Survey Evaluating the Burden and Management of HAE Crises by Patients and Caregivers
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
The study has been designed as a French, multicentric survey study to obtain data to describe the burden of on-demand treatment for patients with hereditary angioedema (HAE). The online survey assesses various aspects of HAE and in particular the burden of HAE from the patients' and caregivers' perspectives.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 12
Healthy Volunteers: f
View:
⁃ For the patient population:
• Patients with a confirmed diagnosis of HAE with a deficit in the C1 inhibitor.
• Aged ≥12 years
• Having consulted for HAE in the last 3 months and with a medical file.
⁃ For the caregiver population:
⁃ 1\. A person identified by the patient as part of their support group and who provides support with the management of the patients HAE (including family members, friends, spouse, etc.)
Locations
Other Locations
France
CHU Grenoble Alpes
RECRUITING
Grenoble
Contact Information
Primary
Laurence Bouillet, Professor
LBouillet@chu-grenoble.fr
+33 (0)476767640
Time Frame
Start Date: 2025-03-01
Estimated Completion Date: 2025-04-30
Participants
Target number of participants: 300
Treatments
Patients with HAE
Patients will complete an online survey.
Related Therapeutic Areas
Sponsors
Leads: University Hospital, Grenoble