The 20 Best Heterotaxy Syndrome Doctors Near Me in Florida, US

Find the Top Heterotaxy Syndrome Experts and Specialists

The 20 Best Heterotaxy Syndrome Doctors in Florida, US

Last Updated: 02/22/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 24 doctor with experience in Heterotaxy Syndrome near Florida, US. Of these, 21 are Experienced and 3 are Advanced.

Location
LocationClose
24 providers found
    Kamal K. Pourmoghadam
    Experienced in Heterotaxy Syndrome
    Experienced in Heterotaxy Syndrome

    Johns Hopkins All Children's Outpatient Care, St. Petersburg

    Saint Petersburg, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Pourmoghadam specializes in pediatric cardiothoracic surgery at Johns Hopkins All Children’s in St. Petersburg, Florida. He treats patients with congenital heart defects and those in the Esophageal and Airway Treatment Program. He joined the hospital staff in 2022. He is a professor of surgery at the University of Central Florida College of Medicine in Orlando. He has published numerous peer-reviewed articles, authored book chapters and given many talks both nationally and internationally. Dr. Pourmoghadam earned his bachelor’s degree from University of California at Berkeley, and medical degree from Albany Medical College. After finishing his surgical training in New York, he then competed his cardiothoracic surgery fellowship at Jackson Memorial Hospital/University of Miami, followed by a pediatric cardiac surgery fellowship at Seattle Children’s Hospital and Medical Center/University of Washington. Dr. Pourmoghadam is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Atrioventricular Septal Defect, Hypoplastic Left Heart Syndrome (HLHS), Congenital Cardiovascular Shunt, Partial Atrioventricular Canal, and Gastrostomy.

    Jeffrey Jacobs
    Advanced in Heterotaxy Syndrome
    Thoracic Surgery
    Advanced in Heterotaxy Syndrome
    Thoracic Surgery

    UF Health Congenital Heart Center

    1600 SW Archer Rd, 
    Gainesville, FL 
    Languages Spoken:
    English

    Jeffrey Jacobs is a Thoracic Surgeon in Gainesville, Florida. Dr. Jacobs is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Congenital Heart Disease (CHD), Hypoplastic Left Heart Syndrome (HLHS), Ventricular Septal Defects, Heart Transplant, and Heart Bypass Surgery.

    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology

    Pediatrix Medical Group Of Florida Inc.

    12295 Taft St, 
    Pembroke Pines,, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Robert Pearson is a Pediatric Cardiologist in Pembroke Pines,, Florida. Dr. Pearson is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Interrupted Aortic Arch, Patent Ductus Arteriosus, Pulmonary Valve Stenosis, and Pulmonary Supravalvular Stenosis.

    Learn about our expert tiers
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology

    Nicklaus Children's Hospital

    3100 SW 62nd Ave, 
    Miami, FL 
    Languages Spoken:
    English

    Danyal Khan is a Pediatric Cardiologist in Miami, Florida. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Pulmonary Arteriovenous Fistula, Pulmonary Arteriovenous Malformation (PAVM), Endocarditis, Embolectomy, and Angioplasty.

    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology

    Nicklaus Children's Hospital

    3100 SW 62nd Ave, 
    Miami,, FL 
    Languages Spoken:
    English

    Utkarsh Kohli is a Pediatric Cardiologist in Miami,, Florida. Dr. Kohli is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Pediatric Myocarditis, Ventricular Tachycardia, Arrhythmias, Cardiac Ablation, and Pacemaker Implantation.

    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology

    Drew Schnitt MD PA

    1150 N 35th Ave Ste 490, 
    Hollywood,, FL 
    Languages Spoken:
    English

    Kaimal Jayakumar is a Pediatric Cardiologist in Hollywood,, Florida. Dr. Jayakumar is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Pulmonary Valve Stenosis, Ventricular Septal Defects, Hypoplastic Left Heart Syndrome (HLHS), and DiGeorge Syndrome.

    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology

    Office

    1611 NW 12th Ave Ste 109, 
    Miami,, FL 
    Experience:
    44+ years
    Languages Spoken:
    English

    Paolo Rusconi is a Pediatric Cardiologist in Miami,, Florida. Dr. Rusconi has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Dilated Cardiomyopathy (DCM), Cardiomyopathy, Pediatric Myocarditis, Restrictive Cardiomyopathy (RCM), and Heart Transplant.

    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology

    Memorial Division Of Pediatric Cardiology

    3377 S State Road 7, 
    Wellington,, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Rowena Uy is a Pediatric Cardiologist in Wellington,, Florida. Dr. Uy is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Heart Murmurs, Patent Ductus Arteriosus, Familial Neurocardiogenic Syncope, and Anomalous Left Coronary Artery from the Pulmonary Artery.

    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology
    Experienced in Heterotaxy Syndrome
    Pediatric Cardiology

    St Josephs Diagnostic Center LLC

    3003 W Dr Martin Luther King Jr Blvd, 
    Tampa, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Jeremy Ringewald is a Pediatric Cardiologist in Tampa, Florida. Dr. Ringewald is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Pulmonary Valve Stenosis, Tetralogy of Fallot, Pulmonary Supravalvular Stenosis, and Double Inlet Left Ventricle.

    Advanced in Heterotaxy Syndrome
    Thoracic Surgery
    Advanced in Heterotaxy Syndrome
    Thoracic Surgery

    Office

    3100 SW 62nd Ave Fl 2, 
    Miami, FL 
    Languages Spoken:
    English

    Joseph Forbess is a Thoracic Surgeon in Miami, Florida. Dr. Forbess is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Heterotaxy Syndrome, Total Anomalous Pulmonary Venous Return, Pulmonary Valve Stenosis, Mitral Stenosis, and Heart Transplant.

    Advanced in Heterotaxy Syndrome
    Internal Medicine
    Advanced in Heterotaxy Syndrome
    Internal Medicine

    Sarasota CO Health Dept

    2200 Ringling Blvd, 
    Sarasota, FL 
    Languages Spoken:
    English

    William Heymann is a primary care provider, practicing in Internal Medicine in Sarasota, Florida. Dr. Heymann is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Heterotaxy Syndrome and Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL).

    Peace C. Madueme
    Experienced in Heterotaxy Syndrome
    Experienced in Heterotaxy Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    22+ years
    Languages Spoken:
    English
    Offers Telehealth

    Peace Madueme is a Cardiologist in Orlando, Florida. Dr. Madueme has been practicing medicine for over 22 years and is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Williams Syndrome, Ventricular Septal Defects, Vascular Ring, and Double Aortic Arch.

    Bahram Kakavand
    Experienced in Heterotaxy Syndrome
    Experienced in Heterotaxy Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English, Farsi, German

    I was born in Iran, moved to Germany at age 18 for college, and have lived in the United States since 1992. I’ve always been close to my parents, brothers and sister. Our relationship gave me a sense of respect for the concept of family that is reflected in the way I treat patients and families today. My interest in cardiology began when I was just eight or nine years old reading a schoolbook about heart function; I decided then and there on my career. I chose to work with children because of their great need and limited ability to express themselves. It’s rewarding to connect and understand what they’re trying to say. Because children are very delicate, I insist on precision with every service I provide. I’m also passionate about getting the diagnosis right. Sometimes parents bring their child to me after multiple doctors have given up trying to diagnose them. I like the challenge and the opportunity to provide treatment that will help. Many of my patients — for example, kids with congenital heart conditions — must be treated over a period of months or even years. I try to really manage their condition and help their family be part of the care team. I’m also interested in providing medicine that has been lacking in Florida. Dysautonomia, a nervous system disorder, is one of them. Dr. Kakavand is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Familial Neurocardiogenic Syncope, Ectopic Heartbeat, Fainting, and Inappropriate Sinus Tachycardia (IST).

    Makram R. Ebeid
    Experienced in Heterotaxy Syndrome
    Experienced in Heterotaxy Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    5+ years
    Languages Spoken:
    English, Arabic
    Offers Telehealth

    Makram Ebeid is a Cardiologist in Orlando, Florida. Dr. Ebeid has been practicing medicine for over 5 years and is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Pulmonary Valve Stenosis, Pulmonary Atresia, Ventricular Septal Defects, and Pulmonary Supravalvular Stenosis.

    Elena R. De Leon
    Experienced in Heterotaxy Syndrome
    Experienced in Heterotaxy Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English, French, Spanish

    Elena De Leon is a Cardiologist in Orlando, Florida. Dr. De Leon is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Ventricular Septal Defects, Heart Murmurs, Patent Ductus Arteriosus, and Right Ventricle Hypoplasia.

    Experienced in Heterotaxy Syndrome
    Family Medicine
    Experienced in Heterotaxy Syndrome
    Family Medicine

    Shubhaam Corp

    2863 Delaney Ave, 
    Orlando, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Jan Parrillo is a primary care provider, practicing in Family Medicine in Orlando, Florida. Dr. Parrillo is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and Cirrhosis.

    Experienced in Heterotaxy Syndrome
    Family Medicine
    Experienced in Heterotaxy Syndrome
    Family Medicine

    Shubhaam Corp

    2863 Delaney Ave, 
    Orlando, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Mitul Shah is a primary care provider, practicing in Family Medicine in Orlando, Florida. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are High Cholesterol, Multiple Carboxylase Deficiency, Vitamin B12 Deficiency Anemia, and Folate Deficiency.

    Experienced in Heterotaxy Syndrome
    Thoracic Surgery
    Experienced in Heterotaxy Syndrome
    Thoracic Surgery

    Orlando Health Arnold Palmer Hospital For Children

    92 W Miller St, 
    Orlando, FL 
    Languages Spoken:
    English
    Offers Telehealth

    William Decampli is a Thoracic Surgeon in Orlando, Florida. Dr. Decampli is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Congenital Mitral Stenosis, Atrioventricular Septal Defect, Gastrostomy, and Heart Transplant.

    Experienced in Heterotaxy Syndrome
    Thoracic Surgery
    Experienced in Heterotaxy Syndrome
    Thoracic Surgery

    University Of Miami

    1120 NW 14th St, 
    Miami, FL 
    Languages Spoken:
    English

    Leonardo Mulinari is a Thoracic Surgeon in Miami, Florida. Dr. Mulinari is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Coarctation of the Aorta, Endocardial Cushion Defect, Interrupted Aortic Arch, Partial Atrioventricular Canal, and Heart Transplant.

    Experienced in Heterotaxy Syndrome
    Thoracic Surgery
    Experienced in Heterotaxy Syndrome
    Thoracic Surgery

    University Of Florida Health Jacksonville

    655 W 8th St Fl 5, 
    Jacksonville, FL 
    Languages Spoken:
    English

    Fred Edwards is a Thoracic Surgeon in Jacksonville, Florida. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Aortic Valve Stenosis, Bicuspid Aortic Valve, Heterotaxy Syndrome, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

    Showing 1-20 of 24

    Last Updated: 02/22/2026

    What is the definition of Heterotaxy Syndrome?

    Heterotaxy syndrome is a condition in which the internal organs are abnormally arranged in the chest and abdomen. The term "heterotaxy" is from the Greek words "heteros," meaning "other than," and "taxis," meaning "arrangement." Individuals with this condition have complex birth defects affecting the heart, lungs, liver, spleen, intestines, and other organs.

    When should I see a Heterotaxy Syndrome doctor in Florida, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Heterotaxy Syndrome doctor in Florida, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Heterotaxy Syndrome doctors in Florida, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Heterotaxy Syndrome doctors in Florida, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Heterotaxy Syndrome doctor in Florida, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Heterotaxy Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Heterotaxy Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Heterotaxy Syndrome doctor in Florida, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Heterotaxy Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Heterotaxy Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Heterotaxy Syndrome doctors in Florida, US?

    Look for the filter feature on the left side of the Heterotaxy Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Heterotaxy Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Heterotaxy Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Heterotaxy Syndrome Doctors by city