The 20 Best Hennekam Syndrome Doctors Near Me in Seattle, WA

Find the Top Hennekam Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 16 doctor with experience in Hennekam Syndrome near Seattle, WA. Of these, 15 are Experienced and 1 are Advanced.

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16 providers found
    Drew Baldwin
    Advanced in Hennekam Syndrome
    Interventional Cardiology | Cardiology
    Advanced in Hennekam Syndrome
    Interventional Cardiology | Cardiology

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Drew Baldwin, MD, is a board-certified cardiologist specialized in cardiovascular disease and interventional cardiology. His interests include coronary artery disease, preventive cardiology, cholesterol management, cardiac rehabilitation, echocardiography, nuclear cardiology, peripheral vascular disease, valvular heart disease, and transcatheter aortic valve replacement.Dr. Baldwin listens to each patient's unique story interpreting their health issues and addressing them with the arsenal of advanced evidence-based treatment options now available. He makes a point to educate patients about their conditions and the treatments available using terms they can understand.Dr. Baldwin is a Fellow of both the American College of Cardiology and Cardiovascular Angiography and Intervention.Away from work he enjoys literature arts and the outdoors. Dr. Baldwin is rated as an Advanced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Coronary Heart Disease, Angina, Atherosclerosis, and Heart Failure with Preserved Ejection Fraction (HFpEF).

    Karen Stout
    Experienced in Hennekam Syndrome
    Cardiology
    Experienced in Hennekam Syndrome
    Cardiology

    Heart Institute At UW Medical Center – Montlake

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Karen Stout is a Cardiologist in Seattle, Washington. Dr. Stout is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Tetralogy of Fallot, Partial Atrioventricular Canal, Heart Valve Repair, and Aortic Valve Replacement.

    Catherine Otto
    Experienced in Hennekam Syndrome
    Experienced in Hennekam Syndrome

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle,, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Catherine Otto is a Cardiologist in Seattle,, Washington. Dr. Otto is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Aortic Valve Stenosis, Marfan Syndrome, Bicuspid Aortic Valve, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

    Learn about our expert tiers
    Experienced in Hennekam Syndrome
    Experienced in Hennekam Syndrome

    Heart Institute At UW Medical Center – Montlake

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Yonatan Buber is a Cardiologist in Seattle, Washington. Dr. Buber is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Isthmian Coarctation, Coarctation of the Aorta, Arrhythmias, Heart Valve Repair, and Cardiac Ablation.

    Experienced in Hennekam Syndrome
    Pediatric Cardiology
    Experienced in Hennekam Syndrome
    Pediatric Cardiology

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle,, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Luciana Young is a Pediatric Cardiologist in Seattle,, Washington. Dr. Young is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Marfan Syndrome, Perrault Syndrome, Arachnodactyly, and Coarctation of the Aorta.

    Experienced in Hennekam Syndrome
    Pediatric Neurology
    Experienced in Hennekam Syndrome
    Pediatric Neurology

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Russell Saneto is a Pediatric Neurologist in Seattle, Washington. Dr. Saneto is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Leigh Syndrome, Epilepsy, Epilepsy in Children, and West Syndrome.

    Experienced in Hennekam Syndrome
    Endocrinology
    Experienced in Hennekam Syndrome
    Endocrinology

    Uw Medicine/Harborview Medical Center

    325 9th Ave, 
    Seattle, WA 
     (0.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Joshua Thaler is an Endocrinologist in Seattle, Washington. Dr. Thaler is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Obesity, Russell-Silver Dwarfism, Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1), Craniofrontonasal Dysplasia, and Orchiectomy.

    Experienced in Hennekam Syndrome
    Neuromusculoskeletal Medicine
    Experienced in Hennekam Syndrome
    Neuromusculoskeletal Medicine

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Gary Stobbe is a Neuromusculoskeletal Medicine provider in Seattle, Washington. Dr. Stobbe is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Autism Spectrum Disorder, Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), and Rett Syndrome.

    Experienced in Hennekam Syndrome
    Experienced in Hennekam Syndrome

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jennifer Hayek is a Pediatrics provider in Seattle, Washington. Dr. Hayek is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Miller-Dieker Syndrome, Smith-Magenis Syndrome, HNRNPH2-Related Disorder, and Retinopathy Pigmentary Mental Retardation.

    Experienced in Hennekam Syndrome
    Medical Genetics | Pediatrics
    Experienced in Hennekam Syndrome
    Medical Genetics | Pediatrics
    4800 Sand Point Way Ne, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Anne Hing is a Medical Genetics specialist and a Pediatrics provider in Seattle, Washington. Dr. Hing is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Craniosynostosis, Deafness Craniofacial Syndrome, Micrognathia, and Acrofrontofacionasal Dysostosis Syndrome. Dr. Hing is currently accepting new patients.

    Experienced in Hennekam Syndrome
    Experienced in Hennekam Syndrome

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Catherine Otten is a Pediatrics provider in Seattle, Washington. Dr. Otten is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Acute Flaccid Myelitis (AFM), Anti-NMDA Receptor Encephalitis, Cramp-Fasciculation Syndrome, and Encephalitis.

    Experienced in Hennekam Syndrome
    Experienced in Hennekam Syndrome

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Xiuhua Bozarth is a Neurologist in Seattle, Washington. Dr. Bozarth is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are West Syndrome, Seizures, Lennox-Gastaut Syndrome (LGS), and Epilepsy in Children.

    Experienced in Hennekam Syndrome
    Family Medicine
    Experienced in Hennekam Syndrome
    Family Medicine

    Optum – Eastside

    1200 112th Ave NE, 
    Bellevue, WA 
     (6.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Antony Egnal is a primary care provider, practicing in Family Medicine in Bellevue, Washington. Dr. Egnal is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Van Maldergem Syndrome, De Barsy Syndrome, Filippi Syndrome, and Bowen-Conradi Syndrome.

    Experienced in Hennekam Syndrome
    Experienced in Hennekam Syndrome

    Office

    1560 N 115th St Ste G16, 
    Seattle, WA 
     (7.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Edmond Marzbani is an Oncologist in Seattle, Washington. Dr. Marzbani is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Pleuropulmonary Blastoma, Lung Cancer, Small Cell Lung Cancer (SCLC), and Posterior Fossa Tumor.

    Experienced in Hennekam Syndrome
    Experienced in Hennekam Syndrome

    Uw Medicine/Valley Medical Center

    400 S 43rd St, 
    Renton, WA 
     (12.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    David Vossler is a Neurologist in Renton, Washington. Dr. Vossler is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Seizures, Epilepsy, Lennox-Gastaut Syndrome (LGS), Generalized Tonic-Clonic Seizure, and Awake Craniotomy.

    Experienced in Hennekam Syndrome
    Experienced in Hennekam Syndrome

    Uw Medicine/Valley Medical Center

    400 S 43rd St, 
    Renton, WA 
     (12.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Wojciech Gryc is a Neurologist in Renton, Washington. Dr. Gryc is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Movement Disorders, Essential Tremor, Parkinson's Disease, and Drug Induced Dyskinesia.

    Showing 1-16 of 16

    Last Updated: 04/28/2026

    What is the definition of Hennekam Syndrome?

    Hennekam syndrome is an inherited disorder that is characterized by abnormalities of the lymphatic system, which is part of both the circulatory system and the immune system. The lymphatic system is a network of vessels that transport white blood cells (lymphocytes), nutrients, and proteins in a fluid called lymph. In people with Hennekam syndrome, the lymphatic vessels are often dilated (lymphangiectasia), which can slow down the flow of lymph and cause the vessels to leak. As a result, people with this condition experience puffiness or swelling that is caused by a buildup of fluid within certain tissues (lymphedema). The affected vessels may also break open (rupture).

    When should I see a Hennekam Syndrome doctor near Seattle, WA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Hennekam Syndrome doctor near Seattle, WA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Hennekam Syndrome doctors near Seattle, WA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Hennekam Syndrome doctors near Seattle, WA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Hennekam Syndrome doctor near Seattle, WA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hennekam Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Hennekam Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Hennekam Syndrome doctor near Seattle, WA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Hennekam Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Hennekam Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Hennekam Syndrome doctors near Seattle, WA?

    Look for the filter feature on the left side of the Hennekam Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Hennekam Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Hennekam Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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