Hemangioblastoma
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Learn About Hemangioblastoma

View Main Condition: Brain Tumor

What is the definition of Hemangioblastoma?
A Hemangioblastoma is a benign, highly vascular tumor that can occur in the brain, spinal cord, and retina (the light-sensitive tissue that lines the back of the eye). This tumor accounts for about 2% of brain tumors. As it enlarges, it presses on the brain and can cause neurological symptoms, such as headaches, weakness, sensory loss, balance and coordination problems, and/or hydrocephalus (a buildup of spinal fluid in the brain). Most Hemangioblastomas occur sporadically. However, some people develop Hemangioblastomas as part of a genetic syndrome called von Hippel-Lindau syndrome. These people usually develop multiple tumors within the brain and spinal cord over their lifetime.
What are the alternative names for Hemangioblastoma?
  • Hemangioblastoma
Who are the top Hemangioblastoma Local Doctors?
Elite in Hemangioblastoma
Elite in Hemangioblastoma
Referral may be required

Abramson Cancer Center Perelman 2nd Floor West

3400 Civic Center Boulevard, West Pavilion, 2nd Floor, 
Philadelphia, PA 
Languages Spoken:
English
Accepting New Patients
Offers Telehealth

Vivek Narayan is an Oncologist practicing medicine in Philadelphia, Pennsylvania. Dr. Narayan is rated as an Elite provider by MediFind in the treatment of Hemangioblastoma. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Prostate Cancer, Hemangioblastoma, Renal Cell Carcinoma (RCC), Familial Prostate Cancer, and Prostatectomy. Dr. Narayan is currently accepting new patients.

Elite in Hemangioblastoma
Neurosurgery | General Surgery
Elite in Hemangioblastoma
Neurosurgery | General Surgery
Referral may be required

Stanford Health Care

500 Pasteur Dr, 
Palo Alto, CA 
Languages Spoken:
English
Offers Telehealth

Steven Chang is a Neurosurgery specialist and a General Surgeon practicing medicine in Palo Alto, California. Dr. Chang is rated as an Elite provider by MediFind in the treatment of Hemangioblastoma. He is also highly rated in 89 other conditions, according to our data. His clinical expertise encompasses Arteriovenous Malformation, Meningioma, Cerebral Arteriovenous Malformation, Awake Craniotomy, and Gamma Knife Radiosurgery.

 
 
 
 
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Distinguished in Hemangioblastoma
Neurosurgery
Distinguished in Hemangioblastoma
Neurosurgery
Referral may be required
1295 Northwest 14th Street, 
Miami, FL 
Languages Spoken:
English, French, Italian, Spanish
Accepting New Patients
Offers Telehealth

Dr. Levi is a tenured Professor and Chair of Neurosurgery at the University of Miami MILLER School of Medicine. He has a very busy clinical practice that focuses on complex spinal cord, spine and peripheral nerve disorders. He has been at the University of Miami for the last 30 years including completing a PhD in neurosciences. He graduated from the University of Ottawa medical school and completed his residency at the University of Toronto, as well as a spine fellowship at the Barrow Neurological Institute in Phoenix. He has served as national director of the AANS Oral Board course for the last 16 years. He is an elected member of two of our most prestigious neurosurgical societies – the American Academy of Neurosurgery and the Senior Society of Neurological surgeons. His clinical research interests have focused on developing cellular transplantation strategies to repair injuries within both the human central and peripheral nervous system. His current research interests involve serving as (1) PI on intravascular hypothermia after human cervical spinal cord injury (2) PI on the clinical development and characterization of the use of autologous human Schwann cells for peripheral nerve injuries with a lengthy gap. Dr. Levi has authored over 225 peer-reviewed publications, 50 textbook chapters and 3 books. He is an active NIH and DOD investigator. He is a member of the American Academy of Neurosurgery. He serves as a reviewer for several journals in neurosurgery and neuroscience. Dr. Levi is rated as a Distinguished provider by MediFind in the treatment of Hemangioblastoma. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Meningocele, Cervical Spondylosis, Spondylolisthesis, Laminectomy, and Spinal Fusion. Dr. Levi is currently accepting new patients.

What are the latest Hemangioblastoma Clinical Trials?
Phase II Basket Study to Evaluate the Tissue-agnostic Efficacy of Anti-Programmed Cell Death Protein 1 (Anti-PD1) Monoclonal Antibody in Patients With Advanced Rare Tumors

Summary: The ANTARES study is a phase II basket trial designed to evaluate the tissue-agnostic efficacy of the monoclonal anti-PD1 antibody, nivolumab, in patients with advanced or metastatic rare tumors. The study aims to treat rare malignancies with PD-L1 expression (CPS ≥ 10), regardless of the tumor's tissue type or location. Patients who have not responded to standard treatments will be included, and ...

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Observational Study for Assessing Treatment and Outcome of Patients With Primary Brain Tumours Diagnosed According to cIMPACT-NOW Recommendations and the 2021 WHO Classification

Summary: Every new classification depends on its prognostic power and on the type of treatment given. With the rapid evolution of diagnostic methods and the advance in new treatments, there is much less reliable information available on how patients with newly defined brain tumour entities should be treated and what to expect from the current treatments. The goal is to determine whether the new 2021 WHO cl...

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center