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    Last Updated: 01/09/2026

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    MediFind found 117 doctor with experience in Hennekam Syndrome near Massachusetts, US. Of these, 108 are Experienced, 7 are Advanced and 2 are Distinguished.

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    117 providers found
      Distinguished in Hennekam Syndrome
      Medical Genetics | Pediatric Neurology | Pediatrics
      Distinguished in Hennekam Syndrome
      Medical Genetics | Pediatric Neurology | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Lance Rodan is a Medical Genetics specialist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Rodan is rated as a Distinguished provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Hennekam Syndrome, Increased Head Circumference, Polymicrogyria, Retinopathy Pigmentary Mental Retardation, and Deep Brain Stimulation. Dr. Rodan is currently accepting new patients.

      Distinguished in Hennekam Syndrome
      Medical Genetics
      Distinguished in Hennekam Syndrome
      Medical Genetics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Philip Boone is a Medical Genetics provider in Boston, Massachusetts. Dr. Boone is rated as a Distinguished provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Hennekam Syndrome, Cornelia De Lange Syndrome, Noonan Syndrome, and Cardiofaciocutaneous Syndrome. Dr. Boone is currently accepting new patients.

      Advanced in Hennekam Syndrome
      Pediatric Cardiology
      Advanced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Experience:
      10+ years
      Languages Spoken:
      English

      Kristin Bonello is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Bonello has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Arachnodactyly, Marfan Syndrome, Congenital Contractural Arachnodactyly, and Filippi Syndrome.

      Learn about our expert tiers
      Michelle Gurvitz
      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Michelle Gurvitz is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Gurvitz is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Tetralogy of Fallot, Transposition of the Great Arteries, Coarctation of the Aorta, and Thymectomy.

      Michael Landzberg
      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Michael Landzberg is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Landzberg is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Congenital Heart Disease (CHD), Tetralogy of Fallot, Eisenmenger Syndrome, Heart Transplant, and Patent Foramen Ovale Repair.

      Patrick O'gara
      Experienced in Hennekam Syndrome
      Experienced in Hennekam Syndrome

      Phyllis Jen Center For Primary Care

      75 Francis St Fl 2, 
      Boston,, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Patrick O'gara is a Cardiologist in Boston,, Massachusetts. Dr. O'gara is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Aortic Valve Stenosis, Mitral Valve Regurgitation, Bicuspid Aortic Valve, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      David Kane is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Kane is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are DiGeorge Syndrome, Anomalous Left Coronary Artery from the Pulmonary Artery, Tetralogy of Fallot, and Pulmonary Atresia.

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Suellen Yin is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Yin is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Coronary Artery Fistula, Anomalous Left Coronary Artery from the Pulmonary Artery, Congenital Coronary Artery Malformation, and Coronary Artery Aneurysm.

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Roger Breitbart is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Breitbart is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Pulmonary Atresia, Hypoplastic Left Heart Syndrome (HLHS), Ventricular Septal Defects, and Congenital Mitral Stenosis.

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      John Triedman is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Triedman is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Heart Block, Wolff-Parkinson-White Syndrome, Congenital Heart Block, Cardiac Ablation, and Heart Transplant.

      Experienced in Hennekam Syndrome
      Pediatric Neurology
      Experienced in Hennekam Syndrome
      Pediatric Neurology

      Boston Children's Hospital

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Arnold Sansevere is a Pediatric Neurologist in Boston, Massachusetts. Dr. Sansevere is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Seizures, Memory Loss, Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, and Cohen Syndrome.

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Mark Alexander is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Alexander is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Heart Block, Wolff-Parkinson-White Syndrome, Arrhythmias, Congenital Heart Block, and Cardiac Ablation.

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Wayne Tworetzky is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Tworetzky is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Ebstein's Anomaly, Pulmonary Atresia, and Congenital Heart Disease (CHD).

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Michael Day is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Day is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Heart Murmurs, Heart Block, Ventricular Septal Defects, Postural Orthostatic Tachycardia Syndrome (POTS), and Myringotomy.

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      David Schidlow is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Schidlow is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Heterotaxy Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Total Anomalous Pulmonary Venous Return, Transposition of the Great Arteries, and Septoplasty.

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Boston Children's Hospital

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Keri Shafer is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Shafer is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Transposition of the Great Arteries, Tetralogy of Fallot, and Coronary Artery Fistula.

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Jami Levine is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Levine is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Marfan Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Congenital Heart Disease (CHD).

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Experience:
      17+ years
      Languages Spoken:
      English

      Kimberly Mills is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Mills has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Congenital Mitral Stenosis, Truncus Arteriosus, and Mitral Atresia.

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Joshua Salvin is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Salvin is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Congenital Mitral Stenosis, Pulmonary Valves Agenesis, Pulmonary Atresia, and Hypoplastic Left Heart Syndrome (HLHS).

      Experienced in Hennekam Syndrome
      Pediatric Cardiology
      Experienced in Hennekam Syndrome
      Pediatric Cardiology

      Department Of Cardiology

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Anne Valente is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Valente is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Tetralogy of Fallot, Congenital Heart Disease (CHD), Coarctation of the Aorta, Cardiac Ablation, and Heart Transplant.

      Showing 1-20 of 117

      Last Updated: 01/09/2026

      What is the definition of Hennekam Syndrome?

      Hennekam syndrome is an inherited disorder resulting from malformation of the lymphatic system, which is part of both the circulatory system and immune system. The lymphatic system consists of a network of vessels that transport lymph fluid and immune cells throughout the body.

      When should I see a Hennekam Syndrome doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Hennekam Syndrome doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Hennekam Syndrome doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Hennekam Syndrome doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Hennekam Syndrome doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hennekam Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Hennekam Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Hennekam Syndrome doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Hennekam Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Hennekam Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Hennekam Syndrome doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Hennekam Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Hennekam Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Hennekam Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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