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    Last Updated: 02/22/2026

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    MediFind found 9 doctor with experience in Hydranencephaly near Oregon, US. Of these, 9 are Experienced.

    Location
    LocationClose
    9 providers found
      Experienced in Hydranencephaly
      Pediatric Neurology
      Experienced in Hydranencephaly
      Pediatric Neurology

      Randall Children's Neurology

      501 N Graham St Ste 330A Office, 
      Portland, OR 
      Languages Spoken:
      English

      Jennifer Huffman is a Pediatric Neurologist in Portland, Oregon. Dr. Huffman is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her top areas of expertise are Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, Generalized Tonic-Clonic Seizure, and Absence Seizure.

      Experienced in Hydranencephaly
      Pediatric Neurology
      Experienced in Hydranencephaly
      Pediatric Neurology

      Randall Children's Neurology

      501 N Graham St Ste 330A Office, 
      Portland, OR 
      Languages Spoken:
      English

      Alana Golden is a Pediatric Neurologist in Portland, Oregon. Dr. Golden is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her top areas of expertise are Seizures, Memory Loss, Continuous Spike-Wave During Slow Sleep Syndrome, and Photosensitive Epilepsy.

      Experienced in Hydranencephaly
      Pediatric Neurology
      Experienced in Hydranencephaly
      Pediatric Neurology

      Oregon Health Sciences University

      707 SW Gaines St, 
      Portland, OR 
      Languages Spoken:
      English

      Joseph Pinter is a Pediatric Neurologist in Portland, Oregon. Dr. Pinter is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. His top areas of expertise are Down Syndrome, Neurogenic Bowel, Rett Syndrome, and Neurogenic Bladder.

      Learn about our expert tiers
      Experienced in Hydranencephaly
      Neuroradiology
      Experienced in Hydranencephaly
      Neuroradiology

      OHSU Hospital

      3181 SW Sam Jackson Park Rd, 
      Portland, OR 
      Experience:
      18+ years
      Languages Spoken:
      English

      David Pettersson is a Neuroradiologist in Portland, Oregon. Dr. Pettersson has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Prolactinoma, and Cerebral Arteriovenous Malformation.

      Experienced in Hydranencephaly
      Neurosurgery
      Experienced in Hydranencephaly
      Neurosurgery

      Oregon Health & Science University

      3303 S Bond Ave, 
      Portland, OR 
      Languages Spoken:
      English

      Nathan Selden is a Neurosurgery provider in Portland, Oregon. Dr. Selden is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. His top areas of expertise are Chiari Malformation Type 1, Syringomyelia, Chiari Malformation, Posterior Fossa Decompression, and Craniectomy.

      Experienced in Hydranencephaly
      Radiology
      Experienced in Hydranencephaly
      Radiology

      OHSU Hospital

      3181 SW Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English

      Roya Sohaey is a Radiologist in Portland, Oregon. Dr. Sohaey is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her top areas of expertise are Urachal Cyst, Ectopic Pregnancy, Amniotic Band Syndrome, and Corpus Callosum Agenesis.

      Experienced in Hydranencephaly
      Experienced in Hydranencephaly
      891 23rd St Ne, 
      Salem, OR 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Kimberly Heggen is a Pediatrics provider in Salem, Oregon. Dr. Heggen is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her top areas of expertise are Herpangina, Delayed Growth, Autism Spectrum Disorder, and Developmental Dysphasia Familial. Dr. Heggen is currently accepting new patients.

      Experienced in Hydranencephaly
      Nurse Practitioner
      Experienced in Hydranencephaly
      Nurse Practitioner
      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients

      April Anderson is a Nurse Practitioner in Portland, Oregon. Ms. Anderson is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her top areas of expertise are VLDLR-Associated Cerebellar Hypoplasia, Bilateral Perisylvian Polymicrogyria, Agyria Pachygyria Polymicrogyria, and Lissencephaly 1. Ms. Anderson is currently accepting new patients.

      Experienced in Hydranencephaly
      Pediatric Neurology
      Experienced in Hydranencephaly
      Pediatric Neurology

      Oregon Health Sciences University

      707 SW Gaines St, 
      Portland, OR 
      Experience:
      18+ years
      Languages Spoken:
      English

      Jenny Wilson is a Pediatric Neurologist in Portland, Oregon. Dr. Wilson has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her top areas of expertise are Hereditary Spastic Paraparesis, Spastic Paraplegia Type 7, Aphantasia, and Wolf-Hirschhorn Syndrome.

      Showing 1-9 of 9

      Last Updated: 02/22/2026

      What is the definition of Hydranencephaly?

      Hydranencephaly is a rare condition in which the brain's cerebral hemispheres are absent and replaced by sacs filled with cerebrospinal fluid (CSF). Affected infants may appear and act normal at birth, but irritability and hypertonia often develop within a few weeks. Other signs and symptoms may include seizures, hydrocephalus, visual impairment, lack of growth, deafness, blindness, paralysis, and intellectual disabilities.

      When should I see a Hydranencephaly doctor in Oregon, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Hydranencephaly doctor in Oregon, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Hydranencephaly doctors in Oregon, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Hydranencephaly doctors in Oregon, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Hydranencephaly doctor in Oregon, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hydranencephaly doctor search results page. 

      Why is it important to get a second opinion from a different Hydranencephaly doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Hydranencephaly doctor in Oregon, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Hydranencephaly doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Hydranencephaly doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Hydranencephaly doctors in Oregon, US?

      Look for the filter feature on the left side of the Hydranencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Hydranencephaly doctor that offers video calls?

      Look for the filter feature on the left-side of the Hydranencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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