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Learn About Hemangioblastoma

View Main Condition: Brain Tumor

What is the definition of Hemangioblastoma?
A Hemangioblastoma is a benign, highly vascular tumor that can occur in the brain, spinal cord, and retina (the light-sensitive tissue that lines the back of the eye). This tumor accounts for about 2% of brain tumors. As it enlarges, it presses on the brain and can cause neurological symptoms, such as headaches, weakness, sensory loss, balance and coordination problems, and/or hydrocephalus (a buildup of spinal fluid in the brain). Most Hemangioblastomas occur sporadically. However, some people develop Hemangioblastomas as part of a genetic syndrome called von Hippel-Lindau syndrome. These people usually develop multiple tumors within the brain and spinal cord over their lifetime.
What are the alternative names for Hemangioblastoma?
  • Hemangioblastoma
Who are the top Hemangioblastoma Local Doctors?
Elite in Hemangioblastoma
Elite in Hemangioblastoma

Osu Internal Medicine LLC

3900 Stoneridge Ln, 
Dublin, OH 
Languages Spoken:
English
Accepting New Patients

Russell Lonser is a Neurosurgery provider in Dublin, Ohio. Dr. Lonser and is rated as an Elite provider by MediFind in the treatment of Hemangioblastoma. His top areas of expertise are Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Hemangioma, Awake Craniotomy, and Craniectomy. Dr. Lonser is currently accepting new patients.

Elite in Hemangioblastoma
Elite in Hemangioblastoma

MD Anderson

2130 W Holcombe Blvd, Univ Of Tx M D Ande Life Sciences Pla, 
Houston, TX 
Languages Spoken:
English
Offers Telehealth

Eric Jonasch is an Oncologist in Houston, Texas. Dr. Jonasch and is rated as an Elite provider by MediFind in the treatment of Hemangioblastoma. His top areas of expertise are Renal Cell Carcinoma (RCC), Hemangioblastoma, Chromophobe Renal Cell Carcinoma, Hypothalamic Hamartomas, and Nephrectomy.

 
 
 
 
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Elite in Hemangioblastoma
Elite in Hemangioblastoma

The General Hospital Corporation

55 Fruit St, 
Boston, MA 
Languages Spoken:
English
Accepting New Patients
Offers Telehealth

Othon Iliopoulos is an Oncologist in Boston, Massachusetts. Dr. Iliopoulos and is rated as an Elite provider by MediFind in the treatment of Hemangioblastoma. His top areas of expertise are Hemangioblastoma, Hypothalamic Hamartomas, Renal Cell Carcinoma (RCC), and Koolen De Vries Syndrome. Dr. Iliopoulos is currently accepting new patients.

What are the latest Hemangioblastoma Clinical Trials?
Observational Study for Assessing Treatment and Outcome of Patients With Primary Brain Tumours Diagnosed According to cIMPACT-NOW Recommendations and the 2021 WHO Classification

Summary: Every new classification depends on its prognostic power and on the type of treatment given. With the rapid evolution of diagnostic methods and the advance in new treatments, there is much less reliable information available on how patients with newly defined brain tumour entities should be treated and what to expect from the current treatments. The goal is to determine whether the new 2021 WHO cl...

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68Ga(Gallium)-DOTATATE Positron Emission Tomography (PET)/MRI in the Diagnosis and Management of Somatostatin Receptor Positive Central Nervous System CNS Tumors.

Summary: The study population consists of patients who undergo resection for somatostatin receptor-positive (SSTR-positive) CNS tumors, focusing on meningioma, and including esthesioneuroblastoma, hemangioblastoma, medulloblastoma, paraganglioma, pituitary adenoma, and SSTR-positive systemic cancers metastatic to the brain, such as small cell carcinoma of the lung. The study indication is to determine the ...

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center