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    Last Updated: 10/30/2025

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    MediFind found 11 doctor with experience in Hermansky-Pudlak Syndrome near Illinois, US. Of these, 9 are Experienced and 2 are Advanced.

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    11 providers found
      Advanced in Hermansky-Pudlak Syndrome
      Hematology | Oncology
      Advanced in Hermansky-Pudlak Syndrome
      Hematology | Oncology

      Illinois Cancer Specialists

      7447 W Talcott Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Irfan Mirza is a Hematologist and an Oncologist in Chicago, Illinois. Dr. Mirza is rated as an Advanced provider by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Lung Cancer, Pleuropulmonary Blastoma, Severe Congenital Neutropenia, and Familial Colorectal Cancer.

      Advanced in Hermansky-Pudlak Syndrome
      Hematology Oncology | Hematology | Oncology
      Advanced in Hermansky-Pudlak Syndrome
      Hematology Oncology | Hematology | Oncology
      820 S Wood St, Sickle Cell Ctr. Suite 172, Clinical Sciences Building, 
      Chicago, IL 
      Languages Spoken:
      English

      Victor Gordeuk is a Hematologist Oncology specialist and a Hematologist in Chicago, Illinois. Dr. Gordeuk is rated as an Advanced provider by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Sickle Cell Disease, Congenital Hemolytic Anemia, Hemoglobinopathy, Hemolytic Anemia, and Bone Marrow Transplant.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Bety C. Ciobanu
      Experienced in Hermansky-Pudlak Syndrome
      Hematology | Oncology
      Experienced in Hermansky-Pudlak Syndrome
      Hematology | Oncology

      Illinois Cancer Specialists

      7447 W Talcott Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Romanian
      Offers Telehealth

      Bety Ciobanu is a Hematologist and an Oncologist in Chicago, Illinois. Dr. Ciobanu is rated as an Experienced provider by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Paget Disease of the Breast, Breast Cancer, Agranulocytosis, and Chronic Familial Neutropenia.

      Learn about our expert tiers
      Chadi Nabhan
      Experienced in Hermansky-Pudlak Syndrome
      Hematology Oncology
      Experienced in Hermansky-Pudlak Syndrome
      Hematology Oncology
      974 Bristol Dr, 
      Deerfield, IL 
      Languages Spoken:
      English

      Chadi Nabhan is a Hematologist Oncology provider in Deerfield, Illinois. Dr. Nabhan is rated as an Experienced provider by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Chronic Lymphocytic Leukemia (CLL), Chronic B-Cell Leukemia (CBCL), Non-Hodgkin Lymphoma, Small Lymphocytic Lymphoma (SLL), and Orchiectomy.

      Experienced in Hermansky-Pudlak Syndrome
      Medical Genetics
      Experienced in Hermansky-Pudlak Syndrome
      Medical Genetics

      Endeavor Health Medical Group

      2650 Ridge Ave, 
      Evanston, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Peter Hulick is a Medical Genetics provider in Evanston, Illinois. Dr. Hulick is rated as an Experienced provider by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Ring Chromosome 12, Retinopathy Pigmentary Mental Retardation, and BRCA Positive Breast Cancer. Dr. Hulick is currently accepting new patients.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome
      5841 S Maryland Ave # Mc5067, 
      Chicago, IL 
      Languages Spoken:
      English

      Chinecherem Chime-Eze is a Dermatologist in Chicago, Illinois. Dr. Chime-Eze is rated as an Experienced provider by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Oculocutaneous Albinism Type 2, Oculocutaneous Albinism Type 1, Hermansky-Pudlak Syndrome, and Oculocutaneous Albinism.

      Experienced in Hermansky-Pudlak Syndrome
      Pediatrics | Dermatology
      Experienced in Hermansky-Pudlak Syndrome
      Pediatrics | Dermatology
      2300 Childrens Plaza, #107, 
      Chicago, IL 
      Languages Spoken:
      English, Spanish

      Anthony Mancini is a Pediatrics specialist and a Dermatologist in Chicago, Illinois. Dr. Mancini is rated as an Experienced provider by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Vascular Birthmark, Hemangioma, Aplasia Cutis Congenita, and PHACE Syndrome.

      Experienced in Hermansky-Pudlak Syndrome
      Experienced in Hermansky-Pudlak Syndrome

      United Skin Specialists Illinois Ltd PC

      4573 Benes Ave, 
      Glen Carbon, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Gowen is a Dermatologist in Glen Carbon, Illinois. Dr. Gowen is rated as an Experienced provider by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Actinic Keratosis, Squamous Cell Skin Carcinoma, Warts, and Seborrheic Keratosis. Dr. Gowen is currently accepting new patients.

      Experienced in Hermansky-Pudlak Syndrome
      Dermatology
      Experienced in Hermansky-Pudlak Syndrome
      Dermatology
      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Sarah Stein is a Dermatologist in Chicago, Illinois. Dr. Stein is rated as an Experienced provider by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Ichthyosis Vulgaris, Pityriasis Alba, Folliculitis, and Hypomelanotic Disorder. Dr. Stein is currently accepting new patients.

      Experienced in Hermansky-Pudlak Syndrome
      Family Medicine
      Experienced in Hermansky-Pudlak Syndrome
      Family Medicine
      4901 Searle Pkwy, Suite 150, 
      Skokie, IL 
      Languages Spoken:
      English

      Megan Helms is a primary care provider, practicing in Family Medicine in Skokie, Illinois. Dr. Helms is rated as an Experienced provider by MediFind in the treatment of Hermansky-Pudlak Syndrome. Her top areas of expertise are Bardet-Biedl Syndrome, Albinism, and Hermansky-Pudlak Syndrome.

      Experienced in Hermansky-Pudlak Syndrome
      Dermatology
      Experienced in Hermansky-Pudlak Syndrome
      Dermatology

      Siu Physicians And Surgeons Inc

      751 N Rutledge St, 
      Springfield, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Adam Berry is a Dermatologist in Springfield, Illinois. Dr. Berry is rated as an Experienced provider by MediFind in the treatment of Hermansky-Pudlak Syndrome. His top areas of expertise are Basal Cell Skin Cancer, Actinic Keratosis, Warts, and Liver Spots. Dr. Berry is currently accepting new patients.

      Showing 1-11 of 11

      Last Updated: 10/30/2025

      What is the definition of Hermansky-Pudlak Syndrome?

      Hermansky-Pudlak syndrome is a disorder characterized by a condition called oculocutaneous albinism, which causes abnormally light coloring (pigmentation) of the skin, hair, and eyes. Affected individuals typically have fair skin and white or light-colored hair. People with this disorder have a higher than average risk of skin damage and skin cancers caused by long-term sun exposure. Oculocutaneous albinism reduces pigmentation of the colored part of the eye (iris) and the light-sensitive tissue at the back of the eye (retina). Reduced vision, rapid and involuntary eye movements (nystagmus), and increased sensitivity to light (photophobia) are also common in oculocutaneous albinism. In Hermansky-Pudlak syndrome, these vision problems usually remain stable after early childhood.

      When should I see an Hermansky-Pudlak Syndrome doctor in Illinois, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Hermansky-Pudlak Syndrome doctor in Illinois, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Hermansky-Pudlak Syndrome doctors in Illinois, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Hermansky-Pudlak Syndrome doctors in Illinois, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Hermansky-Pudlak Syndrome doctor in Illinois, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hermansky-Pudlak Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Hermansky-Pudlak Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Hermansky-Pudlak Syndrome doctor in Illinois, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Hermansky-Pudlak Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Hermansky-Pudlak Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Hermansky-Pudlak Syndrome doctors in Illinois, US?

      Look for the filter feature on the left side of the Hermansky-Pudlak Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Hermansky-Pudlak Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Hermansky-Pudlak Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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