Learn About Hoyeraal Hreidarsson Syndrome
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However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.
University Hospitals Medical Group Inc
Kord Honda is a Dermatologist in Cleveland, Ohio. Dr. Honda is rated as an Advanced provider by MediFind in the treatment of Hoyeraal Hreidarsson Syndrome. His top areas of expertise are Melanoma, Erythroderma, Nakajo-Nishimura Syndrome, and Stiff Skin Syndrome. Dr. Honda is currently accepting new patients.
City Of Hope Medical Foundation
Christiane Querfeld is a Dermatologist in Newport Beach, California. Dr. Querfeld is rated as an Experienced provider by MediFind in the treatment of Hoyeraal Hreidarsson Syndrome. Her top areas of expertise are Mycosis Fungoides, Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, and Sezary Syndrome.
Forefront Dermatology Sc
Kelli Hutchens is a Dermatologist in Manitowoc, Wisconsin. Dr. Hutchens is rated as an Experienced provider by MediFind in the treatment of Hoyeraal Hreidarsson Syndrome. Her top areas of expertise are Melanoma, Actinic Keratosis, Neurocutaneous Melanosis, and Seborrheic Keratosis. Dr. Hutchens is currently accepting new patients.
Summary: The goal of this clinical trial is to learn if a combination therapy of deoxycytidine (dC) plus deoxythymidine (dT) is safe in patients with telomere biology disorders. The main questions it aims to answer are: * Is the therapy safe with tolerable side effects in patients with telomere biology disorders? * Are problems with the bone marrow or blood or lungs changed after 6 months of dC+dT treatmen...