The 20 Best Hallervorden-Spatz Disease Doctors in The United States

Find the Top Hallervorden-Spatz Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 123 doctor with experience in Hallervorden-Spatz Disease near The United States. Of these, 92 are Experienced, 29 are Advanced, 1 are Distinguished and 1 are Elite.

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123 providers found
    Elite in Hallervorden-Spatz Disease
    Elite in Hallervorden-Spatz Disease

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Penelope Hogarth is a Neurologist practicing medicine in Portland, Oregon. Dr. Hogarth is rated as an Elite provider by MediFind in the treatment of Hallervorden-Spatz Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Pantothenate Kinase-Associated Neurodegeneration, Hallervorden-Spatz Disease, Beta-Propeller Protein-Associated Neurodegeneration, Movement Disorders, and Deep Brain Stimulation.

    Advanced in Hallervorden-Spatz Disease
    Advanced in Hallervorden-Spatz Disease

    Emory Brain Health Center

    12 Executive Park Drive Northeast, 
    Atlanta, GA 
    Experience:
    33+ years
    Languages Spoken:
    English
    Offers Telehealth

    Hyder Jinnah is a Neurologist practicing medicine in Atlanta, Georgia. He has been practicing medicine for over 33 years. Dr. Jinnah is rated as an Advanced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Benign Essential Blepharospasm, Drug Induced Dyskinesia, Focal Dystonia, Torticollis, and Deep Brain Stimulation. Dr. Jinnah is board certified in American Board Of Psychiatry And Neurology, 1999.

    Advanced in Hallervorden-Spatz Disease
    Advanced in Hallervorden-Spatz Disease

    Neurology Alliance, SC

    2424 S 90th St, 
    West Allis, WI 
    Languages Spoken:
    English, Hindi, Urdu
    Offers Telehealth

    Arshad Ahmed is a Neurologist practicing medicine in West Allis, Wisconsin. Dr. Ahmed is rated as an Advanced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Autosomal Dominant Partial Epilepsy with Auditory Features, Memory Loss, Chronic Inflammatory Demyelinating Polyneuropathy, and Dravet Syndrome. Dr. Ahmed is board certified in American Board Of Psychiatry & Neurology, Clinical Neurophysiology.

    Learn about our expert tiers
    Advanced in Hallervorden-Spatz Disease
    Pediatric Neurology | Pediatrics
    Advanced in Hallervorden-Spatz Disease
    Pediatric Neurology | Pediatrics

    Arizona Pediatric Neurology & Neurogenetics Associates, PLLC

    3330 N 2nd St, Ste 402, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Vinodh Narayanan is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Phoenix, Arizona. Dr. Narayanan is rated as an Advanced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Tuberous Sclerosis Complex, Tuberous Sclerosis, and Hypotonia. Dr. Narayanan is board certified in Pediatrics and Psychiatry & Neurology (Neurology). Dr. Narayanan is currently accepting new patients.

    Advanced in Hallervorden-Spatz Disease
    Advanced in Hallervorden-Spatz Disease

    Middleburg Heights Family Health Center

    17840 Bagley Road, 
    Middlebrg Hts, OH 
    Experience:
    37+ years
    Languages Spoken:
    English

    Barbara Merriman is a Neurologist practicing medicine in Middlebrg Hts, Ohio. She has been practicing medicine for over 37 years. Dr. Merriman is rated as an Advanced provider by MediFind in the treatment of Hallervorden-Spatz Disease. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Migraine, Neuralgia, Peripheral Neuropathy, and Memory Loss. Dr. Merriman is board certified in American Board Of Psychiatry And Neurology, 2019.

    Distinguished in Hallervorden-Spatz Disease
    Pediatric Neurology
    Distinguished in Hallervorden-Spatz Disease
    Pediatric Neurology

    Phoenix Children's

    1919 E Thomas Rd, 
    Phoenix, AZ 
    Languages Spoken:
    English

    Michael Kruer is a Pediatric Neurologist practicing medicine in Phoenix, Arizona. Dr. Kruer is rated as a Distinguished provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spasticity, Drug Induced Dyskinesia, Hypotonia, and Deep Brain Stimulation.

    Experienced in Hallervorden-Spatz Disease
    Experienced in Hallervorden-Spatz Disease

    Texas Neurology, P.A.

    6080 N Central Expy, Ste 100, 
    Dallas, TX 
    Languages Spoken:
    English, French
    Offers Telehealth

    Dr. Schiffmann is a renowned expert on neurometabolic diseases. He earned his medical degree from the University of Liège, Belgium and a Master of Health Sciences in Clinical Research from Duke University. He is board-certified in Neurology with a Special Qualification in Child Neurology and is a Fellow of the American Academy of Neurology. Dr. Schiffmann was a lead researcher at the United States National Institutes of Health in Bethesda, Maryland for over 17 years (1991-2007) and then the Director of the Institute of Metabolic Disease at the Baylor Scott & White Research Institute in Dallas, Texas, 2008-2019. Dr. Schiffmann is a Professor in the Department of Internal Medicine, Texas Christian University and a Clinical Professor, Texas A&M University Medical School College of Medicine. He is also a Senior Vice President for Clinical Research at 4D Molecular Therapeutics. Dr. Schiffmann has been performing pre-clinical and clinical research on lysosomal storage diseases since 1991 with a special focus on the natural history, pathogenesis and therapy of Fabry disease, Gaucher disease and the leukodystrophies. One of his particular interests and areas of expertise is to address patients with undiagnosed neurological diseases. Dr. Schiffmann has published 276 peer-reviewed research articles and over 15 book chapters. Dr. Schiffmann is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Gaucher Disease Type 3, Fabry Disease, Gaucher Disease, and Leukodystrophy. Dr. Schiffmann is board certified in Neurology With Special Qualification In Child Neurology- American Board Of Psychiatry And Neurology/Neurology With Special Qualification In Child Neurology and Neurology With Special Qualification In Child Neurology- American Board Of Psychiatry And Neurology.

    Experienced in Hallervorden-Spatz Disease
    Pediatric Neurology
    Experienced in Hallervorden-Spatz Disease
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    Steven Deroos is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 32 years. Dr. Deroos is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is board certified in American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2005. Dr. Deroos is currently accepting new patients.

    Experienced in Hallervorden-Spatz Disease
    Experienced in Hallervorden-Spatz Disease

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English, Hindi

    Prakash Kotagal is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Kotagal is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Seizures, Epilepsy, West Syndrome, and Photosensitive Epilepsy. Dr. Kotagal is board certified in American Board Of Psychiatry And Neurology, 2016.

    Experienced in Hallervorden-Spatz Disease
    Pediatric Neurology
    Experienced in Hallervorden-Spatz Disease
    Pediatric Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    32+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sumit Parikh is a Pediatric Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 32 years. Dr. Parikh is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 168 other conditions, according to our data. His clinical expertise encompasses Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, Leigh Syndrome, and MELAS Syndrome. Dr. Parikh is board certified in American Board Of Psychiatry And Neurology, 2006.

    Experienced in Hallervorden-Spatz Disease
    Experienced in Hallervorden-Spatz Disease

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    25+ years
    Languages Spoken:
    English

    Andrew Mower is a Neurologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 25 years. Dr. Mower is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Seizures, Absence Seizure, Generalized Tonic-Clonic Seizure, and West Syndrome. Dr. Mower is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Hallervorden-Spatz Disease
    Experienced in Hallervorden-Spatz Disease
    259 E Erie St Ste 1900, Lavin Family Pavilion, 
    Chicago, IL 
    Experience:
    18+ years
    Languages Spoken:
    English
    Offers Telehealth

    Niccolo Mencacci is a Neurologist practicing medicine in Chicago, Illinois. He has been practicing medicine for over 18 years. Dr. Mencacci is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Chorea, Drug Induced Dyskinesia, Myoclonus-Dystonia, Movement Disorders, and Deep Brain Stimulation.

    Experienced in Hallervorden-Spatz Disease
    Experienced in Hallervorden-Spatz Disease
    259 E Erie St Ste 1900, Lavin Family Pavilion, 
    Chicago, IL 
    Experience:
    34+ years
    Languages Spoken:
    English
    Offers Telehealth

    Dimitri Krainc is a Neurologist practicing medicine in Chicago, Illinois. He has been practicing medicine for over 34 years. Dr. Krainc is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Movement Disorders, Parkinson's Disease, Farber Lipogranulomatosis, Drug Induced Dyskinesia, and Deep Brain Stimulation. Dr. Krainc is board certified in American Board Of Psychiatry And Neurology - Neurology (Certified).

    Experienced in Hallervorden-Spatz Disease
    Pediatric Neurology | Neurology
    Experienced in Hallervorden-Spatz Disease
    Pediatric Neurology | Neurology

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English

    Brenda Banwell is the director of the Department of Pediatrics, as well as pediatrician-in-chief and co-director of Johns Hopkins Children’s Center, where she helps manage the hospital’s many clinical and research centers. Dr. Banwell is a renowned expert in the research and treatment of pediatric multiple sclerosis (MS) and other neuroimmune disorders. She specializes in and studies the use of neuroimaging to assess the clinical and cognitive impact of the conditions, as well as the function of the immune system in children with these disorders. She also created a standardized clinical care algorithm and clinical database in order to evaluate the clinical impact of MS. Dr. Banwell has published more than 250 manuscripts in high-impact journals, along with over 25 book chapters. In addition, she has over 200 national and international invited lectureships and visiting professorships. An advocate for pediatric multiple sclerosis needs and research, Dr. Banwell serves as chair of the International Medical and Scientific Board of the Multiple Sclerosis International Federation, and the Myelin Oligodendrocyte Glycoprotein Antibody–Associated Disease (MOGAD) International Research Consortium. She is also chair of the pediatric committee of the National Institutes of Health NeuroNEXT program, which conducts studies on treatments for neurological diseases through academic, private, and industry collaborations. Dr. Banwell currently serves as past-chair of the International Pediatric Multiple Sclerosis Study Group, Dr. Banwell earned her medical degree from the University of Western Ontario. She later completed a residency in pediatrics at the University of Western Ontario-Children's Hospital of Western Ontario and a second residency in pediatric neurology at University of Toronto – The Hospital for Sick Children. Her residencies were followed by a fellowship in neuromuscular research at Mayo Clinic. Dr. Banwell is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Multiple Sclerosis (MS), CACH Syndrome, Optic Neuritis, and Transverse Myelitis. Dr. Banwell is board certified in Royal College Of Physicians And Surgeons Of Canada.

    Experienced in Hallervorden-Spatz Disease
    Experienced in Hallervorden-Spatz Disease

    Montefiore Advanced Imaging

    200 East Gun HIll Road, 
    Bronx, NY 
    Languages Spoken:
    English

    Judah Burns, MD, is Director of the Diagnostic Residency Program at Montefiore, and is an Associate Professor of Radiology at our Albert Einstein College of Medicine. Dr. Burns specializes in neuroradiology, with a focus on advanced imaging of CNS tumors, inflammatory and ischemic diseases. Dr. Burns is deeply involved in fostering systems-based improvement, specifically peer review and integrating radiology with other clinical systems. Dr. Burns received his bachelor?s degree in Biology at Yeshiva University in New York in 1999. In 2003, he received his Doctor of Medicine degree from Albert Einstein College of Medicine. After graduating, he completed an internship in internal medicine at Long Island Jewish Medical Center in 2004. Following this, Dr. Burns completed a residency in Diagnostic Radiology in 2008 and a fellowship in Neuroradiology at Montefiore in 2010. Dr. Burns focuses his research on three major areas: the utilization and appropriateness of neuroimaging, the assessment of educational feedback initiatives in medical students and residents, and system-level research gauging the efficacy of workflow processes in the delivery of advanced-level medical care. He chairs the brain imaging panel on Imaging Appropriateness for the American College of Radiology, is the Chair of the Montefiore Peer Review Board, and is an active participant in the Montefiore Quality Council. Dr. Burns is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Seizures, Posterior Fossa Tumor, Relapsing Multiple Sclerosis (RMS), and Stroke.

    Experienced in Hallervorden-Spatz Disease
    Pediatric Neurology
    Experienced in Hallervorden-Spatz Disease
    Pediatric Neurology

    HMH - Pediatric Endocrinology And Diabetes - Hackensack

    650 From Road, Suite 430A, 
    Paramus, NJ 
    Languages Spoken:
    English

    Naomi Lubarr is a Pediatric Neurologist practicing medicine in Paramus, New Jersey. Dr. Lubarr is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Fragile X Syndrome, Fragile XE Syndrome, Drug Induced Dyskinesia, Movement Disorders, and Deep Brain Stimulation. Dr. Lubarr is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Hallervorden-Spatz Disease
    Experienced in Hallervorden-Spatz Disease

    Scottish Rite For Children

    2222 Welborn St, 
    Dallas, TX 
    Languages Spoken:
    English

    Michelle Christie is a Neurologist practicing medicine in Dallas, Texas. Dr. Christie is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Spastic Paraplegia Type 7, Seizures, Hallervorden-Spatz Disease, and Epilepsy.

    Experienced in Hallervorden-Spatz Disease
    Neurology
    Experienced in Hallervorden-Spatz Disease
    Neurology

    Mount Sinai

    1468 Madison Ave, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Susan Shin is a Neurologist practicing medicine in New York, New York. Dr. Shin is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Guillain-Barre Syndrome, Infantile Axonal Neuropathy, and Congenital Insensitivity to Pain with Anhidrosis.

    Experienced in Hallervorden-Spatz Disease
    Experienced in Hallervorden-Spatz Disease

    Eriver Neurology Of Poughkeepsie NY

    21 Fox St Ste 102, 
    Poughkeepsie, NY 
    Languages Spoken:
    English

    Samuel Koszer is a Neurologist practicing medicine in Poughkeepsie, New York. Dr. Koszer is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. He is also highly rated in 59 other conditions, according to our data. His clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Dravet Syndrome.

    Experienced in Hallervorden-Spatz Disease
    Neurology
    Experienced in Hallervorden-Spatz Disease
    Neurology

    Sentara Neurology Specialists

    2006 Health Campus Dr, 
    Rockingham, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Zsofia Hole is a Neurologist practicing medicine in Rockingham, Virginia. Dr. Hole is rated as an Experienced provider by MediFind in the treatment of Hallervorden-Spatz Disease. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Peripheral Neuropathy, Seizures, Restless Legs Syndrome, and Migraine.

    Showing 1-20 of 123

    Last Updated: 04/28/2026

    What is the definition of Hallervorden-Spatz Disease?

    Neurodegeneration with brain iron accumulation (NBIA) are a group of very rare nervous system disorders. They are passed down through families (inherited). NBIA involves movement problems, dementia, and other nervous system symptoms.

    When should I see a Hallervorden-Spatz Disease doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Hallervorden-Spatz Disease doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Hallervorden-Spatz Disease doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Hallervorden-Spatz Disease doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Hallervorden-Spatz Disease doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hallervorden-Spatz Disease doctor search results page. 

    Why is it important to get a second opinion from a different Hallervorden-Spatz Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Hallervorden-Spatz Disease doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Hallervorden-Spatz Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Hallervorden-Spatz Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Hallervorden-Spatz Disease doctors in The United States?

    Look for the filter feature on the left side of the Hallervorden-Spatz Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Hallervorden-Spatz Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Hallervorden-Spatz Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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