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    Last Updated: 01/09/2026

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    MediFind found 25 doctor with experience in Heterotaxy Syndrome near Florida, US. Of these, 22 are Experienced and 3 are Advanced.

    Location
    LocationClose
    25 providers found
      Jeffrey Jacobs
      Advanced in Heterotaxy Syndrome
      Thoracic Surgery
      Advanced in Heterotaxy Syndrome
      Thoracic Surgery

      UF Health Congenital Heart Center

      1600 SW Archer Rd, 
      Gainesville, FL 
      Languages Spoken:
      English

      Jeffrey Jacobs is a Thoracic Surgeon in Gainesville, Florida. Dr. Jacobs is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Congenital Heart Disease (CHD), Hypoplastic Left Heart Syndrome (HLHS), Ventricular Septal Defects, Heart Transplant, and Heart Bypass Surgery.

      Advanced in Heterotaxy Syndrome
      Thoracic Surgery
      Advanced in Heterotaxy Syndrome
      Thoracic Surgery

      Office

      3100 SW 62nd Ave Fl 2, 
      Miami, FL 
      Languages Spoken:
      English

      Joseph Forbess is a Thoracic Surgeon in Miami, Florida. Dr. Forbess is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Heterotaxy Syndrome, Total Anomalous Pulmonary Venous Return, Pulmonary Valve Stenosis, Hypoplastic Left Heart Syndrome (HLHS), and Heart Transplant.

      Advanced in Heterotaxy Syndrome
      Family Medicine | Internal Medicine
      Advanced in Heterotaxy Syndrome
      Family Medicine | Internal Medicine

      Florida Department Of Health

      2200 Ringling Blvd, 
      Sarasota, FL 
      Languages Spoken:
      English

      William Heymann is a primary care provider, practicing in Family Medicine and Internal Medicine in Sarasota, Florida. Dr. Heymann is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Heterotaxy Syndrome and Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL).

      Learn about our expert tiers
      Asma M. Khan
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      Johns Hopkins All Children's Hospital

      501 6th Avenue South, 
      Saint Petersburg, FL 
      Languages Spoken:
      English, Urdu
      Offers Telehealth

      Dr. Khan is a pediatric cardiologist who specializes in heart failure and transplantation. She sees patients as part of the Heart Transplant Program at the Johns Hopkins All Children’s Heart Institute. She joined the hospital staff in 2021. Dr. Khan earned her medical degree from Aga Khan University, Medical College in Karachi, Pakistan. She completed a pediatric residency at SUNY Health Science Center in Brooklyn, New York, followed by a fellowship in pediatric cardiology at Icahn School of Medicine at Mount Sinai in New York and a fellowship in pediatric heart failure and transplant at the Ann and Robert H. Lurie Children’s Hospital in Chicago. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Heterotaxy Syndrome, Periodontitis, Congenital Heart Disease (CHD), Pulmonary Atresia, and Heart Transplant.

      Kamal K. Pourmoghadam
      Experienced in Heterotaxy Syndrome
      Experienced in Heterotaxy Syndrome

      Johns Hopkins All Children's Outpatient Care, St. Petersburg

      Saint Petersburg, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Dr. Pourmoghadam specializes in pediatric cardiothoracic surgery at Johns Hopkins All Children’s in St. Petersburg, Florida. He treats patients with congenital heart defects and those in the Esophageal and Airway Treatment Program. He joined the hospital staff in 2022. He is a professor of surgery at the University of Central Florida College of Medicine in Orlando. He has published numerous peer-reviewed articles, authored book chapters and given many talks both nationally and internationally. Dr. Pourmoghadam earned his bachelor’s degree from University of California at Berkeley, and medical degree from Albany Medical College. After finishing his surgical training in New York, he then competed his cardiothoracic surgery fellowship at Jackson Memorial Hospital/University of Miami, followed by a pediatric cardiac surgery fellowship at Seattle Children’s Hospital and Medical Center/University of Washington. Dr. Pourmoghadam is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Atrioventricular Septal Defect, Hypoplastic Left Heart Syndrome (HLHS), Congenital Cardiovascular Shunt, Partial Atrioventricular Canal, and Gastrostomy.

      Experienced in Heterotaxy Syndrome
      Family Medicine
      Experienced in Heterotaxy Syndrome
      Family Medicine

      Janovitz Parrillo Delgado And Shah MD PA

      2863 Delaney Ave, 
      Orlando, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jan Parrillo is a primary care provider, practicing in Family Medicine in Orlando, Florida. Dr. Parrillo is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Cirrhosis. Dr. Parrillo is currently accepting new patients.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      The Nemours Foundation

      6535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Peace Madueme is a Pediatric Cardiologist in Orlando, Florida. Dr. Madueme is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Williams Syndrome, Ventricular Septal Defects, Vascular Ring, and Double Aortic Arch.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      Pediatrix Medical Group Of Florida Inc.

      12295 Taft St, 
      Pembroke Pines,, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Robert Pearson is a Pediatric Cardiologist in Pembroke Pines,, Florida. Dr. Pearson is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Interrupted Aortic Arch, Patent Ductus Arteriosus, Pulmonary Valve Stenosis, and Pulmonary Supravalvular Stenosis.

      Experienced in Heterotaxy Syndrome
      Family Medicine
      Experienced in Heterotaxy Syndrome
      Family Medicine

      Janovitz Parrillo Delgado And Shah MD PA

      2863 Delaney Ave, 
      Orlando, FL 
      Languages Spoken:
      English, Hindi
      Accepting New Patients
      Offers Telehealth

      Mitul Shah is a primary care provider, practicing in Family Medicine in Orlando, Florida. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are High Cholesterol, Vitamin B12 Deficiency Anemia, Multiple Carboxylase Deficiency, and Folate Deficiency. Dr. Shah is currently accepting new patients.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      The Nemours Foundation

      6535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English

      Bahram Kakavand is a Pediatric Cardiologist in Orlando, Florida. Dr. Kakavand is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Familial Neurocardiogenic Syncope, Ectopic Heartbeat, Fainting, and Inappropriate Sinus Tachycardia (IST).

      Experienced in Heterotaxy Syndrome
      Thoracic Surgery
      Experienced in Heterotaxy Syndrome
      Thoracic Surgery

      Orlando Health Arnold Palmer Hospital For Children

      92 W Miller St, 
      Orlando, FL 
      Languages Spoken:
      English
      Offers Telehealth

      William Decampli is a Thoracic Surgeon in Orlando, Florida. Dr. Decampli is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Congenital Mitral Stenosis, Atrioventricular Septal Defect, Gastrostomy, and Heart Transplant.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      Nicklaus Children's Hospital

      3100 SW 62nd Ave, 
      Miami, FL 
      Languages Spoken:
      English

      Danyal Khan is a Pediatric Cardiologist in Miami, Florida. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Pulmonary Arteriovenous Fistula, Pulmonary Arteriovenous Malformation (PAVM), Endocarditis, Embolectomy, and Angioplasty.

      Experienced in Heterotaxy Syndrome
      Thoracic Surgery
      Experienced in Heterotaxy Syndrome
      Thoracic Surgery

      University Of Miami

      1120 NW 14th St, 
      Miami, FL 
      Languages Spoken:
      English

      Leonardo Mulinari is a Thoracic Surgeon in Miami, Florida. Dr. Mulinari is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Coarctation of the Aorta, Endocardial Cushion Defect, Interrupted Aortic Arch, Partial Atrioventricular Canal, and Heart Transplant.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      Drew Schnitt MD PA

      1150 N 35th Ave Ste 490, 
      Hollywood,, FL 
      Languages Spoken:
      English

      Kaimal Jayakumar is a Pediatric Cardiologist in Hollywood,, Florida. Dr. Jayakumar is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Pulmonary Valve Stenosis, Ventricular Septal Defects, Hypoplastic Left Heart Syndrome (HLHS), and DiGeorge Syndrome.

      Experienced in Heterotaxy Syndrome
      Thoracic Surgery
      Experienced in Heterotaxy Syndrome
      Thoracic Surgery

      University Of Florida Health Jacksonville

      655 W 8th St Fl 5, 
      Jacksonville, FL 
      Languages Spoken:
      English

      Fred Edwards is a Thoracic Surgeon in Jacksonville, Florida. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Aortic Valve Stenosis, Bicuspid Aortic Valve, Heterotaxy Syndrome, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology | Pediatrics | Intensive Care Medicine
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology | Pediatrics | Intensive Care Medicine
      3100 Sw 62nd Ave, 
      Miami, FL 
      Languages Spoken:
      English

      Gil Wernovsky is a Pediatric Cardiologist and a Pediatrics provider in Miami, Florida. Dr. Wernovsky is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Transposition of the Great Arteries, Congenital Heart Disease (CHD), Thrombectomy, and Heart Transplant.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      Office

      1611 NW 12th Ave Ste 109, 
      Miami,, FL 
      Languages Spoken:
      English

      Paolo Rusconi is a Pediatric Cardiologist in Miami,, Florida. Dr. Rusconi is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Dilated Cardiomyopathy (DCM), Cardiomyopathy, Pediatric Myocarditis, Restrictive Cardiomyopathy (RCM), and Heart Transplant.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      Nicklaus Children's Hospital

      3100 SW 62nd Ave, 
      Miami,, FL 
      Languages Spoken:
      English

      Utkarsh Kohli is a Pediatric Cardiologist in Miami,, Florida. Dr. Kohli is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Ventricular Tachycardia, Pediatric Myocarditis, Arrhythmias, Cardiac Ablation, and Pacemaker Implantation.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology | Thoracic Surgery
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology | Thoracic Surgery
      3501 Johnson Street, Total Heart Center, 
      Hollywood, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Ming-lon Young is a Pediatric Cardiologist and a Thoracic Surgeon in Hollywood, Florida. Dr. Young is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Atrioventricular Nodal Reentrant Tachycardia (AVNRT), Anomalous Left Coronary Artery from the Pulmonary Artery, Arrhythmias, Thrombectomy, and Cardiac Ablation. Dr. Young is currently accepting new patients.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      Memorial Division Of Pediatric Cardiology

      3377 S State Road 7, 
      Wellington,, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Rowena Uy is a Pediatric Cardiologist in Wellington,, Florida. Dr. Uy is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Heart Murmurs, Patent Ductus Arteriosus, Familial Neurocardiogenic Syncope, and Congenital Coronary Artery Malformation.

      Showing 1-20 of 25

      Last Updated: 01/09/2026

      What is the definition of Heterotaxy Syndrome?

      Heterotaxy syndrome is a condition in which the internal organs are abnormally arranged in the chest and abdomen. The term "heterotaxy" is from the Greek words "heteros," meaning "other than," and "taxis," meaning "arrangement." Individuals with this condition have complex birth defects affecting the heart, lungs, liver, spleen, intestines, and other organs.

      When should I see a Heterotaxy Syndrome doctor in Florida, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Heterotaxy Syndrome doctor in Florida, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Heterotaxy Syndrome doctors in Florida, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Heterotaxy Syndrome doctors in Florida, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Heterotaxy Syndrome doctor in Florida, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Heterotaxy Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Heterotaxy Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Heterotaxy Syndrome doctor in Florida, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Heterotaxy Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Heterotaxy Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Heterotaxy Syndrome doctors in Florida, US?

      Look for the filter feature on the left side of the Heterotaxy Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Heterotaxy Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Heterotaxy Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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