The 20 Best Heterotaxy Syndrome Doctors Near Me in washington, DC

Find the Top Heterotaxy Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 10 doctor with experience in Heterotaxy Syndrome near washington, DC. Of these, 7 are Experienced and 3 are Advanced.

Location
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10 providers found
    Advanced in Heterotaxy Syndrome
    Thoracic Surgery
    Advanced in Heterotaxy Syndrome
    Thoracic Surgery
    Referral may be required

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
     (1.8 miles away)
    Languages Spoken:
    English

    Richard Jonas is a Thoracic Surgeon practicing medicine in Washington, Washington, D.c.. Dr. Jonas is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Tetralogy of Fallot, Transposition of the Great Arteries, Truncus Arteriosus, and Gastrostomy.

    Advanced in Heterotaxy Syndrome
    Pediatric Cardiology
    Advanced in Heterotaxy Syndrome
    Pediatric Cardiology
    Referral may be required

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington,, DC 
     (1.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Linda Leatherbury is a Pediatric Cardiologist practicing medicine in Washington,, Washington, D.c.. Dr. Leatherbury is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Heterotaxy Syndrome, Hypoplastic Left Heart Syndrome (HLHS), and Situs Inversus. Dr. Leatherbury is currently accepting new patients.

    Experienced in Heterotaxy Syndrome
    Thoracic Surgery | General Surgery
    Experienced in Heterotaxy Syndrome
    Thoracic Surgery | General Surgery
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
     (1.8 miles away)
    Languages Spoken:
    English, Gujarati , Hindi
    Accepting New Patients

    Manan Desai is a Thoracic Surgeon and a General Surgeon practicing medicine in Washington, Washington, D.c.. Dr. Desai is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Truncus Arteriosus, Tricuspid Atresia, Aortopulmonary Window, Ventricular Septal Defects, and Heart Transplant. Dr. Desai is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Heterotaxy Syndrome
    Thoracic Surgery | General Surgery
    Experienced in Heterotaxy Syndrome
    Thoracic Surgery | General Surgery
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
     (1.8 miles away)
    Languages Spoken:
    English, Turkish

    Aybala Tongut is a Thoracic Surgeon and a General Surgeon practicing medicine in Washington, Washington, D.c.. Dr. Tongut is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Truncus Arteriosus, Aortopulmonary Window, Atrioventricular Septal Defect, Gastrostomy, and Stent Placement.

    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Referral may be required

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
     (1.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Michael Slack is a Pediatric Cardiologist practicing medicine in Washington, Washington, D.c.. Dr. Slack is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Atrial Septal Defect (ASD), Pulmonary Atresia with Ventricular Septal Defect, Pulmonary Atresia, Patent Foramen Ovale Repair, and Angioplasty. Dr. Slack is currently accepting new patients.

    Experienced in Heterotaxy Syndrome
    Internal Medicine
    Experienced in Heterotaxy Syndrome
    Internal Medicine

    Arlington Palliative Care PLC

    1635 N George Mason Dr Ste 490, 
    Arlington, VA 
     (5.8 miles away)
    Languages Spoken:
    English, Latin, Spanish, Vietnamese
    Accepting New Patients
    Offers Telehealth

    Angele Seiler is a primary care provider, practicing in Internal Medicine in Arlington, Virginia. Dr. Seiler is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Melorheostosis, Melorheostosis with Osteopoikilosis, Osteopenia, and Osteoporosis. Dr. Seiler is currently accepting new patients.

    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Referral may be required

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (6.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Karen Kuehl is a Pediatric Cardiologist practicing medicine in Silver Spring, Maryland. Dr. Kuehl is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Heterotaxy Syndrome, and Double Inlet Left Ventricle. Dr. Kuehl is currently accepting new patients.

    Advanced in Heterotaxy Syndrome
    Pediatric Cardiology
    Advanced in Heterotaxy Syndrome
    Pediatric Cardiology
    Referral may be required

    Northern Virginia

    3023 Hamaker Court, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mary Donofrio is a Pediatric Cardiologist practicing medicine in Fairfax, Virginia. Dr. Donofrio is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Double Aortic Arch, Vascular Ring, Hypoplastic Left Heart Syndrome (HLHS), and Septoplasty. Dr. Donofrio is board certified in Pediatric Cardiology: American Board Of Pediatrics, 1996 and American Board Of Pediatrics - Pediatric Cardiology, 1996. Dr. Donofrio is currently accepting new patients.

    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Referral may be required

    Northern Virginia

    3023 Hamaker Court, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Charles Berul is a Pediatric Cardiologist practicing medicine in Fairfax, Virginia. Dr. Berul is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Ventricular Fibrillation, Long QT Syndrome, Cardiac Ablation, and Heart Transplant. Dr. Berul is board certified in Pediatric Cardiology: American Board Of Pediatrics, 1994. Dr. Berul is currently accepting new patients.

    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Referral may be required

    Northern Virginia

    3023 Hamaker Court, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Tom Choi is a Pediatric Cardiologist practicing medicine in Fairfax, Virginia. Dr. Choi is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Wolff-Parkinson-White Syndrome, Heart Murmurs, Mitral Atresia, and Hypoplastic Left Heart Syndrome (HLHS). Dr. Choi is board certified in Pediatrics: American Board Of Pediatrics, 2017 and Pediatric Cardiology: American Board Of Pediatrics, 2022. Dr. Choi is currently accepting new patients.

    Showing 1-10 of 10

    Last Updated: 09/26/2026

    What is the definition of Heterotaxy Syndrome?

    Heterotaxy syndrome is a condition in which the internal organs are abnormally arranged in the chest and abdomen. The term "heterotaxy" is from the Greek words "heteros," meaning "other than," and "taxis," meaning "arrangement." Individuals with this condition have complex birth defects affecting the heart, lungs, liver, spleen, intestines, and other organs.

    When should I see a Heterotaxy Syndrome doctor near washington, DC?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Heterotaxy Syndrome doctor near washington, DC?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Heterotaxy Syndrome doctors near washington, DC?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Heterotaxy Syndrome doctors near washington, DC?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Heterotaxy Syndrome doctor near washington, DC?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Heterotaxy Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Heterotaxy Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Heterotaxy Syndrome doctor near washington, DC?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Heterotaxy Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Heterotaxy Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Heterotaxy Syndrome doctors near washington, DC?

    Look for the filter feature on the left side of the Heterotaxy Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Heterotaxy Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Heterotaxy Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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