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    Last Updated: 01/09/2026

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    MediFind found 36 doctor with experience in Hermansky-Pudlak Syndrome near Hesse, DE. Of these, 35 are Experienced and 1 are Advanced.

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    36 providers found
      Advanced in Hermansky-Pudlak Syndrome
      Advanced in Hermansky-Pudlak Syndrome
      Josef Schneider Str. 2, 
      Wuerzburg, BY, DE 

      Harald Schulze practices in Wuerzburg, Germany. Mr. Schulze is rated as an Advanced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Thrombocytopenia-Absent Radius Syndrome, Thrombocytopenia, Platelet Storage Pool Deficiency, Sepsis, and Bone Marrow Transplant.

      Matthias Griese
      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Munich, BY, DE 

      Matthias Griese practices in Munich, Germany. Mr. Griese is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Pulmonary Alveolar Proteinosis, Lacrimo-Auriculo-Dento-Digital Syndrome, Acute Interstitial Pneumonia, Interstitial Lung Disease, and Lung Transplant.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Munich, BY, DE 

      Udo Koehler practices in Munich, Germany. Koehler is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Their top areas of expertise are Platelet Storage Pool Deficiency, Oculocutaneous Albinism, Oculocutaneous Albinism Type 1, and Hermansky-Pudlak Syndrome.

      Learn about our expert tiers
      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Josef Schneider Str. 2, 
      Wuerzburg, BY, DE 

      Oliver Andres practices in Wuerzburg, Germany. Mr. Andres is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Pyruvate Kinase Deficiency, Anemia, Hemolysis, and Hemolytic Anemia.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Munich, BY, DE 

      Meike Hengst practices in Munich, Germany. Ms. Hengst is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Phosphoglycerate Mutase Deficiency, Acute Interstitial Pneumonia, Interstitial Lung Disease, and Platelet Storage Pool Deficiency.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Munich, BY, DE 

      Sophie Rothammer practices in Munich, Germany. Ms. Rothammer is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Oculocutaneous Albinism, Oculocutaneous Albinism Type 1, Hermansky-Pudlak Syndrome, and Oculocutaneous Albinism Type 2.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Dr. Von Haunersches Children's Hospital, 
      Munich, BY, DE 

      Karin Kurnik practices in Munich, Germany. Ms. Kurnik is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Blood Clots, Hemophilia A, Protein C Deficiency, and Protein S Deficiency.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      TU München, Liesel Beckmann Str. 1, 
      Freising, BY, DE 

      Ruedi Fries practices in Freising, Germany. Fries is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Their top areas of expertise are Oculocutaneous Albinism, Oculocutaneous Albinism Type 1, Hermansky-Pudlak Syndrome, and Oculocutaneous Albinism Type 2.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Munich, BY, DE 

      Julia Zaporozhan-Ley practices in Munich, Germany. Ms. Zaporozhan-Ley is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Phosphoglycerate Mutase Deficiency, Coarctation of the Aorta, Interstitial Lung Disease, and Acute Interstitial Pneumonia.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Munich, BY, DE 

      Elmina Bach-Mammadova practices in Munich, Germany. Ms. Bach-Mammadova is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Necrosis, Gray Platelet Syndrome, Thrombocytopenia, and Platelet Storage Pool Deficiency.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Dr Von Hauner Children's Hospital, 
      Munich, BY, DE 

      Markus Ege practices in Munich, Germany. Mr. Ege is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Asthma, Asthma in Children, Stridor, and Allergic Rhinitis.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Munich, BY, DE 

      Siegfried Priglinger practices in Munich, Germany. Mr. Priglinger is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Cataract, Astigmatism, Late-Onset Retinal Degeneration, Vitrectomy, and Cataract Removal.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Munich, BY, DE 

      Simon Von Ameln practices in Munich, Germany. Mr. Von Ameln is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are X-Linked Infantile Nystagmus, Oculocutaneous Albinism Type 2, Oculocutaneous Albinism Type 1, and Hermansky-Pudlak Syndrome.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Munich, BY, DE 

      Attila Braun practices in Munich, Germany. Mr. Braun is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Gray Platelet Syndrome, Thrombocytopenia, Platelet Storage Pool Deficiency, and Oculocutaneous Albinism Type 2.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Bad Kissingen, BY, DE 

      Ines Detsch-Langbein practices in Bad Kissingen, Germany. Ms. Detsch-Langbein is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, Myoclonic Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Prof. Ernst Nathan Str. 1, 
      Nuernberg, BY, DE 

      Elisabeth Muller practices in Nuernberg, Germany. Ms. Muller is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Ehrlichiosis, Babesiosis, Human Granulocytic Ehrlichiosis, and Dentatorubral-Pallidoluysian Atrophy.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Grosshaderner Str. 9, 
      Planegg, BY, DE 

      Stefan Krebs practices in Planegg, Germany. Mr. Krebs is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Acute Myeloid Leukemia (AML), Leukemia, Stroke, Thrombectomy, and Vertebroplasty.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Munich, BY, DE 

      Ivica Medugorac practices in Munich, Germany. Mr. Medugorac is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Cerebral Hypoxia, X-Linked Retinal Dysplasia, Oculocutaneous Albinism, and Oculocutaneous Albinism Type 1.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Munich, BY, DE 

      Stefan Eber practices in Munich, Germany. Mr. Eber is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Pyruvate Kinase Deficiency, Anemia, Hemolytic Anemia, Platelet Storage Pool Deficiency, and Splenectomy.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      Dr Von Haunersches Children's Hospital, 
      Munich, BY, DE 

      Erika Von Mutius practices in Munich, Germany. Ms. Von Mutius is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Stridor, Asthma, Asthma in Children, and Allergic Rhinitis.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 36

      Last Updated: 01/09/2026

      What is the definition of Hermansky-Pudlak Syndrome?

      Hermansky-Pudlak syndrome is a disorder characterized by a condition called oculocutaneous albinism, which causes abnormally light coloring (pigmentation) of the skin, hair, and eyes. Affected individuals typically have fair skin and white or light-colored hair. People with this disorder have a higher than average risk of skin damage and skin cancers caused by long-term sun exposure. Oculocutaneous albinism reduces pigmentation of the colored part of the eye (iris) and the light-sensitive tissue at the back of the eye (retina). Reduced vision, rapid and involuntary eye movements (nystagmus), and increased sensitivity to light (photophobia) are also common in oculocutaneous albinism. In Hermansky-Pudlak syndrome, these vision problems usually remain stable after early childhood.

      When should I see an Hermansky-Pudlak Syndrome doctor in Hesse, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Hermansky-Pudlak Syndrome doctor in Hesse, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Hermansky-Pudlak Syndrome doctors in Hesse, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Hermansky-Pudlak Syndrome doctors in Hesse, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Hermansky-Pudlak Syndrome doctor in Hesse, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hermansky-Pudlak Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Hermansky-Pudlak Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Hermansky-Pudlak Syndrome doctor in Hesse, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Hermansky-Pudlak Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Hermansky-Pudlak Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Hermansky-Pudlak Syndrome doctors in Hesse, DE?

      Look for the filter feature on the left side of the Hermansky-Pudlak Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Hermansky-Pudlak Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Hermansky-Pudlak Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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