClose
    9 providers found
      Patrick F. Chinnery
      Advanced in Gracile Syndrome
      Advanced in Gracile Syndrome
      Central Parkway, 
      Newcastle Upon Tyne, ENG, GB 

      Patrick Chinnery practices in Newcastle Upon Tyne, United Kingdom. Mr. Chinnery is rated as an Advanced expert by MediFind in the treatment of Gracile Syndrome. His top areas of expertise are Optic Nerve Atrophy, Behr Syndrome, Myoclonus-Dystonia, and Progressive External Ophthalmoplegia.

      Advanced in Gracile Syndrome
      Advanced in Gracile Syndrome
      Newcastle Upon Tyne, ENG, GB 

      Monika Olahova practices in Newcastle Upon Tyne, United Kingdom. Ms. Olahova is rated as an Advanced expert by MediFind in the treatment of Gracile Syndrome. Her top areas of expertise are Cytochrome C Oxidase Deficiency, Gracile Syndrome, Inborn Renal Aminoaciduria, and Hemosiderosis.

      Advanced in Gracile Syndrome
      Advanced in Gracile Syndrome
      Central Parkway, 
      Newcastle Upon Tyne, ENG, GB 

      Rita Horvath practices in Newcastle Upon Tyne, United Kingdom. Ms. Horvath is rated as an Advanced expert by MediFind in the treatment of Gracile Syndrome. Her top areas of expertise are Charcot-Marie-Tooth Disease, Congenital Myasthenic Syndrome, Spasticity, and Optic Nerve Atrophy.

      Learn about our expert tiers
      Advanced in Gracile Syndrome
      Advanced in Gracile Syndrome
      Cambridge, ENG, GB 

      Jack Collier practices in Cambridge, United Kingdom. Mr. Collier is rated as an Advanced expert by MediFind in the treatment of Gracile Syndrome. His top areas of expertise are Gracile Syndrome, Inborn Renal Aminoaciduria, Cerebellar Hypoplasia, and Hemosiderosis.

      Advanced in Gracile Syndrome
      Advanced in Gracile Syndrome
      Central Parkway, 
      Newcastle Upon Tyne, ENG, GB 

      John Sayer practices in Newcastle Upon Tyne, United Kingdom. Mr. Sayer is rated as an Advanced expert by MediFind in the treatment of Gracile Syndrome. His top areas of expertise are Joubert Syndrome, Nephronophthisis, Nephrocalcinosis, Lithotripsy, and Kidney Transplant.

      Advanced in Gracile Syndrome
      Advanced in Gracile Syndrome
      University Park, 
      Nottingham, ENG, GB 

      Langping He practices in Nottingham, United Kingdom. He is rated as an Advanced expert by MediFind in the treatment of Gracile Syndrome. Their top areas of expertise are Cytochrome C Oxidase Deficiency, Lactic Acidosis, Leigh Syndrome, and Mitochondrial Complex 1 Deficiency.

      Advanced in Gracile Syndrome
      Advanced in Gracile Syndrome
      Central Parkway, 
      Newcastle Upon Tyne, ENG, GB 

      Noel Edwards practices in Newcastle Upon Tyne, United Kingdom. Mr. Edwards is rated as an Advanced expert by MediFind in the treatment of Gracile Syndrome. His top areas of expertise are Cystinuria, Gracile Syndrome, Inborn Renal Aminoaciduria, and Potter Syndrome.

      Advanced in Gracile Syndrome
      Advanced in Gracile Syndrome
      Framlington Place, 
      Newcastle Upon Tyne, ENG, GB 

      Charlotte Alston practices in Newcastle Upon Tyne, United Kingdom. Ms. Alston is rated as an Advanced expert by MediFind in the treatment of Gracile Syndrome. Her top areas of expertise are Mitochondrial Complex 2 Deficiency, Mitochondrial Complex 1 Deficiency, Lactic Acidosis, and Leigh Syndrome.

      Advanced in Gracile Syndrome
      Advanced in Gracile Syndrome
      St Mary's Hospital, 
      Manchester, ENG, GB 

      Elisabeth Jameson practices in Manchester, United Kingdom. Ms. Jameson is rated as an Advanced expert by MediFind in the treatment of Gracile Syndrome. Her top areas of expertise are Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Tyrosinemia Type 1, and Gracile Syndrome.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-9 of 9

      Last Updated: 01/09/2026

      What is the definition of Gracile Syndrome?

      GRACILE syndrome is a severe disorder that begins before birth. GRACILE stands for the condition's characteristic features: growth retardation, aminoaciduria, cholestasis, iron overload, lactic acidosis, and early death.

      When should I see a Gracile Syndrome doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Gracile Syndrome doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Gracile Syndrome doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Gracile Syndrome doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Gracile Syndrome doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Gracile Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Gracile Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Gracile Syndrome doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Gracile Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Gracile Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Gracile Syndrome doctors in The United Kingdom?

      Look for the filter feature on the left side of the Gracile Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Gracile Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Gracile Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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