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    Last Updated: 01/09/2026

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    MediFind found 19 doctor with experience in Hermansky-Pudlak Syndrome near Russian Federation. Of these, 18 are Experienced and 1 are Advanced.

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    19 providers found
      Advanced in Hermansky-Pudlak Syndrome

      Olga A. Shchagina
      Advanced in Hermansky-Pudlak Syndrome

      Olga A. Shchagina
      1 Moskvorechye St, 
      Moscow, MOW, RU 

      Olga Shchagina practices in Moscow, Russian Federation. Ms. Shchagina is rated as an Advanced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Congenital Bilateral Absence of the Vas Deferens, Limb-Girdle Muscular Dystrophy Type 2A, Hereditary Multiple Osteochondromas, and Spinal Muscular Atrophy (SMA).

      Experienced in Hermansky-Pudlak Syndrome

      Andrey V. Marakhonov
      Experienced in Hermansky-Pudlak Syndrome

      Andrey V. Marakhonov
      1 Moskvorechye Street, 
      Moscow, MOW, RU 

      Andrey Marakhonov practices in Moscow, Russian Federation. Mr. Marakhonov is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Aniridia, WAGR Syndrome, Seckel Syndrome, and Infantile Neutropenia.

      Experienced in Hermansky-Pudlak Syndrome

      Rena A. Zinchenko
      Experienced in Hermansky-Pudlak Syndrome

      Rena A. Zinchenko
      Moskvorechie St, 1, 
      Moscow, MOW, RU 

      Rena Zinchenko practices in Moscow, Russian Federation. Ms. Zinchenko is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Aniridia, WAGR Syndrome, Cystic Fibrosis, and Phenylketonuria (PKU).

      Learn about our expert tiers
      Experienced in Hermansky-Pudlak Syndrome

      Sofya A. Ionova
      Experienced in Hermansky-Pudlak Syndrome

      Sofya A. Ionova
      Moscow, MOW, RU 

      Sofya Ionova practices in Moscow, Russian Federation. Ms. Ionova is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Oculocutaneous Albinism Type 2, Hermansky-Pudlak Syndrome, Oculocutaneous Albinism, and Oculocutaneous Albinism Type 1.

      Experienced in Hermansky-Pudlak Syndrome

      Sergey I. Kutsev
      Experienced in Hermansky-Pudlak Syndrome

      Sergey I. Kutsev
      1 Moskvorechye St, 
      Moscow, MOW, RU 

      Sergey Kutsev practices in Moscow, Russian Federation. Mr. Kutsev is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are WAGR Syndrome, Aniridia, Chronic Myelogenous Leukemia (CML), and Cystic Fibrosis.

      Experienced in Hermansky-Pudlak Syndrome

      O R. Esin
      Experienced in Hermansky-Pudlak Syndrome

      O R. Esin
      Kazan, TA, RU 

      O Esin practices in Kazan, Russian Federation. Esin is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Their top areas of expertise are Tension Headache, Fibromyalgia, Headache, and Chronic Pain.

      Experienced in Hermansky-Pudlak Syndrome

      Nikolay P. Sobolev
      Experienced in Hermansky-Pudlak Syndrome

      Nikolay P. Sobolev
      59A Beskudnikovsky Blvd, 127486, 
      Moscow, MOW, RU 

      Nikolay Sobolev practices in Moscow, Russian Federation. Mr. Sobolev is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Aniridia, Oculocutaneous Albinism, Oculocutaneous Albinism Type 1, Cataract Removal, and Vitrectomy.

      Experienced in Hermansky-Pudlak Syndrome

      Aleksander V. Polyakov
      Experienced in Hermansky-Pudlak Syndrome

      Aleksander V. Polyakov
      1 Moskvorechye St, 
      Moscow, MOW, RU 

      Aleksander Polyakov practices in Moscow, Russian Federation. Mr. Polyakov is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Hereditary Multiple Osteochondromas, Osteochondroma, Phenylketonuria (PKU), Glossectomy, and Thyroidectomy.

      Experienced in Hermansky-Pudlak Syndrome

      Vitaly V. Kadyshev
      Experienced in Hermansky-Pudlak Syndrome

      Vitaly V. Kadyshev
      Moskvorechie Str, 1, 
      Moscow, MOW, RU 

      Vitaly Kadyshev practices in Moscow, Russian Federation. Mr. Kadyshev is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are WAGR Syndrome, Aniridia, Seckel Syndrome, and Coloboma of Optic Nerve.

      Experienced in Hermansky-Pudlak Syndrome

      Natella V. Sukhanova
      Experienced in Hermansky-Pudlak Syndrome

      Natella V. Sukhanova
      Moskvorechie Street, 1, 
      Moscow, MOW, RU 

      Natella Sukhanova practices in Moscow, Russian Federation. Ms. Sukhanova is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are WAGR Syndrome, Aniridia, Coloboma of Optic Nerve, and Wilms Tumor.

      Experienced in Hermansky-Pudlak Syndrome

      Anna Y. Stepanova
      Experienced in Hermansky-Pudlak Syndrome

      Anna Y. Stepanova
      35 Botanicheskaya St, 
      Moscow, MOW, RU 

      Anna Stepanova practices in Moscow, Russian Federation. Ms. Stepanova is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Congenital Bilateral Absence of the Vas Deferens, Cystic Fibrosis, Oculocutaneous Albinism Type 2, and Oculocutaneous Albinism.

      Experienced in Hermansky-Pudlak Syndrome

      Ludmila A. Bessonova
      Experienced in Hermansky-Pudlak Syndrome

      Ludmila A. Bessonova
      Moscow, MOW, RU 

      Ludmila Bessonova practices in Moscow, Russian Federation. Ms. Bessonova is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Mosaic Trisomy 9, Oculocutaneous Albinism Type 2, Oculocutaneous Albinism, and Hermansky-Pudlak Syndrome.

      Experienced in Hermansky-Pudlak Syndrome

      I K. Khairullin
      Experienced in Hermansky-Pudlak Syndrome

      I K. Khairullin
      Kazan, TA, RU 

      I Khairullin practices in Kazan, Russian Federation. Khairullin is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Their top areas of expertise are Tension Headache, Oculocutaneous Albinism, Oculocutaneous Albinism Type 1, and Oculocutaneous Albinism Type 2.

      Experienced in Hermansky-Pudlak Syndrome

      Vitaliy A. Kadyshev
      Experienced in Hermansky-Pudlak Syndrome

      Vitaliy A. Kadyshev
      1 Moskvorech'e St, 115522, 
      Moscow, MOW, RU 

      Vitaliy Kadyshev practices in Moscow, Russian Federation. Mr. Kadyshev is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Gyrate Atrophy of the Choroid and Retina, Leber Congenital Amaurosis, Late-Onset Retinal Degeneration, and Oculocutaneous Albinism Type 2.

      Experienced in Hermansky-Pudlak Syndrome

      Daria V. Guseva
      Experienced in Hermansky-Pudlak Syndrome

      Daria V. Guseva
      Moscow, MOW, RU 

      Daria Guseva practices in Moscow, Russian Federation. Ms. Guseva is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Delayed Growth, Oculocutaneous Albinism Type 2, Oculocutaneous Albinism, and Hermansky-Pudlak Syndrome.

      Experienced in Hermansky-Pudlak Syndrome

      Peter A. Sparber
      Experienced in Hermansky-Pudlak Syndrome

      Peter A. Sparber
      Moscow, MOW, RU 

      Peter Sparber practices in Moscow, Russian Federation. Mr. Sparber is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Testicular Failure, Hallervorden-Spatz Disease, Hypoparathyroidism-Intellectual Disability-Dysmorphism Syndrome, and Myoclonic Epilepsy.

      Experienced in Hermansky-Pudlak Syndrome

      Tatyana A. Vasilyeva
      Experienced in Hermansky-Pudlak Syndrome

      Tatyana A. Vasilyeva
      Moskvorechie St, 1, 
      Moscow, MOW, RU 

      Tatyana Vasilyeva practices in Moscow, Russian Federation. Ms. Vasilyeva is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are WAGR Syndrome, Aniridia, Wilms Tumor, and Seckel Syndrome.

      Experienced in Hermansky-Pudlak Syndrome

      Alexandra Y. Filatova
      Experienced in Hermansky-Pudlak Syndrome

      Alexandra Y. Filatova
      Moscow, MOW, RU 

      Alexandra Filatova practices in Moscow, Russian Federation. Ms. Filatova is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Aniridia, Testicular Failure, Spinocerebellar Ataxia Type 20, Hypoparathyroidism-Intellectual Disability-Dysmorphism Syndrome, and Stent Placement.

      Experienced in Hermansky-Pudlak Syndrome

      Nina A. Demina
      Experienced in Hermansky-Pudlak Syndrome

      Nina A. Demina
      Moskvorechie Str, 1, 115522, 
      Moscow, MOW, RU 

      Nina Demina practices in Moscow, Russian Federation. Ms. Demina is rated as an Experienced expert by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Delta-Sarcoglycanopathy, Partial Familial Epilepsy, Hypohidrotic Ectodermal Dysplasia, and Bile Duct Obstruction.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-19 of 19

      Last Updated: 01/09/2026

      What is the definition of Hermansky-Pudlak Syndrome?

      Hermansky-Pudlak syndrome is a disorder characterized by a condition called oculocutaneous albinism, which causes abnormally light coloring (pigmentation) of the skin, hair, and eyes. Affected individuals typically have fair skin and white or light-colored hair. People with this disorder have a higher than average risk of skin damage and skin cancers caused by long-term sun exposure. Oculocutaneous albinism reduces pigmentation of the colored part of the eye (iris) and the light-sensitive tissue at the back of the eye (retina). Reduced vision, rapid and involuntary eye movements (nystagmus), and increased sensitivity to light (photophobia) are also common in oculocutaneous albinism. In Hermansky-Pudlak syndrome, these vision problems usually remain stable after early childhood.

      When should I see an Hermansky-Pudlak Syndrome doctor in Russian Federation?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Hermansky-Pudlak Syndrome doctor in Russian Federation?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Hermansky-Pudlak Syndrome doctor in Russian Federation?

      You can find an Hermansky-Pudlak Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Hermansky-Pudlak Syndrome doctors in Russian Federation?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Hermansky-Pudlak Syndrome doctors in Russian Federation?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Hermansky-Pudlak Syndrome doctor in Russian Federation?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hermansky-Pudlak Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Hermansky-Pudlak Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Hermansky-Pudlak Syndrome doctor in Russian Federation?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Hermansky-Pudlak Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Hermansky-Pudlak Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Hermansky-Pudlak Syndrome doctors in Russian Federation?

      Look for the filter feature on the left side of the Hermansky-Pudlak Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Hermansky-Pudlak Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Hermansky-Pudlak Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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